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  • 2 weeks later...

, Sorry this has taken me so long to respond. I kind of got a little

behind on the e-mails when I went out of town. I still have over 600 to

read.(This may take a couple of days) I do take folic acid and the metho

seems to be working for me. I take 1mg. I take 10mg. of the metho., I am

losing my hair, but as Heidi put it, think of all the money we will save on

hair products, not to mention haircuts. I hope this helps. I hope you get

to feeling better, maybe you will something besides the metho that works.

Hugs and Prayers. Jana

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To all on metho: Will you please let me know what

dosage of metho you were started on. I know I am going

to have to start on it soon. I hate to admit it even to

myself, but I am sure my RP is affecting my breathing.

Ugh! I just want to go see my doctor well armed with

info as I want to start on a LOW dose!!

Glenda: I am being treated up at Oregon Health Sciences

Univ. here in Portland by Dr. Barkhuizen. He seems

quite knowledgeable, and thank heavens, pleasant. I'm

so sick of doctors that I'm getting picky and choosy.

Cheers to all and my nightly prayers for all. Love,

Dagny

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Dagny,

I know what you mean about dr. I too am getting that way. I am glad

I finally found the rheumy I have now. Now if I could just get my

primary care dr. on the stick I would have it made. Maybe my rheumy

will light a fire under him. My primary care dr. needs to be reading

up on RP if he has a patient with it you would think. Doesn't know

didly sqaut except for what I can tell him when he will listen.LOL

Lots of Love

Glenda

> Glenda: I am being treated up at Oregon Health Sciences

> Univ. here in Portland by Dr. Barkhuizen. He seems

> quite knowledgeable, and thank heavens, pleasant. I'm

> so sick of doctors that I'm getting picky and choosy.

>

> Cheers to all and my nightly prayers for all. Love,

> Dagny

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Dagny,

I started on 7 mg. of Metho and am now up to

12.5, I was on it once before but started at a higher dose and got very

sick. Gradual increases work better for me.

Hugs,

Sandy

----- Original Message -----

> To all on metho: Will you please let me know what

> dosage of metho you were started on. I know I am going

> to have to start on it soon. I hate to admit it even to

> myself, but I am sure my RP is affecting my breathing.

> Ugh! I just want to go see my doctor well armed with

> info as I want to start on a LOW dose!!

>

> Glenda: I am being treated up at Oregon Health Sciences

> Univ. here in Portland by Dr. Barkhuizen. He seems

> quite knowledgeable, and thank heavens, pleasant. I'm

> so sick of doctors that I'm getting picky and choosy.

>

> Cheers to all and my nightly prayers for all. Love,

> Dagny

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

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In a message dated 10/16/00 11:56:50 PM Central Daylight Time,

dthrower@... writes:

<< To all on metho: Will you please let me know what

dosage of metho you were started on. I know I am going

to have to start on it soon. I hate to admit it even to

myself, but I am sure my RP is affecting my breathing.

Ugh! I just want to go see my doctor well armed with

info as I want to start on a LOW dose!!

>>

Dagny,

I started on 6 pills a week, I think, no that's what I started on back in

November.

Hope things turn around for you and you won't have to take the craaaaap!

love

rene'

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