Lamictal and Keppra questions

[Guest guest]

Lamictal-25mg

1/2 morning and 1/2 evening

She has a 12 week chart to increase dosage

Keppra-250mg each morning and evening

This med to be discontinued once the Lamictal is up to correct dose

Riley age 7 was put on these 2 meds for petit mal seizures. Beginning the 1st day the seizures quit. On the 7th day she had 2 and the last few days she's having more.

Her ADHD is really bad, just like she didn't take any Ritalin at all. She is flat wild, totally out of control.

I think she is getting more tired faster, her eyes are red rimmed, etc. like when a person is exhausted.

She also has separation anxiety now.

When she wakes up it's like she never rested (has always been a problem but seems worse) and her mom wonders if she having seizures at night, is that what's wearing her out worse, and how would Shenan know if that's happening because they are not the thrashing around type of seizures?

Do the seizure meds cancel out the Ritalin? Make her ADHD worse? Is the mito getting worse anyway (seizures and ADHD being mito)? Is her behavior side effects of the seizure meds?

If anyone knows or wants to guess or can tell me your experiences with any of this I'd appreciate it.

Scoggins

[Guest guest]

is on Keppra but she is on so much stuff that i think the keppra is

not working but she is at the end of her Dis. i think everyone is differant

it did not hurt but we did try to take here off it but she started

having problems and we put her back on it but yet she is on alot harder

things than that a friend shannon

[Guest guest]

,

I don't know what to say except- anytime there is a change in " normal

behavior " concurrent with a change in meds, it's time to call the doctor.

Best of luck

Lee

Mom to Red, Ada & Angel Lily

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[Guest guest]

http://www.aesnet.org/AED/index.cfm

A Brain Research Scientist on another site

recommended this site for AEM research. Both Lamictal and Keppra are

listed. Under Keppra, it lists “behavioral abnormalities” as

a serious side effect. I would strongly encourage you to contact the

Neurologist for further input.

I doubt your daughter is on a therapeutic

does of Lamictal yet. However, she could still experience reactions even

though not on therapeutic dose. My son regressed (lost the ability to

sit, roll, and babble) while on Lamictal. I know it was the Lamictal and

not mito since the skills returned when I lowered the dose. Again, my

sons reaction to Lamictal was skill related and not behavioral.

I read stories of people having behavioral

reactions (severe depression among other things) to weaning from Lamictal. I

haven’t read anything regarding behavioral issues to increasing the dose.

Next, I am sure you already know you

cannot just stop these medications cold turkey even if you believe the patient

experiences a poor reaction. You have to wean them. Please don’t

do anything without first discussing with your Neurologist.

On that note, the on-call Neuro tried to

tell me my sons regression was mito related and not the med. However, my son had other reactions

to the Lamictal (severe ataxia and nausea – wouldn’t eat, nearly

dehydrated) so I KNEW it was the lamictal.

Whatever you do TRUST YOUR GUT! You

know your child.

Lastly, there are times we have horrible

choices regarding our childrens health and medications. My son was

vomiting to the point of dehydration. We had to get the vomiting under

control. ALL meds with seizures listed as side effects bring them out for

my son. Sigh… All the anti-vomiting drugs also have seizure

side effects. We did everything we could do to help him before making the

choice for the anti-vomiting meds. He had the seizures and abnormal

EEG. That was when we started the Lamictal. I hated giving my son

one med to counteract the side effects of another med. BUT, I had to do

something. Horrible choices.

Fortunately in our case once we got the

vomiting controlled, we were able to stop both the anti-vomiting drug and the

anti-seizure drug.

Good luck and trust your gut.

Bec

Lamictal

and Keppra questions

Lamictal-25mg

1/2 morning and 1/2 evening

She has a 12 week chart to increase

dosage

Keppra-250mg each morning and

evening

This med to be discontinued once the

Lamictal is up to correct dose

Riley age 7 was put on these 2 meds

for petit mal seizures. Beginning the 1st day the seizures quit. On the 7th day

she had 2 and the last few days she's having more.

Her ADHD is really bad, just like

she didn't take any Ritalin at all. She is flat wild, totally out of control.

I think she is getting more tired

faster, her eyes are red rimmed, etc. like when a person is exhausted.

She also has separation anxiety now.

When she wakes up it's like she

never rested (has always been a problem but seems worse) and her mom wonders if

she having seizures at night, is that what's wearing her out worse, and how

would Shenan know if that's happening because they are not the thrashing around

type of seizures?

Do the seizure meds cancel out the

Ritalin? Make her ADHD worse? Is the mito getting worse

anyway (seizures and ADHD being mito)? Is her behavior

side effects of the seizure meds?

If anyone knows or wants to guess or

can tell me your experiences with any of this I'd appreciate it.

Scoggins

Please contact

mito-owner with any problems or questions.

Your use of

Yahoo! Groups is subject to the Yahoo!

Terms of Service.

[Guest guest]

Lee and Bec,

Thanks for your knowledge. I'll check out the website and Shenan will call the neurologist first thing in the morning. I told her she should call today and someone would be on call. Afterall, it's Children's Hospital and they are always open and I felt also that the doctor should know what was going on. I told her I would ask all of you though. Then tonight she told me she didn't call today. I'm forwarding her these 2 e-mails although I read them to her immediately to remind her and will remind her in the morning too.

Shenan herself always has a hard time thinking and it seems like it's getting worse. I think (hope) it is just the extreme stress. I'm grateful she is close by for me to support her and help the grandkids.

RE: Lamictal and Keppra questions

http://www.aesnet.org/AED/index.cfm

A Brain Research Scientist on another site recommended this site for AEM research. Both Lamictal and Keppra are listed. Under Keppra, it lists “behavioral abnormalities” as a serious side effect. I would strongly encourage you to contact the Neurologist for further input.

I doubt your daughter is on a therapeutic does of Lamictal yet. However, she could still experience reactions even though not on therapeutic dose. My son regressed (lost the ability to sit, roll, and babble) while on Lamictal. I know it was the Lamictal and not mito since the skills returned when I lowered the dose. Again, my sons reaction to Lamictal was skill related and not behavioral.

I read stories of people having behavioral reactions (severe depression among other things) to weaning from Lamictal. I haven’t read anything regarding behavioral issues to increasing the dose.

Next, I am sure you already know you cannot just stop these medications cold turkey even if you believe the patient experiences a poor reaction. You have to wean them. Please don’t do anything without first discussing with your Neurologist.

On that note, the on-call Neuro tried to tell me my sons regression was mito related and not the med. However, my son had other reactions to the Lamictal (severe ataxia and nausea – wouldn’t eat, nearly dehydrated) so I KNEW it was the lamictal.

Whatever you do TRUST YOUR GUT! You know your child.

Lastly, there are times we have horrible choices regarding our childrens health and medications. My son was vomiting to the point of dehydration. We had to get the vomiting under control. ALL meds with seizures listed as side effects bring them out for my son. Sigh… All the anti-vomiting drugs also have seizure side effects. We did everything we could do to help him before making the choice for the anti-vomiting meds. He had the seizures and abnormal EEG. That was when we started the Lamictal. I hated giving my son one med to counteract the side effects of another med. BUT, I had to do something. Horrible choices.

Fortunately in our case once we got the vomiting controlled, we were able to stop both the anti-vomiting drug and the anti-seizure drug.

Good luck and trust your gut.

Bec

-----Original Message-----From: Sent: Sunday, May 11, 2003 11:36 AMTo: Mito Subject: Lamictal and Keppra questions

Lamictal-25mg

1/2 morning and 1/2 evening

She has a 12 week chart to increase dosage

Keppra-250mg each morning and evening

This med to be discontinued once the Lamictal is up to correct dose

Riley age 7 was put on these 2 meds for petit mal seizures. Beginning the 1st day the seizures quit. On the 7th day she had 2 and the last few days she's having more.

Her ADHD is really bad, just like she didn't take any Ritalin at all. She is flat wild, totally out of control.

I think she is getting more tired faster, her eyes are red rimmed, etc. like when a person is exhausted.

She also has separation anxiety now.

When she wakes up it's like she never rested (has always been a problem but seems worse) and her mom wonders if she having seizures at night, is that what's wearing her out worse, and how would Shenan know if that's happening because they are not the thrashing around type of seizures?

Do the seizure meds cancel out the Ritalin? Make her ADHD worse? Is the mito getting worse anyway (seizures and ADHD being mito)? Is her behavior side effects of the seizure meds?

If anyone knows or wants to guess or can tell me your experiences with any of this I'd appreciate it.

Scoggins

Please contact mito-owner with any problems or questions.

[Guest guest]

WOW! Bec, I just got some really unbelievable information off the site you sent me to. The unexplained sudden laughing from some of the kids, different types of seizures, and the Lennox-Gestaut syndrome which really scares me now so I hope I'm not seeing what we're seeing in Riley with the behaviors and the learning problems getting worse, aggression, and all the rest.

RE: Lamictal and Keppra questions

http://www.aesnet.org/AED/index.cfm

A Brain Research Scientist on another site recommended this site for AEM research. Both Lamictal and Keppra are listed. Under Keppra, it lists “behavioral abnormalities” as a serious side effect. I would strongly encourage you to contact the Neurologist for further input.

I doubt your daughter is on a therapeutic does of Lamictal yet. However, she could still experience reactions even though not on therapeutic dose. My son regressed (lost the ability to sit, roll, and babble) while on Lamictal. I know it was the Lamictal and not mito since the skills returned when I lowered the dose. Again, my sons reaction to Lamictal was skill related and not behavioral.

I read stories of people having behavioral reactions (severe depression among other things) to weaning from Lamictal. I haven’t read anything regarding behavioral issues to increasing the dose.

Next, I am sure you already know you cannot just stop these medications cold turkey even if you believe the patient experiences a poor reaction. You have to wean them. Please don’t do anything without first discussing with your Neurologist.

On that note, the on-call Neuro tried to tell me my sons regression was mito related and not the med. However, my son had other reactions to the Lamictal (severe ataxia and nausea – wouldn’t eat, nearly dehydrated) so I KNEW it was the lamictal.

Whatever you do TRUST YOUR GUT! You know your child.

Lastly, there are times we have horrible choices regarding our childrens health and medications. My son was vomiting to the point of dehydration. We had to get the vomiting under control. ALL meds with seizures listed as side effects bring them out for my son. Sigh… All the anti-vomiting drugs also have seizure side effects. We did everything we could do to help him before making the choice for the anti-vomiting meds. He had the seizures and abnormal EEG. That was when we started the Lamictal. I hated giving my son one med to counteract the side effects of another med. BUT, I had to do something. Horrible choices.

Fortunately in our case once we got the vomiting controlled, we were able to stop both the anti-vomiting drug and the anti-seizure drug.

Good luck and trust your gut.

Bec

-----Original Message-----From: Sent: Sunday, May 11, 2003 11:36 AMTo: Mito Subject: Lamictal and Keppra questions

Lamictal-25mg

1/2 morning and 1/2 evening

She has a 12 week chart to increase dosage

Keppra-250mg each morning and evening

This med to be discontinued once the Lamictal is up to correct dose

Riley age 7 was put on these 2 meds for petit mal seizures. Beginning the 1st day the seizures quit. On the 7th day she had 2 and the last few days she's having more.

Her ADHD is really bad, just like she didn't take any Ritalin at all. She is flat wild, totally out of control.

I think she is getting more tired faster, her eyes are red rimmed, etc. like when a person is exhausted.

She also has separation anxiety now.

When she wakes up it's like she never rested (has always been a problem but seems worse) and her mom wonders if she having seizures at night, is that what's wearing her out worse, and how would Shenan know if that's happening because they are not the thrashing around type of seizures?

Do the seizure meds cancel out the Ritalin? Make her ADHD worse? Is the mito getting worse anyway (seizures and ADHD being mito)? Is her behavior side effects of the seizure meds?

If anyone knows or wants to guess or can tell me your experiences with any of this I'd appreciate it.

Scoggins

Please contact mito-owner with any problems or questions.

[Guest guest]

Hi , My daughter has been taking Keppra since last July with no ill

effects.(She also has taken phenobarbitol for the past 3 1/2 yrs with

multiple side effects) Her neuro did ask us at her last appt is she was

irritable at all, that was a possible side effect of Keppra.

If you would like more info on the meds, www.rxlist.com is a good place

to start. Good luck!

e, Chelsea's mom(nonspecific mito)

[Guest guest]

Dear linda my name is shannon i really dont know if i have mailed you befor

but was on Keppr for 5 monthes and befor she got real bad into the

dis. she was very irritable with the keppra !! your friend shannon

[Guest guest]

Glad it helped.

Bec

Re: Lamictal and

Keppra questions

WOW! Bec, I just got some really

unbelievable information off the site you sent me to. The unexplained sudden

laughing from some of the kids, different types of seizures, and the

Lennox-Gestaut syndrome which really scares me now so I hope I'm not seeing

what we're seeing in Riley with the behaviors and the learning problems getting

worse, aggression, and all the rest.

Lamictal and

Keppra questions

Lamictal-25mg

1/2 morning and 1/2 evening

She has a 12 week chart to increase

dosage

Keppra-250mg each morning and

evening

This med to be discontinued once the

Lamictal is up to correct dose

Riley age 7 was put on these 2 meds

for petit mal seizures. Beginning the 1st day the seizures quit. On the 7th day

she had 2 and the last few days she's having more.

Her ADHD is really bad, just like

she didn't take any Ritalin at all. She is flat wild, totally out of control.

I think she is getting more tired

faster, her eyes are red rimmed, etc. like when a person is exhausted.

She also has separation anxiety now.

When she wakes up it's like she

never rested (has always been a problem but seems worse) and her mom wonders if

she having seizures at night, is that what's wearing her out worse, and how

would Shenan know if that's happening because they are not the thrashing around

type of seizures?

Do the seizure meds cancel out the

Ritalin? Make her ADHD worse? Is the mito getting worse anyway (seizures and

ADHD being mito)? Is her behavior side effects of the seizure meds?

If anyone knows or wants to guess or

can tell me your experiences with any of this I'd appreciate it.

Scoggins

Please contact mito-owner with any

problems or questions.

Your use of

Yahoo! Groups is subject to the Yahoo!

Terms of Service.

Please

contact mito-owner with any problems or questions.

Your use of

Yahoo! Groups is subject to the Yahoo!

Terms of Service.

Please contact

mito-owner with any problems or questions.

Your use of

Yahoo! Groups is subject to the Yahoo!

Terms of Service.

[Guest guest]

Thanks e, I'll check it out and tell Shenan to also.

Re: Lamictal and Keppra questions

> Hi , My daughter has been taking Keppra since last July with no ill

> effects.(She also has taken phenobarbitol for the past 3 1/2 yrs with

> multiple side effects) Her neuro did ask us at her last appt is she was

> irritable at all, that was a possible side effect of Keppra.

> If you would like more info on the meds, www.rxlist.com is a good

place

> to start. Good luck!

>

> e, Chelsea's mom(nonspecific mito)

>

>

> Please contact mito-owner with any problems or questions.

>

>

[Guest guest]

,

I got this post and the one where you said she got irritable. Thanks. I'll

tell my daughter Shenan.

How are you doing? What did the nurse or doctor say about spitting up

the brown and black stuff and what did they do about it?

Re: Lamictal and Keppra questions

> is on Keppra but she is on so much stuff that i think the keppra is

> not working but she is at the end of her Dis. i think everyone is

differant

> it did not hurt but we did try to take here off it but she started

> having problems and we put her back on it but yet she is on alot harder

> things than that a friend shannon

>

>

>

> Please contact mito-owner with any problems or questions.

>

>

[Guest guest]

They have taken her off the lasic and her milk it was old blood that she had

been spitting up and come to find out she has been pooping it out to it is

where there is so much flood on her body that it is just horriable for her to

eat they said it was to much for her body to intake with all the fluids on

her she will be even more misurable with the food so we took her off all of

her liquids i still take a sponge and wet her little lips they are cracked

and bloody and her eyes leak all the time it is the fluid coming out and they

told me if she gets to much her skin would be really cracked and the she

would leak fluids so i stop all the fluids i dont want to see her like that

she looks bad enough i hope your doing okay ! please let me know if there is

anything i can talk with you about and thanks for wiriting me love and god

bless you shannon