Re: New Here Recently Diagnosed with SU (ttc, pg & m/c ment)

[Guest guest]

Diane,

That would be me! I was diagnosed with PCOS nearly 3 years ago now. My

gyn misdiagnosed me and finally we found an RE and took all my files and

diagnosed me on the spot and the US proved it!

Since then we tried clomid, metformin with IUI - I think 7 times in all

over the last couple of years. Then last november we did IVF and I ama

now 16 weeks 5 days pregnant.

When I first went to my RE I had an HSG and he could see a heartshape

uterus but didn't know if it was SU or BU.

My health insurance denied me a lap. So with only a certain amount of

funds we opted for the IVF. My RE thought if I had a SU then it would be

small and only increase my chance of miscarrying by 10%. Now the BU/SU

is getting interesting!!! On week 7 I had terrific bleeding and I had a

hematoma (blood clot in the uterus). They said I got that because the

placenta had attached over the septate piece and because that bit has no

blood in it etc, then the placenta came away in that section. My odds of

carrying it went to 10% that week. I went on bed rest and the hematoma

has since drained and is now gone. Then at week 15 I went to the ER in

agony and it turned out I was having Braxton Hicks contractions every

hour. They said this was painful because of the SU. Even though I was

never officially diagnosed with a SU versus a BU, my OB and the ER

doctor decided it was a SU.

So next thursday, March 25th I go to a perinatologist. This I cannot

wait for as hopefully he will be able to give me some answers.

Throughout all of this I have had 9 US and each one has shown the baby

doing well and everything is growing on target and we have a strong

heart beat.

If you have the chance to correct the SU before you start treatment for

the PCOS then I would go for it. But I would NOT assume that the m/c's

were caused by the SU because with PCOS there is a 50% chance of

miscarriage due to the imbalance in the hormones and the embryo not

being able to get what it needs hormonally.

I wish you well and I am sorry you had to go through your losses.

Louise

pdmazur wrote:

> Hello everyone. I'm new here and have some questions. I was

> recently diagnosed as having a SU.

>

> Here's my story....I started seeing an RE in December due to PCOS. I

> became PG in January (on my own!). It seemed as if everything was

> going just fine, had the first u/s at 6w5d had a beautiful little

> heartbeat. Went back two weeks later and there was no heartbeat. I

> ended up having a D & C on 3/1. Well, the day after the D & C my dr

> called and wanted me to come in the next day for an u/s. He was

> concerned that he may not have gotten all the pregnancy and said he

> saw something unusual with my uterus on one of the u/s. So, I went

> in the next day and lone behold he told me I had an su. Anyway, I go

> to the dr tomorrow for my 2 week post op (D & C) appt and I'm wondering

> what I should expect. What are the next steps in fixing this su

> problem? How soon after having a D & C will they do surgery to remove

> the septum? I really want to TTC as soon as possible, but know that

> the su is probably the cause of the m/c (it was my 2nd m/c). Any

> info you can provide would be much appreciated.

>

> Also, I'm wondering if there's anyone out there who has an su and

> PCOS. If so, I'd love to hear some good stories.

>

> Diane, 31

> SU (dx 3/04)

> PCOS (dx 91)

>

>

>

> Share bookmarks: http://groups.yahoo.com/group/MullerianAnomalies/links/

>

> Share files:

> http://groups.yahoo.com/group/MullerianAnomalies/files/

>

> The Congenital Uterine Anomalies Home Page:

> http://www.wegrokit.com/uterineanomalies/

>

>

>

> es/

>

> The Congenital Uterine Anomalies Home Page:

> http://www.wegrokit.com/uterineanomalies/

>

>

>

>

>

>

>

[Guest guest]

Hi Diane, I just had my septum resected on 2/26. I too had 2

miscarriages both were last year, and in the u/s on the last

pregnancy they noted a BU, I had an HSG and the radiologist reported

BU. Thanks to these wonderful ladies, I went to an RE (reproductive

endocrinologist) and he diagnosed me with a SU...and I had the

lap/hyst on 2/26. When you go back in for your D & C follow up, I'd

write up a list of questions and one of them would be for them to

recommend an RE. I'm not sure what type of insurance you have, but

most insurances cover the surgery since it's technically a " birth

defect " . I'm not sure how soon surgery could be done to resect the

septum but I'm think that should be another one of your questions.

In going to the RE, he ran ALOT of tests and also noted that my right

ovary is polycystic. He said that he wasn't going to worry about

that in the short term since my problem hasn't been actually getting

pregnant, it's been the getting past 8 week part.

I'm sure some of the other ladies will give you their experiences.

Best of luck!

carol

[Guest guest]

Louise, Thanks for giving me some hope. I am definitely going to

have the septum removed as long as my insurance will allow it. It

seems that I'll probably only need a " boost " to O on my own. Doc

thinks that metformin alone will do the trick for me. The fact that

I've gotten pg on my own twice also seems like a good sign.

Thanks again, I thought I was the only one who had PCOS and an SU.

> Diane,

>

> That would be me! I was diagnosed with PCOS nearly 3 years ago now.

My

> gyn misdiagnosed me and finally we found an RE and took all my

files and

> diagnosed me on the spot and the US proved it!

>

> Since then we tried clomid, metformin with IUI - I think 7 times in

all

> over the last couple of years. Then last november we did IVF and I

ama

> now 16 weeks 5 days pregnant.

>

> When I first went to my RE I had an HSG and he could see a

heartshape

> uterus but didn't know if it was SU or BU.

>

> My health insurance denied me a lap. So with only a certain amount

of

> funds we opted for the IVF. My RE thought if I had a SU then it

would be

> small and only increase my chance of miscarrying by 10%. Now the

BU/SU

> is getting interesting!!! On week 7 I had terrific bleeding and I

had a

> hematoma (blood clot in the uterus). They said I got that because

the

> placenta had attached over the septate piece and because that bit

has no

> blood in it etc, then the placenta came away in that section. My

odds of

> carrying it went to 10% that week. I went on bed rest and the

hematoma

> has since drained and is now gone. Then at week 15 I went to the ER

in

> agony and it turned out I was having Braxton Hicks contractions

every

> hour. They said this was painful because of the SU. Even though I

was

> never officially diagnosed with a SU versus a BU, my OB and the ER

> doctor decided it was a SU.

>

> So next thursday, March 25th I go to a perinatologist. This I

cannot

> wait for as hopefully he will be able to give me some answers.

> Throughout all of this I have had 9 US and each one has shown the

baby

> doing well and everything is growing on target and we have a strong

> heart beat.

>

> If you have the chance to correct the SU before you start treatment

for

> the PCOS then I would go for it. But I would NOT assume that the

m/c's

> were caused by the SU because with PCOS there is a 50% chance of

> miscarriage due to the imbalance in the hormones and the embryo not

> being able to get what it needs hormonally.

>

> I wish you well and I am sorry you had to go through your losses.

>

> Louise

>

>

>

[Guest guest]

Since I'm so new to this, can you (or someone) explain how

> they resect the septum?

>

Diane,

I believe there are several methods for resecting the septum,

including just snipping it without actually removing it. In my

case, the doctor used a laser to actually burn it all away (well,

almost all of it except for the muscular part at the top). It's

done through a hysteroscopy, and will often have a laproscopy at the

same time (lap/hyst). That way, they can check you inside and out.

The best answer is located in the Files section of this group.

Check out question #9 in the Mullerian Anomalies FAQ file, as well

as all of the other great questions and answers there. You'll be

hard-pressed to find a more comprehensive collection of information

about MAs anywhere else than here!

-, SU (resected)

Loss at 20wks (due to rupture)

Pregnant 23w0d w/Sam (f/u appt today after rescue cerclage last

week!)

[Guest guest]

Hi Diane,

Welcome to the group. I am very sorry for your losses.

I read Louise's post about PCOS. I do not have PCOS, but did have

and SU and hope to help you with some of your questions.

It's good that your dr found the SU. Did he mention if he had

experience doing the surgery to resect the septum? You should be

able to schedule the surgery after you get your first af. They will

usually want you to have the surgery around cd7-11 (they try to miss

af, but do it before you ovulate). Your dr may also want to do an

HSG before the surgery. An HSG is where they inject a dye in your

uterus (like an xray) and then you watch it on a big monitor and see

what shape the inside of your uterus is. It helps the dr to see how

normal or not normal the shape is.

I know the feeling of wanting to ttc ASAP after a loss. After the

surgery, if you are indeed an SU, the dr will likely tell you not to

ttc for 2 cycles so that the area where the surgery was done can

heal. The surgery is an easy one and is done by

laproscopy/hysteroscopy. If you search the archives and read some of

the articles in the database you will find an explanation. More

times than not, they will be able to remove the septum in one

surgery. My best advice is to make sure that your dr will do another

HSG (or an SHG or in-office hys) after the surgery to make sure that

the septum is gone. I needed the surgery 2x to remove it and would

not have known if I had not had the followup HSG.

You will find lots of support here. I am so sorry that you are

dealing with this, but hope that you have a good dr and lots of

support from your dh and friends. We are here for any questions you

may have.

Hugs,

Sara

36, 1 m/c, SU resected x2, dd (10/2/2003)