Re: I need some help please

[Guest guest]

In a message dated 10/16/00 6:56:42 PM Central Daylight Time,

susuw@... writes:

<< sn't this damn year over with yet??????????????????? Geez!

>>

, I'm with you on that note. Gee I hope things get better for you. May

God bless you and your family and give you the strength to endure.

love

rene'

[Guest guest]

Hi , Wow what a year it is . I am with you is it

ever going to end with all the bad news here lately.

As you know I do have intestine problems big

time too.And yes I do agree with the Dr. everyone should

have a yearly check up after cancer was found in a family

member .My personal Joyce would be to remove part of

the intestines .There for the most likely would get all the bad

ones at once. And yes you can have a normal life after getting

some of the intestine removed .That is one thing we all have plenty off, I

ought to know I hade the surgery now 3 times already.

And each time the take more intestine .And yes Mike should have a test done

too if he likes it or not. Sorry but it does run sometimes in the family.

Sorry I cant be of much more help right now. Keep us

informed on his problems please . Just remember it will get better

and please also take care of your self too . Love you

Heidi

.. He

> says he can't emphasize this enough about them being tested too. He almost

> demanded that they be tested.

> Mike's brother has the option of 3 things that Mike's parents have to

decide

> on.

> 1. Remove a large portion of his intestines.

> 2. Do surgery to try and remove them all.

> 3. Do nothing for now and have a scope done yearly to check on them.

> Isn't this damn year over with yet??????????????????? Geez!

>

>

>

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

[Guest guest]

Heidi,

Mike's brother is mentally retarded and the doctor doesn't think he will be

able to handle the bag thing. What is that called?? Geez, my mind is mush

now. They are talking about removing his colon or intestines, whatever it is

that lets you poop and putting a bag on the side to empty the waste into. He

couldn't handle it. He would have to empty it as often as was needed and the

risk of infection would probably be very high too because of his mental

state.

I'm searching the web right now for some kind of answers.

Thank you Heidi for helping me. It just seems that life keeps throw out

stuff every few weeks and I'm really getting quite tired of trying to deal

with it all. Enough is enough for one year for goodness sake.

>>>>>>>>>>>>>>>>>>>>>>>>>>

Hi , Wow what a year it is . I am with you is it

ever going to end with all the bad news here lately.

As you know I do have intestine problems big

time too.And yes I do agree with the Dr. everyone should

have a yearly check up after cancer was found in a family

member .My personal Joyce would be to remove part of

the intestines .There for the most likely would get all the bad

ones at once. And yes you can have a normal life after getting

some of the intestine removed

[Guest guest]

Hi

I was scoped in August and even though it wasn't the most pleasant

experience in my life, I don't regret it...With colon cancer being one of

the most notorious, because everyone is so 'embarrassed' to having a scope

done, I wouldn't take a chance on not knowing if I might have cancer or

not...

personally I would opt for options 1 or 2... better to get it over with than

wait and wonder when cancer will strike,... and then the possibility of

overcoming the disease is lessened dramatically. If he has the surgery of

option 1 will he have to have a colostomy (an exterior bag to collect the

waste)? and, with option 2 what kind of odds did the doctor give that the

polyps won't return? In any case, I think Mike's brother will need to be

scoped regularly to be sure the polyps don't return...

At work, we receive requests for information from patient charts, from

geneticists conducting studies on hereditary cancers, and colon cancer is

one of them. Try to convince Mike to have the colonoscopy, it's the lesser

of two evils, trust me...

take care and let us know what happens

luv

Carmela

**************************

>

>Reply-To: Rpolychondritisegroups

>To: <Rpolychondritisegroups>, <autoimmuneegroups>

>Subject: I need some help please

>Date: Mon, 16 Oct 2000 19:38:44 -0400

>

>I have questions for people that have had colonoscopy done please.

>Mike has a mentally disabled brother who just had a scope done and they

>found around 100 precancerous polps.

>The doctor is STRONGLY recommending that his father, mother, Mike and his

>sister all be scoped now. This doc says that this is a " trait " factor and

>they are all at a much greater risk of developing cancer of the colon. He

>says he can't emphasize this enough about them being tested too. He almost

>demanded that they be tested.

>Mike's brother has the option of 3 things that Mike's parents have to

>decide

>on.

>1. Remove a large portion of his intestines.

>2. Do surgery to try and remove them all.

>3. Do nothing for now and have a scope done yearly to check on them.

>Does anyone know anything about this " trait " thing?????????

>Weak gene????

>I know Mike isn't going to have it done. He's so damn hard headed.

>Any help would be greatly appreciated. Any website would too.

>Thanks in advance.

>Isn't this damn year over with yet??????????????????? Geez!

>

>

>

>

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[Guest guest]

In a message dated 10/16/2000 7:52:03 PM Central Daylight Time,

heidi@... writes:

<< Isn't this damn year over with yet??????????????????? Geez!

>

>

> >>

NO damn it, but I wish things would change.

,

I am only a phone call away.

I love u

Lu

[Guest guest]

,

Are you trying to take on the troubles of the world here. If so I will send

you some of mine.) Of course I am just kidding! Goodness you take care

of yourself. You know what stress does

to us RP'rs. Sorry to hear of the situation maybe when they get in there it

wont be as bad as they think. I will be sending good thoughts and prayers

and if there is anything I can do just give me a shout.

Lots of Love

Glenda

On Mon, 16 Oct 2000 20:39:55 -0400, Rpolychondritisegroups wrote:

> Heidi,

> Mike's brother is mentally retarded and the doctor doesn't think he will

be

> able to handle the bag thing. What is that called?? Geez, my mind is mush

> now. They are talking about removing his colon or intestines, whatever it

is

> that lets you poop and putting a bag on the side to empty the waste into.

He

> couldn't handle it. He would have to empty it as often as was needed and

the

> risk of infection would probably be very high too because of his mental

> state.

> I'm searching the web right now for some kind of answers.

> Thank you Heidi for helping me. It just seems that life keeps throw out

> stuff every few weeks and I'm really getting quite tired of trying to

deal

> with it all. Enough is enough for one year for goodness sake.

>

> >>>>>>>>>>>>>>>>>>>>>>>>>>

> Hi , Wow what a year it is . I am with you is it

> ever going to end with all the bad news here lately.

> As you know I do have intestine problems big

> time too.And yes I do agree with the Dr. everyone should

> have a yearly check up after cancer was found in a family

> member .My personal Joyce would be to remove part of

> the intestines .There for the most likely would get all the bad

> ones at once. And yes you can have a normal life after getting

> some of the intestine removed

>

>

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[Guest guest]

In a message dated 10/16/2000 7:56:39 PM Eastern Daylight Time,

susuw@... writes:

<< know Mike isn't going to have it done. He's so damn hard headed.

Any help would be greatly appreciated. Any website would too.

Thanks in advance.

Isn't this damn year over with yet??????????????????? Geez!

>>

Dear - First thing I would do is get a second opinion. He would not

necesaarily have to have another test as you can get the " pictures " and

slides from the first doctor along with the typed reports. My Mother died of

colon cancer and I have a colonoscopy every 3 years...I do believe in

preventive medicine. 11 years ago I had a " routine " mammography and they

found cancer and I am still here to talk about it....you are in my prayers

JanetG

[Guest guest]

, Rich had a colonoscopy done about 6 months ago. He said there was no

pain involved at all. They found a few polyps and removed them while they

were there. Please have Mike have this done. do it NOW and prevent any

thing further from developing. I wish I had an answer for your brother in

law...... I don't. Of course I'm not thinking very clearly now, maybe

tomorrow.LOL

Hugs