Re: LESLEY - methotrexate and folic acid

[Guest guest]

I certainly know how you anxious you are to get completely off the Pred.,

although, you're probably even more so, since you've been on it much longer

than I have. I do hope you start to feel better and your Pred. doesn't have

to be upped again. Any more news on the transplant??

Dawn

anzavic@... wrote:

> Hi Lesley.....

>

> If I'm not mistaken, please jump in anyone if I'm wrong on this, but I

> believe that most everyone on Methx takes 1mg of folic acid every day.

> Maybe if you took it every day it might help.

>

> I am also experiencing some things that I don't care for since my

> reduction to 3.5mgs of pred. But, I believe mine is due to the

> imbalance of my cortisol level. We wanted to first see if my body

> noticed the drop before adjusting the hydrocort. Now I think they will

> have to do some fine tuning. I'm going to call first thing in the

> morning and see what he wants me to do.

> I'm looking forward to the day I'm completely off Pred. I don't know

> why because if and when I get a lung transplant, I'll be not only back

> on high doses of Pred but Cytoxan and Imuran as well for the rest of my

> life. I guess I just want to get my body in good condition so they

> will accept me one day.

>

> Hope you're having a nice winter day.

> Take care,

> Vicki

>

>

>

>

>

[Guest guest]

Hi Vicki,

Sorry to hear that the reduction is knocking you around a bit. I actually

take 5mg of folic acid on Mon and Fri and the metho on Wed. Gets

complicated, don't it! I too long for the day when I am off pred altogether

but we do have to watch that the whole nasty thing doesn't flare again. Any

chance of a lung transplant in the near future?

Hope you feel better today, it's teaming with rain here, by the way.

Lesley

>From: anzavic@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: LESLEY - methotrexate and folic acid

>Date: Sun, 11 Aug 2002 10:19:16 -0700 (PDT)

>

>

>

>Hi Lesley.....

>

>If I'm not mistaken, please jump in anyone if I'm wrong on this, but I

>believe that most everyone on Methx takes 1mg of folic acid every day.

>Maybe if you took it every day it might help.

>

>I am also experiencing some things that I don't care for since my

>reduction to 3.5mgs of pred. But, I believe mine is due to the

>imbalance of my cortisol level. We wanted to first see if my body

>noticed the drop before adjusting the hydrocort. Now I think they will

>have to do some fine tuning. I'm going to call first thing in the

>morning and see what he wants me to do.

>I'm looking forward to the day I'm completely off Pred. I don't know

>why because if and when I get a lung transplant, I'll be not only back

>on high doses of Pred but Cytoxan and Imuran as well for the rest of my

>life. I guess I just want to get my body in good condition so they

>will accept me one day.

>

>Hope you're having a nice winter day.

>Take care,

>Vicki

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi Vicki, You are right, I myself take 2mg daily as dr. orders. I was on one a day and raised it to two. Seems to make me feel a little better. He even said I might try 3mg on shot day.

Sherri

anzavic@... wrote:

Hi Lesley.....If I'm not mistaken, please jump in anyone if I'm wrong on this, but Ibelieve that most everyone on Methx takes 1mg of folic acid every day.Maybe if you took it every day it might help.I am also experiencing some things that I don't care for since myreduction to 3.5mgs of pred. But, I believe mine is due to theimbalance of my cortisol level. We wanted to first see if my bodynoticed the drop before adjusting the hydrocort. Now I think they willhave to do some fine tuning. I'm going to call first thing in themorning and see what he wants me to do.I'm looking forward to the day I'm completely off Pred. I don't knowwhy because if and when I get a lung transplant, I'll be not only backon high doses of Pred but Cytoxan and Imuran as well for the rest of mylife. I guess I just want to get my body in good condition so theywill accept me one day.Hope you're having a nice winter day.Take care,Vicki

[Guest guest]

Hi Vicki, You are right, I myself take 2mg daily as dr. orders. I was on one a day and raised it to two. Seems to make me feel a little better. He even said I might try 3mg on shot day.

Sherri

anzavic@... wrote:

Hi Lesley.....If I'm not mistaken, please jump in anyone if I'm wrong on this, but Ibelieve that most everyone on Methx takes 1mg of folic acid every day.Maybe if you took it every day it might help.I am also experiencing some things that I don't care for since myreduction to 3.5mgs of pred. But, I believe mine is due to theimbalance of my cortisol level. We wanted to first see if my bodynoticed the drop before adjusting the hydrocort. Now I think they willhave to do some fine tuning. I'm going to call first thing in themorning and see what he wants me to do.I'm looking forward to the day I'm completely off Pred. I don't knowwhy because if and when I get a lung transplant, I'll be not only backon high doses of Pred but Cytoxan and Imuran as well for the rest of mylife. I guess I just want to get my body in good condition so theywill accept me one day.Hope you're having a nice winter day.Take care,Vicki

[Guest guest]

Hi Zanna,

Sounds like you are having a busy time around the house lately, hope it all

looks good when finished. Regarding folic acid, I actually take 5mg on mon

and fri and metho on Wed, and these days take the metho at night and don't

notice any nausea, thank goodness. I really hate feeling sick!

I hope the heat isn't too bad over there, we are in the midst of Winter

here.

Lesley

>From: mrsxanadu@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: LESLEY - methotrexate and folic acid

>Date: Fri, 16 Aug 2002 12:41:24 EDT

>

>Lesley,

>Vicki was right (as usual : ) ). I was on 1 mg. of folic acid with the

>mtx

>too. It does help with the nauseau and I think it is supposed to help with

>the liver problems.

>

>Zanna

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi Lesley,

Are you very tired on the day you take Methotrexate or ??

Lynn

lesley prior wrote:

Hi Dawn,I'm not sure if the methotrexate makes me tired, but something sure does! Maybe I'm just overdoing it as usual.How are things with you? Are the girls home? Hope you have a great rest,Lesley>From: Dawn Green >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: LESLEY - methotrexate and folic acid>Date: Sat, 17 Aug 2002 13:33:53 -0300>>Hi, Lesley. So glad to hear the Methx. doesn't make you feel nauseaus >anymore.>However, do you notice if it makes you TIRED?? I take mine on Thurs. >nights and>notice I'm no good for nothing for the next 2 -3 days. I think that's why >I>slept until 1:00 today. I especially notice a difference since Rheumy >increased>my dose to 20 mg.>>Dawn>>lesley prior wrote:>> > Hi Zanna,> > Sounds like you are having a busy time around the house lately, hope it >all> > looks good when finished. Regarding folic acid, I actually take 5mg on >mon> > and fri and metho on Wed, and these days take the metho at night and >don't> > notice any nausea, thank goodness. I really hate feeling sick!> > I hope the heat isn't too bad over there, we are in the midst of Winter> > here.> > Lesley> >> > > > >Reply-To: OurMyositis > > >To: OurMyositis > > >Subject: Re: LESLEY - methotrexate and folic acid> > >Date: Fri, 16 Aug 2002 12:41:24 EDT> > >> > >Lesley,> > >Vicki was right (as usual : ) ). I was on 1 mg. of folic acid with >the> > >mtx> > >too. It does help with the nauseau and I think it is supposed to help >with> > >the liver problems.> > >> > >Zanna> >> > _________________________________________________________________> > Chat with friends online, try MSN Messenger: http://messenger.msn.com> >> >> >> >> >

[Guest guest]

Hi Lynn,

Not really. Fatigue seems to hit me randomly throughout the day, every day.

I'm sort of like a spring! Up and down.

So how are you doing? I expect you are having a great time with your son and

daughter-in-law - so glad she is nice. By the way, how old are your boys?

You look pretty young to me to have them grown up.

Lesley

>

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: LESLEY - methotrexate and folic acid

>Date: Sun, 18 Aug 2002 16:08:49 -0700 (PDT)

>

>

>Hi Lesley,

>Are you very tired on the day you take Methotrexate or ??

>Lynn

> lesley prior

>wrote:Hi Dawn,

>I'm not sure if the methotrexate makes me tired, but something sure does!

>Maybe I'm just overdoing it as usual.

>How are things with you? Are the girls home? Hope you have a great rest,

>Lesley

>

>

> >From: Dawn Green

> >Reply-To: OurMyositis

> >To: OurMyositis

> >Subject: Re: LESLEY - methotrexate and folic acid

> >Date: Sat, 17 Aug 2002 13:33:53 -0300

> >

> >Hi, Lesley. So glad to hear the Methx. doesn't make you feel nauseaus

> >anymore.

> >However, do you notice if it makes you TIRED?? I take mine on Thurs.

> >nights and

> >notice I'm no good for nothing for the next 2 -3 days. I think that's why

> >I

> >slept until 1:00 today. I especially notice a difference since Rheumy

> >increased

> >my dose to 20 mg.

> >

> >Dawn

> >

> >lesley prior wrote:

> >

> > > Hi Zanna,

> > > Sounds like you are having a busy time around the house lately, hope

>it

> >all

> > > looks good when finished. Regarding folic acid, I actually take 5mg on

> >mon

> > > and fri and metho on Wed, and these days take the metho at night and

> >don't

> > > notice any nausea, thank goodness. I really hate feeling sick!

> > > I hope the heat isn't too bad over there, we are in the midst of

>Winter

> > > here.

> > > Lesley

> > >

> > > >From: mrsxanadu@...

> > > >Reply-To: OurMyositis

> > > >To: OurMyositis

> > > >Subject: Re: LESLEY - methotrexate and folic acid

> > > >Date: Fri, 16 Aug 2002 12:41:24 EDT

> > > >

> > > >Lesley,

> > > >Vicki was right (as usual : ) ). I was on 1 mg. of folic acid with

> >the

> > > >mtx

> > > >too. It does help with the nauseau and I think it is supposed to help

> >with

> > > >the liver problems.

> > > >

> > > >Zanna

> > >

> > > _________________________________________________________________

> > > Chat with friends online, try MSN Messenger: http://messenger.msn.com

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi, Lesley. I'm pretty sure the Methx. causes fatigue. It just has to,

because I'm not a bit of good for about 3 days afterward. We went to pick up

the girls today and just got home. We stayed for about 5 hours and had a nice

barbecue/visit. It's very nice to have them back home with us. It was a bit

too quiet without them. LOL. Remind me I said that in about 2 days time, will

ya?? )

How are you doing today?

Dawn

lesley prior wrote:

> Hi Dawn,

> I'm not sure if the methotrexate makes me tired, but something sure does!

> Maybe I'm just overdoing it as usual.

> How are things with you? Are the girls home? Hope you have a great rest,

> Lesley

>

> >

> >Reply-To: OurMyositis

> >To: OurMyositis

> >Subject: Re: LESLEY - methotrexate and folic acid

> >Date: Sat, 17 Aug 2002 13:33:53 -0300

> >

> >Hi, Lesley. So glad to hear the Methx. doesn't make you feel nauseaus

> >anymore.

> >However, do you notice if it makes you TIRED?? I take mine on Thurs.

> >nights and

> >notice I'm no good for nothing for the next 2 -3 days. I think that's why

> >I

> >slept until 1:00 today. I especially notice a difference since Rheumy

> >increased

> >my dose to 20 mg.

> >

> >Dawn

> >

> >lesley prior wrote:

> >

> > > Hi Zanna,

> > > Sounds like you are having a busy time around the house lately, hope it

> >all

> > > looks good when finished. Regarding folic acid, I actually take 5mg on

> >mon

> > > and fri and metho on Wed, and these days take the metho at night and

> >don't

> > > notice any nausea, thank goodness. I really hate feeling sick!

> > > I hope the heat isn't too bad over there, we are in the midst of Winter

> > > here.

> > > Lesley

> > >

> > > >From: mrsxanadu@...

> > > >Reply-To: OurMyositis

> > > >To: OurMyositis

> > > >Subject: Re: LESLEY - methotrexate and folic acid

> > > >Date: Fri, 16 Aug 2002 12:41:24 EDT

> > > >

> > > >Lesley,

> > > >Vicki was right (as usual : ) ). I was on 1 mg. of folic acid with

> >the

> > > >mtx

> > > >too. It does help with the nauseau and I think it is supposed to help

> >with

> > > >the liver problems.

> > > >

> > > >Zanna

> > >

> > > _________________________________________________________________

> > > Chat with friends online, try MSN Messenger: http://messenger.msn.com

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks, Lesley!!! I'm not too bad! And yes, I am so enjoying Barry and Tammy.

And thanks for the compliment! My kids are , 24; Barry, 22 and 20! It's so weird having a married son...he's not mine anymore, y'know? Takes some getting used to!

How are you tonight?

Lynn

lesley prior wrote:

Hi Lynn,Not really. Fatigue seems to hit me randomly throughout the day, every day. I'm sort of like a spring! Up and down.So how are you doing? I expect you are having a great time with your son and daughter-in-law - so glad she is nice. By the way, how old are your boys? You look pretty young to me to have them grown up.Lesley>From: Lynn >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: LESLEY - methotrexate and folic acid>Date: Sun, 18 Aug 2002 16:08:49 -0700 (PDT)>>>Hi Lesley,>Are you very tired on the day you take Methotrexate or ??>Lynn> lesley prior>wrote:Hi Dawn,>I'm not sure if the methotrexate makes me tired, but something sure does!>Maybe I'm just overdoing it as usual.>How are things with you? Are the girls home? Hope you have a great rest,>Lesley>>> >From: Dawn Green> >Reply-To: OurMyositis > >To: OurMyositis > >Subject: Re: LESLEY - methotrexate and folic acid> >Date: Sat, 17 Aug 2002 13:33:53 -0300> >> >Hi, Lesley. So glad to hear the Methx. doesn't make you feel nauseaus> >anymore.> >However, do you notice if it makes you TIRED?? I take mine on Thurs.> >nights and> >notice I'm no good for nothing for the next 2 -3 days. I think that's why> >I> >slept until 1:00 today. I especially notice a difference since Rheumy> >increased> >my dose to 20 mg.> >> >Dawn> >> >lesley prior wrote:> >> > > Hi Zanna,> > > Sounds like you are having a busy time around the house lately, hope >it> >all> > > looks good when finished. Regarding folic acid, I actually take 5mg on> >mon> > > and fri and metho on Wed, and these days take the metho at night and> >don't> > > notice any nausea, thank goodness. I really hate feeling sick!> > > I hope the heat isn't too bad over there, we are in the midst of >Winter> > > here.> > > Lesley> > >> > > > > > >Reply-To: OurMyositis > > > >To: OurMyositis > > > >Subject: Re: LESLEY - methotrexate and folic acid> > > >Date: Fri, 16 Aug 2002 12:41:24 EDT> > > >> > > >Lesley,> > > >Vicki was right (as usual : ) ). I was on 1 mg. of folic acid with> >the> > > >mtx> > > >too. It does help with the nauseau and I think it is supposed to help> >with> > > >the liver problems.> > > >> > > >Zanna> > >> > > _________________________________________________________________> > > Chat with friends online, try MSN Messenger: http://messenger.msn.com> > >> > >> > >> > >> > >

[Guest guest]

Wow Lynn! My girls are the same age as your boys, how weird. turned 24

in July, Tori was 22 in May and 20 in Feb. None of mine are married,

but all have boyfriends. Not looking forward to the wedding expense,

although the way they all talk they don't seem to be interested in marriage

till at least 30 over here. They think it ridiculous that I was only 20 and

22 when we got married in the dark ages!

I am feeling " average " thanks. Still a bit nauseous and it can't be the

methx as I don't take it until tonight. Can't seem to feel normal lately.

sigh!

Lesley

>

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: LESLEY - methotrexate and folic acid

>Date: Tue, 20 Aug 2002 19:45:22 -0700 (PDT)

>

>

>Thanks, Lesley!!! I'm not too bad! And yes, I am so enjoying Barry and

>Tammy.

>And thanks for the compliment! My kids are , 24; Barry, 22 and

>20! It's so weird having a married son...he's not mine anymore, y'know?

>Takes some getting used to!

>How are you tonight?

>Lynn

> lesley prior

>wrote:Hi Lynn,

>Not really. Fatigue seems to hit me randomly throughout the day, every day.

>I'm sort of like a spring! Up and down.

>So how are you doing? I expect you are having a great time with your son

>and

>daughter-in-law - so glad she is nice. By the way, how old are your boys?

>You look pretty young to me to have them grown up.

>Lesley

>

>

> >From: Lynn

> >Reply-To: OurMyositis

> >To: OurMyositis

> >Subject: Re: LESLEY - methotrexate and folic acid

> >Date: Sun, 18 Aug 2002 16:08:49 -0700 (PDT)

> >

> >

> >Hi Lesley,

> >Are you very tired on the day you take Methotrexate or ??

> >Lynn

> > lesley prior

> >wrote:Hi Dawn,

> >I'm not sure if the methotrexate makes me tired, but something sure does!

> >Maybe I'm just overdoing it as usual.

> >How are things with you? Are the girls home? Hope you have a great rest,

> >Lesley

> >

> >

> > >From: Dawn Green

> > >Reply-To: OurMyositis

> > >To: OurMyositis

> > >Subject: Re: LESLEY - methotrexate and folic acid

> > >Date: Sat, 17 Aug 2002 13:33:53 -0300

> > >

> > >Hi, Lesley. So glad to hear the Methx. doesn't make you feel nauseaus

> > >anymore.

> > >However, do you notice if it makes you TIRED?? I take mine on Thurs.

> > >nights and

> > >notice I'm no good for nothing for the next 2 -3 days. I think that's

>why

> > >I

> > >slept until 1:00 today. I especially notice a difference since Rheumy

> > >increased

> > >my dose to 20 mg.

> > >

> > >Dawn

> > >

> > >lesley prior wrote:

> > >

> > > > Hi Zanna,

> > > > Sounds like you are having a busy time around the house lately, hope

> >it

> > >all

> > > > looks good when finished. Regarding folic acid, I actually take 5mg

>on

> > >mon

> > > > and fri and metho on Wed, and these days take the metho at night and

> > >don't

> > > > notice any nausea, thank goodness. I really hate feeling sick!

> > > > I hope the heat isn't too bad over there, we are in the midst of

> >Winter

> > > > here.

> > > > Lesley

> > > >

> > > > >From: mrsxanadu@...

> > > > >Reply-To: OurMyositis

> > > > >To: OurMyositis

> > > > >Subject: Re: LESLEY - methotrexate and folic acid

> > > > >Date: Fri, 16 Aug 2002 12:41:24 EDT

> > > > >

> > > > >Lesley,

> > > > >Vicki was right (as usual : ) ). I was on 1 mg. of folic acid with

> > >the

> > > > >mtx

> > > > >too. It does help with the nauseau and I think it is supposed to

>help

> > >with

> > > > >the liver problems.

> > > > >

> > > > >Zanna

> > > >

> > > > _________________________________________________________________

> > > > Chat with friends online, try MSN Messenger:

>http://messenger.msn.com

> > > >

> > > >

> > > >

> > > >

> > > >