First post for BU member (long)

[Guest guest]

Hi ladies,

I'm afraid this is going to be a long post. Please stick with me.

I first learned of my MA during an ultrasound at the OB. I lost that

pregnancy @ 7 weeks in May 2003 and had a D & C. I then had a MRI and

HSG and was diagnosed as having a BU. I'm a nurse and have had the

opportunity to talk with several well respected OB's and Maternal

Fetal Specialists as well as a few Fertility Specialists. The advice

from all except one Fertility Specialist is to TTC again and be

monitored by a specialist. Here comes the sticker. I had an appt. on

Mon. with a Fertility Specialist because I've been TTC for 7 mo. now

and timing everything appropriatly without success. It only took 4 mo.

with my first. When I sat down in his office and gave him a brief

history as soon as I mentioned that I had a BU he wanted to know when

we were going to do surgery to unite the 2 horns (I'm almost a

complete BU). I was stunned. I told him I didn't want to have surgery

and had been told by several OB's not to. He became a little angry

and said he didn't understand their advice. Why would't I want to

increase the odds of carrying closer to term? All the while down

playing any concerns I had about potential complications ie: scar

tissue formation, uterine rupture, post-op infection. He told me to

stop TTC until after the surgery. The only fertility workup he ordered

was a sperm analysis and progesterone level and told me to talk

with my husband and get back with him to schedule the surgery. I left

his office so confused. On Tues. I spoke with a great OB about my

experience and he said that these surgeries were experiencing a re-

surgence. A resurgence? Is it the in surgery this year? I'm not a

guinea pig! I've done some research on what little I could find about

these procedures but now I need some advice from the BUers in the

group. Have any of you had surgery proposed to you? I want to make

the most informed decision possible. Sorry this was so long.

Thanks,

Barbara

37 BU 1mc 5/2003

[Guest guest]

Dear Barbara,

I'm not a BU and I'm sure that there are some BU women who will be glad to share

their experience. You kind of touched a nerve with me when I read about your

doctor experience. I'm extremely surprised that the fertility specialist did

not recommend pursuing traditional fertility treatment before having surgery.

Have you done this yet with your OB? Did the specialist even look at your HSG?

One first term miscarriage is not proof that your uterus can not carry to term.

My gut feel is that you need to get another opinion from another specialist. Is

there one listed on this site that is in your area? If I were you I would try

to see someone who is more sensitive to your concerns. Just the fact that he

got angry seems to be a warning sign. You sound very knowledgeable and very

aware of the risks involved in surgery. If you feel that this is not a course

of action that you wish to pursue at this time, no doctor should try to bully

you into doing it. Hopefully, other women on this site will share their success

stories with you so that you can have more information to help you make the

decisions that are best for you. I wish you all the best and hope that you find

yourself with a baby in your arms soon.

Mikell, 32

t-shaped, m/c 2/2004

First post for BU member (long)

Hi ladies,

I'm afraid this is going to be a long post. Please stick with me.

I first learned of my MA during an ultrasound at the OB. I lost that

pregnancy @ 7 weeks in May 2003 and had a D & C. I then had a MRI and

HSG and was diagnosed as having a BU. I'm a nurse and have had the

opportunity to talk with several well respected OB's and Maternal

Fetal Specialists as well as a few Fertility Specialists. The advice

from all except one Fertility Specialist is to TTC again and be

monitored by a specialist. Here comes the sticker. I had an appt. on

Mon. with a Fertility Specialist because I've been TTC for 7 mo. now

and timing everything appropriatly without success. It only took 4 mo.

with my first. When I sat down in his office and gave him a brief

history as soon as I mentioned that I had a BU he wanted to know when

we were going to do surgery to unite the 2 horns (I'm almost a

complete BU). I was stunned. I told him I didn't want to have surgery

and had been told by several OB's not to. He became a little angry

and said he didn't understand their advice. Why would't I want to

increase the odds of carrying closer to term? All the while down

playing any concerns I had about potential complications ie: scar

tissue formation, uterine rupture, post-op infection. He told me to

stop TTC until after the surgery. The only fertility workup he ordered

was a sperm analysis and progesterone level and told me to talk

with my husband and get back with him to schedule the surgery. I left

his office so confused. On Tues. I spoke with a great OB about my

experience and he said that these surgeries were experiencing a re-

surgence. A resurgence? Is it the in surgery this year? I'm not a

guinea pig! I've done some research on what little I could find about

these procedures but now I need some advice from the BUers in the

group. Have any of you had surgery proposed to you? I want to make

the most informed decision possible. Sorry this was so long.

Thanks,

Barbara

37 BU 1mc 5/2003

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[Guest guest]

Barbara,

I am no way an expert in all of this but let me tell you what my

experience has been. I had a miscarriage at about 6 weeks in Sept.

of 2003. My MA was noticied during the first ultrasound I had due to

bleeding during the time I was pregnant. I had a D & C done and then

was scheduled for an HSG. I went through all this and then was sent

to get a 3-d ultrasound to confirm I was bicornuate. From what the

doctors have told me surgery is not a good idea if you are actually

bicornuate. I know connecting the two horns through surgery is much

more common if you have a septate uterus rather than bicornuate. I

am new to all this so I am certainly no expert but the risks you

mention are all things that I have heard of before also. I have

heard from several woman in the bicornuate group here on yahoo who

are also bicornuate and went on to have healthy babies without any

kind of surgery.

I know how frustrating it can be...my husband and I have just started

trying again and I am hoping to have more success this time. I guess

this has become failry long winded but I guess my advice would be to

follow your heart. If you have talked to several other OB/GYN's who

have told you to keep trying then I wouldn't let one doctor push you

into a surgery that you aren't comfortable with and likely may not be

needed.

I hope this has hepled...if you need someone with similiar

experiences to talk to please feel free to contact me either through

this posting or my email.

Good Luck!!!

> Hi ladies,

> I'm afraid this is going to be a long post. Please stick with

me.

> I first learned of my MA during an ultrasound at the OB. I lost that

> pregnancy @ 7 weeks in May 2003 and had a D & C. I then had a MRI and

> HSG and was diagnosed as having a BU. I'm a nurse and have had the

> opportunity to talk with several well respected OB's and Maternal

> Fetal Specialists as well as a few Fertility Specialists. The advice

> from all except one Fertility Specialist is to TTC again and be

> monitored by a specialist. Here comes the sticker. I had an appt. on

> Mon. with a Fertility Specialist because I've been TTC for 7 mo. now

> and timing everything appropriatly without success. It only took 4

mo.

> with my first. When I sat down in his office and gave him a brief

> history as soon as I mentioned that I had a BU he wanted to know

when

> we were going to do surgery to unite the 2 horns (I'm almost a

> complete BU). I was stunned. I told him I didn't want to have

surgery

> and had been told by several OB's not to. He became a little angry

> and said he didn't understand their advice. Why would't I want to

> increase the odds of carrying closer to term? All the while down

> playing any concerns I had about potential complications ie: scar

> tissue formation, uterine rupture, post-op infection. He told me to

> stop TTC until after the surgery. The only fertility workup he

ordered

> was a sperm analysis and progesterone level and told me to talk

> with my husband and get back with him to schedule the surgery. I

left

> his office so confused. On Tues. I spoke with a great OB about my

> experience and he said that these surgeries were experiencing a re-

> surgence. A resurgence? Is it the in surgery this year? I'm not a

> guinea pig! I've done some research on what little I could find

about

> these procedures but now I need some advice from the BUers in the

> group. Have any of you had surgery proposed to you? I want to make

> the most informed decision possible. Sorry this was so long.

>

>

> Thanks,

> Barbara

> 37 BU 1mc 5/2003

[Guest guest]

Hi Barbara,

I'm SU, not BU, but I also urge you to speak to another doctor, I

don't like his reaction to your comments. For the more experienced

women on this group a further question: I understood from previous

postings that it is very rare to perform surgery on a BU, more common

with an SU? Is this correct? Could the doctor possibly be confusing

your BU with an SU? (I still have doctors referring to my bicornuate

uterus, even though its documented *everywhere* that I actually have

a septate uterus, and I was diagnosed SU after a lap/hyst. It makes

me crazy. Sigh).

I would be inclined to follow your personal gut reaction on this, not

your doctor's advice, but I look forward to reading the responses of

the many experienced women on this board.

Take care and good luck.

a

35

complete SU, unresected

19 wks

[Guest guest]

Barbara,

I had a Bicornuate uterus. It was detected by a c-section with my

first daughter.(Madison Grace 12/29/99 to 01/10/00) After this they

sent me to a Re. He did ultrasounds, HSG, and a Lap to figure out if

I needed surgury to repair it.(The early birth of my daughter had

nothing to do with my uterus)He found out it would be more benifial

to me to have the surgury than to risk losing another baby. So in

September 2000 I underwent abdominal metroplasty to fix my uterus.

My doctor said it was as close to a normal uterus I'm ever gonna get

(lots of room in there to house a baby)we fell pregnant November

2002 and sadly miscarried at 8 weeks (nothing to do with my uterus)

We are trying again and re very hopeful.When I asked my doctor that

women here said it was very uncommon for a BU to be fixed, he said

that's not true. But if you feel comfortable get a second opinion,

just for your own piece of mind.You can email me at

deedee7370@... if you want to ask any questions.

Deanna

> Hi ladies,

> I'm afraid this is going to be a long post. Please stick with

me.

> I first learned of my MA during an ultrasound at the OB. I lost

that

> pregnancy @ 7 weeks in May 2003 and had a D & C. I then had a MRI and

> HSG and was diagnosed as having a BU. I'm a nurse and have had the

> opportunity to talk with several well respected OB's and Maternal

> Fetal Specialists as well as a few Fertility Specialists. The

advice

> from all except one Fertility Specialist is to TTC again and be

> monitored by a specialist. Here comes the sticker. I had an appt.

on

> Mon. with a Fertility Specialist because I've been TTC for 7 mo.

now

> and timing everything appropriatly without success. It only took 4

mo.

> with my first. When I sat down in his office and gave him a brief

> history as soon as I mentioned that I had a BU he wanted to know

when

> we were going to do surgery to unite the 2 horns (I'm almost a

> complete BU). I was stunned. I told him I didn't want to have

surgery

> and had been told by several OB's not to. He became a little angry

> and said he didn't understand their advice. Why would't I want to

> increase the odds of carrying closer to term? All the while down

> playing any concerns I had about potential complications ie: scar

> tissue formation, uterine rupture, post-op infection. He told me to

> stop TTC until after the surgery. The only fertility workup he

ordered

> was a sperm analysis and progesterone level and told me to talk

> with my husband and get back with him to schedule the surgery. I

left

> his office so confused. On Tues. I spoke with a great OB about my

> experience and he said that these surgeries were experiencing a re-

> surgence. A resurgence? Is it the in surgery this year? I'm not a

> guinea pig! I've done some research on what little I could find

about

> these procedures but now I need some advice from the BUers in the

> group. Have any of you had surgery proposed to you? I want to make

> the most informed decision possible. Sorry this was so long.

>

>

> Thanks,

> Barbara

> 37 BU 1mc 5/2003