Re: constipation

March 12, 2003

,

I know it sounds pretty basic but we increase 's water and if

that doesn't work give him prune juice. (both through the g-tube)

We give about 1/2 the little cans of prune juice and haven't had to

give the other half yet. The biggest thing is the water.

Twana

> hi does any of your kids have trouble with bowel movements? if so

what do you do for them?

March 12, 2003

,

In January, I took in for urination troubles. She was PT before

She started school but was having trouble with both urination and

BM's and her dr thought she might be " consipated " . She put her on

Miralax. We used it for about 3 weeks with no improvement. I began to

believe that the urine/BM issues... smell and rash all have to do

with elavated levels so I D/C the Miralax.

Miralax didn't seem to effect her as some laxitives might. She didn't

have cramping, etc... It might work for brigitte. It's always worth a

shot.

Dorothy

P.S. I added 1/2 a lid full of the Miralax to a cup of twangy OJ

drink... More like Sunny Delight. She drank it right up... without

any trouble. You might have to hide it...( won't take meds any

other way... Had to go to suppositories for fevers.)

> hi does any of your kids have trouble with bowel movements? if so

what do you do for them? we finally got brigitte to go but i hate to

keep using a enima on her. that seems to be the only way she can go

lately and i can't get her in to see dr walsh. any ideas? thanks karen

March 13, 2003

Don't forget that Flax Oil works!

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March 13, 2003

Hi. also has chronic problems with constipation because of her muscle tone issues and poor motility. She has actually been impacted in the past. I have her on a steady diet of MOM 1 tsp. every other day. Oringinally it was every day but this began to give her diarrhea, so I switched it to every other. It seems to work for her.

Randee Bates mom to age 5.5 yrs. ? mito/ genetic disorder, ph age 10 and Kerri age 8

-- constipation

hi does any of your kids have trouble with bowel movements? if so what do you do for them? we finally got brigitte to go but i hate to keep using a enima on her. that seems to be the only way she can go lately and i can't get her in to see dr walsh. any ideas? thanks karen

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March 13, 2003

thanks to everyone for your help. after all the enimas the ped. has put brigitte on miralax and it's doing great.

----have a nice day. and my prayers are with you all. karen---Original Message-------

From: Mito

Date: Wednesday, March 12, 2003 20:43:11

To: Mito

Subject: Re: constipation

, In January, I took in for urination troubles. She was PT before She started school but was having trouble with both urination and BM's and her dr thought she might be "consipated". She put her on Miralax. We used it for about 3 weeks with no improvement. I began to believe that the urine/BM issues... smell and rash all have to do with elavated levels so I D/C the Miralax. Miralax didn't seem to effect her as some laxitives might. She didn't have cramping, etc... It might work for brigitte. It's always worth a shot. Dorothy P.S. I added 1/2 a lid full of the Miralax to a cup of twangy OJ drink... More like Sunny Delight. She drank it right up... without any trouble. You might have to hide it...( won't take meds any other way... Had to go to suppositories for fevers.)> hi does any of your kids have trouble with bowel movements? if so what do you do for them? we finally got brigitte to go but i hate to keep using a enima on her. that seems to be the only way she can go lately and i can't get her in to see dr walsh. any ideas? thanks karenPlease contact mito-owner with any problems or questions.

March 17, 2003

i KNOW HOW THAT IS JEREMY'S CONSTIPATION GOT TO THE POINT THAT HE WOULD HAVE

TO GO TO THE HOSPITAL TWO OR THERR TIMES A MONTH FOR CLEANING THRU HIS G-TUBE

.. HE IS DOING BETTER WITH THIS PROBLEM NOW DON'T REALLY KNOW WHAT HELPED IT

BUT HE HAS NOT HAD IT DONE FOR ABOUT SIX MONTHS NOW. HE IS DOING SO GOOD NOW

IT REALLY SCARES ME. WE NEVER KNOW WHAT TEH NEXT HOUR HOLDS FOR US BUT WE

JUST KEEPING PRAYING AND TAKING ONE DAY AT A TIME DON,T GIVE UP JUST KEEP

TRYING. GOD BLESS YOU LAURA, JEREMY'S MOM AGE 16

April 28, 2003

Several of the boys in our family have always had trouble with constipation and also very large stools, so large we wonder how they pass them. They are not always constipated stools either. Does anyone know what causes the large stools and what can we do to help that?

Is it bowel immotility (is that the correct phrase?) that causes these problems? When you are a little boy it can make life miserable and so embarrassing. Kody also has the bad rashes and the ADHD so is it to do with the Omega fatty acid thing?

I really want to help him.

Grandma

Re: constipation

, In January, I took in for urination troubles. She was PT before She started school but was having trouble with both urination and BM's and her dr thought she might be "consipated". She put her on Miralax. We used it for about 3 weeks with no improvement. I began to believe that the urine/BM issues... smell and rash all have to do with elavated levels so I D/C the Miralax. Miralax didn't seem to effect her as some laxitives might. She didn't have cramping, etc... It might work for brigitte. It's always worth a shot. Dorothy P.S. I added 1/2 a lid full of the Miralax to a cup of twangy OJ drink... More like Sunny Delight. She drank it right up... without any trouble. You might have to hide it...( won't take meds any other way... Had to go to suppositories for fevers.)> hi does any of your kids have trouble with bowel movements? if so what do you do for them? we finally got brigitte to go but i hate to keep using a enima on her. that seems to be the only way she can go lately and i can't get her in to see dr walsh. any ideas? thanks karenPlease contact mito-owner with any problems or questions.

April 29, 2003

so large we wonder how they pass them. They are not always constipated stools either. Does anyone know what causes the large stools and what can we do to help that?

Yes, this is a common problem with mito kids...it can be either an autonomic issue or it can be caused by low muscle tone...it is called gut dysmotility. 's are so big we have had to call a plumber b/c they have clogged the toilet but they are generally soft, which seems contrary to constipation. He still has one of those every day or two.

Dr Korson says that Carnitor should help altho Carnitor didn't do anything for us (for any problems--cocktail was unsuccessful) so maybe you could try this?

deb

April 29, 2003

,

One of the other parents wrote a while back that their child's doctor

told them the large stools are because the muscles in the intestine

were not working correctly or well to compact the stool.

If it happens to we just joke to him that he pooped enough for

two people and both of them were grown ups. It gives him the

giggles - 9 year olds are into that gross bady function humor.

Twana

know what causes the large stools and what can we do to help that?

April 29, 2003

My son, who is 4 is pretty profoundly affected in his intestines. I guess all Mitochondrial patients are more or less affected in different areas. Caden's big deal is his intestinal motility. Carnitor is THE best thing we have ever found for him! His motility problems ceased with the use of Carnitor! Although, his stools are still quite large, especially for a 4 yr old but at least he functions. Even though he takes Carnitor, this doesn't stop the psuedo obstrucstions he gets during a viral illness. Any kind of stress on his body affects his intestines. It's very hard and slow to get them moving again. He is currently off his his Carnitor (for 1 month!!) for some lab work he has to have next week. It took nearly a full 4 weeks for his problems to come back but THEY HAVE!

We are having a terrible time with him and are about ready to give up on getting his labs drew. He's due to get them drawn on the 6th but it seems like forever when your child has such severe stomach pain and you are having to do enemas! It breaks my heart. I am pregnant and with most pregnant women, I have experienced some degree of constipation. It makes you feel TERRIBLE all over. Just a kinda nervous, jittery, aggravated, unclean feeling. I cannot imagine how he must feel inside.

He was just in the hospital in Jan.with a very long bout of psuedo obstruction. Nothing worked until they done the ng tube with Go Lytly(spelling??). That finally worked and then we kept him on Metamucil for a month or so. He was doing fine until we stopped his Carnitor. It has helped him in so many areas, not just the motility. We are very anxious to get him back on it. Anyone else have these kinds of results?

Krystena s

Caden 4.9yrs GAII

Re: constipation

, In January, I took in for urination troubles. She was PT before She started school but was having trouble with both urination and BM's and her dr thought she might be "consipated". She put her on Miralax. We used it for about 3 weeks with no improvement. I began to believe that the urine/BM issues... smell and rash all have to do with elavated levels so I D/C the Miralax. Miralax didn't seem to effect her as some laxitives might. She didn't have cramping, etc... It might work for brigitte. It's always worth a shot. Dorothy P.S. I added 1/2 a lid full of the Miralax to a cup of twangy OJ drink... More like Sunny Delight. She drank it right up... without any trouble. You might have to hide it...( won't take meds any other way... Had to go to suppositories for fevers.)> hi does any of your kids have trouble with bowel movements? if so what do you do for them? we finally got brigitte to go but i hate to keep using a enima on her. that seems to be the only way she can go lately and i can't get her in to see dr walsh. any ideas? thanks karenPlease contact mito-owner with any problems or questions.

April 30, 2003

This is all very helpful.

I forgot someone mentioned using carnitine for the bowel issues some time back and since my daughter (his aunt) benefits so much from it I'll see if I can find the money to try Kody on it as soon as possible. Even though the prescription stuff didn't work for her I could try that for him right away since I have insurance. If it doesn't work, then I'll get the brand she has for him.

I think we tried Miralax and the Dr. guaranteed it would work, but it didn't so we ended up at the gastroenterologist. A week of mineral oil finally helped for that time.

Tomorrow I'll start him on some type of carnitine!

Re: constipation

, In January, I took in for urination troubles. She was PT before She started school but was having trouble with both urination and BM's and her dr thought she might be "consipated". She put her on Miralax. We used it for about 3 weeks with no improvement. I began to believe that the urine/BM issues... smell and rash all have to do with elavated levels so I D/C the Miralax. Miralax didn't seem to effect her as some laxitives might. She didn't have cramping, etc... It might work for brigitte. It's always worth a shot. Dorothy P.S. I added 1/2 a lid full of the Miralax to a cup of twangy OJ drink... More like Sunny Delight. She drank it right up... without any trouble. You might have to hide it...( won't take meds any other way... Had to go to suppositories for fevers.)> hi does any of your kids have trouble with bowel movements? if so what do you do for them? we finally got brigitte to go but i hate to keep using a enima on her. that seems to be the only way she can go lately and i can't get her in to see dr walsh. any ideas? thanks karenPlease contact mito-owner with any problems or questions.

April 30, 2003

For a more natural way, try eating as much fruit as possible. This has helped by 2 yr old out.

-----Original Message-----From: Sent: Wednesday, April 30, 2003 2:06 AMTo: Mito Subject: Re: Re: constipation

This is all very helpful.

I forgot someone mentioned using carnitine for the bowel issues some time back and since my daughter (his aunt) benefits so much from it I'll see if I can find the money to try Kody on it as soon as possible. Even though the prescription stuff didn't work for her I could try that for him right away since I have insurance. If it doesn't work, then I'll get the brand she has for him.

I think we tried Miralax and the Dr. guaranteed it would work, but it didn't so we ended up at the gastroenterologist. A week of mineral oil finally helped for that time.

Tomorrow I'll start him on some type of carnitine!

Re: constipation

, In January, I took in for urination troubles. She was PT before She started school but was having trouble with both urination and BM's and her dr thought she might be "consipated". She put her on Miralax. We used it for about 3 weeks with no improvement. I began to believe that the urine/BM issues... smell and rash all have to do with elavated levels so I D/C the Miralax. Miralax didn't seem to effect her as some laxitives might. She didn't have cramping, etc... It might work for brigitte. It's always worth a shot. Dorothy P.S. I added 1/2 a lid full of the Miralax to a cup of twangy OJ drink... More like Sunny Delight. She drank it right up... without any trouble. You might have to hide it...( won't take meds any other way... Had to go to suppositories for fevers.)> hi does any of your kids have trouble with bowel movements? if so what do you do for them? we finally got brigitte to go but i hate to keep using a enima on her. that seems to be the only way she can go lately and i can't get her in to see dr walsh. any ideas? thanks karenPlease contact mito-owner with any problems or questions.

April 29, 2004

,

Ellen is right on this one. I too tend to go through periods of

constipation. But once I up my water (not soda) intake it seems to do

the trick. For fast relief, and I'm not suggesting this to anyone,

for me all I need to do is eat about two table spoons of ice cream

and in about an hour I have results. This is probably part of

dumping, but I do not get symptoms like those of some I have read and

heard about, thankfully. Good luck in getting the plumbing ironed out.

-Ray

> ,

>

> I am 6 weeks out and have had some problems with constipation. The

> cure.....64 ozs of water everyday! When I started to consume at

least 64 ozs odf

> water, all my constipation disappeared. And another plus, I started

dropping alot

> more weight!

>

> Hope this helps!

>

> Ellen

> very greatful surgery 3/15/04

> 440/386/???? 54 lbs lost in the 6 weeks !!!! Woopie!!!

> Your friend in freedom from fat!

>

> Ellen Kahn

> Tatouage Consultant

> Tatouagedesigns.com

> discount code: EllKah30

>

> " Life is not a journey to the grave with the intention of arriving

> safely in a pretty and well preserved body, but rather to skid in

> broadside, thoroughly used up, totally worn out, and loudly

> proclaiming -- WOW--What a Ride!!! "

>

> In a message dated 4/27/2004 8:43:20 AM Pacific Daylight Time,

> Gastric_Bypass_Family writes:

> Date: Mon, 26 Apr 2004 13:00:39 -0400

> From: <kidz4@e...>

> Subject: vitamins

>

> I'm still pre-op, but I've started taking what I think will be the

> vitamins I'll need after surgery. I got a good multivitamin,

sublingual

> B-12, calcium, biotin and iron. After only a few days, the

constipation

> has already started...I'm assuming because of the iron. Is there

any

> way to get around this?

>

> Mother of Many

>

May 24, 2004

>

> > hello how long has it been for you haveing surgery. i am 2months and 3 weeks

how long did you wait to drink a soda .

June 23, 2004

What vitamins and supplements are you taking?

June 23, 2004

Try two regular fig newtons a day...a nice treat too!!

> I know I've asked this before, (maybe some new wonder cure/drug has

> been discovered since the last time I asked) but I am having a

> terrible time with severe constipation. I had lap rny on Jan 22,

> 2004. I drink the 8-10 glasses of wate a day, I take 3 stool

> softeners at bedtime, and daily I take 4-5 grams of fiber (pills)

> with meals. Nothing is helping. I am only having a bowel movement

> every 2-3 days and it is like cement and very painful. I now have

> major hemorrhoids that bleed sometimes from the strain. To date I

> haven't lost much weight either. I believe mostly because of this

> problem. I was 224 the day of surgery and am 196 today. Only 38

> pounds in 5 months. Yes it's 38 pounds that I couldn't loose

before,

> but this has really been difficult. My husband is trying to be

> supportive, but this has really effected him too. You can imagine

> how interested I am (not) in spending " intimate time " with him when

I

> feel so lousy. I really need help. I asked my doctor about this

and

> she put me on lactulose syrup. I tried it 2 times and threw up

both

> times from it.

>

June 23, 2004

, how far out are you? I'm 6 weeks post op myself and having a

terrible time getting my water in. I'd like to know how you manage to get

8-10 glasses in! Given that I'm not supposed to drink 30 min prior to a

meal, the 30 min of the meal, and 30 min after the meal, that's 4 1/2 hours

right there. I usually have a snack or a protein shake sometime in the

day, so that adds at least another 90 min where I can't drink...other than

getting up in the middle of the night, I can't seem to figure out how to

get all this water in by sip-sip-sipping in the time I have. What is

working for you? Thanks for your help,

Kelley

RNY 5/12/04

374/328/175

cathysthecook wrote:

> Thanks to those who offered advice. I do drink 8-10 glasses of water

> a day. I don't eat much fruit or veggies -- mostly protein and a few

> bites of veggies. I don't do too well yet with anything raw so I'm

> not getting much fiber from foods. I tried the flax o' meal cereal

> with 10 grams of fiber but that didn't help. I don't take any iron so

> I know it's not that. Does anyone know anything about the drug

> zelnorm? I see it advertised to help with Irritable Bowel with

> Constipation. I had heard lots of stories about how folks who had

> G/BP had problems with diarrhea not being constipated, so I never

> expected this to happen.

>

June 23, 2004

Somedays I have a hard time too. I haven't had my surgery, but I am getting

prepared for how life will be like after surgery. At first I brought a

gallon jog of water and told myself I have to drink at least that during the

day. Seeing that huge jug on my desk at work was hard and I had a difficult

time drinking even half of it. So, what I did was buy 20 oz bottled water.

I figure if I drink three of them during work I'm extremely close to drink a

gallon of water. We basically have most of the air conditioning off at work

because (all the thin people) are cold all the time. So they close the

vents. The number of overweight people in our department are 6 and the rest

of us have to bring in fans to keep cooler. So, for me it's become

extremely easy to drink all that water because I am constantly thirsty.

Today, I have drank at least 4 - 20 oz waters, 2 - 20 oz watered down

Crystal Light Pink Lemonade and one protein shake. I feel like Orca the

whale! But I am drinking my water.

Eileen

Re: Constipation