Guest guest Posted May 11, 2001 Report Share Posted May 11, 2001 Hi Cheryl, and welcome to this list. Congratulations on your date, and for your decision to have WLS at such a young age! I am 42, and had my surgery on 11/27/00 with Dr. Thayer, he is a wonderful man, and surgeon. I am down 75lbs, with another 60 to go! I feel and look better (if I do say so myself), better than I have in years. Have a great weekend, Joni NEW TO THE GROUP Hello everyone! I just wanted to introduce myself as I am new to the list. : ) My name is Cheryl and I am 24 y/o. I will be having my surgery on July 12th w/ Dr. Thayer @ Newton Wellesley as long as my insurance cooperates, lol! Please feel free to email me with any suggestions or stories you may have. It's great to have people who know what you are going through to talk to!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2001 Report Share Posted May 11, 2001 Hi Cheryl, welcome to the group. I'm having surgery next week, May the 17th with Dr. Thayer. I'm the resident pervert on the list...But everyone gets me and Jeff confused...So...Hrmm...Maybe I'm not, and he is. Bah...I AM THE PERVERT. Umm...Hi -- S. NEW TO THE GROUP Hello everyone! I just wanted to introduce myself as I am new to the list. : ) My name is Cheryl and I am 24 y/o. I will be having my surgery on July 12th w/ Dr. Thayer @ Newton Wellesley as long as my insurance cooperates, lol! Please feel free to email me with any suggestions or stories you may have. It's great to have people who know what you are going through to talk to!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hi Ed! Another Ed, cool..... Welcome to our goofy bunch of people. I say that with love. It is a great bunch here and you will love it. My name is Zanna, I am 34 and was dx almost 4 years ago with PM. I have 2 small kids and live in So. California. Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hi Ed, Welcome to the group...I'm Lynn, 53, dx'd with DM, live in Virginia. Glad you are here. This is a great group, lots of sharing, a whole lot of support, we share laughes and tease one another, recipes get passed around...so you get more than just discussion of our disease, you get friends who really understand! Looking forward to hearing more from you. Lynn edpatblue wrote: Hello to all,My name is Ed and I have IBM and happened upon this group. I was first dx'd with PM in 1993, but this past May I was told after another biopsy that I have IBM. I hope to be able to share my experiences with my treatment of my PM over these last several years. RespectfullyEd IBM Mich Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hello, Ed and welcome to the group. My name is Dawn and I was just dx'd. with PM last Dec. Looking forward to getting to know you. You'll be our 2nd Ed of the group. Speaking of Ed, where did he disappear to now??? Dawn edpatblue wrote: > Hello to all, > My name is Ed and I have IBM and happened upon this group. I was > first dx'd with PM in 1993, but this past May I was told after > another biopsy that I have IBM. I hope to be able to share my > experiences with my treatment of my PM over these last several years. > > Respectfully > Ed IBM Mich > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hi Zanna, I look forward to chatting with everybody we all have one thing in common and we can share our trials abd tribulations with each other. Look forward to talking with everyone. Ed >From: mrsxanadu@... >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group >Date: Sat, 17 Aug 2002 20:57:06 EDT > >Hi Ed! >Another Ed, cool..... >Welcome to our goofy bunch of people. I say that with love. It is a great >bunch here and you will love it. > >My name is Zanna, I am 34 and was dx almost 4 years ago with PM. I have 2 >small kids and live in So. California. > >Zanna _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hi Ed I'm Teddi and was dx with DM in 1996. I live in Oklahoma City. I know you are going to enjoy this group. Vicki is a whiz at research, all the group are great fun and very supportive. You can whine, moan & groan all you want and we are here to support you..........so........Welcome! Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hi Ed, Welcome to our group. I am Sherri and I have PM. dx last Sept. I am 47yrs. young, live in Idaho. Where about in Mich. do you live? I have some friends here that are from back there. Well I hope you enjoy us and looking forward to hearing your story. Sherri edpatblue wrote: Hello to all,My name is Ed and I have IBM and happened upon this group. I was first dx'd with PM in 1993, but this past May I was told after another biopsy that I have IBM. I hope to be able to share my experiences with my treatment of my PM over these last several years. RespectfullyEd IBM Mich Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hi Sherri, Thanks for the welcome. I look forward sharing my experiences with both PM and IBM with everybody. I am 59 and live just east of Lansing, Mi in a small town. I grew up in Detroit and moved from there in 1960. I was really surprised with the change in dx this past May. I have had a few bad experiences with Prednisone that are not fun to deal with. Along with the weight gain I developed cataracts and glaucoma from the heavy doses of Prednisone. When I was first dx'd I started out on 60mg a wk along with Imuran. After a few months I couldn't take the Imuran and was switched to Methotrexate. I am down to 10 mg of Pred every other day and 25 mg of Metho by injection. I have to take Leuocovorin to prevent sores in the mouth from the increased Metho. Take Calcium to keep the bones from getting brittle due to the Pred. I also take stuuf so my stomach doesn't get upset,folic acid, multi-vitamins. It is quite an experience to be healthy most of your life then one day find it hard to get up from the floor. Thanks for the welcome and I look forward to keeping in touch with everybody. Ed > >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group >Date: Sun, 18 Aug 2002 07:36:25 -0700 (PDT) > > >Hi Ed, Welcome to our group. I am Sherri and I have PM. dx last Sept. I am >47yrs. young, live in Idaho. Where about in Mich. do you live? I have some >friends here that are from back there. Well I hope you enjoy us and looking >forward to hearing your story. >Sherri > edpatblue wrote:Hello to all, >My name is Ed and I have IBM and happened upon this group. I was >first dx'd with PM in 1993, but this past May I was told after >another biopsy that I have IBM. I hope to be able to share my >experiences with my treatment of my PM over these last several years. > > > >Respectfully >Ed IBM Mich > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hi Teddi, Thanks for the welcome and I do look forward to chatting with everyone. I live near Lansing that is in the middle of the state. It sound like everyone here is really good at helpnig bring others spirits up with just a few words. again thanks and I look forward to chatting. Ed >From: TeddiFromOK@... >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group >Date: Sat, 17 Aug 2002 22:28:21 -0500 (CDT) > >Hi Ed > >I'm Teddi and was dx with DM in 1996. I >live in Oklahoma City. > >I know you are going to enjoy this group. Vicki >is a whiz at research, all the group are great >fun and very supportive. You can whine, moan > & groan all you want and we are here to >support you..........so........Welcome! > > >Teddi >mailto:teddifromok@... > > > > > > > > > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Welcome Ed My name is Andy and I have PM. Been dx'd about 3 years now. You will enjoy the group. They give you info and advice about things you might not know about. Andy Re: New to the group>Date: Sat, 17 Aug 2002 22:28:21 -0500 (CDT)>>Hi Ed>>I'm Teddi and was dx with DM in 1996. I>live in Oklahoma City.>>I know you are going to enjoy this group. Vicki>is a whiz at research, all the group are great>fun and very supportive. You can whine, moan> & groan all you want and we are here to>support you..........so........Welcome!>>>Teddi>mailto:teddifromok@...>>>>>>>>>_________________________________________________________________Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hi Ed, I have steroid induced glaucoma, too, and am developing a cataract. Have you had yours removed? Pred sure is fun, isn't it? The fridge that gets strapped to your back sure gets heavy! I took L-Lysine for the mouth sores, really made a difference! Usually when I take my Methotrexate I take some Zantac, just in case. But the folic acid makes a good difference! How's the weather in Michigan? Lynn Ed Reimer wrote: Hi Sherri,Thanks for the welcome. I look forward sharing my experiences with both PM and IBM with everybody. I am 59 and live just east of Lansing, Mi in a small town. I grew up in Detroit and moved from there in 1960. I was really surprised with the change in dx this past May. I have had a few bad experiences with Prednisone that are not fun to deal with. Along with the weight gain I developed cataracts and glaucoma from the heavy doses of Prednisone. When I was first dx'd I started out on 60mg a wk along with Imuran. After a few months I couldn't take the Imuran and was switched to Methotrexate. I am down to 10 mg of Pred every other day and 25 mg of Metho by injection. I have to take Leuocovorin to prevent sores in the mouth from the increased Metho. Take Calcium to keep the bones from getting brittle due to the Pred. I also take stuuf so my stomach doesn't get upset,folic acid, multi-vitamins. It is quite an experience to be healthy most of your life then one day find it hard to get up from the floor. Thanks for the welcome and I look forward to keeping in touch with everybody.Ed>From: "S. Berglund" >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group>Date: Sun, 18 Aug 2002 07:36:25 -0700 (PDT)>>>Hi Ed, Welcome to our group. I am Sherri and I have PM. dx last Sept. I am >47yrs. young, live in Idaho. Where about in Mich. do you live? I have some >friends here that are from back there. Well I hope you enjoy us and looking >forward to hearing your story.>Sherri> edpatblue wrote:Hello to all,>My name is Ed and I have IBM and happened upon this group. I was>first dx'd with PM in 1993, but this past May I was told after>another biopsy that I have IBM. I hope to be able to share my>experiences with my treatment of my PM over these last several years.>>>>Respectfully>Ed IBM Mich>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hi Ed, Welcome to our wonderful group. My name is Venita. I am 38 and was dx'd with DM in Aug 2001. I was fortunate that I was diagnosed very early on. I am currently on 10 mg. of pred, 20mg of metho, bactrim, fosamax, diflucan, calcium and vitamins. I am sure that you will enjoy this group and come to care. I look forward to hearing more of your story. Venita. > Hello to all, > My name is Ed and I have IBM and happened upon this group. I was > first dx'd with PM in 1993, but this past May I was told after > another biopsy that I have IBM. I hope to be able to share my > experiences with my treatment of my PM over these last several years. > > > > Respectfully > Ed IBM Mich Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi Ed, Just thought I'd say hello too. I'm Lesley, aged 47, was diagnosed with dm and mctd two years ago. The meds I take are 7.5mg of pred, 10 mg of methx and ivig every 3 months. I hope you are coping ok with ibm and look forward to reading your news. take care, Lesley (I'm an Aussie!) > >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group >Date: Mon, 19 Aug 2002 00:31:52 -0000 > >Hi Ed, > >Welcome to our wonderful group. My name is Venita. I am 38 and was >dx'd with DM in Aug 2001. I was fortunate that I was diagnosed very >early on. I am currently on 10 mg. of pred, 20mg of metho, bactrim, >fosamax, diflucan, calcium and vitamins. > >I am sure that you will enjoy this group and come to care. I look >forward to hearing more of your story. > >Venita. > > > > Hello to all, > > My name is Ed and I have IBM and happened upon this group. I was > > first dx'd with PM in 1993, but this past May I was told after > > another biopsy that I have IBM. I hope to be able to share my > > experiences with my treatment of my PM over these last several >years. > > > > > > > > Respectfully > > Ed IBM Mich > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 HI Ed, Well I hear you with the meds. I myself take 1.4mg meth, and 2mg floic acid,and a baby asprin. I take the shot. It sounds like I take a low dose. I keep in contact with my reumy bi-weekly by phone, as I too am one waiting for SSD. Have you had your feet or hands turn purple? Hope you have a great day. Sherri Ed Reimer wrote: Hi Sherri,Thanks for the welcome. I look forward sharing my experiences with both PM and IBM with everybody. I am 59 and live just east of Lansing, Mi in a small town. I grew up in Detroit and moved from there in 1960. I was really surprised with the change in dx this past May. I have had a few bad experiences with Prednisone that are not fun to deal with. Along with the weight gain I developed cataracts and glaucoma from the heavy doses of Prednisone. When I was first dx'd I started out on 60mg a wk along with Imuran. After a few months I couldn't take the Imuran and was switched to Methotrexate. I am down to 10 mg of Pred every other day and 25 mg of Metho by injection. I have to take Leuocovorin to prevent sores in the mouth from the increased Metho. Take Calcium to keep the bones from getting brittle due to the Pred. I also take stuuf so my stomach doesn't get upset,folic acid, multi-vitamins. It is quite an experience to be healthy most of your life then one day find it hard to get up from the floor. Thanks for the welcome and I look forward to keeping in touch with everybody.Ed>From: "S. Berglund" >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group>Date: Sun, 18 Aug 2002 07:36:25 -0700 (PDT)>>>Hi Ed, Welcome to our group. I am Sherri and I have PM. dx last Sept. I am >47yrs. young, live in Idaho. Where about in Mich. do you live? I have some >friends here that are from back there. Well I hope you enjoy us and looking >forward to hearing your story.>Sherri> edpatblue wrote:Hello to all,>My name is Ed and I have IBM and happened upon this group. I was>first dx'd with PM in 1993, but this past May I was told after>another biopsy that I have IBM. I hope to be able to share my>experiences with my treatment of my PM over these last several years.>>>>Respectfully>Ed IBM Mich>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi Sherri, I worked until Feb of 96 when I went off on long-term disability from where I worked. I had to wait a year to apply for SS. They turned me down twice when I filed on my own. I had an attorney who helped me keep all my benefits from work he filed for me and I was approved right away for my SS. My wife Pat is also on SS due to severe arthritis and she has CHF. She had her Mitral Valve replaced last Sept. She is doing great and she has said that it is now her turn to take care of me. I really enjoy everybodys postings we all share with each other. My wife said she noticed that I fon't dwell on my problems as much before I started chatting with people who are in the same boat as I am. Best regards, Ed > >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group >Date: Mon, 19 Aug 2002 06:16:10 -0700 (PDT) > > >HI Ed, Well I hear you with the meds. I myself take 1.4mg meth, and 2mg >floic acid,and a baby asprin. I take the shot. It sounds like I take a low >dose. I keep in contact with my reumy bi-weekly by phone, as I too am one >waiting for SSD. Have you had your feet or hands turn purple? Hope you have >a great day. >Sherri > Ed Reimer wrote:Hi Sherri, >Thanks for the welcome. I look forward sharing my experiences with both PM >and IBM with everybody. I am 59 and live just east of Lansing, Mi in a >small >town. I grew up in Detroit and moved from there in 1960. I was really >surprised with the change in dx this past May. I have had a few bad >experiences with Prednisone that are not fun to deal with. Along with the >weight gain I developed cataracts and glaucoma from the heavy doses of >Prednisone. When I was first dx'd I started out on 60mg a wk along with >Imuran. After a few months I couldn't take the Imuran and was switched to >Methotrexate. I am down to 10 mg of Pred every other day and 25 mg of Metho >by injection. I have to take Leuocovorin to prevent sores in the mouth from >the increased Metho. Take Calcium to keep the bones from getting brittle >due >to the Pred. I also take stuuf so my stomach doesn't get upset,folic acid, >multi-vitamins. It is quite an experience to be healthy most of your life >then one day find it hard to get up from the floor. Thanks for the welcome >and I look forward to keeping in touch with everybody. > >Ed > > > >From: " S. Berglund " > > >Reply-To: OurMyositis > >To: OurMyositis > >Subject: Re: New to the group > >Date: Sun, 18 Aug 2002 07:36:25 -0700 (PDT) > > > > > >Hi Ed, Welcome to our group. I am Sherri and I have PM. dx last Sept. I >am > >47yrs. young, live in Idaho. Where about in Mich. do you live? I have >some > >friends here that are from back there. Well I hope you enjoy us and >looking > >forward to hearing your story. > >Sherri > > edpatblue wrote:Hello to all, > >My name is Ed and I have IBM and happened upon this group. I was > >first dx'd with PM in 1993, but this past May I was told after > >another biopsy that I have IBM. I hope to be able to share my > >experiences with my treatment of my PM over these last several years. > > > > > > > >Respectfully > >Ed IBM Mich > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi Lesley, Thanks for the welcome. I think I am going to enjoy this group very much. I am getting along fairly well I use a walker and also take one of the grandkids with me when I go out. They keep me on a short leash and I have to remember they are just trying to help. It is really hard having other people do things for you when before I was pretty independent. My wife Pat keeps telling me it is O.K. thta I have help doing some of the things I used to do. Till next time Ed > >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: Re: New to the group >Date: Mon, 19 Aug 2002 16:41:59 +1000 > >Hi Ed, Just thought I'd say hello too. I'm Lesley, aged 47, was diagnosed >with dm and mctd two years ago. The meds I take are 7.5mg of pred, 10 mg of >methx and ivig every 3 months. I hope you are coping ok with ibm and look >forward to reading your news. >take care, >Lesley (I'm an Aussie!) > > > > > >Reply-To: OurMyositis > >To: OurMyositis > >Subject: Re: New to the group > >Date: Mon, 19 Aug 2002 00:31:52 -0000 > > > >Hi Ed, > > > >Welcome to our wonderful group. My name is Venita. I am 38 and was > >dx'd with DM in Aug 2001. I was fortunate that I was diagnosed very > >early on. I am currently on 10 mg. of pred, 20mg of metho, bactrim, > >fosamax, diflucan, calcium and vitamins. > > > >I am sure that you will enjoy this group and come to care. I look > >forward to hearing more of your story. > > > >Venita. > > > > > > > Hello to all, > > > My name is Ed and I have IBM and happened upon this group. I was > > > first dx'd with PM in 1993, but this past May I was told after > > > another biopsy that I have IBM. I hope to be able to share my > > > experiences with my treatment of my PM over these last several > >years. > > > > > > > > > > > > Respectfully > > > Ed IBM Mich > > > > > > >_________________________________________________________________ >Chat with friends online, try MSN Messenger: http://messenger.msn.com > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi Teddi, My eye problems are not as bad now that I am on such a low maintenence dose of the Prednisone. When I first started taking it it was 60mg for a two week period then tapered off to every other day. The eye problems are settled down the pressure is really low and the cataracts are the same size as my last eye exam 6 months ago. It is not a nice nedicine, I had been told that I had Prostate Cancer, but after a thorough check-up they said it was the meds giving a false reading. I get my bloodwork done every month and visit my rheumy every other month unless ther are new developments. Kindest regards Ed >From: TeddiFromOK@... >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group >Date: Sun, 18 Aug 2002 23:27:10 -0500 (CDT) > >Ed >I am borderline glaucoma, have had cataract >surgery on both eyes and laser surgery to >remove a band of stuff from the back of my >eyes. yes, pred is such a fun thing! In my >prime I was 4'10 3/4 " Now thanks to pred >and osteoporosis I am now 4'8 " . Couldn't >come off the horizontal portion of my body >just the vertical.....geez!! > > >Teddi >mailto:teddifromok@... > > > > > > > > > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi Lynn, My cataracts are staying the same size now, not creating any problems and the pressure from the glaucoma has decreased quite a bit now. I have been on this low dose of Pred for about a year and a half now and the eye exams have shown no change. When I first started on pred I wore 36 " waist after that I went up to a size 52 " . I felt like I was sitting right inside the fridge at all meals. I am now down to a 44 " waist and still working on losing some more. Our weather here has changed for the better it isn't quite as muggy and hot our nights are now in the 50's and daye are in the upper 70's. Till the next time Ed > >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group >Date: Sun, 18 Aug 2002 15:35:40 -0700 (PDT) > > >Hi Ed, >I have steroid induced glaucoma, too, and am developing a cataract. Have >you had yours removed? Pred sure is fun, isn't it? The fridge that gets >strapped to your back sure gets heavy! >I took L-Lysine for the mouth sores, really made a difference! Usually >when I take my Methotrexate I take some Zantac, just in case. But the >folic acid makes a good difference! >How's the weather in Michigan? >Lynn > > Ed Reimer wrote:Hi Sherri, >Thanks for the welcome. I look forward sharing my experiences with both PM >and IBM with everybody. I am 59 and live just east of Lansing, Mi in a >small >town. I grew up in Detroit and moved from there in 1960. I was really >surprised with the change in dx this past May. I have had a few bad >experiences with Prednisone that are not fun to deal with. Along with the >weight gain I developed cataracts and glaucoma from the heavy doses of >Prednisone. When I was first dx'd I started out on 60mg a wk along with >Imuran. After a few months I couldn't take the Imuran and was switched to >Methotrexate. I am down to 10 mg of Pred every other day and 25 mg of Metho >by injection. I have to take Leuocovorin to prevent sores in the mouth from >the increased Metho. Take Calcium to keep the bones from getting brittle >due >to the Pred. I also take stuuf so my stomach doesn't get upset,folic acid, >multi-vitamins. It is quite an experience to be healthy most of your life >then one day find it hard to get up from the floor. Thanks for the welcome >and I look forward to keeping in touch with everybody. > >Ed > > > >From: " S. Berglund " > > >Reply-To: OurMyositis > >To: OurMyositis > >Subject: Re: New to the group > >Date: Sun, 18 Aug 2002 07:36:25 -0700 (PDT) > > > > > >Hi Ed, Welcome to our group. I am Sherri and I have PM. dx last Sept. I >am > >47yrs. young, live in Idaho. Where about in Mich. do you live? I have >some > >friends here that are from back there. Well I hope you enjoy us and >looking > >forward to hearing your story. > >Sherri > > edpatblue wrote:Hello to all, > >My name is Ed and I have IBM and happened upon this group. I was > >first dx'd with PM in 1993, but this past May I was told after > >another biopsy that I have IBM. I hope to be able to share my > >experiences with my treatment of my PM over these last several years. > > > > > > > >Respectfully > >Ed IBM Mich > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Ed Tell your wife we would love hearing from her also. After you have been on the list for awhile you will find we are family. Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Ed One of the hardest things about these diseases is having to ask for help. I said that if God wanted to teach me humility he sure picked the right way. I was dx while RVing on the Colorado River with my cat. I had every thing so I could do it myself....parking, hooking up, etc. Then I couldn't even get in and out of it without help. The dr. I saw every 2 weeks had dx me with CHF and put me on pills and heart patch. If I hadn't collapsed and been taken to hospital in Phoenix where I was properly dx with DM he would probably have killed me! Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Ed My PCP at home had never even heard of DM and kept me on 60mg pred for 8 months. I'm sure that has contributed to a lot of my problems and permenate muscle damage. (permenate doesn't look right but spell check said it was so.....) Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 HI Ed, How true that is. Since I started chatting on this site I don't even talk much about it with other people her. First most of them don't want to hear it, or they don't understand what you're talking about anyways. I am single and not working anymore, so you don't really get out as much as before. What good friend I have that come and do little thjngs with me is great. I don't drive very far as the pain and weakness in the arms tell me to be careful. So I do lessen to my pain and muscles. That soounds so funny, but how true it is. Hope you have a great day and Pat joins in our group too. Sherri Ed Reimer wrote: Hi Sherri,I worked until Feb of 96 when I went off on long-term disability from where I worked. I had to wait a year to apply for SS. They turned me down twice when I filed on my own. I had an attorney who helped me keep all my benefits from work he filed for me and I was approved right away for my SS. My wife Pat is also on SS due to severe arthritis and she has CHF. She had her Mitral Valve replaced last Sept. She is doing great and she has said that it is now her turn to take care of me. I really enjoy everybodys postings we all share with each other. My wife said she noticed that I fon't dwell on my problems as much before I started chatting with people who are in the same boat as I am.Best regards,Ed>From: "S. Berglund" >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group>Date: Mon, 19 Aug 2002 06:16:10 -0700 (PDT)>>>HI Ed, Well I hear you with the meds. I myself take 1.4mg meth, and 2mg >floic acid,and a baby asprin. I take the shot. It sounds like I take a low >dose. I keep in contact with my reumy bi-weekly by phone, as I too am one >waiting for SSD. Have you had your feet or hands turn purple? Hope you have >a great day.>Sherri> Ed Reimer wrote:Hi Sherri,>Thanks for the welcome. I look forward sharing my experiences with both PM>and IBM with everybody. I am 59 and live just east of Lansing, Mi in a >small>town. I grew up in Detroit and moved from there in 1960. I was really>surprised with the change in dx this past May. I have had a few bad>experiences with Prednisone that are not fun to deal with. Along with the>weight gain I developed cataracts and glaucoma from the heavy doses of>Prednisone. When I was first dx'd I started out on 60mg a wk along with>Imuran. After a few months I couldn't take the Imuran and was switched to>Methotrexate. I am down to 10 mg of Pred every other day and 25 mg of Metho>by injection. I have to take Leuocovorin to prevent sores in the mouth from>the increased Metho. Take Calcium to keep the bones from getting brittle >due>to the Pred. I also take stuuf so my stomach doesn't get upset,folic acid,>multi-vitamins. It is quite an experience to be healthy most of your life>then one day find it hard to get up from the floor. Thanks for the welcome>and I look forward to keeping in touch with everybody.>>Ed>>> >From: "S. Berglund">> >Reply-To: OurMyositis > >To: OurMyositis > >Subject: Re: New to the group> >Date: Sun, 18 Aug 2002 07:36:25 -0700 (PDT)> >> >> >Hi Ed, Welcome to our group. I am Sherri and I have PM. dx last Sept. I >am> >47yrs. young, live in Idaho. Where about in Mich. do you live? I have >some> >friends here that are from back there. Well I hope you enjoy us and >looking> >forward to hearing your story.> >Sherri> > edpatblue wrote:Hello to all,> >My name is Ed and I have IBM and happened upon this group. I was> >first dx'd with PM in 1993, but this past May I was told after> >another biopsy that I have IBM. I hope to be able to share my> >experiences with my treatment of my PM over these last several years.> >> >> >> >Respectfully> >Ed IBM Mich> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Hi, Ed. I was so happy to see where your wife noticed a difference in your outlook since joining a support group. It is so true that it really makes a difference having people who can truly relate to what you have to face on a daily basis, especially the pain. Our loved ones are great, don't get me wrong, but it's not the same as having people that are experiencing the same disease. Take care, Dawn Ed Reimer wrote: > Hi Sherri, > I worked until Feb of 96 when I went off on long-term disability from where > I worked. I had to wait a year to apply for SS. They turned me down twice > when I filed on my own. I had an attorney who helped me keep all my benefits > from work he filed for me and I was approved right away for my SS. My wife > Pat is also on SS due to severe arthritis and she has CHF. She had her > Mitral Valve replaced last Sept. She is doing great and she has said that it > is now her turn to take care of me. I really enjoy everybodys postings we > all share with each other. My wife said she noticed that I fon't dwell on my > problems as much before I started chatting with people who are in the same > boat as I am. > > Best regards, > Ed > > > > >Reply-To: OurMyositis > >To: OurMyositis > >Subject: Re: New to the group > >Date: Mon, 19 Aug 2002 06:16:10 -0700 (PDT) > > > > > >HI Ed, Well I hear you with the meds. I myself take 1.4mg meth, and 2mg > >floic acid,and a baby asprin. I take the shot. It sounds like I take a low > >dose. I keep in contact with my reumy bi-weekly by phone, as I too am one > >waiting for SSD. Have you had your feet or hands turn purple? Hope you have > >a great day. > >Sherri > > Ed Reimer wrote:Hi Sherri, > >Thanks for the welcome. I look forward sharing my experiences with both PM > >and IBM with everybody. I am 59 and live just east of Lansing, Mi in a > >small > >town. I grew up in Detroit and moved from there in 1960. I was really > >surprised with the change in dx this past May. I have had a few bad > >experiences with Prednisone that are not fun to deal with. Along with the > >weight gain I developed cataracts and glaucoma from the heavy doses of > >Prednisone. When I was first dx'd I started out on 60mg a wk along with > >Imuran. After a few months I couldn't take the Imuran and was switched to > >Methotrexate. I am down to 10 mg of Pred every other day and 25 mg of Metho > >by injection. I have to take Leuocovorin to prevent sores in the mouth from > >the increased Metho. Take Calcium to keep the bones from getting brittle > >due > >to the Pred. I also take stuuf so my stomach doesn't get upset,folic acid, > >multi-vitamins. It is quite an experience to be healthy most of your life > >then one day find it hard to get up from the floor. Thanks for the welcome > >and I look forward to keeping in touch with everybody. > > > >Ed > > > > > > >From: " S. Berglund " > > > > >Reply-To: OurMyositis > > >To: OurMyositis > > >Subject: Re: New to the group > > >Date: Sun, 18 Aug 2002 07:36:25 -0700 (PDT) > > > > > > > > >Hi Ed, Welcome to our group. I am Sherri and I have PM. dx last Sept. I > >am > > >47yrs. young, live in Idaho. Where about in Mich. do you live? I have > >some > > >friends here that are from back there. Well I hope you enjoy us and > >looking > > >forward to hearing your story. > > >Sherri > > > edpatblue wrote:Hello to all, > > >My name is Ed and I have IBM and happened upon this group. I was > > >first dx'd with PM in 1993, but this past May I was told after > > >another biopsy that I have IBM. I hope to be able to share my > > >experiences with my treatment of my PM over these last several years. > > > > > > > > > > > >Respectfully > > >Ed IBM Mich > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Hi Sherri, It is good to read the banter amongst everybody and how we all try to cheer each other up when we are having a bad day. They are a really caring buch of people who sometimes overlook their own problems to send a kind word to each other. Till the next time Ed > >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: New to the group >Date: Tue, 20 Aug 2002 05:56:29 -0700 (PDT) > > >HI Ed, >How true that is. Since I started chatting on this site I don't even talk >much about it with other people her. First most of them don't want to hear >it, or they don't understand what you're talking about anyways. I am single >and not working anymore, so you don't really get out as much as before. >What good friend I have that come and do little thjngs with me is great. I >don't drive very far as the pain and weakness in the arms tell me to be >careful. So I do lessen to my pain and muscles. That soounds so funny, >but how true it is. Hope you have a great day and Pat joins in our group >too. >Sherri > Ed Reimer wrote:Hi Sherri, >I worked until Feb of 96 when I went off on long-term disability from where >I worked. I had to wait a year to apply for SS. They turned me down twice >when I filed on my own. I had an attorney who helped me keep all my >benefits >from work he filed for me and I was approved right away for my SS. My wife >Pat is also on SS due to severe arthritis and she has CHF. She had her >Mitral Valve replaced last Sept. She is doing great and she has said that >it >is now her turn to take care of me. I really enjoy everybodys postings we >all share with each other. My wife said she noticed that I fon't dwell on >my >problems as much before I started chatting with people who are in the same >boat as I am. > >Best regards, >Ed > > > >From: " S. Berglund " > > >Reply-To: OurMyositis > >To: OurMyositis > >Subject: Re: New to the group > >Date: Mon, 19 Aug 2002 06:16:10 -0700 (PDT) > > > > > >HI Ed, Well I hear you with the meds. I myself take 1.4mg meth, and 2mg > >floic acid,and a baby asprin. I take the shot. It sounds like I take a >low > >dose. I keep in contact with my reumy bi-weekly by phone, as I too am one > >waiting for SSD. Have you had your feet or hands turn purple? Hope you >have > >a great day. > >Sherri > > Ed Reimer wrote:Hi Sherri, > >Thanks for the welcome. I look forward sharing my experiences with both >PM > >and IBM with everybody. I am 59 and live just east of Lansing, Mi in a > >small > >town. I grew up in Detroit and moved from there in 1960. I was really > >surprised with the change in dx this past May. I have had a few bad > >experiences with Prednisone that are not fun to deal with. Along with the > >weight gain I developed cataracts and glaucoma from the heavy doses of > >Prednisone. When I was first dx'd I started out on 60mg a wk along with > >Imuran. After a few months I couldn't take the Imuran and was switched to > >Methotrexate. I am down to 10 mg of Pred every other day and 25 mg of >Metho > >by injection. I have to take Leuocovorin to prevent sores in the mouth >from > >the increased Metho. Take Calcium to keep the bones from getting brittle > >due > >to the Pred. I also take stuuf so my stomach doesn't get upset,folic >acid, > >multi-vitamins. It is quite an experience to be healthy most of your life > >then one day find it hard to get up from the floor. Thanks for the >welcome > >and I look forward to keeping in touch with everybody. > > > >Ed > > > > > > >From: " S. Berglund " > > > > >Reply-To: OurMyositis > > >To: OurMyositis > > >Subject: Re: New to the group > > >Date: Sun, 18 Aug 2002 07:36:25 -0700 (PDT) > > > > > > > > >Hi Ed, Welcome to our group. I am Sherri and I have PM. dx last Sept. I > >am > > >47yrs. young, live in Idaho. Where about in Mich. do you live? I have > >some > > >friends here that are from back there. Well I hope you enjoy us and > >looking > > >forward to hearing your story. > > >Sherri > > > edpatblue wrote:Hello to all, > > >My name is Ed and I have IBM and happened upon this group. I was > > >first dx'd with PM in 1993, but this past May I was told after > > >another biopsy that I have IBM. I hope to be able to share my > > >experiences with my treatment of my PM over these last several years. > > > > > > > > > > > >Respectfully > > >Ed IBM Mich > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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