Cathy

[Guest guest]

Hang in there ... it took years to eliminate my ex husband from my life

and my sons. Eventually he stepped on his you-know-what and ended up

childless. He sold he son to the court by signing his son away as long as I

wouldn't pursue any money for child support or the thousands of dollars he

was in arrears. He is the loser and my son has been gifted with a step dad

who adopted him last year and has been there sharing all his young years

experiences with him since he was 2. It will get better, I know from

experience. It just doesn't look like it right now. As far as your recent

health, I wish you luck and send prayers your way so that you can recover all

your strength in an effort to fight for your freedom. Be well. Kathleen (NY)

[Guest guest]

Elaine:

Thanks for the support. Just trying to catch up on 725 e-mails.

Am glancing at ones quickly so if anyone has an eye question, please e-mail

me. I have been having such difficulty lately that even getting on

line is difficult.

Blain continues to become more out of control. He has written

my attorney 24 letters since he fired his attorney in August. The

letters are very disturbing and continue to threaten me with calling family

protective services if I don't drop the restraining order. His actions

certainly are getting more out of hand and he is certainly out of control.

I am certainly very scared he will do something to hurt Caitlin or I but

little I can do about it right now. Am trying to find peace through

God that will carry me through this. This is definately the hardest

thing I have ever gone through and I am praying he doesn't follow through

on his actions with HRS because it will only hurt Caitlin. He can

not substantiate any claims so it is simply harassement, but why does my

little girl have to pay for such an evil person. Most people aware

of the situation are amazed at how evil he is and to what degree he will

go to try to destroy me. I will sit and wait for judgement from God

because ultimately I am not doing anything to him except trying to get

divorced as fast as possible. I never knew true evil before and am

amazed at what he is continuing to do. No wonder his first wife was

in counseling for 10 years trying to recover from what he did to her.

God help any woman he knows since they have no idea of what a hateful horrible

person he is and what he will do to punish them.

Well I have vented enough there. Did go to the other neurologist

who does feel that vasculitis is what is causing my more recent neurological

problems. I am thankfully starting to pull out of this latest flare

and some of the pain is subsiding. The doc thinks I have a multiplex

vasculitis that is isolating different nerves in my body. I truly

feel he probably is the closest to what is happening since other docs seem

way off base. He specializes in vasculitis and was very intrigued

by my disease. He has never seen a patient with RP but had a file

with 4 articles about it in his office. He spent over 2 hours with

me.

I will be interested in seeing what happens with this doc. He

is going to run alot of base tests since vasculitis can cause strokes and

damage to brain. He feels that is why we lose our hearing with RP

and have headaches. Makes sense to me. He ordered a bunch of

tests including brain wave tests (EEG, brain stem tests, visual evoked

testing, memory tests, intelligence tests (may be in trouble here LOL).

He wants a baseline to follow since brain is so often affected. My

MRI of the brain came back ok but he wants to see the actual films himself

to look at. He has published many articles and is working on trying

to find some type of bloodwork that will monitor flares of vasculitis that

is not available at this time. Hope my insurance doesn't freak with

all of this, but maybe my going to him and his experience will help to

benefit all of us. I will be sure to keep everyone posted on what

he tells me and hopefully we can stumble on something that we can take

to other docs. At least for the first time in a while, I saw a doc

who was interested. Pulminolgist I go to who knows RP doesn't work

with vascultitis, so he can't help too much. Maybe this doc will

enlighten us.

I'm reading posts as best I can and am praying for all those in need.

God certainly blessed us with each other and trying to help one another.

This disease takes away so much, I am thankful it brought something like

the RP family to me.

Again, may prayers to all and thank you for all your love and support.

Cath

Elaine Thurber wrote:

Hi ,

Get caller ID and if Blaine phones don't pick up the phone. If

he comes by

call the police as he'd be breaking the restraining order. If he

threatens

to call family services tell him you'll call the police and say

he was

breaking the restraining order and have him thrown in jail.

My ex is being a jerk too. Him and his girlfriend are telling my

daughter

that I'm a bad person and that I just want the child support money

for

myself. They are trying to talk her into moving in with them. They

just

don't want to pay the money so now he's trying to say I'm a bad

mother. It

is difficult because he has access to my daughter and when he has

her he

says all kinds of things about me. Funny because we just settled

all this in

court last month and he never even mentioned anything about custody.

His

girlfriend likes my daughter because she can baby-sit her little

boy and I

think that's all they want, plus the money. They are really selfish.

What a

bunch of jerks. So now they want to drag me back to court to rehash

everything that was just settled. Well they can just go right ahead.

I hope

they can afford the lawyer because my income is so low I get legal

aid.

I wish you the best and hope that lightening comes from the sky

to give

Blain a good zap!! Then maybe he'll realize God is not approving

of his

behaviour. I often worry and wonder how you are. Please take

care of

yourself.

Elaine

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT

IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

is was soooo nice to finally hear from you again .

yes hang in there I know things will turn around for you too.

And yes Blain will get his dues in time also. Please keep posting

it does help .because we do care about everyone here.

Love you and give munchkin a big Okie Hug OK

Heidi

[Guest guest]

Sorry to hear that you are not doing good. Hope this doc has some answers.

Sure sounds like you have a winner to me. I'm happy for you.

Oh! That jerk that you married, should have his hands and his tongue removed.

God is good and he will take care of him for you. I'm sure of it!!!!

Love,

Rene'

[Guest guest]

, I am so sorry to hear about all the trouble that Blaine is causing

you. You and Caitlin don't deserve any of this.

But am thrilled with your doctor. Sounds like you have a great one.

Please hang in there, we are all keeping you in our thoughts and prayers.

Hugs

[Guest guest]

<Please look in your phonebook for a women's shelter>

Hi Cath,

is right. I called our women's shelter after my ex left and they were

a great help. Plus it helps document the abuse cycle. I didn't have to stay

there, they gave me counselling. I think that is one of the things that

helped give me the strength to take him to court and get the proper child

support. Please take care,

Elaine

[Guest guest]

,

You have gone through so much and continue to go through more than your

share. I admire your strength and courage. I really don't know if I

could/would be as strong as you are girl.

You are constantly in my thoughts and prayers. With your wonderful attitude,

you will overcome any obstacle that comes at you. You've already proven that

time and time again.

If I can do anything for you, help you in any way, please, let me know.

Please!

W

>>>>>>>>>>>>>>>>>>>>

Well I am so tired and want to spend some time with Caitlin, so I'd

better close. Just wanted to explain to my RP family why I had not

posted since the hearing and that I am going to be just fine. It may

take some time but that's ok.. I know you all care so much and you are

a very important part of my life, I didn't want to leave you wondering

if I was ok. Didn't have much strength to do that until tonight so

wanted to let you all know.

Hope each of you had a good day and may God bless you all as he has me

and bring you comfort even through the really difficult times! He

really does carry us when we can't walk.

Love to you all!

Cath

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