Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 We did, as usual. We got there Friday evening and did the usual set-up stuff (open the windows, plug in the fridge, turn on the pump and water heater, un-pack, etc). Then Saturday morning we got up and drove up to the Lake Chatauqua area of New York to look at the place we're taking our family vacation next year....really nice, actually looked as nice as it did on the web....then to Salamanca for some antique shopping and then the casino, then back to camp. Sunday we came home. I'm having some real problems with balance and with pain and energy since the weather went back to being humid and hot. Not to mention a couple of days without my hot tub...I'm addicted now. Anyway, Sunday was a waste..came home and got in the hottub, went to bed early....too much pain to do anything. This morning seems like a bad start, too, so I'm going to the hottub and then wasting another day. Kathy RE: leaving Have a wonderful time!! Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 We did, as usual. We got there Friday evening and did the usual set-up stuff (open the windows, plug in the fridge, turn on the pump and water heater, un-pack, etc). Then Saturday morning we got up and drove up to the Lake Chatauqua area of New York to look at the place we're taking our family vacation next year....really nice, actually looked as nice as it did on the web....then to Salamanca for some antique shopping and then the casino, then back to camp. Sunday we came home. I'm having some real problems with balance and with pain and energy since the weather went back to being humid and hot. Not to mention a couple of days without my hot tub...I'm addicted now. Anyway, Sunday was a waste..came home and got in the hottub, went to bed early....too much pain to do anything. This morning seems like a bad start, too, so I'm going to the hottub and then wasting another day. Kathy RE: leaving Have a wonderful time!! Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Kathy, How did your balance problem first present? I am having lots of "spells" where i feel offbalance and when in the car, I feel like the car is moving when I'm stopped. This is scaring me to death. RE: leaving Have a wonderful time!! Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Kathy, How did your balance problem first present? I am having lots of "spells" where i feel offbalance and when in the car, I feel like the car is moving when I'm stopped. This is scaring me to death. RE: leaving Have a wonderful time!! Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Kathy, How did your balance problem first present? I am having lots of "spells" where i feel offbalance and when in the car, I feel like the car is moving when I'm stopped. This is scaring me to death. RE: leaving Have a wonderful time!! Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 test RE: leaving Have a wonderful time!! Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 I had that sensation (the car keeping moving thing) and also this visual thing that I can best describe as...well, you know if you're watch a movie and the film kind of jumps? I think it happens more in the theatres if the film isn't correctly spooled? Well, that happens occasinally with my vision. I had that a few times before all this stuff started in earnest . Then when it started up, the first symptom that day was numbness around my mouth and hands, that eventually encompassed my whole face. This all comes and goes, although lately it's been much more frequent. I've had all the MRI's, CT scan of the brain, and EMG's and everything shows completely normal...with the exception of a small benign pineal cyst that sometimes shows on the CT scans and shouldn't be the cause of this. Since I also have almost constant lightheadedness that kicks over to dizziness fairly regularly, it has contributed to my not driving. The last month I have been driving about once or twice a week just over to town and back (about four miles) on good days...when both my balance and the weather are good. I wouldn't want to drive further than that as it requires constant attention and I can't have the radio on, etc. One day I drove Denny home from his eye doctor's appt (about eight miles) and it really was too far for me to safely drive and I was totaled by the time we got home from the effort of maintaining my concentration. I will say that I remember having the sensation you describe in the past when I had a sinus infection, though...could you be having a problem with that since it is allergy season? Kathy RE: leaving Have a wonderful time!! Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 Wow! Good Luck. Kathy RE: leaving Have a wonderful time!! Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
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