Re: DAN doc says my son's allergic to EVERYTHING

June 20, 2003

We did BIOSET to clear these types of allergies (my daughter had them all as

well) and it really helped with behavior, stimming, and focus. Interestingly,

the BIOSET tests did show a severe allergy to vaccines and metals, which still

need to be dealt with, but it helps to clear the food allergies first. She

was also allergic to all of her supplements except for a few, so now they're

working the way they're supposed to intead of causing further irritation to her

CNS. BIOSET will clear allergies, but the heavy metals toxicity needs to be

dealt with through chelation according to Dr. Cutler (Ellen).

June 20, 2003

The gfcf diet helps some kids, but it makes some kids even worse since it

usually increases intake of soy and corn, which many kids are even more

sensitive

to. It seems like the specific carbohydrate diet is a better bet for our kids

- it's like GFCF 2000.

June 20, 2003

>>>My question is, how we never saw any allergic reaction in him -

EVER. >>>

We never saw any allergic reactions in our son either (except to dogs--that

gave him hives). But once we had him on the GFCF diet for 6+ months and had

treated his yeast overgrowth (repairing some of the leaky gut along the way),

his health, cognition and behavior improved dramatically. Then we were able to

see the allergic reactions that were there before but were masked by the

" autism " diagnosis. Things like stimming, tantrums, hyperactivity, aggression,

tics, spaciness, short/no attentino span, etc. We found that when Max is

exposed

to allergens (or gluten/casein) all of those symptoms reappear and he seems

autistic again.

The *good* news is that since we've been treating all of these underlying

problems (yeast overgrowth, mercury toxicity, allergies, etc.) for almost 3

years

now, the reactions to allergens aren't as pronounced as they used to be, and

he's actually able to tolerate small amounts of things that would have sent

him completely off the deep end two years ago (like food dyes).

I don't think your doctor is crazy or scamming you. But if he's ignoring the

leaky gut and heavy metal toxicity, then he's very poorly informed and he'll

only treat the symptoms instead of the underlying problem and your son won't

get much better.

- Becky B.

June 20, 2003

We saw Dr. Ellen Cutler for the initial testing (she's the originator and the

best) and then a local practitioner to do the clearing. It's not " allergies "

in the sense most of us think of them, in terms of sneezing and rashes, it's

more " sensitivities " that can manifest themselves in many ways, including a lot

of autistic behaviors.

June 20, 2003

When someone is allergic to that many foods, the remedy is not

necessarily to only do a dietary intervention but to repair the leaky

gut-- THAT is the cause of the " allergies " . Of course you could go

farther and say that the mercury/metal is the cause of the leaky gut,

etc...

Treat the underlying cause and you help the problem.

W

--- In , " autiemom4 " <autiemom4@y...>

wrote:

> My youngest son with severe autism was recently diagnoised with all

> allergies known to man by a local DAN doctor.

June 20, 2003

Laurel (I like that name)

When tests come back showing someone is allergic to 83 common foods

(or more than 5 or 6) this would be a major indication of leaky gut

and not the foods. So focusing on healing the gut may be the most

efficient course of action. This is also a great case for enzymes

because digestive enzymes will be doing 2 things at once:

- breaking down all foods so that they are more digested and least

likely to cause negative reactions. And you get the nutrition and

energy from the food

- pro-actively work to heal the gut (something food eliminations

don't really do). We used the Houston enzymes instead of GFCF diet.

Worked great. After two years, we find my younger son no longer

needs enzymes, but my older son does at least once a day or so. What

is a interesting is that the younger son was the one with all the

gut problems. Here is a group and some information on enzymes if you

like.

www.enzymestuff.com

You might also want to see if there is a yeast or bacteria

overgrowth as these often occur with leaky gut. Does you doctor want

to treat for either of these? There are some over the counter things

that work pretty well that you can try inexpensively and quickly to

see if they make a difference.

>>>>This doctor claims that the autism is the symptom of these

allergies.

Does he mean that he thinks your son basically just has allergies

only and this causes the autism behavior?

>>>> I feel like we are being scammed. Now I feel like I was taken

for a ride. All the way to the bank.

It happens all too often.

.

June 20, 2003

--- In , " autiemom4 " <autiemom4@y...>

wrote:

> My youngest son with severe autism was recently diagnoised with all

> allergies known to man by a local DAN doctor. I took my son there

> initially to look into heavy metal testing and chelation. He

> convinced me food allergy may more be the cause of my son's problem

He is incompetent. Don't go back.

Any idea WHY your kid is allergic to everything? Like because of

mercury which causes immune system derangement so he becomes allergic

to everything, and it isn't going to get better until the mercury is

gone?

> and we had him food allergy tested with this DAN doctor. The result

> list of food allergies includes:

It is long enough that the first problem is leaky gut, which you treat

with glutatmine between meals, gotu kola liquid extract, gelatin,

digestive enzymes, etc.

>

> yeast

> dairy - ALL cows milk products

> chicken

> wheat

> oat

> corn

> peanut

> brocolli

> blueberry

> orange

> pineapple

> potato (white & sweet)

> bean (green & pinto)

> malt

> mushroom

> rye

> bran

> tomato

> onion

> spelt

> gluten

> walnut

> avacado

> barley

> egg white

> grapefruit

>

> My question is, how we never saw any allergic reaction in him -

> EVER.

How was the allergy testing done?

>This doctor claims that the autism is the symptom of these

> allergies. We did try this diet for a month. We saw no change.

Makes it pretty clear that there is no point going back to this

doctor, doesn't it?

>I

> almost feel like we are being set up to fail. We have to pay more

> than $600.00 for these tests. My son has two other doctors that he

> has seen for years. A pediatrician, and an " autism doctor " a

> developemental pediatrician at Childrens Mercy. Both of these

> doctors expressed concern over the legitimacy of these allergies.

Well, they will express concern over everything that actually has a

scientific foundation and might help your son since they are part of

the system that turned him autistic.

> In fact, one of them even commented, " every patient I have that goes

> to see this doctor, comes back allergic to just EVERYTHING " !

This is a much more relevant comment, since some people don't develop

allergies.

> I feel like we are being scammed. Has anyone else had an experience

> like this. My hopes were so high. Now I feel like I was taken for

> a ride. All the way to the bank.

This is a learning experience a lot of people get to have.

Just remember, it is a lot less unpleasant to take your chances and

get scammed a few times than it is to have your son never get any

better.

> Laurel

> autiemom4

> Autism Family Circle

> http://autismfamilycircle.com

>

> Autism Family Circle Group

> autismfamilycircle/

>

> Kansas Autism Advocacy Group

> kansasautismadvoc/

>

> Autism Awarenss Ribbon Pins

> http://autismfamilycircle.com/

June 20, 2003

Laurel,

Many people have seen dramatic improvements from the GFCF diet. We

have. Sometimes it takes more than a month. It's the wheat and

dairy proteins that drug these kids into their own world. The metals

could be could be causing the leaky gut. Yeast from too many

antibiotics could be causing the leaky gut. We have also see

dramatic improvements while gfcf due to the houston enzymes

specifically zyme prime and afp peptizide. Be careful with gfcf. A

lot of the wheat and dairy substitues cause yeast but ussually it is

far the lesser of two evils. Was he 4+ on all these allergies? If

he is slightly allergic he can eat them on a rotational basis. A lot

of time you don't see an allergic reaction. We never did. There are

different types of allergic reactions. The kind he has causes his

immune system to be reved up because you've got all this undigested

food leaking through his gut and his immune sytsem is attacking it

causing him to become allergic to the food and then it doesn't have

anything left to attack the stuff it should attack. The thing is is

that the leaky gut results in food allergies and a messed up immune

system. You need to heal the gut and stop the wheat and dairy

proteins from drugging him. Your doc said all of his patients are

allergic to everything does not mean that this is a scam it means

that this is a fundamental problem causing autism. A lot of people

pay a lot more than $600 for their first round of dan doc tests so

maybe your doc was being conservative which is nice. Insurance

should cover the test. I feel strongly that biological interventions

are hugely important in helping these kids. You are not going to

give any more vaccines are you?

--- In , " autiemom4 " <autiemom4@y...>

wrote:

> My youngest son with severe autism was recently diagnoised with all

> allergies known to man by a local DAN doctor. I took my son there

> initially to look into heavy metal testing and chelation. He

> convinced me food allergy may more be the cause of my son's problem

> and we had him food allergy tested with this DAN doctor. The

result

> list of food allergies includes:

>

> yeast

> dairy - ALL cows milk products

> chicken

> wheat

> oat

> corn

> peanut

> brocolli

> blueberry

> orange

> pineapple

> potato (white & sweet)

> bean (green & pinto)

> malt

> mushroom

> rye

> bran

> tomato

> onion

> spelt

> gluten

> walnut

> avacado

> barley

> egg white

> grapefruit

>

> My question is, how we never saw any allergic reaction in him -

> EVER. This doctor claims that the autism is the symptom of these

> allergies. We did try this diet for a month. We saw no change. I

> almost feel like we are being set up to fail. We have to pay more

> than $600.00 for these tests. My son has two other doctors that he

> has seen for years. A pediatrician, and an " autism doctor " a

> developemental pediatrician at Childrens Mercy. Both of these

> doctors expressed concern over the legitimacy of these allergies.

> In fact, one of them even commented, " every patient I have that

goes

> to see this doctor, comes back allergic to just EVERYTHING " !

> I feel like we are being scammed. Has anyone else had an

experience

> like this. My hopes were so high. Now I feel like I was taken for

> a ride. All the way to the bank.

>

> Laurel

> autiemom4

> Autism Family Circle

> http://autismfamilycircle.com

>

> Autism Family Circle Group

> autismfamilycircle/

>

> Kansas Autism Advocacy Group

> kansasautismadvoc/

>

> Autism Awarenss Ribbon Pins

> http://autismfamilycircle.com/Ribbons.html

June 20, 2003

We had the same experience, the only help the diet did was that when we did

introduce the other foods back to his diet, it was clear that corn was a problem

along with gluten and caesin.

Our doctor then had us do a few rounds chelation, when Tristan wasn't cured he

tried to get us to get thousands of dollars worth of more tests done. I could

see

that Tristan made improvement with chelation, though small and slow, but now we

see a different doctor, are back on track with chelation, and Tristan is doing

wonderfully!!!

The same past doctor wouldn't give us a script for acyclovir even after

Tristan's

pediatrician gave him one for the chickenpox, and Tristan was so much more calm

and focused. The past doctor wanted to run tests. Our new doctor gave him a

script the very first visit. New doctor also totally supports chelation, and

doesn't need tests to tell him yeast is a problem or how to treat it. Actually,

he was really excited when I gave him some info on GSE, said he'll start giving

the information to other patients that have yeast problems.

Some DAN doctor's, and our old one specifically, came to DAN because they

treated

autistic people for their allergies, and the autism improved. In the case of our

old one, he has NO CLUE about mercury, and though I gave him Andy's book, I

don't

think he read any of it.

Find a doctor that will support chelation!!!!!!!!!!!!

autiemom4 wrote: