Re: how much gluten for testing????

[Guest guest]

Isn't that crazy? I cannot fathom eating between 9 - 13.5 slices of bread a day or equivalent.

I had two baby Smores and my stomach distended, indigestions almost immediately, and all the other things that followed.

Uh-uh, no way am I putting myself through that ten times over for two months. Just can't handle it any more.

My stomach was starting not to feel bloated after two weeks of "Making some mistakes", less nausea by far... plus beforehand I wasn't even eating all that much gluten I don't think enough for a gluten challenge anyway!!

Definitely need a improved test somehow.

how much gluten for testing????

There have been a lot of posts lately about negative results yet the people KNOW they are affected by gluten. This happened to me when I tried to be tested while my daughter was being diagnosed. I wanted to know how it could be negative when I so obviously reacted horribly. I think I may have a possible answer and wanted to share it with all of you. In an article posted on celiac.com (http://www.celiac.com/st_prod.html?p_prodid=12 & p_catid=2 & p_print=y & sid=91hH9H1FZ9ttE56-15105422430.c1) I found that Dr Horvath, who works with the Center for Celiac Research in MD stated "Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months prior to the serological tests." And that each slice of bread contains 2-3g of gluten. Follow the math:Let's say a 200 pound adult. 1 pound=0.453 kilograms200pounds=90.6 kilos0.3 g/kg body weight/day of single gluten challenge90.6 (kilos) x 0.3g = 27.18g of gluten /day is needed for challengeIf a slice of bread may contain 2-3 g of gluten, then a 200 pound adult would have to eat between 9 and 13.5 slices of bread a day!For a 120 pound adult, it works out to be 5-8 slices per day. Either way you work it, the 2 slices per day that you are told to eat is far below the recommended amount for a gluten challenge. And then they tell you that if you react adversly, to test before the 2 months. No wonder results can be off. I had been sicker than a dog on only 2 slices of bread a day and only lasted 4 weeks. I was told that would certainly be enough and to do the blood test. Negative of course. If I had known then what I know now......Working backwards, those 2 slices per day are based on a 36.7 pound person!!!Just some gluten for thought.Cheryl in Tampa

[Guest guest]

Isn't that crazy? I cannot fathom eating between 9 - 13.5 slices of bread a day or equivalent.

I had two baby Smores and my stomach distended, indigestions almost immediately, and all the other things that followed.

Uh-uh, no way am I putting myself through that ten times over for two months. Just can't handle it any more.

My stomach was starting not to feel bloated after two weeks of "Making some mistakes", less nausea by far... plus beforehand I wasn't even eating all that much gluten I don't think enough for a gluten challenge anyway!!

Definitely need a improved test somehow.

how much gluten for testing????

There have been a lot of posts lately about negative results yet the people KNOW they are affected by gluten. This happened to me when I tried to be tested while my daughter was being diagnosed. I wanted to know how it could be negative when I so obviously reacted horribly. I think I may have a possible answer and wanted to share it with all of you. In an article posted on celiac.com (http://www.celiac.com/st_prod.html?p_prodid=12 & p_catid=2 & p_print=y & sid=91hH9H1FZ9ttE56-15105422430.c1) I found that Dr Horvath, who works with the Center for Celiac Research in MD stated "Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months prior to the serological tests." And that each slice of bread contains 2-3g of gluten. Follow the math:Let's say a 200 pound adult. 1 pound=0.453 kilograms200pounds=90.6 kilos0.3 g/kg body weight/day of single gluten challenge90.6 (kilos) x 0.3g = 27.18g of gluten /day is needed for challengeIf a slice of bread may contain 2-3 g of gluten, then a 200 pound adult would have to eat between 9 and 13.5 slices of bread a day!For a 120 pound adult, it works out to be 5-8 slices per day. Either way you work it, the 2 slices per day that you are told to eat is far below the recommended amount for a gluten challenge. And then they tell you that if you react adversly, to test before the 2 months. No wonder results can be off. I had been sicker than a dog on only 2 slices of bread a day and only lasted 4 weeks. I was told that would certainly be enough and to do the blood test. Negative of course. If I had known then what I know now......Working backwards, those 2 slices per day are based on a 36.7 pound person!!!Just some gluten for thought.Cheryl in Tampa

[Guest guest]

Isn't that crazy? I cannot fathom eating between 9 - 13.5 slices of bread a day or equivalent.

I had two baby Smores and my stomach distended, indigestions almost immediately, and all the other things that followed.

Uh-uh, no way am I putting myself through that ten times over for two months. Just can't handle it any more.

My stomach was starting not to feel bloated after two weeks of "Making some mistakes", less nausea by far... plus beforehand I wasn't even eating all that much gluten I don't think enough for a gluten challenge anyway!!

Definitely need a improved test somehow.

how much gluten for testing????

There have been a lot of posts lately about negative results yet the people KNOW they are affected by gluten. This happened to me when I tried to be tested while my daughter was being diagnosed. I wanted to know how it could be negative when I so obviously reacted horribly. I think I may have a possible answer and wanted to share it with all of you. In an article posted on celiac.com (http://www.celiac.com/st_prod.html?p_prodid=12 & p_catid=2 & p_print=y & sid=91hH9H1FZ9ttE56-15105422430.c1) I found that Dr Horvath, who works with the Center for Celiac Research in MD stated "Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months prior to the serological tests." And that each slice of bread contains 2-3g of gluten. Follow the math:Let's say a 200 pound adult. 1 pound=0.453 kilograms200pounds=90.6 kilos0.3 g/kg body weight/day of single gluten challenge90.6 (kilos) x 0.3g = 27.18g of gluten /day is needed for challengeIf a slice of bread may contain 2-3 g of gluten, then a 200 pound adult would have to eat between 9 and 13.5 slices of bread a day!For a 120 pound adult, it works out to be 5-8 slices per day. Either way you work it, the 2 slices per day that you are told to eat is far below the recommended amount for a gluten challenge. And then they tell you that if you react adversly, to test before the 2 months. No wonder results can be off. I had been sicker than a dog on only 2 slices of bread a day and only lasted 4 weeks. I was told that would certainly be enough and to do the blood test. Negative of course. If I had known then what I know now......Working backwards, those 2 slices per day are based on a 36.7 pound person!!!Just some gluten for thought.Cheryl in Tampa

[Guest guest]

YIKES! On top of the obvious agony - imagine how much weight you would gain!

Does this also hold true for biopsy? Or is this article specifically about the blood test?

Trudy

-------------- Original message -------------- If a slice of bread may contain 2-3 g of gluten, then a 200 pound adult would have to eat between 9 and 13.5 slices of bread a day!

[Guest guest]

This is how the article is stated:

" Each patient has different sensitivity to gluten for reasons that are unclear.

The period of

gluten challenge and the amount of gluten necessary to provoke serological

immune

response are individually different.

A 0.3 g/kg body weight/day of single gluten challenge causes immunological

changes

(cellular immunity) in the intestine (J Pediatr Gastroenterol Nutr 1989;

9:176-180) in

patients on a gluten-free diet, however, the serological response is much

slower.

Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months

prior to

the serological tests. However, if somebody experiences symptoms during the

gluten

challenge we recommend to perform serological tests earlier. "

> YIKES! On top of the obvious agony - imagine how much weight you would gain!

>

> Does this also hold true for biopsy? Or is this article specifically about

the blood test?

>

> Trudy

>

> -------------- Original message --------------

> If a slice of bread may contain 2-3 g of gluten, then a 200 pound adult would

have to

eat

> between 9 and 13.5 slices of bread a day!

[Guest guest]

This is how the article is stated:

" Each patient has different sensitivity to gluten for reasons that are unclear.

The period of

gluten challenge and the amount of gluten necessary to provoke serological

immune

response are individually different.

A 0.3 g/kg body weight/day of single gluten challenge causes immunological

changes

(cellular immunity) in the intestine (J Pediatr Gastroenterol Nutr 1989;

9:176-180) in

patients on a gluten-free diet, however, the serological response is much

slower.

Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months

prior to

the serological tests. However, if somebody experiences symptoms during the

gluten

challenge we recommend to perform serological tests earlier. "

> YIKES! On top of the obvious agony - imagine how much weight you would gain!

>

> Does this also hold true for biopsy? Or is this article specifically about

the blood test?

>

> Trudy

>

> -------------- Original message --------------

> If a slice of bread may contain 2-3 g of gluten, then a 200 pound adult would

have to

eat

> between 9 and 13.5 slices of bread a day!

[Guest guest]

Thanks for clarifying. I would love to find some info on the amount necessary and period of challenge for the biopsy.

Trudy

-------------- Original message -------------- This is how the article is stated:"Each patient has different sensitivity to gluten for reasons that are unclear. The period of gluten challenge and the amount of gluten necessary to provoke serological immune response are individually different.A 0.3 g/kg body weight/day of single gluten challenge causes immunological changes (cellular immunity) in the intestine (J Pediatr Gastroenterol Nutr 1989; 9:176-180) in patients on a gluten-free diet, however, the serological response is much slower.Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months prior to the serological tests. However, if somebody experiences symptoms during the gluten challenge we recommend to perform serological tests earlier."> YIKES! On top of the obvious agony - imagine how much weight you would gain!> > Does this also hold true for biopsy? Or is this article specifically about the blood test?> > Trudy> > -------------- Original message -------------- > If a slice of bread may contain 2-3 g of gluten, then a 200 pound adult would have to eat > between 9 and 13.5 slices of bread a day!

[Guest guest]

Thanks for clarifying. I would love to find some info on the amount necessary and period of challenge for the biopsy.

Trudy

-------------- Original message -------------- This is how the article is stated:"Each patient has different sensitivity to gluten for reasons that are unclear. The period of gluten challenge and the amount of gluten necessary to provoke serological immune response are individually different.A 0.3 g/kg body weight/day of single gluten challenge causes immunological changes (cellular immunity) in the intestine (J Pediatr Gastroenterol Nutr 1989; 9:176-180) in patients on a gluten-free diet, however, the serological response is much slower.Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months prior to the serological tests. However, if somebody experiences symptoms during the gluten challenge we recommend to perform serological tests earlier."> YIKES! On top of the obvious agony - imagine how much weight you would gain!> > Does this also hold true for biopsy? Or is this article specifically about the blood test?> > Trudy> > -------------- Original message -------------- > If a slice of bread may contain 2-3 g of gluten, then a 200 pound adult would have to eat > between 9 and 13.5 slices of bread a day!

[Guest guest]

Thanks for clarifying. I would love to find some info on the amount necessary and period of challenge for the biopsy.

Trudy

-------------- Original message -------------- This is how the article is stated:"Each patient has different sensitivity to gluten for reasons that are unclear. The period of gluten challenge and the amount of gluten necessary to provoke serological immune response are individually different.A 0.3 g/kg body weight/day of single gluten challenge causes immunological changes (cellular immunity) in the intestine (J Pediatr Gastroenterol Nutr 1989; 9:176-180) in patients on a gluten-free diet, however, the serological response is much slower.Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months prior to the serological tests. However, if somebody experiences symptoms during the gluten challenge we recommend to perform serological tests earlier."> YIKES! On top of the obvious agony - imagine how much weight you would gain!> > Does this also hold true for biopsy? Or is this article specifically about the blood test?> > Trudy> > -------------- Original message -------------- > If a slice of bread may contain 2-3 g of gluten, then a 200 pound adult would have to eat > between 9 and 13.5 slices of bread a day!