Lamictal Question

[Guest guest]

Hello all. I have been reviewing the archives and have seen so many

posts on lamictal weaning. It is a scary proposition!!

I thought we would wait a while before starting to wean, but now I

am wondering if the lamictal is part of the problem. Langan is only

on a small dose of lamictal (75 mg a day, at 25mg 3X). We went 16

days seizure free when starting the diet but started having seizures

after that and have had 4 (2 the first night, then one 3 1/2 days

later and then one 2 1/2 days later). This made me think that we

would wait longer for the weaning to begin until I noticed something

very strange- each of these seizures has occurred within 1 1/2 to 2

hours AFTER a lamictal dose. That, to me, raises some red flags.

Am I just dreaming?

We meet with our non-keto neuro today and I want to talk to him

about this. He is the one who put Langan on lamictal and I know

that he thinks it is the drug of the century. He did agree to lower

her to this dose (which is close to half her " therapeutic dose " )

several months ago after much insisting by me. We did a VEEG in

July and Langan was off all medicines and doing so well and with no

seizures. They couldn't get a seizure on the VEEG, unhooked her,

gave her 50mg of lamictal that morning, and she had a seizure that

night. At the time, I thought it was dumb luck. Now I am wondering

if the lamictal could be part of the problem. It is the only drug

Langan is on and we are scared to death to fly without a net but at

the same time what happens if we never get seizure control on the

diet b/c we stay on the lamictal waiting for seizure control?

Should I insist on a slow wean now? Should I wait? Help!!! = )

, mom to Langan