Re: Risperdal?

[Guest guest]

> Does anyone know which supplement might have the same effect as

> Risperdal?

Several parents on enzyme forum have had success removing Risperdal with

enzymes. Might have been other factors also, so you

can post a message there and ask, if you want.

Dana

[Guest guest]

Adequate amounts of vitamin A.

Andy . .. . . .

> Does anyone know which supplement might have the same effect as

> Risperdal?

>

> Thanks,

> e

[Guest guest]

and the Dr wants to put him on it???! Why not geodon or abilify?

Risperdal will more than likely make him gain even more weight.

Maybe the Dr can come up with an alternative??

At 01:27 PM 3/3/2005, you wrote:

That

would be BAD around here! He is already struggling with his weight

due to his endocrine disorder and testosterone shots!!

-Charlotte

Risperdal?

Anyone have a child on this? If yes, can you tell me what it's like and what it was prescribed for?

Thank you..

Donna

[Guest guest]

No no, it was not us that was looking for the info, I just made that comment because it's good to know these types of side effects in the event anyone ever DOES try to put him back on something!!

-Charlotte

Risperdal?

Anyone have a child on this? If yes, can you tell me what it's like and what it was prescribed for?

Thank you.. Donna

[Guest guest]

Donna B wrote:

> Anyone have a child on this? If yes, can you tell me what it's like and

> what it was prescribed for?

>

> Thank you..

> Donna

Louie started this at around 16 and takes it still. He had over the top

rages that he couldn't control, even though he wanted to control them,

and this gave him that control. He gained a lot of weight, but his

assisted living house put him on a low-salt/low-calorie/low-fat diet

with walking & c and he lost all the weight and a bit more besides!

Annie, who loves ya annie@...

--

I am here to live out loud. -- Emile Zola

[Guest guest]

We're just looking at our options..ds's aggression and rages and tantrums are much worse lately and we're at a loss. Last night, for the first time, he hit another child -- it's getting to where we can't go anywhere. Ds is only 34 lbs at 4, doesn't sleep well and doesn't eat well/gain weight (pretty much the same weight for the last year at least) so I wouldn't mind a little weight gain but I'd have to see if it was worth the trade-off.

Re: Risperdal?

and the Dr wants to put him on it???! Why not geodon or abilify? Risperdal will more than likely make him gain even more weight.Maybe the Dr can come up with an alternative??At 01:27 PM 3/3/2005, you wrote:

That would be BAD around here! He is already struggling with his weight due to his endocrine disorder and testosterone shots!! -Charlotte

[Guest guest]

I have two children taking risperdal. It is used for control of anger, aggression, rages, mood swings. One of my children is bi-polar, the other is autistic. It has been great help for both of them.

Patti

Risperdal?

Anyone have a child on this? If yes, can you tell me what it's like and what it was prescribed for?Thank you..

Donna

[Guest guest]

Donna,

My 12yo daughter takes Risperdal. She has done fine with it. My daughter had problems sleeping also. Her neurologist did a PANDA test on her. Your doc can explain that a little bit better, but what it was, was that she had abnormally high strep-b antibodies(NOT the infection). After the test results came back, the doc put her on a round of penicillin & it knocked out the antibody problem & she began to sleep a lot better. Donna B <Donna@...> wrote:

We're just looking at our options..ds's aggression and rages and tantrums are much worse lately and we're at a loss. Last night, for the first time, he hit another child -- it's getting to where we can't go anywhere. Ds is only 34 lbs at 4, doesn't sleep well and doesn't eat well/gain weight (pretty much the same weight for the last year at least) so I wouldn't mind a little weight gain but I'd have to see if it was worth the trade-off.

Re: Risperdal?

and the Dr wants to put him on it???! Why not geodon or abilify? Risperdal will more than likely make him gain even more weight.Maybe the Dr can come up with an alternative??At 01:27 PM 3/3/2005, you wrote:

That would be BAD around here! He is already struggling with his weight due to his endocrine disorder and testosterone shots!! -Charlotte

Celebrate 's 10th Birthday! Netrospective: 100 Moments of the Web

[Guest guest]

I don't find PANDA on the internet other than the obvious. Do you know what it stands for? My ds (8 yrs) doesn't sleep either................ He's having a difficult time right now.

Mom4kody

From: Byington [mailto:froggienoodle@...] Sent: Thursday, March 03, 2005 4:01 PMttyreeSubject: Re: Risperdal?

Donna,

My 12yo daughter takes Risperdal. She has done fine with it. My daughter had problems sleeping also. Her neurologist did a PANDA test on her. Your doc can explain that a little bit better, but what it was, was that she had abnormally high strep-b antibodies(NOT the infection). After the test results came back, the doc put her on a round of penicillin & it knocked out the antibody problem & she began to sleep a lot better. Donna B <Donna@...> wrote:

We're just looking at our options..ds's aggression and rages and tantrums are much worse lately and we're at a loss. Last night, for the first time, he hit another child -- it's getting to where we can't go anywhere. Ds is only 34 lbs at 4, doesn't sleep well and doesn't eat well/gain weight (pretty much the same weight for the last year at least) so I wouldn't mind a little weight gain but I'd have to see if it was worth the trade-off.

Re: Risperdal?

and the Dr wants to put him on it???! Why not geodon or abilify? Risperdal will more than likely make him gain even more weight.Maybe the Dr can come up with an alternative??At 01:27 PM 3/3/2005, you wrote:

That would be BAD around here! He is already struggling with his weight due to his endocrine disorder and testosterone shots!! -Charlotte

Celebrate 's 10th Birthday! Netrospective: 100 Moments of the Web

[Guest guest]

Hi all,

I've been lurking on the list for several weeks, but I'll finally introduce myself. My name is and I have an 8 year old son, , in 2nd grade who has Asperger Syndrome. We also have a 6 year old daughter with Mosaic Down Syndrome. We live in southeastern (Chester County) PA.

At one point, the Developmental Specialists at CHOP (Children's Hospital of Philadelphia) thought had PANDAS.

PANDAS stands for: Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococci (whew!).

You can probably get a bunch of information if you search for that in GOOGLE. I have a copy of an article in front of me that says:

"Criteria for the Diagnosis of PANDAS:

- Presence of obsessive-compulsive disorder and/or tic disorder

- Prepubertal symptom onset

- Episodic course of symptom severity

- Association with group A B-hemolytic streptoccal infection

- Association with neurologic abnormality"

(That is quoted from an article by L. Kaplan, MD, in the August 2000 issue of CONTEMPORARY PEDIATRICS.)

~

Re: Risperdal?

and the Dr wants to put him on it???! Why not geodon or abilify? Risperdal will more than likely make him gain even more weight.Maybe the Dr can come up with an alternative??At 01:27 PM 3/3/2005, you wrote:

That would be BAD around here! He is already struggling with his weight due to his endocrine disorder and testosterone shots!! -Charlotte

Celebrate 's 10th Birthday! Netrospective: 100 Moments of the Web

[Guest guest]

phew! Is right! GEEZ..........

I appreciate the info. I post here and there and not sure if I've intro'd myself..........

My ds is 8 yrs old and in 2nd grade with a wonderful teacher, but the district isn't allowing SPED services for him. He has a dx of Communication Disorder - Asperger's and he is somewhere between NLD and AS from what I've read. I don't know............ just looking for answers just like most everyone else.

My son meets some of the things you listed here and it's worth checking further. He doesn't sleep @ all and has Asthma too. Our old Pulmo used to do nasal smears and would say that he had "some infection" but not usually that noticeable to the GP. So, this is interessting and if it will answer some questions, it's worth checking it out!

Thanks again! I do love VERY MUCH the posts and read them often as possible.

Mom4kody

From: Benoit [mailto:johnanddar@...] Sent: Thursday, March 03, 2005 5:01 PMttyreeSubject: Re: Risperdal?

Hi all,

I've been lurking on the list for several weeks, but I'll finally introduce myself. My name is and I have an 8 year old son, , in 2nd grade who has Asperger Syndrome. We also have a 6 year old daughter with Mosaic Down Syndrome. We live in southeastern (Chester County) PA.

At one point, the Developmental Specialists at CHOP (Children's Hospital of Philadelphia) thought had PANDAS.

PANDAS stands for: Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococci (whew!).

You can probably get a bunch of information if you search for that in GOOGLE. I have a copy of an article in front of me that says:

"Criteria for the Diagnosis of PANDAS:

- Presence of obsessive-compulsive disorder and/or tic disorder

- Prepubertal symptom onset

- Episodic course of symptom severity

- Association with group A B-hemolytic streptoccal infection

- Association with neurologic abnormality"

(That is quoted from an article by L. Kaplan, MD, in the August 2000 issue of CONTEMPORARY PEDIATRICS.)

~

Re: Risperdal?

Donna,

My 12yo daughter takes Risperdal. She has done fine with it. My daughter had problems sleeping also. Her neurologist did a PANDA test on her. Your doc can explain that a little bit better, but what it was, was that she had abnormally high strep-b antibodies(NOT the infection). After the test results came back, the doc put her on a round of penicillin & it knocked out the antibody problem & she began to sleep a lot better. Donna B <Donna@...> wrote:

We're just looking at our options..ds's aggression and rages and tantrums are much worse lately and we're at a loss. Last night, for the first time, he hit another child -- it's getting to where we can't go anywhere. Ds is only 34 lbs at 4, doesn't sleep well and doesn't eat well/gain weight (pretty much the same weight for the last year at least) so I wouldn't mind a little weight gain but I'd have to see if it was worth the trade-off.

-----

[Guest guest]

Terri Tyree wrote:

> My son meets some of the things you listed here and it's worth

> checking further. He doesn't sleep @ all and has Asthma too. Our

> old Pulmo used to do nasal smears and would say that he had " some

> infection " but not usually that noticeable to the GP. So, this is

> interessting and if it will answer some questions, it's worth

> checking it out!

>

> Thanks again! I do love VERY MUCH the posts and read them often as

> possible.

>

> Mom4kody

You might try taking apples and apple products out of his diet. It

worked for Louie (HFA/AS). It seemed something in apples disturbed his

sleep patterns.

Just a thought. And nice to see you!

Annie, who loves ya annie@...

--

I am here to live out loud. -- Emile Zola

[Guest guest]

Terri Tyree wrote:

> My son meets some of the things you listed here and it's worth

> checking further. He doesn't sleep @ all and has Asthma too. Our

> old Pulmo used to do nasal smears and would say that he had " some

> infection " but not usually that noticeable to the GP. So, this is

> interessting and if it will answer some questions, it's worth

> checking it out!

>

> Thanks again! I do love VERY MUCH the posts and read them often as

> possible.

>

> Mom4kody

You might try taking apples and apple products out of his diet. It

worked for Louie (HFA/AS). It seemed something in apples disturbed his

sleep patterns.

Just a thought. And nice to see you!

Annie, who loves ya annie@...

--

I am here to live out loud. -- Emile Zola

[Guest guest]

Hi - My name is . My wife and I are now the first mental

health foster parents in our region. I joined this groups 2 weeks

ago after learning that a 9 year old asperger/autistic boy was to be

placed in our home - I was even asked to sit on the board and help

make the placing decision. I have been impressed by the wealth of

knowledge being shared here - sadly it's been impossible to keep up

with both this group and our newly aquired and very energetic boy.

But this thread is extremely pertinent to us right now. The boy was

on Risperdal and Depakote when he arrived here. After a few days we

noticed that he became much worse an hour after taking his meds. I

am very familiar with Risperdal - I've even taken it myself! I know

it's supposed to calm people, but in his case discontinuing the

Risperdal made him better - I have to defend my decision to stop it

next week and was hoping to find others who have had a similar

experience - It seems however that there is a lot of support for the

med. Since he has been abused quite severly it's possible that the

Asperger/Autism diagnosis is incorrect. Has anyone out there heard

of Risperdal working opposite to its intended affect? I would

apreciate any help I can get. We are still very new to all this.

[Guest guest]

Hi ,

I would assume, as with most meds, if you are trying to treat the wrong thing with a medication, it won't have the intended effect, even having the opposite effect. My son is not hyper so when the Dr. put him on Dexedrine he immediately became hyper AND developed several motor tic's.

If you have a child on a mood stabilizer and the real problem is PTSD or something of that sort, meds obviously reverse physical and emotional trauma right? So, have you looked into EMDR??

-Charlotte

Re: Risperdal?

Hi - My name is . My wife and I are now the first mental health foster parents in our region. I joined this groups 2 weeks ago after learning that a 9 year old asperger/autistic boy was to be placed in our home - I was even asked to sit on the board and help make the placing decision. I have been impressed by the wealth of knowledge being shared here - sadly it's been impossible to keep up with both this group and our newly aquired and very energetic boy.But this thread is extremely pertinent to us right now. The boy was on Risperdal and Depakote when he arrived here. After a few days we noticed that he became much worse an hour after taking his meds. I am very familiar with Risperdal - I've even taken it myself! I know it's supposed to calm people, but in his case discontinuing the Risperdal made him better - I have to defend my decision to stop it next week and was hoping to find others who have had a similar experience - It seems however that there is a lot of support for the med. Since he has been abused quite severly it's possible that the Asperger/Autism diagnosis is incorrect. Has anyone out there heard of Risperdal working opposite to its intended affect? I would apreciate any help I can get. We are still very new to all this.

[Guest guest]

Any medication can work the opposite. I have two kids who can't take adderall. Some people think it is wonderful, my kids became so aggressive on it that I would never let them even try it again. Maybe you haven't received the proper diagnosis yet. Even when you do, sometimes a medicine works great for months or even a year and then all of a sudden stops. This seems to be especially true as the kids near puberty, which a child of 9 will soon be going through alot of hormone changes. I have been a foster parent for 16 years with all types of mental illness. You just need to try things and keep a journal so that you can compare and then down the road remember how a certain drug affected him. Many times it is finding the right mixture and even the right time of day to give it. My 11 year old son was on risperdal for the last 2 years and it worked great, all of a sudden his whole behavior went drastically down. He was taken off the risperdal and is on Lamictal and is a whole new kid.

Good Luck!

Patti H.

Re: Risperdal?

Hi - My name is . My wife and I are now the first mental health foster parents in our region. I joined this groups 2 weeks ago after learning that a 9 year old asperger/autistic boy was to be placed in our home - I was even asked to sit on the board and help make the placing decision. I have been impressed by the wealth of knowledge being shared here - sadly it's been impossible to keep up with both this group and our newly aquired and very energetic boy.But this thread is extremely pertinent to us right now. The boy was on Risperdal and Depakote when he arrived here. After a few days we noticed that he became much worse an hour after taking his meds. I am very familiar with Risperdal - I've even taken it myself! I know it's supposed to calm people, but in his case discontinuing the Risperdal made him better - I have to defend my decision to stop it next week and was hoping to find others who have had a similar experience - It seems however that there is a lot of support for the med. Since he has been abused quite severly it's possible that the Asperger/Autism diagnosis is incorrect. Has anyone out there heard of Risperdal working opposite to its intended affect? I would apreciate any help I can get. We are still very new to all this.

[Guest guest]

One thing you learn rather quickly with autistics is that one size

doesn't necessarily fit all. IOW, what may work with one person, may

not work with another. " Atypicality, thy name is Autism, " is a saying

of mine. You might try, in your justification for removing the med,

tell the board that autistics are atypical even in their reactions to

meds, and that there are other meds that accomplish what they're looking

for in re: Risperdal. Others here can tell you what they are.

Nice to meet you, BTW!

Annie, who loves ya annie@...

--

I am here to live out loud. -- Emile Zola