Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Hi Coli- My daughter is in her second year of mainstreaming- she also started in kindergarten. It's been a rocky road but I think worth it thus far. What state are you in? (We live in Washington state). I might be able to answer some of your questions or at least relate some of our experiences . What is your daughter's level of hearing, and what is her primary means of communication? Even though the IDEA is nationwide, interpretations vary from district to district; some schools are very progressive while others will fight you on every little thing... Let me know if there is anything I help you with! , mom to Tori, 7 yrs mod bilateral Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Hi Coli- My daughter is in her second year of mainstreaming- she also started in kindergarten. It's been a rocky road but I think worth it thus far. What state are you in? (We live in Washington state). I might be able to answer some of your questions or at least relate some of our experiences . What is your daughter's level of hearing, and what is her primary means of communication? Even though the IDEA is nationwide, interpretations vary from district to district; some schools are very progressive while others will fight you on every little thing... Let me know if there is anything I help you with! , mom to Tori, 7 yrs mod bilateral Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Hi Colin- I live in Spokane, and our daughter attends school in a very large district that is notorious for the disservice it does to it's special needs kids, particularily deaf/hoh kids. Tori first attended a deaf/hoh preschool that was great- we live a good distance from it but we drove her to and from it every day for three years. The school initially was Total Communication, but due to cuts and staff changes it sort of morphed into an ASL based curriculum, which caused quite a few problems for us as our daughter tends to be more of an auditory learner. She started regressing in speech and when she did speak it was in ASL format. We decided to mainstream her and were met with a great deal of resistance- the district refused an interpretor or cued speech aide, etc. We finally settled on a temporary IEP, where we agreed to let the school evaluate her over a period of six weeks and when we sat down to finalise the IEP we would consider their recommendations. Is this something you could try, especially since your daughter may be receiving a CI? You will want to put EVERYTHING in writing; don't count on them doing what is logical or right. Our daughter's speech pathologist has been an invaluable part of our IEP team- she is a wonderful advocate and information source.Since you live here in Washington I may be able to locate someone in your area to help you in this process- I belong to an advocacy group of parents and professionals that meets bi-monthly and we have speakers and guests from all over the state....We are now in the process of re-doing our IEP; the school kind of blew it bigtime a few months ago and we intend to have every little thing written into it this time . I am still learning the ropes but one thing I have learned is to follow my instincts and advocate for my little girl, and it sounds like you are very much the same! I think your ideas for your daughter are more sensible and certainly reasonable, and I think Marissa is probably going to do great in the mainstream environment given the appropriate support. Gl and let me know if I can be of any help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 - I too live in Washington State! Marissa had a profound hearing loss that has progressed since it was diagnosed when she was about 1 year old. She has worn hearing aids since 1 1/2 and full-time since about 2 1/2. I would say that her main form of communication is with sign, however receptively she can understand alot of speech. She is fully mobile, social, etc. She is just severly language delayed (my major concern) and has CP that affects the right side of her body, including her face muscles (speech). They school has " offered " to send her and another child with a hearing loss (but is virtually non-communicative - down syndrome) to a different school than she goes to now where she can be " closer to the intinerant teacher...now they wont have to walk across the school to do AR " ?!?!!? I am concerned these kids are going to get " lumped " together and not get what they need. Also- the kindergarten at this school does the Monday/Wednesday every other Friday model with Kindergarten, and I think Marissa needs to go to school at least 4 days a week...every week. I want to see her do afternoon Kindergarten, and in the mornings do speech daily, AR daily, and pre-teaching daily. All of this would need to be coordinated between everyone. This is getting too long but I'm sure you get my point. Another issue is that she may recieve a CI during the summer...which changes everything once again. It would be so helpul to have a " checklist " to take in to the IEP of things it should include. Classroom acoustics, extra HA stuff...the preteaching. Any ideas? What services have you been able to attain? Anyone else have any advice? Colin _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 - I too live in Washington State! Marissa had a profound hearing loss that has progressed since it was diagnosed when she was about 1 year old. She has worn hearing aids since 1 1/2 and full-time since about 2 1/2. I would say that her main form of communication is with sign, however receptively she can understand alot of speech. She is fully mobile, social, etc. She is just severly language delayed (my major concern) and has CP that affects the right side of her body, including her face muscles (speech). They school has " offered " to send her and another child with a hearing loss (but is virtually non-communicative - down syndrome) to a different school than she goes to now where she can be " closer to the intinerant teacher...now they wont have to walk across the school to do AR " ?!?!!? I am concerned these kids are going to get " lumped " together and not get what they need. Also- the kindergarten at this school does the Monday/Wednesday every other Friday model with Kindergarten, and I think Marissa needs to go to school at least 4 days a week...every week. I want to see her do afternoon Kindergarten, and in the mornings do speech daily, AR daily, and pre-teaching daily. All of this would need to be coordinated between everyone. This is getting too long but I'm sure you get my point. Another issue is that she may recieve a CI during the summer...which changes everything once again. It would be so helpul to have a " checklist " to take in to the IEP of things it should include. Classroom acoustics, extra HA stuff...the preteaching. Any ideas? What services have you been able to attain? Anyone else have any advice? Colin _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 - I too live in Washington State! Marissa had a profound hearing loss that has progressed since it was diagnosed when she was about 1 year old. She has worn hearing aids since 1 1/2 and full-time since about 2 1/2. I would say that her main form of communication is with sign, however receptively she can understand alot of speech. She is fully mobile, social, etc. She is just severly language delayed (my major concern) and has CP that affects the right side of her body, including her face muscles (speech). They school has " offered " to send her and another child with a hearing loss (but is virtually non-communicative - down syndrome) to a different school than she goes to now where she can be " closer to the intinerant teacher...now they wont have to walk across the school to do AR " ?!?!!? I am concerned these kids are going to get " lumped " together and not get what they need. Also- the kindergarten at this school does the Monday/Wednesday every other Friday model with Kindergarten, and I think Marissa needs to go to school at least 4 days a week...every week. I want to see her do afternoon Kindergarten, and in the mornings do speech daily, AR daily, and pre-teaching daily. All of this would need to be coordinated between everyone. This is getting too long but I'm sure you get my point. Another issue is that she may recieve a CI during the summer...which changes everything once again. It would be so helpul to have a " checklist " to take in to the IEP of things it should include. Classroom acoustics, extra HA stuff...the preteaching. Any ideas? What services have you been able to attain? Anyone else have any advice? Colin _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Colin (and ), I'm in Washington state, also...Western Washington. (It makes a difference for services.) Colin, if you're on " this side " , which school district are you dealing with? Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Colin (and ), I'm in Washington state, also...Western Washington. (It makes a difference for services.) Colin, if you're on " this side " , which school district are you dealing with? Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Colin (and ), I'm in Washington state, also...Western Washington. (It makes a difference for services.) Colin, if you're on " this side " , which school district are you dealing with? Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 Carol- I am in Western WA- Bellingham. The ESD program I mentioned is in Anacortes. Colin P. _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 Carol- I am in Western WA- Bellingham. The ESD program I mentioned is in Anacortes. Colin P. _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 Carol- I am in Western WA- Bellingham. The ESD program I mentioned is in Anacortes. Colin P. _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
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