Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 Debbie, Is your son taking enzymes now? Are you planning to start enzymes? I ask because although my daughter did take SuperNuThera P5P for awhile, she could no longer tolerate/didn't need it once we started enzymes. She did show improvement on it when she started it...although not as much as TMG. There were times she didn't take the SNT when she was sick and such and she would regress, but this did not happen once on enzymes. She only takes a tiny dose of B6 now- all she can handle and needs. All kids are different...some need supplements, some cannot handle them at all, dosing varies. You would have to just start slowly with your child on one at a time to see what he can handle. If your child has phenol issues the SNT could pose a problem...my daughter had this spring up just before enzymes...she was having alot of night waking. Good luck. --- In , Moyerhomeschool3@a... wrote: > Hi all. I have a question about supplements. Actually a lot. Does anyone use > any of the Super Nu stuff from Kirkman`s? If so, which would you > recommend(there are so many to choose from) and why? I have not started using > any B vitamins with my son. Is it just B6 that is good or are all the B > vitamins important for autistic kids? What kind of good stuff do you see from > B vitamins and what are the negative side effects? Also how much would you > recommend for a 7 year old who is 43 lbs? > Also, has anyone used the yeast control stuff from Kirkman`s on a regular > basis? And what did you think of it? I am thinking of buying that or > something similar. Any advice? Thanks. > Debbie in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 >>>>I have not started using any B vitamins with my son. Is it just B6 that is good or are all the B vitamins important for autistic kids? I think the high B stuff is highly overrated. It is only beneficial for a minority of the kids and many get really sick from it, and it can possibly trigger seizures (yea, I know, one of the autism industries little unpolitically correct secrets, but true). I would suggest making that one of the LAST things to try. There is accumulated research from thousands of families over several decased showing that whatever vitamin or diet or med you choose, about 1/3 at least will show some improvement on it. some will not and some regress. I think the point of this is that some people are so nutritionally deficient that whatever you start with first, you will see some improvement with. I suggest starting with enzymes first because with enzymes you get lots of nutrition from your food and don't need most of that other stuff. Many families, including ours, discontinue most all of the other supplements except a few basic ones. Most people using high B vitamins end up tossing those first because they are one of the few that can really be detrimental at high doses. So if you do enzymes first, you really streamline the other stuff. Makes things easier. >>>>What kind of good stuff do you see from B vitamins and what are the negative side effects? Negatives are nerve damage, tingling, a few people develop seizuring, B vitamins are known to upset the stomach too...most of these stop as soon as the high b is stopped. This doesn't mean not to get a multivitamin with a typical dose of B or something a little more, just not that massive doses some people say that those with autism " need " . As an adult I would get ill on anything over 25 mg/day I haven't looked at anything for yeast except grapefruit seed extract and No-Fenol. We do not have excessive yeast problems though. If I had to choose individual supplements to start, it would be magnesium and zinc. Those seem to cover a great deal of territory on their own. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 I used SNT, liked it a lot. But with the HNI enzymes i was advised not to, so I switched to ARG multivitamin w/o iron or copper. You need B-6 in higher doses than the other B's but you need other B's. Also magnesium. And you can't OD on magnesium so go for quite a bit. I'm v. bad bc I forget the mag. all the time. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 Super Nu Thera was the first thing we ever tried that actually helped, and it helped A LOT. So I would recommend trying it if you are considering it. The kids benefit from all the B vitamins, but B6 seems to help certain kids tremendously. I'd get the hypoallergenic kind of Super Nu Thera with P5P, in the powder form. We mixed it into a liquid with fruit syrup (from the maple syrup aisle) and gave it with a medicine syringe. Tasted quite good, much better than their liquid kind, I think. They will send you dosage info, but you should start at 1/4 the dose for his weight and work up VERY slowly, increasing every couple days and watch for how much is enough. For us, we saw him start improving very quickly and his 'best' dosage was 3/4 or so of the 'full' dose, too much and he'd get real hypped up. My guy did pretty well on Super Nu Thera and does even better now on Brainchild supplements, which is what we switched to a few years ago. Good luck. Terri At 07:16 PM 1/22/2003 -0500, you wrote: >Hi all. I have a question about supplements. Actually a lot. Does anyone use >any of the Super Nu stuff from Kirkman`s? If so, which would you >recommend(there are so many to choose from) and why? I have not started using >any B vitamins with my son. Is it just B6 that is good or are all the B >vitamins important for autistic kids? What kind of good stuff do you see from >B vitamins and what are the negative side effects? Also how much would you >recommend for a 7 year old who is 43 lbs? >Also, has anyone used the yeast control stuff from Kirkman`s on a regular >basis? And what did you think of it? I am thinking of buying that or >something similar. Any advice? Thanks. >Debbie in PA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 > > I'm v. bad bc I forget the mag. all the time. > > Marti ****When you supp mag, do you have to supp calcium also ? -Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 > Hi all. I have a question about supplements. Actually a lot. Does anyone use > any of the Super Nu stuff from Kirkman`s? If so, which would you > recommend(there are so many to choose from) and why? I have not started using > any B vitamins with my son. Is it just B6 that is good or are all the B > vitamins important for autistic kids? Is your child gfcf? If so, you will still probably need to supplement B vitamins, even if you use enzymes. But you probably won't need the high B. I would personally recommend you start with the hypoallergenic NuThera, instead of SNT, because it does appear that more kids tolerate that one. Start very low dose to see if your child tolerates it, then work up to an acceptable level which will probably be less than the recommended level. You can also just give a standard multivitamin, especially one formulated for celiac kids. If your child is not gfcf, then using enzymes generally, altho not always, means that you won't need high B, and you can use a low dose of NuThera, or just a multivitamin, or even no vitamin at all. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 In a message dated 23/1/03 12:02:58 pm, fstatum@... writes: > ****When you supp mag, do you have to supp calcium also ? > That depends on how much is in their diet. I understand they compete w/each other and have never really understood ! Wierdly, even though nicky was dairy free he was high in calcium when a blood test was done, some years ago. Good question. maybe somene else will answer it better! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 In a message dated 23/1/03 4:13:20 pm, tmykland@... writes: > does even better now on > Brainchild supplements, which is what we switched to a few years ago. Good > luck. > But I understand there are problems ordering these. Anyone have tips on how to get them? marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 My son is on the liquid SNT now he has done wonderful as well on it, but the liquid taste like s**t, really bad, I tryed it, we try to hide it in stuff but it's just too nasty, but works so well and is expensive so he will have to deal with it until it's gone.... Barbara Re: questions about supplements Super Nu Thera was the first thing we ever tried that actually helped, and it helped A LOT. So I would recommend trying it if you are considering it. The kids benefit from all the B vitamins, but B6 seems to help certain kids tremendously. I'd get the hypoallergenic kind of Super Nu Thera with P5P, in the powder form. We mixed it into a liquid with fruit syrup (from the maple syrup aisle) and gave it with a medicine syringe. Tasted quite good, much better than their liquid kind, I think. They will send you dosage info, but you should start at 1/4 the dose for his weight and work up VERY slowly, increasing every couple days and watch for how much is enough. For us, we saw him start improving very quickly and his 'best' dosage was 3/4 or so of the 'full' dose, too much and he'd get real hypped up. My guy did pretty well on Super Nu Thera and does even better now on Brainchild supplements, which is what we switched to a few years ago. Good luck. Terri At 07:16 PM 1/22/2003 -0500, you wrote: >Hi all. I have a question about supplements. Actually a lot. Does anyone use >any of the Super Nu stuff from Kirkman`s? If so, which would you >recommend(there are so many to choose from) and why? I have not started using >any B vitamins with my son. Is it just B6 that is good or are all the B >vitamins important for autistic kids? What kind of good stuff do you see from >B vitamins and what are the negative side effects? Also how much would you >recommend for a 7 year old who is 43 lbs? >Also, has anyone used the yeast control stuff from Kirkman`s on a regular >basis? And what did you think of it? I am thinking of buying that or >something similar. Any advice? Thanks. >Debbie in PA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 In a message dated 1/23/2003 10:24:18 AM Eastern Standard Time, writes: > If your child is not gfcf, then using enzymes generally, altho not > always, means that you won't need high B, and you can use a low dose > of NuThera, or just a multivitamin, or even no vitamin at all. > > Dana, He is cf, not gf, although he is a very picky eater. He won`t eat any meat or vegetables. He is basically a bread and fruit person. Would you still recommend I stay away from B vitamins? Thanks. Debbie in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 In a message dated 1/23/2003 10:24:18 AM Eastern Standard Time, writes: > >>At first, I was giving with > > gfse, and after 2 days of horrible behavior, he was wonderful. Then > when I > > stopped the gfse (used for 6 days), after a few days he was > horrible. That > > never lessened or changed. So, after 2 weeks I gave it up. With the > gfse, he > > was getting 1/3 capsule Nf per meal and was great. > > > I would suggest you continue with GSE or oil of oregano, it sounds > like your son has a major problem with yeast. So long as he does have > yeast, and tolerates the GSE, you can continue with GSE. It is only > when he does NOT have yeast will GSE aggravate bacteria, at least in > my family's experience. If you don't want to use GSE, consider oil of > oregano. > > Dana > Dana, If I start giving the oil of oregano, should I add the NF back with it or wait awhile. And what dosage would I use and how often? If I decide to go back with the gfse, how can I tell when he doesn`t have the yeast anymore. I am really new at this. Last time I went by the fact that he was doing better. But then when I stopped it, he got worse. Would it be better to use a yeast control supplement all the time, as I think yeast will be a major problem for him. As in my previous post, he eats mostly breads, high carbo, and fruits. He doesn`t get much protein, as he doesn`t like meats. He is a very picky eater, so if I went low-carbs, I don`t know what he would eat. I`d appreciate any suggestions. Thanks. Debbie in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 Hi, What might be the problem with using SNT with HNI enzymes????? Pam At 04:35 AM 1/23/2003 -0500, you wrote: >I used SNT, liked it a lot. But with the HNI enzymes i was advised not to, >so I switched to ARG multivitamin w/o iron or copper. > >You need B-6 in higher doses than the other B's but you need other B's. > >Also magnesium. And you can't OD on magnesium so go for quite a bit. > >I'm v. bad bc I forget the mag. all the time. > >Marti > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 >>> What might be the problem with using SNT with HNI enzymes????? I don't think it was meant as a specific problem with SNT and HNI by these brands only (and I apologize if I spooked anyone too much on this). It is just ANY high B supplement can be a problem because it affects the nervous system and we are dealing with people with highly sensitive nervous systems. The SNT has a very high B6 amount. But there may be a NuThera that has a 'typical' amount that would not be a problem. Some people do benefit from higher B vitamins but this should really be per the recommendation of a doctor (any mega-dose should actually IMO). What happens is that any good enzyme product will be making more nutrients available from food and supplements, and they help the body absorb more too. So when you start enzymes, you may not need all those extra supplements because your body is getting the nutrition from food (as it should be doing). Now the extras may cause an over-dose of the vitamins, thus you see the adverse reactions. Usually simply removing the supplements fixes the problem. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 What would be a typical adverse reaction? At 05:23 AM 1/24/2003 +0000, you wrote: > >>> What might be the problem with using SNT with HNI enzymes????? > >I don't think it was meant as a specific problem with SNT and HNI by >these brands only (and I apologize if I spooked anyone too much on >this). > >It is just ANY high B supplement can be a problem because it affects >the nervous system and we are dealing with people with highly >sensitive nervous systems. The SNT has a very high B6 amount. But >there may be a NuThera that has a 'typical' amount that would not be >a problem. Some people do benefit from higher B vitamins but this >should really be per the recommendation of a doctor (any mega-dose >should actually IMO). > >What happens is that any good enzyme product will be making more >nutrients available from food and supplements, and they help the >body absorb more too. So when you start enzymes, you may not need >all those extra supplements because your body is getting the >nutrition from food (as it should be doing). Now the extras may >cause an over-dose of the vitamins, thus you see the adverse >reactions. Usually simply removing the supplements fixes the >problem. > >. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 What happens is that any good enzyme product will be making more nutrients available from food and supplements, and they help the body absorb more too. So when you start enzymes, you may not need all those extra supplements because your body is getting the nutrition from food (as it should be doing). I mentioned this to Dana as to why perhaps her children do not need all the extra vitamins, etc even on chelation. They are getting more from food with enzymes than other children chelating without enzymes and especially chelating without enzymes and gfcf. Just a thought... --- In , " jornmatt <kjorn@t...> " <kjorn@t...> wrote: > >>> What might be the problem with using SNT with HNI enzymes????? > > I don't think it was meant as a specific problem with SNT and HNI by > these brands only (and I apologize if I spooked anyone too much on > this). > > It is just ANY high B supplement can be a problem because it affects > the nervous system and we are dealing with people with highly > sensitive nervous systems. The SNT has a very high B6 amount. But > there may be a NuThera that has a 'typical' amount that would not be > a problem. Some people do benefit from higher B vitamins but this > should really be per the recommendation of a doctor (any mega-dose > should actually IMO). > > What happens is that any good enzyme product will be making more > nutrients available from food and supplements, and they help the > body absorb more too. So when you start enzymes, you may not need > all those extra supplements because your body is getting the > nutrition from food (as it should be doing). Now the extras may > cause an over-dose of the vitamins, thus you see the adverse > reactions. Usually simply removing the supplements fixes the > problem. > > . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 > Dana, > He is cf, not gf, although he is a very picky eater. He won`t eat any meat or > vegetables. He is basically a bread and fruit person. Would you still > recommend I stay away from B vitamins? The B vitamins are in the gluten. If he is eating glutens, then you probably won't need as much, if any, extra B supplementation. Altho some kids do, just not so much as if they were not using enzymes. So if you want to try supplementing B, start with RDA and work up slowly. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 > Dana, > If I start giving the oil of oregano, should I add the NF back with it or > wait awhile. Oregano is high phenol, so you might want to use it with NF, altho I don't know if NF will address oregano phenols, because it does not address ALL phenols for my kids. >> And what dosage would I use and how often? I don't know, I have never used it. I have read messages from others that you don't need as much as you do of GSE. But my standard recommendation still applies, start with one drop [or low dose] in the morning to see how your child tolerates it. >> If I decide to go > back with the gfse, how can I tell when he doesn`t have the yeast anymore. For my kids, the bms change and the behaviors are better. http://www.danasview.net/yeast.htm > But then when I stopped it, he got worse. Would it be better to use a yeast > control supplement all the time, as I think yeast will be a major problem for > him. I used it for many months, all the time, until chelating the metals allowed my son's body to keep yeast in balance by itself. >> As in my previous post, he eats mostly breads, high carbo, and fruits. All will feed yeast, so you will probably need to use an active yeast killer like GSE every day. > He doesn`t get much protein, as he doesn`t like meats. He is a very picky > eater, so if I went low-carbs, I don`t know what he would eat. Once the yeast is gone, he might expand his choices. He might limit to these items because the yeast are craving them. Just a thought. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 > > >>> What might be the problem with using SNT with HNI enzymes????? > > > >I don't think it was meant as a specific problem with SNT and HNI by > >these brands only (and I apologize if I spooked anyone too much on > >this). > > > >It is just ANY high B supplement can be a problem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 > where do you buy RDA?? i think she means start w/ recommended daily allowance..... > > > >if you want to try supplementing B, start with RDA and work up slowly. > > > >Dana > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 where do you buy RDA?? At 03:02 PM 1/24/2003 +0000, you wrote: > > > > Dana, > > He is cf, not gf, although he is a very picky eater. He won`t eat >any meat or > > vegetables. He is basically a bread and fruit person. Would you >still > > recommend I stay away from B vitamins? > > >The B vitamins are in the gluten. If he is eating glutens, then you >probably won't need as much, if any, extra B supplementation. Altho >some kids do, just not so much as if they were not using enzymes. So >if you want to try supplementing B, start with RDA and work up slowly. > >Dana > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2003 Report Share Posted December 12, 2003 Hello all. I would like some opinions on brands that are liked and which brands to stay away from for EFA. How about dosages according to weight? I am getting ready to buy Olive Leaf Extract, which is preferred liquid or capsules? How about dosage? Thanks in advance. Tina B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 I would reluctant to generalize like this. To put all your eggs in one basket is unwise but there are a few brands out there that carry good single supplements. Most are manufactures by three vitamin warehouses around the US. It is the encapsulation that matters (the fillers that can help tumors grow, etc.). At one time or another on this 20-year journey, there were great brands that turned lesser because of changes in the company that no one but a few insiders who chose to share information knew. Every 3-6 months your immune system chooses to outsmart the things you are using. It is this way with chemo or natural products. It is up to us to be on guard! Blessings, Johanne From: cheryl Sent: Thursday, September 25, 2008 7:26 PM Subject: [ ] Questions about supplements I hear a lot use NOW products. I was told by my naturopath that they were not the best quality. What are your opinions? Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Hello cheryl, I can't speak for all of their product line, but I've used a number of their products and believe they are of high quality. Mike Friday, September 26, 2008, 6:17:27 AM, you wrote: c> Cheap money wise I know. Cheap quality? c> Cheri c> " jrrjim " wrote: c> They're cheap. c> c> " cheryl " wrote: c> I hear a lot use NOW products. I was told by my naturopath that they c> were not the best quality. What are your opinions? c> c> Cheri -- Best regards, Mike mailto:goldenmike@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Thank you. Perhaps it could be that they are pretty much limited in who they sell through? Like your general health food store doesn't carry them? I have only seen them in discount stores. Cheri > > Hello cheryl, > > I can't speak for all of their product line, but I've used a number > of their products and believe they are of high quality. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 I have heard pro and con re NOW.. If anyone knows of any knowledgable people at healthfood/vitamin stores, one could ask them, preferably at several different stores, and decide As an aside, Dr Blaylock, in his " Preventing Cancer " reports says some things I have not heard before. a) Gelatin capsules contain MSG,and can cause cancer, so to avoid them dairy can cause cancer.. he may be referring to commercial dairy,because of the hormones, etc, I am not sure c) calcium can cause cancer, esp prostate cancer.. I am just passing this along.. I don't claim to know this is the definitive word on these things, but he has treated many cancer pts successfully..he's a retired neurosurgeon, who repudiates chemo, etc..says it has a low succes rate, and ays " ask your onco if THEY would get chemo " , n dif they are honest they'd say " no way " . Thers an interview with him in Suzanne Sommers new book " Breakthrough " From: cheryl Yes I use several brands but the NOW one suprises me Quote Link to comment Share on other sites More sharing options...
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