Guest guest Posted December 24, 2001 Report Share Posted December 24, 2001 Rose I dont think there is anything similar to Losec in Canada. from Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 Stuff like this screws things up for those with the legitimate need. -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2003 Report Share Posted January 25, 2003 Go getem' . Indeed look where this has led you. Best of luck and when you have time keep us updated on your successes on the bill. Best wishes and God's speed, Riley -----Original Message-----From: PINE LAKE TOWNSHIP Sent: Friday, January 24, 2003 3:50 PMTo: Mito Subject: (unknown)To all my new Stranger/Friends,I will be "going quite" for awhile. I won't unlist myself but just won'thave time to reply much.I have found myself SMACK dab in the middle of a large controversy herein my state of Minnesota.The Dept of Health, is trying to add more shots to the requirements, andupping some already required to pre-daycare, instead of pre-kindergarten.My daughter, Lily, never had any seizures until after her 2nds shots.Thenext day she had a tic in her leg. 7 days later she had her firstseizure. 8 days after that, more.3rd round of shots-8 days later, more seizures.A seizure within 7 days after a shot is considered a possible reaction.Numerous things are used to "rule in or rule out" a reaction. I think anoverly narrow scope is used to decide what is or is not considered as being related to a vaccination. Lily exhausted all the medical tests.There were none left for us to do. We never got a diagnosis. "Possiblemito....?" but the vaccinations were never considered.I shared my/our story with my local state representative and senator. Mysenator happens to be the Chair of the Senate Committee on Health and Human Service. She has called forhearings. So has the house. She is introducing a bill to alter theproposed vaccination recommendations from the Dept of Health. So will thehouse. I compiled a collection of stories about families altered byvaccinations. And just had it printed.I was interviewed by the Mpls. Star & Trib. yesterday. I find myselftestifying on a docket that includes the Commissioner of Health, and theStates Epidemiologist. I am a very private person. For what ever reason, I now find myself in avery public forum. And surprise of all surprises, people are listening.So, I need to spend a little more time "on that project" right now. Untilit's over. I will be with you all in prayer. I will hold you all in mythoughts.Remember, these kids challenge us -far-far beyond our expectations. Lookat where I'm at! Who would have thunk!Warmest regards, LeeMOM to Angel Lily, Red & Ada________________________________________________________________Sign Up for Juno Platinum Internet Access TodayOnly $9.95 per month!Visit www.juno.comPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2003 Report Share Posted January 25, 2003 Hi : When were you interviewed in the Star and Trib? We get the paper here in Appleton, WI at our library and I would love to read about it. Plus my mother in law lives in Eden Prairie and would like to tell her about your story. Isn't it amazing how our children lives have changed our out look on things. Like you being a private person, but look at you now for being a spokesperson for those who can't speak and for many parents who accept what is told to us by the professionals. Shots are important but when I heard about this new shot coming out I got worried about children who may have a major reaction if their body just can't handle it. I'm proud of you and all that you are doing not only for the State of Minnesota but for other parents out there who will read your message and take it to their states. Nerenhausen mom to Leah PINE LAKE TOWNSHIP wrote: > To all my new Stranger/Friends, > > I will be " going quite " for awhile. I won't unlist myself but just won't > have time to reply much. > > I have found myself SMACK dab in the middle of a large controversy here > in my state of Minnesota. > The Dept of Health, is trying to add more shots to the requirements, and > upping some already required to pre-daycare, instead of pre-kindergarten. > > My daughter, Lily, never had any seizures until after her 2nds shots.The > next day she had a tic in her leg. 7 days later she had her first > seizure. 8 days after that, more. > 3rd round of shots-8 days later, more seizures. > A seizure within 7 days after a shot is considered a possible reaction. > Numerous things are used to " rule in or rule out " a reaction. I think an > overly narrow scope is used to decide what is or is not considered as > being related to a vaccination. Lily exhausted all the medical tests. > There were none left for us to do. We never got a diagnosis. " Possible > mito....? " but the vaccinations were never considered. > > I shared my/our story with my local state representative and senator. My > senator happens to be the Chair of the > Senate Committee on Health and Human Service. She has called for > hearings. So has the house. She is introducing a bill to alter the > proposed vaccination recommendations from the Dept of Health. So will the > house. > > I compiled a collection of stories about families altered by > vaccinations. And just had it printed. > > I was interviewed by the Mpls. Star & Trib. yesterday. I find myself > testifying on a docket that includes the Commissioner of Health, and the > States Epidemiologist. > > I am a very private person. For what ever reason, I now find myself in a > very public forum. And surprise of all surprises, people are listening. > > So, I need to spend a little more time " on that project " right now. Until > it's over. I will be with you all in prayer. I will hold you all in my > thoughts. > > Remember, these kids challenge us -far-far beyond our expectations. Look > at where I'm at! Who would have thunk! > > Warmest regards, > Lee > MOM to Angel Lily, Red & Ada > > ________________________________________________________________ > Sign Up for Juno Platinum Internet Access Today > Only $9.95 per month! > Visit www.juno.com > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2003 Report Share Posted January 25, 2003 , You go girl!!!!!!!!!!!!Angel Lily is still teahing everyone something through you!!!!!!!!!! Let us know how it all goes when you get time. Kathy, grandma to Audrey,17mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2003 Report Share Posted January 25, 2003 , Best of Luck with your project!! My son also started having neuro symptoms after vaccination. I bet other listmates also have kids who had problems with vaccinations as well. It could have been the mercury preservative in the shots (thimerosal). Organic mercury is a known neurotoxin and can cause mitochondrial dysfunction also. The amount of mercury in the shots exceeded the safety limit based on weight by 150 times!!! In a recent publication, Gilbert (an expert in neurotoxicity) called for a reduction in the accepted reference dose from 0.1 microgram/kg/day to 0.025 microgram/kg/day. If these new stricter guidelines were applied, the maximum allowable dose of organic mercury for the average two-month-old weighing 5 kg would be 0.125 mcg. The 62.5 mcg of mercury (from the HepB, Hib, and DTaP vaccines) that was routinely injected into infants at two months of age was 500 times that limit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2003 Report Share Posted January 25, 2003 , My almost did not get to begin Kindergarden because she was so behind on her shots. Not because I did not take her to get them but because she was so effected by them. We were almost through Kin. when she finally got her last ones. At that time we had no idea about the mito and did not find out until last year and is 12. Have a good day! Horsley leehorsley@... Re: (unknown) ,Best of Luck with your project!! My son also started having neurosymptoms after vaccination. I bet other listmates also have kids whohad problems with vaccinations as well.It could have been the mercury preservative in the shots (thimerosal).Organic mercury is a known neurotoxin and can cause mitochondrialdysfunction also. The amount of mercury in the shots exceeded thesafety limit based on weight by 150 times!!! In a recent publication,Gilbert (an expert in neurotoxicity) called for a reduction in theaccepted reference dose from 0.1 microgram/kg/day to 0.025microgram/kg/day. If these new stricter guidelines were applied, themaximum allowable dose of organic mercury for the average two-month-oldweighing 5 kg would be 0.125 mcg. The 62.5 mcg of mercury (from theHepB, Hib, and DTaP vaccines) that was routinely injected into infantsat two months of age was 500 times that limit.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Welcome back! Horsley (unknown) Hello all, I am back. My new email address is jkish2@... Talk soon,_________________________________________________________________MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virusPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Congratulations!!! I`m glad you made it. I`m sorry to hear about the poor care. That stinks. Alice hardestyal hardesty@... (unknown) Hi everyone! I made it!!!!! went in friday we showed up an hour early as there was no traffic and a good thing as they ended up wanting to take me in early I was in the OR bfore 11:15 an hour early. Surgery had no complications and then by 5 I was in my own room, Unfortunately that is when my horror story begins!!!! I had teh WORST care ever at Portland Adventist! The nurses were rude wouldn't get me any water, yelled at me and said I was moving too slowly ( Oh sorry I have a catheder hanging out of me, I am doped on morphine and I just had my guts rearranged )They would put my " clean beedding and my robe on the floor walk over them then put them on me! Left me alone for LOOOOONG periods of time 4-6 hours where no one would check in on me. Unfortunatly my family were mostly up in washington with my mom who also just had a different surgery so I really didn't have anyone there to stick up for me. I came home early so I could get out of there! I am feeling much better today after finally getting some sleep last night, I DO WANT TO THANK SANDRA Turchan ANd LINDA for coming in saturday and seeing me that was very speicial and ment ALOT TO ME!!!!!!! So far no problems am eating between 1 - 1.5 oz a meal, carnation instant breakfast, cottage cheese, refried beans mixed in tonight (hopfully that will settle!) Good luck to everyone still waiting for this wonderful tool, I still have no regrets- the rewards are soooo much bigger than these little problems right now. Keep in touch Michele GOodman Dayton OR Dr Eubanks lap RNY 3/26/04 410/?? ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi and congratulations on your big step. I'm an RN, an a wls in waiting. I wanted to tell you that you need to complain to the hospital. Most have patient advocates to talk to. The issue of bedding on the floor is awful, and definitely should be brought to the attention of infection control. The rudeness is inexcusable. I know that there is a nursing shortage, but the accreditation reviews happen just the same, and it these things were noted by a Federal survey, the hospital would be in big trouble. At the very least, find out the name of the CEO, and send a letter of protest. (unknown) Hi everyone! I made it!!!!! went in friday we showed up an hour early as there was no traffic and a good thing as they ended up wanting to take me in early I was in the OR bfore 11:15 an hour early. Surgery had no complications and then by 5 I was in my own room, Unfortunately that is when my horror story begins!!!! I had teh WORST care ever at Portland Adventist! The nurses were rude wouldn't get me any water, yelled at me and said I was moving too slowly ( Oh sorry I have a catheder hanging out of me, I am doped on morphine and I just had my guts rearranged )They would put my " clean beedding and my robe on the floor walk over them then put them on me! Left me alone for LOOOOONG periods of time 4-6 hours where no one would check in on me. Unfortunatly my family were mostly up in washington with my mom who also just had a different surgery so I really didn't have anyone there to stick up for me. I came home early so I could get out of there! I am feeling much better today after finally getting some sleep last night, I DO WANT TO THANK SANDRA Turchan ANd LINDA for coming in saturday and seeing me that was very speicial and ment ALOT TO ME!!!!!!! So far no problems am eating between 1 - 1.5 oz a meal, carnation instant breakfast, cottage cheese, refried beans mixed in tonight (hopfully that will settle!) Good luck to everyone still waiting for this wonderful tool, I still have no regrets- the rewards are soooo much bigger than these little problems right now. Keep in touch Michele GOodman Dayton OR Dr Eubanks lap RNY 3/26/04 410/?? ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 Hey Shirley I am going through the process with Pacific Bariatric in San Diego, In fact I am from riverside. I have Blue Shield and I finished my classes with Beaver Medical back in December. that was a 5 month class. I went to the seminar in San Diego in March. they have you fill out the questionnaire and take a test. As far as paperwork, my doctor was pretty quick at faxing everything over to them. One suggestion I had previous heard is that you get the copies of the paperwork and either take it down there yourself or fax it yourself. The staff there will ask you how you want to procedure done, via lap or open and chose a doctor for you, then schedule a marathon of appointments . My doctor is Dr. . Who seemingly takes so long to do paperwork. My hold up is her paperwork now. I have been waiting a month for her to review my paperwork and schedule a date. I did find a website of the patients that had it at Pacific Bariatric. e-mail me and I will forward them on to you. It is wonderful to here from someone out here that is going to San Diego. I hope to continue our conversations. You may e-mail me at seekhimfirst2003@... or jphillips@... jennie -- (unknown) i would like to hear from anyone who has had the surgery at pacific bariatic in san diago ca. i live in fontana ca and have kaiser medical i went though a 12 week class on the surgery and finished up on march 22 o4 and have basically heard nothing from anybody yet. my doc say he sent the paper work to out but rob peterson says they have noit reciieved it yet and he should have gotten it by now anyway hope to hear from someone soon luck to everyone on the surgery shirley w Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 it took my incision nearly 5 weeks to completely close. when i talked to my nurse and dr. about it they said that was nothing unnormal. people heal differently. as long as there is no reddness or fever it was ok. also depends on whether you have diabetes or not. i didn't but still took me a little longer. just have to be patient, but i would still check with your dr. or PCP. take care and God bless! laurette 4/23/04 open RNY 309/290/265/150? St. Charity, Cleveland, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 , Congratulations on getting your surgery date. Please let us know when it is, okay? Take care and have a great day!! Laurette 4/23/04 Open RNY 309/290/265/150? St. Charity, Cleveland, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 Where are you from in Wisconsin I'm in s Point, and we have a terrific support group that meets once a month and also has a Yahoo group. I know that there are others in the state, I think Wausau and Eau also have a group. I am pre op, but finally got my surgery date, and I'm excited. I was quite surprised at all of the support people there are here, and the post op counseling that's available. (unknown) Hi everyone, I am just turning 33 and from Wisconsin, and i first just wanted to say that I am really glad I came across this website. We do not have a supporst group in our community for gastric bypass patients and was wondering where I was gonna turn for all the questions I had and support I may need. Second, can anyone tell me if it is normal to still have openings in the incision from an open RNY after almost 4 weeks? I asked my surgeon, but she more or less blew off the question and said that i was doing fine. And if you are wondering I started out at 357 and am now at 322. YIPEEEEE!!!! Thank you for taking the time to read this. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 Thank you for the information . I am from Antigo and the procedure is fairly new here. (I believe they have only been doing it here for about 7 months now) I have had very good pre-op teaching but now it just seems like there isn't much for me. Maybe I will check into the group in Wausau. Congrats on getting your date! Pam > Where are you from in Wisconsin I'm in s Point, and we have a terrific support group that meets once a month and also has a Yahoo group. I know that there are others in the state, I think Wausau and Eau also have a group. I am pre op, but finally got my surgery date, and I'm excited. I was quite surprised at all of the support people there are here, and the post op counseling that's available. > > (unknown) > > > Hi everyone, I am just turning 33 and from Wisconsin, and i first > just wanted to say that I am really glad I came across this website. > We do not have a supporst group in our community for gastric bypass > patients and was wondering where I was gonna turn for all the > questions I had and support I may need. Second, can anyone tell me > if it is normal to still have openings in the incision from an open > RNY after almost 4 weeks? I asked my surgeon, but she more or less > blew off the question and said that i was doing fine. And if you are > wondering I started out at 357 and am now at 322. YIPEEEEE!!!! > Thank you for taking the time to read this. > Pam > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Starlet, Don't let that get you down. That is a major major step you are taking. I think it would be normal to be a little anxious getting prepared for the surgery. Hang in there, you are going to do fine. Dora (unknown) ok had my first real melt down.. i went to the hospitol to get a cbc and get the addmittance papers for the surgery on friday.. my maa has been with me step by step and she had to go to L.A. and i was alone stressing started to have anxiety attack.. i have been so cool till now.. excited cool till now.. my aunt and uncle from 95 miles away showed up saved the day.. i did not tell them how i was feeling the anxiety an all.. then when i got to work .. my co-workers asked how it went yada yada and i just broke down crying could not stop.. i guess i am a wimp. man i hate being week.. thought i would share my visit to the hospitol with you all.. ta ta starlet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 smiles, thanks dora.. i guess i am more emtional than i think i am.. starlet Dora McCary wrote:Starlet, Don't let that get you down. That is a major major step you are taking. I think it would be normal to be a little anxious getting prepared for the surgery. Hang in there, you are going to do fine. Dora (unknown) ok had my first real melt down.. i went to the hospitol to get a cbc and get the addmittance papers for the surgery on friday.. my maa has been with me step by step and she had to go to L.A. and i was alone stressing started to have anxiety attack.. i have been so cool till now.. excited cool till now.. my aunt and uncle from 95 miles away showed up saved the day.. i did not tell them how i was feeling the anxiety an all.. then when i got to work .. my co-workers asked how it went yada yada and i just broke down crying could not stop.. i guess i am a wimp. man i hate being week.. thought i would share my visit to the hospitol with you all.. ta ta starlet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Kim, I feel the same, also!!! I am 9 months post-op and down 164 lbs., Even tho I was SCARED TO DEATH prior to surgery,. I would do this surgery again in a heartbeat!!!!! I am soooo much healthier now than I was 9 months ago!!!! This surgery has changed my life!!!!! sherri Stay strong and healthy > >Reply-To: Gastric_Bypass_Family >To: Gastric_Bypass_Family >Subject: (unknown) >Date: Thu, 24 Jun 2004 00:49:37 -0000 > >i had the surgery 2 months ago and feel great down 38lbs. im on my >way. best thing i couldve ever done for myself. does anybody else >feel the same? > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.