Re: Different Diagnosis/Chelating?

April 20, 2003

In a message dated 4/20/2003 7:42:16 PM Eastern Daylight Time,

valeri@... writes:

> I have a friend whose nephew has just been diagnosed w/ Childhood

> Disintegrative Disorder. Any experience/thoughts on whether this could be

> caused by toxic metals? There is no treatment for CDD so I believe the

> parents would be open to chelating or something similar.

>

> Valeri

>

From what I understand it is just " another label " and yes, the child probably

is toxic with metals, virus, etc.

Michele

April 21, 2003

--- In , " Valeri Dugan " <valeri@d...>

wrote:

> I have a friend whose nephew has just been diagnosed w/ Childhood

> Disintegrative Disorder. Any experience/thoughts on whether this

could be

> caused by toxic metals? There is no treatment for CDD so I believe

the

> parents would be open to chelating or something similar.

>

> Valeri

Hi Valeri,

Do you know what the symptoms of CDD are? (I don't)

It might be worth finding out what they are to see if

it " sounds like " mercury or not. If that information

is available, anyhow. The other option would be to do

a hair test on the child. (If he is toxic that doesn't

mean the toxicity is the cause of CDD, but at least it

may help, and it gives you a lot more to go on.)

best,

Moria

April 21, 2003

Suggest they get a DDI hair analysis and apply counting rules.

S

From: moriamerri [mailto: moriam@...]

Date: Mon, 21 Apr 2003 01:52:12 -0000

Subject: [ ] Re: Different Diagnosis/Chelating?

<tt>

--- In , " Valeri Dugan " <valeri@d...>

wrote:

> I have a friend whose nephew has just been diagnosed w/ Childhood

> Disintegrative Disorder. Any experience/thoughts on whether this

could be

> caused by toxic metals? There is no treatment for CDD so I believe

the

> parents would be open to chelating or something similar.

>

> Valeri

Hi Valeri,

Do you know what the symptoms of CDD are? (I don't)

It might be worth finding out what they are to see if

it " sounds like " mercury or not. If that information

is available, anyhow. The other option would be to do

a hair test on the child. (If he is toxic that doesn't

mean the toxicity is the cause of CDD, but at least it

may help, and it gives you a lot more to go on.)

best,

Moria

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April 22, 2003

Years ago I talked to a mother whose son's story sounds similar to this

child's. His " disenegration " ended up being linked to a pesticide exposure

and he began the healing process with detoxification. Sorry, I haven't kept

in touch with this family so I can't pass on their contact info. But my son

did lose many skills as well, including many motor skills, after his exposure

to arsenic spraying on a golf course where we lived. I'd think it would

certainly be worth investigating some sort of toxic exposure or perhaps a

pathogenic cause to this child's difficulties.

One other thing that comes to mind is a story I heard from one of our doctors

about a normally-developing child who suddenly developed seizures and

regressed/lost skills around age 5. Electrodermal testing traced it to a

rare pathogen (virus, I think) found in a particular type of bird. It turned

out that this child's grandfather owned a wildlife preserve where they'd

nurse sick animals back to health and then release them. He did have many

birds on his property and the boy visited him often. They treated the

illness homeopathically and with antivirals and he supposedly made a full

recovery.

Just some areas to consider, I guess. Hopefully this family will find their

child's answer soon.

Gaylen

April 22, 2003

sounds to me like this is the doctors way of seeing to it that the autism

ratedoesn't get " too high " ......we'll just make up another category to put

these kids in.

April 22, 2003

No, it's not like that. This child was totally normal (3 older siblings)

until 3 1/2 and one day had a psychotic episode. They thought he had

childhood schizophrenia. Over the last year and a half he has lost all

language, most motor skills, is no longer potty trained, and is

hallucinating much of the time. The prognosis is really grim. It's

described as " more severe and permanent than autism " , loss of skills is

progressive and permanent w/ any improvements seen described as " rarely

marked " . It's almost always associated w/ Severe Mental Retardation

Also, they live in Israel where services aren't the problem they are here.

Valeri

Re: [ ] Different Diagnosis/Chelating?

sounds to me like this is the doctors way of seeing to it that the autism

ratedoesn't get " too high " ......we'll just make up another category to put

these kids in.

April 22, 2003

I would definitely check for mercury or other heavy metal. High

exposure to them is well known to cause psychosis.

Andy

> No, it's not like that. This child was totally normal (3 older

siblings)

> until 3 1/2 and one day had a psychotic episode. They thought he

had

> childhood schizophrenia. Over the last year and a half he has lost

all

> language, most motor skills, is no longer potty trained, and is

> hallucinating much of the time. The prognosis is really grim. It's

> described as " more severe and permanent than autism " , loss of skills

is

> progressive and permanent w/ any improvements seen described as

" rarely

> marked " . It's almost always associated w/ Severe Mental Retardation

>

> Also, they live in Israel where services aren't the problem they are

here.

>

> Valeri

> Re: [ ] Different Diagnosis/Chelating?

>

> sounds to me like this is the doctors way of seeing to it that the

autism

> ratedoesn't get " too high " ......we'll just make up another category

to put

> these kids in.

>

April 22, 2003

Have they looked into Childhood disintegrative disorder?

baily

Re: [ ] Different Diagnosis/Chelating?

sounds to me like this is the doctors way of seeing to it that the autism

ratedoesn't get " too high " ......we'll just make up another category to put

these kids in.

April 23, 2003

Valeri,

I think (I hope) Gaylen and Andy C. are right when they theorize some

sort of environmental exposure has triggered this child's problems.

However, when you mentioned that the family lived in Israel, it

tickled my brain.

If you wish, you may want search for a site called " OMIM " (stands for

Online Mendelian Inheritance in Man). Entry #309200 discusses a

genetic form of bipolar psychosis that is inherited maternally. This

condition was discovered/studied in Jewish families, mostly of Persian

Sephardic ancestry, tho' one was Ashkenazi (eastern european). Also,

entry #272800--Tay-Sachs disease, lists some unusual manifestations of

low hexosaminidase enzyme levels and interaction of this with some

" other genetic locus " that caused some of the symptoms you describe.

The family may want to consider a genetics consultation, not

necessarily to get an answer about environmental possibilities, but to

attempt to rule out genetic types of problems. You can't swing a dead

cat in Israel without hitting a medical geneticist, so I would think

this would be easy to do.

good luck,

Lissy

--- In , " Valeri Dugan " <valeri@d...>

wrote:

> No, it's not like that. This child was totally normal (3 older

siblings)

> until 3 1/2 and one day had a psychotic episode. They thought he

had

> childhood schizophrenia. Over the last year and a half he has lost

all

> language, most motor skills, is no longer potty trained, and is

> hallucinating much of the time. The prognosis is really grim. It's

> described as " more severe and permanent than autism " , loss of skills

is

> progressive and permanent w/ any improvements seen described as

" rarely

> marked " . It's almost always associated w/ Severe Mental Retardation

>

> Also, they live in Israel where services aren't the problem they are

here.

>

> Valeri

>

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