Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 , Will be praying for success with the injections. Glad you got a diagnosis at last. Hugs, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 Hi , At least now you know definitely and can treat it. I was going to suggest the pre-meds for your stomach, but I see that's already taken care of. When I started Cytoxan I was so sick the next day I thought I was going to die from vomiting. When my doctor heard about it he prescribed pre-meds and medication to take for a day or two after the treatment. I get pre-meds via IV before the Cytoxan and then I have Zofran to take at home when necessary. It has made a huge difference. Hope it's the same with you. It is so wonderful to see you high spirited and realizing there is so much other, nice things in your life. Good luck, Mojo Got my second opinion > Hi everyone, > > Finally got my second opinion after waiting a month and a half to get > in. Love the new doctor and am switching to him. He spent a solid > 45 minutes with me yesterday, and was very patient through all my > questions and gave me meaningful answers. Think I lucked out with > this one. > > He said I definitely have Lupus, Fibro, Restless Leg, and Raynaud's. > He's not sure if my brain fog is realted to those or if it's > something else. He wants my neuro to run more tests. I see the > neuro in two weeks. > > I'm starting methotrexate this weekend. Last time it made me so sick > I was bedridden for three days. He is having me try it in injections > this time to bypass my stomach a bit. He's also giving me something > for my stomach to take the day of and the day after the shot. > Crossing my fingers that it will work. Methotrexate made me feel so > much better till my stomach couldn't take it. > > That's what I know. I'm glad that I've been diagnosed with the same > thing twice after waiting for 7 years for a diagnosis. Unfortunately > it's lupus and friends. Luckily I'm having a really wonderful and > interesting life, so this is just a bump and not a mountain in my > path. > > Cross your fingers that the injections work for me. > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/gallery/view?username=lupies > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 , I'm glad you finally got the diagnoses finally straightened out, even if it had to be Lupus etc. It's a relief just knowing for sure what is wrong. And it's also a relief having a good doctor, which it sounds like you've found. I've been reading your posts for a few months and never replied, you certainly have gone through a lot. It's awesome that you have such a great attitude about it, I love seeing that! I like what you said: " Luckily I'm having a really wonderful and interesting life, so this is just a bump and not a mountain in my path. " That's awesome!! Good luck with the new meds! Take care! Chell Got my second opinion > Hi everyone, > > Finally got my second opinion after waiting a month and a half to get > in. Love the new doctor and am switching to him. He spent a solid > 45 minutes with me yesterday, and was very patient through all my > questions and gave me meaningful answers. Think I lucked out with > this one. > > He said I definitely have Lupus, Fibro, Restless Leg, and Raynaud's. > He's not sure if my brain fog is realted to those or if it's > something else. He wants my neuro to run more tests. I see the > neuro in two weeks. > > I'm starting methotrexate this weekend. Last time it made me so sick > I was bedridden for three days. He is having me try it in injections > this time to bypass my stomach a bit. He's also giving me something > for my stomach to take the day of and the day after the shot. > Crossing my fingers that it will work. Methotrexate made me feel so > much better till my stomach couldn't take it. > > That's what I know. I'm glad that I've been diagnosed with the same > thing twice after waiting for 7 years for a diagnosis. Unfortunately > it's lupus and friends. Luckily I'm having a really wonderful and > interesting life, so this is just a bump and not a mountain in my > path. > > Cross your fingers that the injections work for me. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 Glad you lucked out on the new doctor .. and glad you also got verified of a diagnosis... it may not be a nice one, but at least now you can say .. I got it! I am not crazy! will keep fingers and toes crossed that the injections work.. good luck .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Hi , It's almost like a Tale of Two Cities: It was the worst of times, it was the best of times (or however it goes). You finally get a diagnosis, you are really pleased to finally know so hopefully you can start feeling better, BUT - would really rather not have taken this side trip. Having a good doctor is so important as is having a good attitude. It sounds to me as though you have both those things going for you. - you are really loved. Any time you need to talk, ask a question or answer one - you know where to find those who care. I personally appreciate your checking in. I don't worry about you because I know sometime during the week you will check in. , you're one of the really good guys! Hugs - a B Got my second opinion Hi everyone,Finally got my second opinion after waiting a month and a half to get in. Love the new doctor and am switching to him. He spent a solid 45 minutes with me yesterday, and was very patient through all my questions and gave me meaningful answers. Think I lucked out with this one.He said I definitely have Lupus, Fibro, Restless Leg, and Raynaud's. He's not sure if my brain fog is realted to those or if it's something else. He wants my neuro to run more tests. I see the neuro in two weeks.I'm starting methotrexate this weekend. Last time it made me so sick I was bedridden for three days. He is having me try it in injections this time to bypass my stomach a bit. He's also giving me something for my stomach to take the day of and the day after the shot. Crossing my fingers that it will work. Methotrexate made me feel so much better till my stomach couldn't take it.That's what I know. I'm glad that I've been diagnosed with the same thing twice after waiting for 7 years for a diagnosis. Unfortunately it's lupus and friends. Luckily I'm having a really wonderful and interesting life, so this is just a bump and not a mountain in my path.Cross your fingers that the injections work for me."The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
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