Biotin ??s - mito cocktail

[Guest guest]

Hi folk,

It has been awhile since I posted.

I have a little guy that is 22 months old with Complex II deficiency.

We carbo load him every night. He gets 150 mg CoQ10, 7.5 mg

Carnitine, and a daily multi vit. (The coq and carnitine he gets

throughout the day. The amount is just how much get gets daily.)

The GP called today to say he wants me to start Spency on Biotin, Vit

B7. He said some of Spencys symptoms were indicative of Biotin

deficiency. The body uses Biotin to help the enzymes to their job

more efficiently. I did some reading on this and it sounded right to

me, too, as something that could help. This does not negate the mito

dx. But rather an effort to give Spency something that would help

him.

Kass, did some searches to find the dosage at 2.5 mg - 10 mg per

day. Start at the lower dose and work up. Thanks, Kass.

Have any of you have tried Biotin for you or your children? Did it

help? How much did you use?

Thanks,

Bec

[Guest guest]

Bec,

I have to apologize that I mistakenly thought you were talking about a

daughter and it is a son you have with the problems. Sorry!

Also, I also thought that as they tell us, water soluble nutrients cannot

cause build-up problems.

Yet, the B vitamins are water soluble and indeed, because they can not

finish being metabolized in my families bodies, they DO become toxic to US.

People who have a genetic defect that stops a nutrient from being processed

on through in a natural normal metabolic route will have negative effects

from taking that nutrient, water soluble or not-period!

All that water soluble means is that PEOPLE WHO CAN METABOLIZE AN ITEM IN A

NORMAL MANNER will not have it build up in their systems. They will spill

any extra that their bodies cannot use out.

I guess you could compare that to water passing thru a damn. If the damn is

normal or OK or works like it should, then when there is too much water

behind the damn, the gates will open and spill the extra on thru allowing

the river to run like it would even without the damn being there.

But man (or in the body case, God) made a way for the river to be stopped at

a point so that the water (or in the body case, nutrients) could be used for

power.

Sometimes, there is a block in the damn and for some reason the water can't

spill over and then the damn breaks and all hell breaks

loose-flooding........

In the body case, there is a defect causing a block in the genes making the

enzymes that break down and rebuild the nutrients we intake into new things

(cells, energy for the cells, etc.)

Then all hell breaks loose in our bodies-negative effects of the build up of

the nutrients we take in: no energy, inability of our nerves to transmit

signals, cell walls not working properly, etc...........

I hope this makes sense. I'm hurrying to go to my post-op back surgery appt.

So ask or comment or disagree all anyone wants. I know I'm not always right

or clear

If you want to Bec, feel free to print this out and ask your Dr. what he

thinks.

Scoggins

Re: Biotin ??s - mito cocktail

>,

>

>Thank you for your input. You are correct that not all solutions

>work for everyone.

>

>My Doc and I talked at great length regarding concerns with

>toxicity. Doc stated, " Biotin is water soluble, not fat soluble,

>therefore it cannot buildup in the system causing toxicity. "

>

>Since I am not a medical professional, I don't know the reality of

>the picture here.

>

>I did hear you loud and clear that I should watch Spenc closely to

>ensure he doesn't experience any setbacks from trying this option.

>

>I will keep you posted on his success or lack, thereof.

>

>Bec

>

>

>Please contact mito-owner with any problems or questions.

>

>