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Re: MRI questions...

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Regarding Emma,

In my experience, Lily's Neurologist always spoke to the radiologist with

in a few days of the MRI. Our neuro always called after her conversation

and gave us the " brief " . There usually is a delay in the report being

typed up but be sure to request a copy from the MRI people. I trust that

all of you are keeping copies of ALL reports and test results. If

not-start now. To keep it organized is a hassle but well worth the

effort.(Lily was approved to receive SSI with in 1 1/2 months of

applying. I know it was speeded up because I made copies of all the

reports I had.) As to interpreting the results of the old MRI's, I got a

couple of paperback PDR's. Helped with the " basic Lingo " , and I asked

questions. Constantly! Remember they (the docs)work for you. You need to

understand what they said before you leave the office or they haven't

done a good job. I always tried to get someone to come with us for our

Neuro visits especially. The other person could focus on Lily and I could

focus on the doc.

Sorry if I don't sound too articulate had a Hot Tom & Jerry!

Best of Luck,

PS Did Emma tolerate her previous MRI Ok? The sedation & recovery? It is

a concern with some Mito patients. She did better with one sedative then

another. I'll see if I can pull up the names for you.

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