Re: New Member mitzi525@...

[Guest guest]

In a message dated 10/6/2003 7:16:39 PM Eastern Standard Time,

mitzi525@... writes:

> Yes, he doesn't have any known cause for the seizures and so he may grow

> out of them, however, he has tried Lamictal and now is on Topomax and neither

> of them seemed or seem to be working plus I am uncomfortable with the fact

> that they are relatively new drugs and there aren't alot of known long-term

> effects, not to mention that I think his personality is being compromised a

bit.

> Cranky, extremely tired.

>

Hi! I just had to comment on your comment " I think his personality is being

compromised a bit. "

My daughter , just turned 6, and has absence seizures. Prior to

starting the diet in May of 2003, she had been on AED's (zarontin, topomax,

depakote, lamictal and felbatol) since the age of 18 months. We finally

convinced the

neuro to refer us to a clinic that supported the diet. Prior to starting the

diet we weaned her from all of her Meds against our neuro's advice. Our

instinct was telling us that the meds weren't doing anything for seizure

control.

We always got the standard answer - You don't know how many she would have

without the meds. The difference in her personality now compared to when she

was on meds is unbelievable. She is a lot more outgoing, more social and just

such a joy. She had been on meds from such a young age that we didn't even

know the real . Her teachers, friends and family have all commented on

the

total turn around in her personality post meds. (Esp. Topomax when she was a

complete zombie.

The diet hasn't helped with control either but we now have a bright,

energetic little girl that is such a blessing to us. I will always be grateful

that

we tried the diet because it gave my husband and I the " guts " to take her off

her meds. And as far as the diet being hard or strict, it was well worth the

effort. The meal ideas we got from this list serv have been wonderful and has

allowed to be 100% compliant and allowed us to know that we gave it our

best effort. The pizza recipe and the eggbeater/oil combo for " breadlike "

products has been a life saver.

Beth, mom to