Re: Looking for a list

September 3, 2009

OK. I didn't see this before I posted. Oh, well, it can't hurt having several copies, I suppose... Good work, Londa!love/Reb> > > Subject: Looking for a list> To: MSersLife > Date: Friday, September 4, 2009, 2:43 AM> > > > > > > Hey, guys, a couple of weeks ago I read a good list on the Web -> basically, it listed tongue-in-cheek stuff "normal" people could do to begin> to understand how MS feels - kind of " do (something small) while wearing> oven mitts" kind of thing. Wanted to send it to a friend, but alas the> place I found it hasn't renewed their site...> That site mentioned that she had swiped the list from somewhere else,> but didn't say where. Anybody got an idea?> > > > in WY > "You get a wonderful view from the point of no return..."> http://www.flickr. com/photos/ liadains_ fancies> http://practical- blackwork. blogspot. com> NEW!!! - website in progress!-> http://practicalbla ckwork.com>

September 4, 2009

thanks sweetie. im bored w/no life. i got loads of time!! lol

LONDA

~ALL THAT IM NOT MAKES ME ALL THAT I AM~

Subject: Re: Looking for a listTo: MSersLife Date: Friday, September 4, 2009, 1:59 AM

OK. I didn't see this before I posted. Oh, well, it can't hurt having several copies, I suppose... Good work, Londa!love/Reb> > > From: Thallas fathallas@.. .> Subject: Looking for a list> To: MSersLife@yahoogrou ps.com> Date: Friday, September 4, 2009, 2:43 AM> > > > > > > Hey, guys, a couple of weeks ago I read a good list on the Web -> basically, it listed tongue-in-cheek stuff "normal" people could do to begin> to understand how

MS feels - kind of " do (something small) while wearing> oven mitts" kind of thing. Wanted to send it to a friend, but alas the> place I found it hasn't renewed their site...> That site mentioned that she had swiped the list from somewhere else,> but didn't say where. Anybody got an idea?> > > > in WY > "You get a wonderful view from the point of no return..."> http://www.flickr. com/photos/ liadains_ fancies> http://practical- blackwork. blogspot. com> NEW!!! - website in progress!-> http://practicalbla ckwork.com>

September 4, 2009

hi-5 reb!!!!!! love it....

LONDA

~ALL THAT IM NOT MAKES ME ALL THAT I AM~

Subject: Re: Looking for a listTo: MSersLife Date: Friday, September 4, 2009, 1:58 AM

Something like this?:"Introducing: THE MS EMPATHY KIT Now Family, friends and Caregivers can have a better understanding of what you live with on a daily basis. The MS EMPATHY KIT contains everything you need to simulate the effects of living with MS. Each kit comes with the following: 1pr. 10lb wrist weights 1pr. 15lb thigh weights 1pr. 20lb ankle weights 20 2x2 steel wool pads 1pr. extra thick gloves 1lb sand 1pr. extra shirt thick sleeves 1pr. extra thick pant legs 1 bag small pebbles 1 syringe of saline solution 1 2" wide belt 1 tens unit (electrical stimulation) 1 pr. foggy glasses bungee cord assortment (comes in choice of colors) 1 pr ear plugs box of gnats (when in season)

1 sit and spin toy 1 bottle of Jack s 1 remote controlled .5 liter water bag complete with drip tube. DIRECTIONS Depending on your condition, you can use any or all items in this kit.Following are "Application Suggestions" for family member, friend or caregiver to experience MS.# 1 Painful Heavy Legs:Simply apply tightly to partner:20 lb ankle weights15 lb thigh weights# 2 Painful Feet:Put equal or unequal amounts of small pebbles in each shoe.# 3 Loss Of Feeling In Hands And/Or Arms:Put on extra thick gloves and shirt sleeves.# 4 Loss Of Feeling In Feet And/Or Legs:Put on extra thick pant legs and sand in bottom of shoes.# 5 Uncontrollable Itching: Glue or sew small steel wool pads to the inside of partner's shirt, pants and undergarments# 6 Tingling:Apply TENS Unit electrodes to partners skin and turn

on to desired intensity (recharge daily).# 7 Tight Band:Out 2" wide belt around partner and draw snug.# 8 Take A Shot:Allow partner to self-inject saline solution.# 9 Trouble lifting arms.Simply apply 10 lb wrist weights to partner. # 10 Spacticity:Hook bungee cords to rear belt loops and rear pant leg cuffs. For Arms, hook bungee cords to shirt collar and cuffs on shirt sleeves.# 11 Poor Vision:Have partner use foggy glasses.# 12 Poor Hearing / Buzzing In Ears:Have partner put a gnat and ear plug in each ear.# 13 Balance And Walking Problems:While partner drinks Jack s, have him/her ride Sit & Spin for 30 minutes.Now have them walk through a crowded mall.# 14 Urgently Need To Pee:Have partner put .5 liter remote control water bag and drip tube in their pants, point out two restrooms in the crowded mall, tell them they have 30 seconds

before you activate the water bag (by remote control) to get to a restroom.To make this effective, partner is UNABLE remove any item for at least 24hrs. After this, they may wonder how you manage to keep your sanity!"It can be found in the files section of the MSers group, that is here:http://health. groups.yahoo. com/group/ MSersLife/ fileslove/Reb>> Hey, guys, a couple of weeks ago I read a good list on the Web -> basically, it listed tongue-in-cheek stuff "normal" people could do to begin> to understand how MS feels - kind of " do (something small) while wearing> oven mitts" kind of thing. Wanted to send it to a friend, but alas the> place I found it hasn't renewed their site...> That site mentioned that she had swiped the list from somewhere else,>

but didn't say where. Anybody got an idea?> > > > in WY > "You get a wonderful view from the point of no return..."> http://www.flickr. com/photos/ liadains_ fancies> http://practical- blackwork. blogspot. com> NEW!!! - website in progress!-> http://practicalbla ckwork.com>

September 4, 2009

Yup! That is it!Thank you, Reb,nTo: MSersLife Sent: Thursday, September 3, 2009 10:58:38 PMSubject: Re: Looking for a list

Something like this?:"Introducing: THE MS EMPATHY KIT Now Family, friends and Caregivers can have a better understanding of what you live with on a daily basis. The MS EMPATHY KIT contains everything you need to simulate the effects of living with MS. Each kit comes with the following: 1pr. 10lb wrist weights 1pr. 15lb thigh weights 1pr. 20lb ankle weights 20 2x2 steel wool pads 1pr. extra thick gloves 1lb sand 1pr. extra shirt thick sleeves 1pr. extra thick pant legs 1 bag small pebbles 1 syringe of saline solution 1 2" wide belt 1 tens unit (electrical stimulation) 1 pr. foggy glasses bungee cord assortment (comes in choice of colors) 1 pr ear plugs box of gnats (when in

season) 1 sit and spin toy 1 bottle of Jack s 1 remote controlled .5 liter water bag complete with drip tube. DIRECTIONS Depending on your condition, you can use any or all items in this kit.Following are "Application Suggestions" for family member, friend or caregiver to experience MS.# 1 Painful Heavy Legs:Simply apply tightly to partner:20 lb ankle weights15 lb thigh weights# 2 Painful Feet:Put equal or unequal amounts of small pebbles in each shoe.# 3 Loss Of Feeling In Hands And/Or Arms:Put on extra thick gloves and shirt sleeves.# 4 Loss Of Feeling In Feet And/Or Legs:Put on extra thick pant legs and sand in bottom of shoes.# 5 Uncontrollable Itching: Glue or sew small steel wool pads to the inside of partner's shirt, pants and undergarments# 6 Tingling:Apply TENS Unit electrodes to

partners skin and turn on to desired intensity (recharge daily).# 7 Tight Band:Out 2" wide belt around partner and draw snug.# 8 Take A Shot:Allow partner to self-inject saline solution.# 9 Trouble lifting arms.Simply apply 10 lb wrist weights to partner. # 10 Spacticity:Hook bungee cords to rear belt loops and rear pant leg cuffs. For Arms, hook bungee cords to shirt collar and cuffs on shirt sleeves.# 11 Poor Vision:Have partner use foggy glasses.# 12 Poor Hearing / Buzzing In Ears:Have partner put a gnat and ear plug in each ear.# 13 Balance And Walking Problems:While partner drinks Jack s, have him/her ride Sit & Spin for 30 minutes.Now have them walk through a crowded mall.# 14 Urgently Need To Pee:Have partner put .5 liter remote control water bag and drip tube in their pants, point out two restrooms in the crowded mall, tell

them they have 30 seconds before you activate the water bag (by remote control) to get to a restroom.To make this effective, partner is UNABLE remove any item for at least 24hrs. After this, they may wonder how you manage to keep your sanity!"It can be found in the files section of the MSers group, that is here:http://health. groups.yahoo. com/group/ MSersLife/ fileslove/Reb>> Hey, guys, a couple of weeks ago I read a good list on the Web -> basically, it listed tongue-in-cheek stuff "normal" people could do to begin> to understand how MS feels - kind of " do (something small) while wearing> oven mitts" kind of thing. Wanted to send it to a friend, but alas the>

place I found it hasn't renewed their site...> That site mentioned that she had swiped the list from somewhere else,> but didn't say where. Anybody got an idea?> > > > in WY > "You get a wonderful view from the point of no return..."> http://www.flickr. com/photos/ liadains_ fancies> http://practical- blackwork. blogspot. com> NEW!!! - website in progress!-> http://practicalbla ckwork.com>

September 4, 2009

Thanks, Shalonda and Reb! That's the exact things I was looking for - I

think those lists explain " That Ms Feeling " waay better than any fancy

medical site! :-)

in WY

" You get a wonderful view from the point of no return... "

http://www.flickr.com/photos/liadains_fancies

http://practical-blackwork.blogspot.com

NEW!!! - website in progress!-

http://practicalblackwork.com

Re: Looking for a list

Something like this?:

" Introducing:

THE MS EMPATHY KIT

Now Family, friends and Caregivers can have a better understanding of what

you live with on a daily basis.

The MS EMPATHY KIT contains everything you need to simulate the effects of

living with MS.

Each kit comes with the following:

1pr. 10lb wrist weights

1pr. 15lb thigh weights

1pr. 20lb ankle weights

20 2x2 steel wool pads

1pr. extra thick gloves

1lb sand

1pr. extra shirt thick sleeves

1pr. extra thick pant legs

1 bag small pebbles

1 syringe of saline solution

1 2 " wide belt

1 tens unit (electrical stimulation)

1 pr. foggy glasses

bungee cord assortment

(comes in choice of colors)

1 pr ear plugs

box of gnats

(when in season)

1 sit and spin toy

1 bottle of Jack s

1 remote controlled .5 liter

water bag complete with drip tube.

DIRECTIONS

Depending on your condition, you can use any or all items in this kit.

Following are " Application Suggestions " for family member, friend or

caregiver to experience MS.

# 1 Painful Heavy Legs:

Simply apply tightly to partner:

20 lb ankle weights

15 lb thigh weights

# 2 Painful Feet:

Put equal or unequal amounts of small pebbles in each shoe.

# 3 Loss Of Feeling In Hands And/Or Arms:

Put on extra thick gloves and shirt sleeves.

# 4 Loss Of Feeling In Feet And/Or Legs:

Put on extra thick pant legs and sand in bottom of shoes.

# 5 Uncontrollable Itching:

Glue or sew small steel wool pads to the inside of partner's shirt, pants

and undergarments

# 6 Tingling:

Apply TENS Unit electrodes to partners skin and turn on to desired intensity

(recharge daily).

# 7 Tight Band:

Out 2 " wide belt around partner and draw snug.

# 8 Take A Shot:

Allow partner to self-inject saline solution.

# 9 Trouble lifting arms.

Simply apply 10 lb wrist weights to partner.

# 10 Spacticity:

Hook bungee cords to rear belt loops and rear pant leg cuffs.

For Arms, hook bungee cords to shirt collar and cuffs on shirt sleeves.

# 11 Poor Vision:

Have partner use foggy glasses.

# 12 Poor Hearing / Buzzing In Ears:

Have partner put a gnat and ear plug in each ear.

# 13 Balance And Walking Problems:

While partner drinks Jack s, have him/her ride Sit & Spin for 30

minutes.

Now have them walk through a crowded mall.

# 14 Urgently Need To Pee:

Have partner put .5 liter remote control water bag and drip tube in their

pants, point out two restrooms in the crowded mall, tell them they have 30

seconds before you activate the water bag (by remote control) to get to a

restroom.

To make this effective, partner is UNABLE remove any item for at least

24hrs.

After this, they may wonder how you manage to keep your sanity! "

It can be found in the files section of the MSers group, that is here:

http://health.groups.yahoo.com/group/MSersLife/files

love

/Reb

>

> Hey, guys, a couple of weeks ago I read a good list on the Web -

> basically, it listed tongue-in-cheek stuff " normal " people could do to

begin

> to understand how MS feels - kind of " do (something small) while wearing

> oven mitts " kind of thing. Wanted to send it to a friend, but alas the

> place I found it hasn't renewed their site...

> That site mentioned that she had swiped the list from somewhere else,

> but didn't say where. Anybody got an idea?

>

> in WY

> " You get a wonderful view from the point of no return... "

> http://www.flickr.com/photos/liadains_fancies

> http://practical-blackwork.blogspot.com

> NEW!!! - website in progress!-

> http://practicalblackwork.com

>

September 4, 2009

And the list just covers everyday stuff, without the fun and exotic

" forget your own name " and " feel water on your arm/leg when it isn't

there " ...

Or, as I'm still trying to puzzle out, putting the empty bean can in the

utensil drawer. :-)

Up past my bedtime, gonna go read some Harry Potter....

in WY

" You get a wonderful view from the point of no return... "

http://www.flickr.com/photos/liadains_fancies

http://practical-blackwork.blogspot.com

NEW!!! - website in progress!-

http://practicalblackwork.com

Re: Looking for a list

Something like this?:

" Introducing:

THE MS EMPATHY KIT

Now Family, friends and Caregivers can have a better understanding of what

you live with on a daily basis.

The MS EMPATHY KIT contains everything you need to simulate the effects of

living with MS.

Each kit comes with the following:

1pr. 10lb wrist weights

1pr. 15lb thigh weights

1pr. 20lb ankle weights

20 2x2 steel wool pads

1pr. extra thick gloves

1lb sand

1pr. extra shirt thick sleeves

1pr. extra thick pant legs

1 bag small pebbles

1 syringe of saline solution

1 2 " wide belt

1 tens unit (electrical stimulation)

1 pr. foggy glasses

bungee cord assortment

(comes in choice of colors)

1 pr ear plugs

box of gnats

(when in season)

1 sit and spin toy

1 bottle of Jack s

1 remote controlled .5 liter

water bag complete with drip tube.

DIRECTIONS

Depending on your condition, you can use any or all items in this kit.

Following are " Application Suggestions " for family member, friend or

caregiver to experience MS.

# 1 Painful Heavy Legs:

Simply apply tightly to partner:

20 lb ankle weights

15 lb thigh weights

# 2 Painful Feet:

Put equal or unequal amounts of small pebbles in each shoe.

# 3 Loss Of Feeling In Hands And/Or Arms:

Put on extra thick gloves and shirt sleeves.

# 4 Loss Of Feeling In Feet And/Or Legs:

Put on extra thick pant legs and sand in bottom of shoes.

# 5 Uncontrollable Itching:

Glue or sew small steel wool pads to the inside of partner's shirt, pants

and undergarments

# 6 Tingling:

Apply TENS Unit electrodes to partners skin and turn on to desired intensity

(recharge daily).

# 7 Tight Band:

Out 2 " wide belt around partner and draw snug.

# 8 Take A Shot:

Allow partner to self-inject saline solution.

# 9 Trouble lifting arms.

Simply apply 10 lb wrist weights to partner.

# 10 Spacticity:

Hook bungee cords to rear belt loops and rear pant leg cuffs.

For Arms, hook bungee cords to shirt collar and cuffs on shirt sleeves.

# 11 Poor Vision:

Have partner use foggy glasses.

# 12 Poor Hearing / Buzzing In Ears:

Have partner put a gnat and ear plug in each ear.

# 13 Balance And Walking Problems:

While partner drinks Jack s, have him/her ride Sit & Spin for 30

minutes.

Now have them walk through a crowded mall.

# 14 Urgently Need To Pee:

Have partner put .5 liter remote control water bag and drip tube in their

pants, point out two restrooms in the crowded mall, tell them they have 30

seconds before you activate the water bag (by remote control) to get to a

restroom.

To make this effective, partner is UNABLE remove any item for at least

24hrs.

After this, they may wonder how you manage to keep your sanity! "

It can be found in the files section of the MSers group, that is here:

http://health. groups.yahoo. com/group/ MSersLife/ files

love

/Reb

>

> Hey, guys, a couple of weeks ago I read a good list on the Web -

> basically, it listed tongue-in-cheek stuff " normal " people could do to

begin

> to understand how MS feels - kind of " do (something small) while wearing

> oven mitts " kind of thing. Wanted to send it to a friend, but alas the

> place I found it hasn't renewed their site...

> That site mentioned that she had swiped the list from somewhere else,

> but didn't say where. Anybody got an idea?

>

> in WY

> " You get a wonderful view from the point of no return... "

> http://www.flickr. com/photos/ liadains_ fancies

> http://practical- blackwork. blogspot. com

> NEW!!! - website in progress!-

> http://practicalbla ckwork.com

>

September 4, 2009

I've been a quiet list member, but just HAD to reply to this one. This is SO true. The "you look so good" comment doesn't go too far when you are experiencing all of these things. :-)

Re: Looking for a list

Something like this?:"Introducing: THE MS EMPATHY KIT Now Family, friends and Caregivers can have a better understanding of what you live with on a daily basis. The MS EMPATHY KIT contains everything you need to simulate the effects of living with MS. Each kit comes with the following: 1pr. 10lb wrist weights 1pr. 15lb thigh weights 1pr. 20lb ankle weights 20 2x2 steel wool pads 1pr. extra thick gloves 1lb sand 1pr. extra shirt thick sleeves 1pr. extra thick pant legs 1 bag small pebbles 1 syringe of saline solution 1 2" wide belt 1 tens unit (electrical stimulation) 1 pr. foggy glasses bungee cord assortment (comes in choice of colors) 1 pr ear plugs box of gnats (when in season) 1 sit and spin toy 1 bottle of Jack s 1 remote controlled .5 liter water bag complete with drip tube. DIRECTIONS Depending on your condition, you can use any or all items in this kit.Following are "Application Suggestions" for family member, friend or caregiver to experience MS.# 1 Painful Heavy Legs:Simply apply tightly to partner:20 lb ankle weights15 lb thigh weights# 2 Painful Feet:Put equal or unequal amounts of small pebbles in each shoe.# 3 Loss Of Feeling In Hands And/Or Arms:Put on extra thick gloves and shirt sleeves.# 4 Loss Of Feeling In Feet And/Or Legs:Put on extra thick pant legs and sand in bottom of shoes.# 5 Uncontrollable Itching: Glue or sew small steel wool pads to the inside of partner's shirt, pants and undergarments# 6 Tingling:Apply TENS Unit electrodes to partners skin and turn on to desired intensity (recharge daily).# 7 Tight Band:Out 2" wide belt around partner and draw snug.# 8 Take A Shot:Allow partner to self-inject saline solution.# 9 Trouble lifting arms.Simply apply 10 lb wrist weights to partner. # 10 Spacticity:Hook bungee cords to rear belt loops and rear pant leg cuffs. For Arms, hook bungee cords to shirt collar and cuffs on shirt sleeves.# 11 Poor Vision:Have partner use foggy glasses.# 12 Poor Hearing / Buzzing In Ears:Have partner put a gnat and ear plug in each ear.# 13 Balance And Walking Problems:While partner drinks Jack s, have him/her ride Sit & Spin for 30 minutes.Now have them walk through a crowded mall.# 14 Urgently Need To Pee:Have partner put .5 liter remote control water bag and drip tube in their pants, point out two restrooms in the crowded mall, tell them they have 30 seconds before you activate the water bag (by remote control) to get to a restroom.To make this effective, partner is UNABLE remove any item for at least 24hrs. After this, they may wonder how you manage to keep your sanity!"It can be found in the files section of the MSers group, that is here:http://health.groups.yahoo.com/group/MSersLife/fileslove/Reb--- In MSersLife , " Thallas" wrote:>> Hey, guys, a couple of weeks ago I read a good list on the Web -> basically, it listed tongue-in-cheek stuff "normal" people could do to begin> to understand how MS feels - kind of " do (something small) while wearing> oven mitts" kind of thing. Wanted to send it to a friend, but alas the> place I found it hasn't renewed their site...> That site mentioned that she had swiped the list from somewhere else,> but didn't say where. Anybody got an idea?> > > > in WY > "You get a wonderful view from the point of no return..."> http://www.flickr.com/photos/liadains_fancies> http://practical-blackwork.blogspot.com> NEW!!! - website in progress!-> http://practicalblackwork.com>

September 4, 2009

...

You are so right.. and there's a cliche that goes with having MS...

" People don't get MS... until they get MS " ...

Also gotta love the remarks... " you'd get it back or do better if you

exercise more " ... and I just wanna reach out and smack them upside their

head once or twice.... (I would smack them too.. if I wouldn't fall over

doing so).. and then ask.. just how am I supposed to get into that

aerobics class to exercise more when I can't stand up without

weaving???.. Heaven forbid if I try to lift one foot off the floor.. or

how do I get on that exercise bicycle and pedal for an hour or so.. when

I constantly feel like I'm going to fall off the damn thing??? (can't

mow the grass, even with the riding mower, cause I feel like I'm falling

off.. well that would keep my heart rate up for an extended period of

time anyway LOL)..

I read somewhere.. that there is one of those virtual game type deal

floating around at different conferences and places that do like boat

show, RV show type deals.. only where they do medical stuff.. but this

virtual game type deal.. actually gives a person MS without giving them

MS.. they get to find out what it's actually like to walk around (or

roll around as the case may be) in our shoes for a few minutes... love

to have one of those come to MY area for just a little while...

Oh.. I'm cranky today for some reason... double whammy I guess... I got

the MS-PMS blues... look out world!!!! \

HUGS

|)onna

WEST wrote:

>

> I've been a quiet list member, but just HAD to reply to this one.

> This is SO true. The " you look so good " comment doesn't go too far

> when you are experiencing all of these things. :-)

>

> * Re: Looking for a list

>

> Something like this?:

>

> " Introducing:

>

> THE MS EMPATHY KIT

>

> Now Family, friends and Caregivers can have a better understanding

> of what you live with on a daily basis.

>

> The MS EMPATHY KIT contains everything you need to simulate the

> effects of living with MS.

>

> Each kit comes with the following:

> 1pr. 10lb wrist weights

> 1pr. 15lb thigh weights

> 1pr. 20lb ankle weights

> 20 2x2 steel wool pads

> 1pr. extra thick gloves

> 1lb sand

> 1pr. extra shirt thick sleeves

> 1pr. extra thick pant legs

> 1 bag small pebbles

> 1 syringe of saline solution

> 1 2 " wide belt

> 1 tens unit (electrical stimulation)

> 1 pr. foggy glasses

> bungee cord assortment

> (comes in choice of colors)

> 1 pr ear plugs

> box of gnats

> (when in season)

> 1 sit and spin toy

> 1 bottle of Jack s

> 1 remote controlled .5 liter

> water bag complete with drip tube.

>

> DIRECTIONS

>

> Depending on your condition, you can use any or all items in this kit.

>

> Following are " Application Suggestions " for family member, friend

> or caregiver to experience MS.

>

> # 1 Painful Heavy Legs:

> Simply apply tightly to partner:

> 20 lb ankle weights

> 15 lb thigh weights

>

> # 2 Painful Feet:

> Put equal or unequal amounts of small pebbles in each shoe.

>

> # 3 Loss Of Feeling In Hands And/Or Arms:

> Put on extra thick gloves and shirt sleeves.

>

> # 4 Loss Of Feeling In Feet And/Or Legs:

> Put on extra thick pant legs and sand in bottom of shoes.

>

> # 5 Uncontrollable Itching:

> Glue or sew small steel wool pads to the inside of partner's

> shirt, pants and undergarments

>

> # 6 Tingling:

> Apply TENS Unit electrodes to partners skin and turn on to desired

> intensity (recharge daily).

>

> # 7 Tight Band:

> Out 2 " wide belt around partner and draw snug.

>

> # 8 Take A Shot:

> Allow partner to self-inject saline solution.

>

> # 9 Trouble lifting arms.

> Simply apply 10 lb wrist weights to partner.

>

> # 10 Spacticity:

> Hook bungee cords to rear belt loops and rear pant leg cuffs.

> For Arms, hook bungee cords to shirt collar and cuffs on shirt

> sleeves.

>

> # 11 Poor Vision:

> Have partner use foggy glasses.

>

> # 12 Poor Hearing / Buzzing In Ears:

> Have partner put a gnat and ear plug in each ear.

>

> # 13 Balance And Walking Problems:

> While partner drinks Jack s, have him/her ride Sit & Spin

> for 30 minutes.

> Now have them walk through a crowded mall.

>

> # 14 Urgently Need To Pee:

> Have partner put .5 liter remote control water bag and drip tube

> in their pants, point out two restrooms in the crowded mall, tell

> them they have 30 seconds before you activate the water bag (by

> remote control) to get to a restroom.

>

> To make this effective, partner is UNABLE remove any item for at

> least 24hrs.

>

> After this, they may wonder how you manage to keep your sanity! "

>

> It can be found in the files section of the MSers group, that is here:

>

> http://health.groups.yahoo.com/group/MSersLife/files

>

> love

> /Reb

>

> >

> > Hey, guys, a couple of weeks ago I read a good list on the Web -

> > basically, it listed tongue-in-cheek stuff " normal " people could

> do to begin

> > to understand how MS feels - kind of " do (something small)

> while wearing

> > oven mitts " kind of thing. Wanted to send it to a friend, but

> alas the

> > place I found it hasn't renewed their site...

> > That site mentioned that she had swiped the list from somewhere

> else,

> > but didn't say where. Anybody got an idea?

> >

> > in WY

> > " You get a wonderful view from the point of no return... "

> > http://www.flickr.com/photos/liadains_fancies

> > http://practical-blackwork.blogspot.com

> > NEW!!! - website in progress!-

> > http://practicalblackwork.com

> >

>

September 4, 2009

August had 5 major planets in retrograde

it was the month or cranky and miscommunication

still hanging on

we get it worse with multiple surprizes

To: MSersLife Sent: Friday, September 4, 2009 8:39:10 AMSubject: Re: Re: Looking for a list

...You are so right.. and there's a cliche that goes with having MS..."People don't get MS... until they get MS"...Also gotta love the remarks... "you'd get it back or do better if you exercise more"... and I just wanna reach out and smack them upside their head once or twice.... (I would smack them too.. if I wouldn't fall over doing so).. and then ask.. just how am I supposed to get into that aerobics class to exercise more when I can't stand up without weaving???.. Heaven forbid if I try to lift one foot off the floor.. or how do I get on that exercise bicycle and pedal for an hour or so.. when I constantly feel like I'm going to fall off the damn thing??? (can't mow the grass, even with the riding mower, cause I feel like I'm falling off.. well that would keep my heart rate up for an extended period of time anyway LOL)..I read somewhere.. that there is one of those virtual

game type deal floating around at different conferences and places that do like boat show, RV show type deals.. only where they do medical stuff.. but this virtual game type deal.. actually gives a person MS without giving them MS.. they get to find out what it's actually like to walk around (or roll around as the case may be) in our shoes for a few minutes... love to have one of those come to MY area for just a little while...Oh.. I'm cranky today for some reason... double whammy I guess... I got the MS-PMS blues... look out world!!!! \HUGS|)onnaWEST wrote:>>> I've been a quiet list member, but just HAD to reply to this one. > This is SO true. The "you look so good" comment doesn't go too far > when you are experiencing all of these things. :-)> >> * Re: Looking for a list>> >> Something like this?:>> "Introducing:>> THE MS EMPATHY KIT>> Now Family, friends and Caregivers can have a better understanding> of what you live with on a daily basis.>> The MS EMPATHY KIT contains everything you need to simulate the> effects of living with MS.>> Each kit comes with the

following:> 1pr. 10lb wrist weights> 1pr. 15lb thigh weights> 1pr. 20lb ankle weights> 20 2x2 steel wool pads> 1pr. extra thick gloves> 1lb sand> 1pr. extra shirt thick sleeves> 1pr. extra thick pant legs> 1 bag small pebbles> 1 syringe of saline solution> 1 2" wide belt> 1 tens unit (electrical stimulation)> 1 pr. foggy glasses> bungee cord assortment> (comes in choice of colors)> 1 pr ear plugs> box of gnats> (when in season)> 1 sit and spin toy> 1 bottle of Jack s> 1 remote controlled .5 liter> water bag complete with drip tube.>>> DIRECTIONS>> Depending on your condition, you can use any or all items in this kit.>> Following are "Application Suggestions" for family member, friend> or caregiver to experience MS.>> # 1

Painful Heavy Legs:> Simply apply tightly to partner:> 20 lb ankle weights> 15 lb thigh weights>> # 2 Painful Feet:> Put equal or unequal amounts of small pebbles in each shoe.>> # 3 Loss Of Feeling In Hands And/Or Arms:> Put on extra thick gloves and shirt sleeves.>> # 4 Loss Of Feeling In Feet And/Or Legs:> Put on extra thick pant legs and sand in bottom of shoes.>> # 5 Uncontrollable Itching:> Glue or sew small steel wool pads to the inside of partner's> shirt, pants and undergarments>> # 6 Tingling:> Apply TENS Unit electrodes to partners skin and turn on to desired> intensity (recharge daily).>> # 7 Tight Band:> Out 2" wide belt around partner and draw snug.>> # 8 Take A Shot:> Allow partner to self-inject saline solution.>> # 9 Trouble lifting

arms.> Simply apply 10 lb wrist weights to partner.>> # 10 Spacticity:> Hook bungee cords to rear belt loops and rear pant leg cuffs. > For Arms, hook bungee cords to shirt collar and cuffs on shirt> sleeves.>> # 11 Poor Vision:> Have partner use foggy glasses.>> # 12 Poor Hearing / Buzzing In Ears:> Have partner put a gnat and ear plug in each ear.>> # 13 Balance And Walking Problems:> While partner drinks Jack s, have him/her ride Sit & Spin> for 30 minutes.> Now have them walk through a crowded mall.>> # 14 Urgently Need To Pee:> Have partner put .5 liter remote control water bag and drip tube> in their pants, point out two restrooms in the crowded mall, tell> them they have 30 seconds before you activate the water bag (by> remote control) to get to a

restroom.>>> To make this effective, partner is UNABLE remove any item for at> least 24hrs.>> After this, they may wonder how you manage to keep your sanity!">> It can be found in the files section of the MSers group, that is here:>> http://health. groups.yahoo. com/group/ MSersLife/ files>>> love> /Reb>> > >> > Hey, guys, a couple of weeks ago I read a good list on the Web -> > basically, it listed tongue-in-cheek stuff "normal" people could> do to begin> > to understand how MS feels - kind of " do

(something small)> while wearing> > oven mitts" kind of thing. Wanted to send it to a friend, but> alas the> > place I found it hasn't renewed their site...> > That site mentioned that she had swiped the list from somewhere> else,> > but didn't say where. Anybody got an idea?> >> > > >> > in WY> > "You get a wonderful view from the point of no return..."> > http://www.flickr. com/photos/ liadains_ fancies> > http://practical- blackwork. blogspot. com> > NEW!!! - website in progress!-> > http://practicalblackwork.com> >>>>> >

September 4, 2009

Hey LondaWill you send it to me as well? ThanksTo: MSersLife Sent: Friday, September 4, 2009 7:56:37 AMSubject: Re: Looking for a list

hey tracy,

i sent it to your email. was having issues trying to post it. hugsLONDA

~ALL THAT IM NOT MAKES ME ALL THAT I AM~

From: Thallas <fathallas@collinsco m.net>Subject: Looking for a listTo: MSersLife@yahoogrou ps.comDate: Friday, September 4, 2009, 2:43 AM

Hey, guys, a couple of weeks ago I read a good list on the Web -basically, it listed tongue-in-cheek stuff "normal" people could do to beginto understand how MS feels - kind of " do (something small) while wearingoven mitts" kind of thing. Wanted to send it to a friend, but alas theplace I found it hasn't renewed their site...That site mentioned that she had swiped the list from somewhere else,but didn't say where. Anybody got an idea? in WY "You get a wonderful view from the point of no return..."http://www.flickr. com/photos/ liadains_ fancieshttp://practical- blackwork. blogspot. comNEW!!! - website in progress!-http://practicalbla

ckwork.com

September 4, 2009

Hey thanksI appreciate it.To: MSersLife Sent: Friday, September 4, 2009 7:58:38 AMSubject: Re: Looking for a list

Something like this?:"Introducing: THE MS EMPATHY KIT Now Family, friends and Caregivers can have a better understanding of what you live with on a daily basis. The MS EMPATHY KIT contains everything you need to simulate the effects of living with MS. Each kit comes with the following: 1pr. 10lb wrist weights 1pr. 15lb thigh weights 1pr. 20lb ankle weights 20 2x2 steel wool pads 1pr. extra thick gloves 1lb sand 1pr. extra shirt thick sleeves 1pr. extra thick pant legs 1 bag small pebbles 1 syringe of saline solution 1 2" wide belt 1 tens unit (electrical stimulation) 1 pr. foggy glasses bungee cord assortment (comes in choice of colors) 1 pr ear plugs box of gnats (when in

season) 1 sit and spin toy 1 bottle of Jack s 1 remote controlled .5 liter water bag complete with drip tube. DIRECTIONS Depending on your condition, you can use any or all items in this kit.Following are "Application Suggestions" for family member, friend or caregiver to experience MS.# 1 Painful Heavy Legs:Simply apply tightly to partner:20 lb ankle weights15 lb thigh weights# 2 Painful Feet:Put equal or unequal amounts of small pebbles in each shoe.# 3 Loss Of Feeling In Hands And/Or Arms:Put on extra thick gloves and shirt sleeves.# 4 Loss Of Feeling In Feet And/Or Legs:Put on extra thick pant legs and sand in bottom of shoes.# 5 Uncontrollable Itching: Glue or sew small steel wool pads to the inside of partner's shirt, pants and undergarments# 6 Tingling:Apply TENS Unit electrodes to

partners skin and turn on to desired intensity (recharge daily).# 7 Tight Band:Out 2" wide belt around partner and draw snug.# 8 Take A Shot:Allow partner to self-inject saline solution.# 9 Trouble lifting arms.Simply apply 10 lb wrist weights to partner. # 10 Spacticity:Hook bungee cords to rear belt loops and rear pant leg cuffs. For Arms, hook bungee cords to shirt collar and cuffs on shirt sleeves.# 11 Poor Vision:Have partner use foggy glasses.# 12 Poor Hearing / Buzzing In Ears:Have partner put a gnat and ear plug in each ear.# 13 Balance And Walking Problems:While partner drinks Jack s, have him/her ride Sit & Spin for 30 minutes.Now have them walk through a crowded mall.# 14 Urgently Need To Pee:Have partner put .5 liter remote control water bag and drip tube in their pants, point out two restrooms in the crowded mall, tell

them they have 30 seconds before you activate the water bag (by remote control) to get to a restroom.To make this effective, partner is UNABLE remove any item for at least 24hrs. After this, they may wonder how you manage to keep your sanity!"It can be found in the files section of the MSers group, that is here:http://health. groups.yahoo. com/group/ MSersLife/ fileslove/Reb>> Hey, guys, a couple of weeks ago I read a good list on the Web -> basically, it listed tongue-in-cheek stuff "normal" people could do to begin> to understand how MS feels - kind of " do (something small) while wearing> oven mitts" kind of thing. Wanted to send it to a friend, but alas the> place I found it hasn't renewed their

site...> That site mentioned that she had swiped the list from somewhere else,> but didn't say where. Anybody got an idea?> > > > in WY > "You get a wonderful view from the point of no return..."> http://www.flickr. com/photos/ liadains_ fancies> http://practical- blackwork. blogspot. com> NEW!!! - website in progress!-> http://practicalbla ckwork.com>

September 4, 2009

Oh, and a few more, sweetie, that you've forgotten. How about the one that you can't feel the temperature of your bath water, so you use your elbow instead of your hand, otherwise you're cooked. And my personal favorite that I'm having a lot lately. Being dizzy, drunk, off-balance etc. I can't get out of a car, get out of a chair, climb a few stairs, take a lift or bend down, without having to stand still for a while, because I'm so dizzy it's actually crazy. Oh, sorry, that part was with the Jack s, but I never knew I will feel dizzy all the time. I'm fine with the no coordination, walking into doors, but this one is getting annoying.To: MSersLife Sent: Friday, September 4, 2009 10:47:06 AMSubject: RE: Re: Looking for a list And the list just covers everyday stuff, without the fun and exotic "forget your own name" and "feel water on your arm/leg when it

isn't there"... Or, as I'm still trying to puzzle out, putting the empty bean can in the utensil drawer. :-) Up past my bedtime, gonna go read some Harry Potter.... in WY "You get a wonderful view from the point of no return..." http://www.flickr. com/photos/ liadains_ fancies http://practical- blackwork. blogspot. com NEW!!! - website in progress!- http://practicalbla ckwork.com Re: Looking for a list Something like

this?: "Introducing: THE MS EMPATHY KIT Now Family, friends and Caregivers can have a better understanding of what you live with on a daily basis. The MS EMPATHY KIT contains everything you need to simulate the effects of living with MS. Each kit comes with the following: 1pr. 10lb wrist weights 1pr. 15lb thigh weights 1pr. 20lb ankle weights 20 2x2 steel wool pads 1pr. extra thick gloves 1lb sand 1pr. extra shirt thick sleeves 1pr. extra thick pant legs 1 bag small pebbles 1 syringe of saline solution 1 2" wide belt 1 tens unit (electrical stimulation) 1 pr. foggy glasses bungee cord assortment (comes in choice of colors) 1 pr ear plugs box of gnats (when in season)

1 sit and spin toy 1 bottle of Jack s 1 remote controlled .5 liter water bag complete with drip tube. DIRECTIONS Depending on your condition, you can use any or all items in this kit. Following are "Application Suggestions" for family member, friend or caregiver to experience MS. # 1 Painful Heavy Legs: Simply apply tightly to partner: 20 lb ankle weights 15 lb thigh weights # 2 Painful Feet: Put equal or unequal amounts of small pebbles in each shoe. # 3 Loss Of Feeling In Hands And/Or Arms: Put on extra thick gloves and shirt sleeves. # 4 Loss Of Feeling In Feet And/Or Legs: Put on extra thick pant legs and sand in bottom of shoes. # 5 Uncontrollable Itching: Glue or sew small steel wool pads to the inside of partner's shirt, pants and undergarments # 6 Tingling: Apply TENS

Unit electrodes to partners skin and turn on to desired intensity (recharge daily). # 7 Tight Band: Out 2" wide belt around partner and draw snug. # 8 Take A Shot: Allow partner to self-inject saline solution. # 9 Trouble lifting arms. Simply apply 10 lb wrist weights to partner. # 10 Spacticity: Hook bungee cords to rear belt loops and rear pant leg cuffs. For Arms, hook bungee cords to shirt collar and cuffs on shirt sleeves. # 11 Poor Vision: Have partner use foggy glasses. # 12 Poor Hearing / Buzzing In Ears: Have partner put a gnat and ear plug in each ear. # 13 Balance And Walking Problems: While partner drinks Jack s, have him/her ride Sit & Spin for 30 minutes. Now have them walk through a crowded mall. # 14 Urgently Need To Pee: Have partner put .5 liter remote control water bag and drip tube in their

pants, point out two restrooms in the crowded mall, tell them they have 30 seconds before you activate the water bag (by remote control) to get to a restroom. To make this effective, partner is UNABLE remove any item for at least 24hrs. After this, they may wonder how you manage to keep your sanity!" It can be found in the files section of the MSers group, that is here: http://health. groups.yahoo. com/group/ MSersLife/ files love /Reb > > Hey, guys, a couple of weeks ago I read a good list on the Web - > basically, it listed tongue-in-cheek stuff "normal" people could do to begin > to understand how MS feels - kind of " do (something small) while wearing > oven mitts" kind of thing. Wanted to send it to a

friend, but alas the > place I found it hasn't renewed their site... > That site mentioned that she had swiped the list from somewhere else, > but didn't say where. Anybody got an idea? > > > > in WY > "You get a wonderful view from the point of no return..." > http://www.flickr. com/photos/ liadains_ fancies > http://practical- blackwork. blogspot. com > NEW!!! - website in progress!- > http://practicalbla ckwork.com >

September 4, 2009

Oh, and a few more, sweetie, that you've forgotten. How about the one that you can't feel the temperature of your bath water, so you use your elbow instead of your hand, otherwise you're cooked. And my personal favorite that I'm having a lot lately. Being dizzy, drunk, off-balance etc. I can't get out of a car, get out of a chair, climb a few stairs, take a lift or bend down, without having to stand still for a while, because I'm so dizzy it's actually crazy. Oh, sorry, that part was with the Jack s, but I never knew I will feel dizzy all the time. I'm fine with the no coordination, walking into doors, but this one is getting annoying.To: MSersLife Sent: Friday, September 4, 2009 10:47:06 AMSubject: RE: Re: Looking for a list And the list just covers everyday stuff, without the fun and exotic "forget your own name" and "feel water on your arm/leg when it

isn't there"... Or, as I'm still trying to puzzle out, putting the empty bean can in the utensil drawer. :-) Up past my bedtime, gonna go read some Harry Potter.... in WY "You get a wonderful view from the point of no return..." http://www.flickr. com/photos/ liadains_ fancies http://practical- blackwork. blogspot. com NEW!!! - website in progress!- http://practicalbla ckwork.com Re: Looking for a list Something like

this?: "Introducing: THE MS EMPATHY KIT Now Family, friends and Caregivers can have a better understanding of what you live with on a daily basis. The MS EMPATHY KIT contains everything you need to simulate the effects of living with MS. Each kit comes with the following: 1pr. 10lb wrist weights 1pr. 15lb thigh weights 1pr. 20lb ankle weights 20 2x2 steel wool pads 1pr. extra thick gloves 1lb sand 1pr. extra shirt thick sleeves 1pr. extra thick pant legs 1 bag small pebbles 1 syringe of saline solution 1 2" wide belt 1 tens unit (electrical stimulation) 1 pr. foggy glasses bungee cord assortment (comes in choice of colors) 1 pr ear plugs box of gnats (when in season)

1 sit and spin toy 1 bottle of Jack s 1 remote controlled .5 liter water bag complete with drip tube. DIRECTIONS Depending on your condition, you can use any or all items in this kit. Following are "Application Suggestions" for family member, friend or caregiver to experience MS. # 1 Painful Heavy Legs: Simply apply tightly to partner: 20 lb ankle weights 15 lb thigh weights # 2 Painful Feet: Put equal or unequal amounts of small pebbles in each shoe. # 3 Loss Of Feeling In Hands And/Or Arms: Put on extra thick gloves and shirt sleeves. # 4 Loss Of Feeling In Feet And/Or Legs: Put on extra thick pant legs and sand in bottom of shoes. # 5 Uncontrollable Itching: Glue or sew small steel wool pads to the inside of partner's shirt, pants and undergarments # 6 Tingling: Apply TENS

Unit electrodes to partners skin and turn on to desired intensity (recharge daily). # 7 Tight Band: Out 2" wide belt around partner and draw snug. # 8 Take A Shot: Allow partner to self-inject saline solution. # 9 Trouble lifting arms. Simply apply 10 lb wrist weights to partner. # 10 Spacticity: Hook bungee cords to rear belt loops and rear pant leg cuffs. For Arms, hook bungee cords to shirt collar and cuffs on shirt sleeves. # 11 Poor Vision: Have partner use foggy glasses. # 12 Poor Hearing / Buzzing In Ears: Have partner put a gnat and ear plug in each ear. # 13 Balance And Walking Problems: While partner drinks Jack s, have him/her ride Sit & Spin for 30 minutes. Now have them walk through a crowded mall. # 14 Urgently Need To Pee: Have partner put .5 liter remote control water bag and drip tube in their

pants, point out two restrooms in the crowded mall, tell them they have 30 seconds before you activate the water bag (by remote control) to get to a restroom. To make this effective, partner is UNABLE remove any item for at least 24hrs. After this, they may wonder how you manage to keep your sanity!" It can be found in the files section of the MSers group, that is here: http://health. groups.yahoo. com/group/ MSersLife/ files love /Reb > > Hey, guys, a couple of weeks ago I read a good list on the Web - > basically, it listed tongue-in-cheek stuff "normal" people could do to begin > to understand how MS feels - kind of " do (something small) while wearing > oven mitts" kind of thing. Wanted to send it to a

friend, but alas the > place I found it hasn't renewed their site... > That site mentioned that she had swiped the list from somewhere else, > but didn't say where. Anybody got an idea? > > > > in WY > "You get a wonderful view from the point of no return..." > http://www.flickr. com/photos/ liadains_ fancies > http://practical- blackwork. blogspot. com > NEW!!! - website in progress!- > http://practicalbla ckwork.com >

September 4, 2009

Oh, and a few more, sweetie, that you've forgotten. How about the one that you can't feel the temperature of your bath water, so you use your elbow instead of your hand, otherwise you're cooked. And my personal favorite that I'm having a lot lately. Being dizzy, drunk, off-balance etc. I can't get out of a car, get out of a chair, climb a few stairs, take a lift or bend down, without having to stand still for a while, because I'm so dizzy it's actually crazy. Oh, sorry, that part was with the Jack s, but I never knew I will feel dizzy all the time. I'm fine with the no coordination, walking into doors, but this one is getting annoying.To: MSersLife Sent: Friday, September 4, 2009 10:47:06 AMSubject: RE: Re: Looking for a list And the list just covers everyday stuff, without the fun and exotic "forget your own name" and "feel water on your arm/leg when it

isn't there"... Or, as I'm still trying to puzzle out, putting the empty bean can in the utensil drawer. :-) Up past my bedtime, gonna go read some Harry Potter.... in WY "You get a wonderful view from the point of no return..." http://www.flickr. com/photos/ liadains_ fancies http://practical- blackwork. blogspot. com NEW!!! - website in progress!- http://practicalbla ckwork.com Re: Looking for a list Something like

this?: "Introducing: THE MS EMPATHY KIT Now Family, friends and Caregivers can have a better understanding of what you live with on a daily basis. The MS EMPATHY KIT contains everything you need to simulate the effects of living with MS. Each kit comes with the following: 1pr. 10lb wrist weights 1pr. 15lb thigh weights 1pr. 20lb ankle weights 20 2x2 steel wool pads 1pr. extra thick gloves 1lb sand 1pr. extra shirt thick sleeves 1pr. extra thick pant legs 1 bag small pebbles 1 syringe of saline solution 1 2" wide belt 1 tens unit (electrical stimulation) 1 pr. foggy glasses bungee cord assortment (comes in choice of colors) 1 pr ear plugs box of gnats (when in season)

1 sit and spin toy 1 bottle of Jack s 1 remote controlled .5 liter water bag complete with drip tube. DIRECTIONS Depending on your condition, you can use any or all items in this kit. Following are "Application Suggestions" for family member, friend or caregiver to experience MS. # 1 Painful Heavy Legs: Simply apply tightly to partner: 20 lb ankle weights 15 lb thigh weights # 2 Painful Feet: Put equal or unequal amounts of small pebbles in each shoe. # 3 Loss Of Feeling In Hands And/Or Arms: Put on extra thick gloves and shirt sleeves. # 4 Loss Of Feeling In Feet And/Or Legs: Put on extra thick pant legs and sand in bottom of shoes. # 5 Uncontrollable Itching: Glue or sew small steel wool pads to the inside of partner's shirt, pants and undergarments # 6 Tingling: Apply TENS

Unit electrodes to partners skin and turn on to desired intensity (recharge daily). # 7 Tight Band: Out 2" wide belt around partner and draw snug. # 8 Take A Shot: Allow partner to self-inject saline solution. # 9 Trouble lifting arms. Simply apply 10 lb wrist weights to partner. # 10 Spacticity: Hook bungee cords to rear belt loops and rear pant leg cuffs. For Arms, hook bungee cords to shirt collar and cuffs on shirt sleeves. # 11 Poor Vision: Have partner use foggy glasses. # 12 Poor Hearing / Buzzing In Ears: Have partner put a gnat and ear plug in each ear. # 13 Balance And Walking Problems: While partner drinks Jack s, have him/her ride Sit & Spin for 30 minutes. Now have them walk through a crowded mall. # 14 Urgently Need To Pee: Have partner put .5 liter remote control water bag and drip tube in their

pants, point out two restrooms in the crowded mall, tell them they have 30 seconds before you activate the water bag (by remote control) to get to a restroom. To make this effective, partner is UNABLE remove any item for at least 24hrs. After this, they may wonder how you manage to keep your sanity!" It can be found in the files section of the MSers group, that is here: http://health. groups.yahoo. com/group/ MSersLife/ files love /Reb > > Hey, guys, a couple of weeks ago I read a good list on the Web - > basically, it listed tongue-in-cheek stuff "normal" people could do to begin > to understand how MS feels - kind of " do (something small) while wearing > oven mitts" kind of thing. Wanted to send it to a

friend, but alas the > place I found it hasn't renewed their site... > That site mentioned that she had swiped the list from somewhere else, > but didn't say where. Anybody got an idea? > > > > in WY > "You get a wonderful view from the point of no return..." > http://www.flickr. com/photos/ liadains_ fancies > http://practical- blackwork. blogspot. com > NEW!!! - website in progress!- > http://practicalbla ckwork.com >

September 4, 2009

Hi DonnaIt's alright, you're allowed to get the blues every now and then. How else will you or any of us survive? It's just sad that they didn't put the BIG symptom in there as well. Depression. Oh yes, I know you should pull yourself together, count your blessings, get a man and get over it. Yes sure. I'm sure that nobody in this whole world ever want to feel that there is no tomorrow. No use in living. Hey, for what? You're so useless right. Besides no one will miss you, you're just a burden. I sometimes wish that all those people can just one day feel what it's like. The worst thing I've ever heard about my depression, was that it's the devil's illness. I don't have to tell you what that did to me. So sweetie, you have the right to get mad, cry a little, use a few 4 letter words that's not

allowed and you can even kick something, just don't fall down doing it. Just as long as you never give up, no one has the right to take your confidence, your laughter, your will to survive even though life doesn't seem so great most of the time. So please, don't hold back, I think all of us here has had our share of pain and humiliation. Hey, all the stuff that I wrote you about depression, all the advice, I've heard it all. Even the man stuff. Can you believe it. Oh boy, this is a sad email. Nothing funny about it, just pure life as we all experience it every day. The worst is that everyone always say you should lose weight. Oh hell, it's the only fun thing that's left to do. Emotional eater, oh yes! But allow me something that I like and actually are good with.Take care my dear friends. And hang in there. Hey, you can't leave me now. You know what happens when I get bored. I get into trouble. Oh, I'm feeling really depressed. Now where's that

chocolate.Love and hugs to all of youTo: MSersLife Sent: Friday, September 4, 2009 3:39:10 PMSubject: Re: Re: Looking for a list ... You are so right.. and there's a cliche that goes with having MS... "People don't get MS... until they get MS"... Also gotta love the remarks... "you'd get it back or do better if you exercise more"... and I just wanna reach out and smack them upside their head once or twice.... (I would smack them too.. if I wouldn't fall over doing so).. and then ask.. just how am I supposed to get into that aerobics class to exercise more when I can't stand up without weaving???.. Heaven forbid if I try to lift one foot off the floor.. or how do I get on that exercise bicycle and pedal for an hour or so.. when I constantly feel like I'm going to fall off the damn thing??? (can't mow the grass, even with the riding mower, cause I feel like I'm falling off.. well that would keep my heart rate up for an extended period

of time anyway LOL).. I read somewhere.. that there is one of those virtual game type deal floating around at different conferences and places that do like boat show, RV show type deals.. only where they do medical stuff.. but this virtual game type deal.. actually gives a person MS without giving them MS.. they get to find out what it's actually like to walk around (or roll around as the case may be) in our shoes for a few minutes... love to have one of those come to MY area for just a little while... Oh.. I'm cranky today for some reason... double whammy I guess... I got the MS-PMS blues... look out world!!!! \ HUGS |)onna WEST wrote: > > > I've been a quiet list member, but just HAD to reply to this one. > This is SO true. The "you look so good" comment doesn't go too far > when you are experiencing all of these things. :-)

> > > * Re: Looking for a list > > > > Something like this?: > > "Introducing: > > THE MS EMPATHY KIT > > Now Family, friends and Caregivers can have a better understanding > of what you live with on a daily

basis. > > The MS EMPATHY KIT contains everything you need to simulate the > effects of living with MS. > > Each kit comes with the following: > 1pr. 10lb wrist weights > 1pr. 15lb thigh weights > 1pr. 20lb ankle weights > 20 2x2 steel wool pads > 1pr. extra thick gloves > 1lb sand > 1pr. extra shirt thick sleeves > 1pr. extra thick pant legs > 1 bag small pebbles > 1 syringe of saline solution > 1 2" wide belt > 1 tens unit (electrical stimulation) > 1 pr. foggy glasses > bungee cord assortment > (comes in choice of colors) > 1 pr ear plugs > box of gnats > (when in season) > 1 sit and spin toy > 1 bottle of Jack s > 1 remote

controlled .5 liter > water bag complete with drip tube. > > > DIRECTIONS > > Depending on your condition, you can use any or all items in this kit. > > Following are "Application Suggestions" for family member, friend > or caregiver to experience MS. > > # 1 Painful Heavy Legs: > Simply apply tightly to partner: > 20 lb ankle weights > 15 lb thigh weights > > # 2 Painful Feet: > Put equal or unequal amounts of small pebbles in each shoe. > > # 3 Loss Of Feeling In Hands And/Or Arms: > Put on extra thick gloves and shirt sleeves. > > # 4 Loss Of Feeling In Feet And/Or Legs: > Put on extra thick pant legs and sand in bottom of shoes. > > # 5 Uncontrollable Itching: > Glue or sew small steel wool pads to

the inside of partner's > shirt, pants and undergarments > > # 6 Tingling: > Apply TENS Unit electrodes to partners skin and turn on to desired > intensity (recharge daily). > > # 7 Tight Band: > Out 2" wide belt around partner and draw snug. > > # 8 Take A Shot: > Allow partner to self-inject saline solution. > > # 9 Trouble lifting arms. > Simply apply 10 lb wrist weights to partner. > > # 10 Spacticity: > Hook bungee cords to rear belt loops and rear pant leg cuffs. > For Arms, hook bungee cords to shirt collar and cuffs on shirt > sleeves. > > # 11 Poor Vision: > Have partner use foggy glasses. > > # 12 Poor Hearing / Buzzing In Ears: > Have partner put a gnat and ear plug in each ear. > > # 13 Balance And Walking Problems: > While partner drinks Jack s, have him/her ride Sit & Spin > for 30 minutes. > Now have them walk through a crowded mall. > > # 14 Urgently Need To Pee: > Have partner put .5 liter remote control water bag and drip tube > in their pants, point out two restrooms in the crowded mall, tell > them they have 30 seconds before you activate the water bag (by > remote control) to get to a restroom. > > > To make this effective, partner is UNABLE remove any item for at > least 24hrs. > > After this, they may wonder how you manage to keep your sanity!" > > It can be found in the files section of the MSers group, that is here: > > http://health. groups.yahoo. com/group/ MSersLife/ files > > > love > /Reb > > > > > > Hey, guys, a couple of weeks ago I read a good list on the Web - > > basically, it listed tongue-in-cheek stuff "normal" people could > do to begin > > to understand how MS feels - kind of " do (something small) > while wearing > > oven mitts" kind of thing. Wanted to send it to a friend, but > alas the > > place I found it hasn't renewed their site... > > That site mentioned that she had swiped the list from

somewhere > else, > > but didn't say where. Anybody got an idea? > > > > > > > > in WY > > "You get a wonderful view from the point of no return..." > > http://www.flickr. com/photos/ liadains_ fancies > > http://practical- blackwork. blogspot. com > > NEW!!! - website in progress!- > > http://practicalbla ckwork.com > > > > > > >

September 4, 2009