Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 , Welcome. Please feel very , very welcome. I read the post Deb forwarded and tears are still streaming down my face after reading about Lily. I am sure you have lots to share and you found us for a reason. Riley -----Original Message----- Sent: Sunday, December 29, 2002 12:39 PMTo: Mito Subject: GreetingsI found this group last night while surfing away. How I wish I would have found you all a year ago. Reading through old posts, it was so great to "hear" how you all help each other so. What an inspiration!I would like to participate also, but I feel the need to clear it with all of you first. As I am an all to real reminder of the "bad" possible outcome of the Mito disorder. We are a family of 5. Now four alive. Struggling to deal with the hole left behind by a sweet child who taught us so much. I can offer lots of assistance to those day to day questions that come up regarding supplements, docs, insurance, therpy, SSI, MA. We doctored in Mpls, & Mayo, and met so many caring professionals. I like so many others, have become an expert in areas we never new about before.I have acquired hard earned, specialized skills. But now, after October 11th, I am learning about a new area of speciality. GRIEF! My it's a tough one. So I ask the group if I may share.....,Respectfully yours in the Mito journey,So I ask the groupPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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