growth hormone -cindy

[Guest guest]

HI - dragging an oldish post out the archives here, hoping you

can help me....

I think I read in another post that your endo appt was about now?

Wondered if you had the results of the bone age x-ray yet, or other

bloods, and whether you are going to go ahead with the growth

hormone shots.

had his GH tested when he was an inpatient a few weeks ago,

but apparently there was insufficient blood taken for the test - so

no result, has to be retested. Grr.

His bone age x-ray (done 3 weeks ago at the same time) has come back

as nearly 2 yrs behind his chronological age (gulp), so they are

arranging a retest for GH, then I guess we wait for someone to tell

us if this could simply (!) be diet related. I am suspecting not,

(poss aggravated by tho) as bone age was done a yr before he started

the diet, (so 3 yrs ago now) and he was already 9 mths behind

chronological age back then, despite being 90-95th percentile for

height.

Also wondered - Do you see any sort of abnormal fat distribution?(ie

excess round face/tummy), and whether cortisol levels have ever been

checked. This abnormal distribution was apparent with way

before the diet, actually it started showing about 3 mths before his

first seizure at age 3 and a half (he is now nearly 7), so as you

can imagine - brain working overtime here tyring to put it all

together..

Copying this to your private email as well, hope that's ok, but I

don't think you are reading keto all the time, and wanted to catch

you while I can so I can get a heads up maybe before our next endo

discussion

Thanx,

PS - My dietican tells me that she thinks the down side to the GH

shots whilst on the diet would be that they raise glucose levels,

which obviously would be a bit of a problem with ketones, esp with

, as his glucose is already too high.

>

> Have you done anything beyond the first level of

> > screening? There is more involved testing that they will

> > do, bone age x-rays, etc, before giving her growth

> > hormone shots.

> >

> > Patti

>

> Bone age x-rays were also done, but I'm not sure what other

> bloodwork was run. I am concerned how the GH shots would

> affect seizures, if at all. My physician told me they are

> pretty benign, but I'm cautious when they say that!I know

> I'm jumping the gun, as she hasn't even seen the endo yet.

>

[Guest guest]

Hi ,

Got 's IgF result, and as expected, it was low. Ref range for 6 yr olds is

88-474, his is 51

Endo taking a 'wait and see' approach, wanting to retest in a few months after a

follow up dexa scan to see if his fat/mass distribution has improved. Same goes

for cortisol, he said he is going to do a 24 hr urine to see what is going on

there, whether related etc. Not happy with this, I am so not a wait and see type

person, but - he also said that in his opinion both tests should be done after

has been taken off the diet for a month to make sure the results are not

being affected by it. Er, not happy with this either, so trying to decide our

next move. No recommendation for a follow up MRI was forthcoming, will be

emailing our neuro next week to see if he thinks one is warranted,