Re: EEG report-Saneto's notes

[Guest guest]

, I know this can be very frustrating, my one sister once told me, why don't you just let Josh be a kid instead of searching for something that's wrong with him. And you know what the scary thing was,,,,,,,,,,,,,, that I ALMOST listened to her. I always knew their was something wrong with him since he was born, it seam's that once you get that gut feeling you cant just ignore it.

Hang in their, it took us 6 year's just to get a Mito dx and it still seam's like everything is up in the air. Surround yourself with people that will only lift you higher, this is a big key to getting through all this OK.

Patty Kraynik soft signs

Josh Mito Myopathy age 7

[Guest guest]

: sorry you have to go through the EEG's over again, but I think it might be worthwhile. Also, having had Seth see both Dr. Haas and now getting his care from Saneto, Saneto gives great care and is much more available to work with. Yes, bring along your other kids' histories, I think he would find it helpful. Congrats that you are finally getting somewhere in your long search.

(Mom to Seth and Ben, both mito)

wrote:

and anyone,

Riley has now started shivering at the end of her seizures.

Shenan talked to the person at Children's who said Dr. Saneto wants to do his own EEG on Riley because he says the people at Providence in Portland usually read for adults and children's EEGs are different. Since the results were computer generated he can't see them to interpret them for himself he says. So she goes back the 5 hours to Seattle the 28th. He also wrote orders to do one on Corbin.

We're blown away that someone is finally taking these symptoms seriously and is so thorough. What a blessing for a change.