Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 > I am wanting to find out what the chances of relieving > the symptoms of Chiari 1 will be after the surgery. >> This depends on a few things. The degree of damage or lack of damage that has already been done. Your physical shape. Your ability to heal. Your age. Your attitude. How well you tolerate the procedure. The type of symptoms you have now. The length of time you've had your symptoms. Whether or not you have other issues beyond Chiari. The severity of symptoms you have now. The surgical procedure used. The quality of the surgical procedure. The `appropriateness' of the surgical procedure matched to your specific condition and degree of symptoms. Your aftercare. Whether or not you give yourself enough time to heal after the surgery. Whether you choose to focus on healing or focus on things that are more disruptive to your healing. Whether or not you send me a wad of cash. Chip www.wacma.com (Just kidding about that last one Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 > I am wanting to find out what the chances of relieving > the symptoms of Chiari 1 will be after the surgery. I > know this is difficult to say and I also know that > this question has been asked numerous times, but I > haven't felt that I have received the answers. > Does anyone have any information on this? ___________________________________________ Dear , I am under the understanding that it all depends on your individual case. My NSG, for example, has given me a 60/40 % chance that the surgery will benefit me, in his opinion. That is better than my previous diagnosis of 50/50 % chance. There is no way of answering this question truthfully unless there is a chance of someone having Extra Sensory Perception (ESP) . Sorry, I can't help you...I have a strong " mother's intuition " when it comes to my daughter, but other than that...no ESP!!!! ) Your friend, Anne Roseburg, Oregon USA By the way...I do believe that persons are able to have ESP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 How do you define success? If you define success as complete relief from all symptoms, I think you're going to find that success is unusual. It does happen, though. If you define success as partial relief of symptoms, it looks like surgery is more often successful than not. Most people get some sort of relief after surgery and I'm one of those cases. If you define success as being better off than you would have been without surgery, it is almost always successful. Without the treatment of surgery, you can die from ACM. In many cases, it will progress to paralysis. I am frustrated with the results of my surgery but I don't want people scared off from having life saving surgery. That's what this is. It is life saving surgery. Read my daily " Blahthings " at: www.100megsfree4.com/blahthings/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Hello everyone, this is . Okay, I have to admit I just got a bit nervous. My neurologist (I've only seen him once) said that this will not kill me. He told me this last September, and I've not seen anyone for it since. Now maybe he was somewhat unknowledgable on Chiari, but I was still sticking to this theory. My symptoms consist of headaches (sometimes Tylenol works) and an occasional dizzy spell. Should I still consider surgery? I don't want to die or become paralyzed. Should I consider surgery BEFORE I have more symptoms? I made an appointment with a neurosurgeon for next Tuesday, but only because we need to discuss how we are going to deliver my baby, not because I cannot handle the symptoms. What would ya'll do? Should I confront him with the idea of surgery? I am just clueless about how to handle this. Any input would be greatly appreciated! Thank you! Re: success rates > How do you define success? If you define success as complete relief from all > symptoms, I think you're going to find that success is unusual. It does > happen, though. > > If you define success as partial relief of symptoms, it looks like surgery > is more often successful than not. Most people get some sort of relief > after surgery and I'm one of those cases. > > If you define success as being better off than you would have been without > surgery, it is almost always successful. Without the treatment of surgery, > you can die from ACM. In many cases, it will progress to paralysis. I am > frustrated with the results of my surgery but I don't want people scared off > from having life saving surgery. That's what this is. It is life saving > surgery. > > > Read my daily " Blahthings " at: > www.100megsfree4.com/blahthings/ > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 ( wrote) At the top of my list is the idea that an ounce of prevention now will reduce my risks (greatly) for permanent damage as I get older. Consistent pressure relief is another check mark for me. , This is what my surgeon did tell me, he said He did not think the surgery would help me, because I had lived so long with all my symptoms.(20+ years) But he said the surgery should stop the progression but that was not a guarantee either. So don't wait if you haven't had your symptoms very long. Take Care Deb in mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 OH, have no fear....I'm scheduled for July 3rd and I can NOT wait! :-) I had a good laugh with my husband last night......I am so excited and am looking forward to a surgery that requires playing with my brain pan. When I talk to some people about the surgery, they don't understand why I am not nervous about it (maybe that comes later). I try to tell them that this surgery could mean so many positive life changes for me. How could I not look forward to it. Re: success rates ( wrote) At the top of my list is the idea that an ounce of prevention now will reduce my risks (greatly) for permanent damage as I get older. Consistent pressure relief is another check mark for me. , This is what my surgeon did tell me, he said He did not think the surgery would help me, because I had lived so long with all my symptoms.(20+ years) But he said the surgery should stop the progression but that was not a guarantee either. So don't wait if you haven't had your symptoms very long. Take Care Deb in mo Help section: http://www.yahoogroups.com/help/ NOTE: NCC refers to posts with No Chiari Content To Unsubscribe Yourself: chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online Group: http://groups.yahoo.com/group/chiari/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Also, there are far more people with Chiari and subsequent surgery than are found on this web site. There are probably very many " successes " you don't hear of. Marsha (in a neurosurgeon's office) Re: success rates How do you define success? If you define success as complete relief from all symptoms, I think you're going to find that success is unusual. It does happen, though. If you define success as partial relief of symptoms, it looks like surgery is more often successful than not. Most people get some sort of relief after surgery and I'm one of those cases. If you define success as being better off than you would have been without surgery, it is almost always successful. Without the treatment of surgery, you can die from ACM. In many cases, it will progress to paralysis. I am frustrated with the results of my surgery but I don't want people scared off from having life saving surgery. That's what this is. It is life saving surgery. Read my daily " Blahthings " at: www.100megsfree4.com/blahthings/ Help section: http://www.yahoogroups.com/help/ NOTE: NCC refers to posts with No Chiari Content To Unsubscribe Yourself: chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online Group: http://groups.yahoo.com/group/chiari/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 debbie eckhoff wrote: I know I am gonna get in trouble again , but I think there is more unsuccessful surgeries tan successes. I am 1 and there is many more in this group alone. maybe it has to do with the surgeon you get, I don't know, I am just putting in my two cents worth. deb in mo Decompression W/C-1 & C-2 Lam. and dura graft 12/29/2000. Corpectomy & discetomy of C-5 thru C-7 with placement of harms cage and plate 3/21/2000 Degenerative Disc Disease demylinating polyneuropathy etc Hi! The way it was told to me is there is a basic textbook decompression.It is out dated but still being preformed all over the country.That was what happened in my case. You could be 6'5 " or 4' 10 " and they would do the same size opening.If I'm wrong here correct me. Gentle hugs, Lee " Make yourself a blessing to someone.Your kind smile or pat on the back might pull someone back from the edge. " Carmellia Elliot http://www.restministries.org chronicpaindevotionals --------------------------------- Quote Link to comment Share on other sites More sharing options...
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