Gabitral

[Guest guest]

Just my 2 cents..... If I had to label any drug as the BIG EVIL one, it

would be Gabitral. We tried it with & he went into a coma-like

seizure-thing (eyes open, non-responsive) for about twenty minutes.

Again, the docs said that it shouldn't be Gabitral. The next day he

could not stand up. We took him off & have never (Thank you LORD) seen

anything like that again. I think that docs finally agreed that it was

the Gabitral (I can't remember, as it's been a few years --- right when

Gabitral became available).

Kathy

On Fri, 05 Dec 2003 13:48:29 -0000 " Glenna Steele "

writes:

> Saro,

> So sorry to hear about Rohan's scare. Hope he has bounced back

> today. You must have been terrified. My daughter was on Keppra for

>

> a short time with some negative effects (more irritability,

> increased

> seizures, made her out of sorts), but it was an add on to two

> existing drugs, so hard to say how it would have affected her on its

>

> own.

> We tried her on Gabitril once, and she began having drop attacks

>

> (never had them before or since). I was convinced it was the

> Gabitril causing it, the docs said, " No, probably not enough of it " ,

>

> so they wanted us to raise it. We did, reluctantly, and she had

> many

> more drop attacks in the next couple of days. We stopped it

> immediately on our own, and after just a few doses I'm convinced she

>

> experienced withdrawal...she had panic attacks for a day or so (also

>

> very unusual). Scared us out of our wits. The doctor (not Macie's

> usual one, but in the same practice) acted like we were crazy for

> thinking the Gabitril had caused the drops or the panic attacks.

> I'm sharing this with you to tell you to trust your instincts

> about the Keppra. If YOU think it is causing the problems, it

> probably is, regardless of what the doctors think.

>

> Best wishes,

>

> Glenna

>

>

>