Re: HELP! Chicago-Area Docs?

[Guest guest]

Donna, thanks for responding so quickly!

We live in Lafayette (IN), about 2 hours south of Chicago.

Sorry, but I'm so new to this, I don't know what AIED is!

Hayden didn't complain of hearing loss, I was the one who noticed that

he wasn't hearing very well. I took him to an audiologist last year

and was told that his hearing was borderline, however it was a

" strange looking " audiogram and it was mentioned that it could be a

progressive loss. Sure enough, over the last six months or so, he has

slowly lost hearing in one ear first and then the other quickly caught

up. He's in the 40db range now (low to mid) and normal in high

frequencies, he is doing a trial with aids. Our ENT tried steroids

and they did not have an effect. We've done a CT scan, bloodwork,

EKG, all were normal. We ruled out auditory neuropathy, he had a

normal ABR (the first was abnormal until we discovered the tech didn't

set up the machine correctly!) and normal reflexes and tymps. He has

lost OAE's in low frequencies and OAE's are dropping in the high

frequencies so we are guessing that he will lose hearing there too.

With Evan, I noticed him not hearing well either. He was tested two

months ago as " borderline " , then last week with a mild loss in one

ear. Yesterday he came home and told me that his hearing has gotten

even worse because he was having trouble hearing his teacher. I'm not

sure what to make of his complaints...

Then with Conner, his was normal two months ago, but I'm not sure what

to think now since he's complaining about it, he's not one to really

notice stuff like that. He's very mildly autistic and has mild CP so

he's normally not very " in tuned " to his body.

I also have a 7 year old daughter that has some conductive hearing

issues in the past, but they seemed to have resolved. I haven't

noticed her struggling recently and she will normally tell me if she's

not hearing well.

We have an appointment scheduled with Dr. Young next month for Hayden

and Evan, but I'll keep going from doctor to doctor until I'm sure

there is nothing more we can do to stop the loss.

Thanks again for your input!

[Guest guest]

Donna, thanks for responding so quickly!

We live in Lafayette (IN), about 2 hours south of Chicago.

Sorry, but I'm so new to this, I don't know what AIED is!

Hayden didn't complain of hearing loss, I was the one who noticed that

he wasn't hearing very well. I took him to an audiologist last year

and was told that his hearing was borderline, however it was a

" strange looking " audiogram and it was mentioned that it could be a

progressive loss. Sure enough, over the last six months or so, he has

slowly lost hearing in one ear first and then the other quickly caught

up. He's in the 40db range now (low to mid) and normal in high

frequencies, he is doing a trial with aids. Our ENT tried steroids

and they did not have an effect. We've done a CT scan, bloodwork,

EKG, all were normal. We ruled out auditory neuropathy, he had a

normal ABR (the first was abnormal until we discovered the tech didn't

set up the machine correctly!) and normal reflexes and tymps. He has

lost OAE's in low frequencies and OAE's are dropping in the high

frequencies so we are guessing that he will lose hearing there too.

With Evan, I noticed him not hearing well either. He was tested two

months ago as " borderline " , then last week with a mild loss in one

ear. Yesterday he came home and told me that his hearing has gotten

even worse because he was having trouble hearing his teacher. I'm not

sure what to make of his complaints...

Then with Conner, his was normal two months ago, but I'm not sure what

to think now since he's complaining about it, he's not one to really

notice stuff like that. He's very mildly autistic and has mild CP so

he's normally not very " in tuned " to his body.

I also have a 7 year old daughter that has some conductive hearing

issues in the past, but they seemed to have resolved. I haven't

noticed her struggling recently and she will normally tell me if she's

not hearing well.

We have an appointment scheduled with Dr. Young next month for Hayden

and Evan, but I'll keep going from doctor to doctor until I'm sure

there is nothing more we can do to stop the loss.

Thanks again for your input!

[Guest guest]

Donna, thanks for responding so quickly!

We live in Lafayette (IN), about 2 hours south of Chicago.

Sorry, but I'm so new to this, I don't know what AIED is!

Hayden didn't complain of hearing loss, I was the one who noticed that

he wasn't hearing very well. I took him to an audiologist last year

and was told that his hearing was borderline, however it was a

" strange looking " audiogram and it was mentioned that it could be a

progressive loss. Sure enough, over the last six months or so, he has

slowly lost hearing in one ear first and then the other quickly caught

up. He's in the 40db range now (low to mid) and normal in high

frequencies, he is doing a trial with aids. Our ENT tried steroids

and they did not have an effect. We've done a CT scan, bloodwork,

EKG, all were normal. We ruled out auditory neuropathy, he had a

normal ABR (the first was abnormal until we discovered the tech didn't

set up the machine correctly!) and normal reflexes and tymps. He has

lost OAE's in low frequencies and OAE's are dropping in the high

frequencies so we are guessing that he will lose hearing there too.

With Evan, I noticed him not hearing well either. He was tested two

months ago as " borderline " , then last week with a mild loss in one

ear. Yesterday he came home and told me that his hearing has gotten

even worse because he was having trouble hearing his teacher. I'm not

sure what to make of his complaints...

Then with Conner, his was normal two months ago, but I'm not sure what

to think now since he's complaining about it, he's not one to really

notice stuff like that. He's very mildly autistic and has mild CP so

he's normally not very " in tuned " to his body.

I also have a 7 year old daughter that has some conductive hearing

issues in the past, but they seemed to have resolved. I haven't

noticed her struggling recently and she will normally tell me if she's

not hearing well.

We have an appointment scheduled with Dr. Young next month for Hayden

and Evan, but I'll keep going from doctor to doctor until I'm sure

there is nothing more we can do to stop the loss.

Thanks again for your input!

[Guest guest]

...

I live in Central IL and I go to an ECHO unit in Champaign. They are

AWESOME!! Dr. Novak doesn't know why our 4 year old has been rapidly

losing his hearing over the past year, but he explains different

causes, why he doesn't know and is very kind. The audiologists are

so patient and caring. All they see are children.

Good luck to you and keep us posted.

Mom to 4 mod-severe

2 hearing

> Donna, thanks for responding so quickly!

>

> We live in Lafayette (IN), about 2 hours south of Chicago.

>

> Sorry, but I'm so new to this, I don't know what AIED is!

>

> Hayden didn't complain of hearing loss, I was the one who noticed

that

> he wasn't hearing very well. I took him to an audiologist last

year

> and was told that his hearing was borderline, however it was a

> " strange looking " audiogram and it was mentioned that it could be a

> progressive loss. Sure enough, over the last six months or so, he

has

> slowly lost hearing in one ear first and then the other quickly

caught

> up. He's in the 40db range now (low to mid) and normal in high

> frequencies, he is doing a trial with aids. Our ENT tried steroids

> and they did not have an effect. We've done a CT scan, bloodwork,

> EKG, all were normal. We ruled out auditory neuropathy, he had a

> normal ABR (the first was abnormal until we discovered the tech

didn't

> set up the machine correctly!) and normal reflexes and tymps. He

has

> lost OAE's in low frequencies and OAE's are dropping in the high

> frequencies so we are guessing that he will lose hearing there too.

>

> With Evan, I noticed him not hearing well either. He was tested

two

> months ago as " borderline " , then last week with a mild loss in one

> ear. Yesterday he came home and told me that his hearing has

gotten

> even worse because he was having trouble hearing his teacher. I'm

not

> sure what to make of his complaints...

>

> Then with Conner, his was normal two months ago, but I'm not sure

what

> to think now since he's complaining about it, he's not one to

really

> notice stuff like that. He's very mildly autistic and has mild CP

so

> he's normally not very " in tuned " to his body.

>

> I also have a 7 year old daughter that has some conductive hearing

> issues in the past, but they seemed to have resolved. I haven't

> noticed her struggling recently and she will normally tell me if

she's

> not hearing well.

>

> We have an appointment scheduled with Dr. Young next month for

Hayden

> and Evan, but I'll keep going from doctor to doctor until I'm sure

> there is nothing more we can do to stop the loss.

>

> Thanks again for your input!

>

[Guest guest]

...

I live in Central IL and I go to an ECHO unit in Champaign. They are

AWESOME!! Dr. Novak doesn't know why our 4 year old has been rapidly

losing his hearing over the past year, but he explains different

causes, why he doesn't know and is very kind. The audiologists are

so patient and caring. All they see are children.

Good luck to you and keep us posted.

Mom to 4 mod-severe

2 hearing

> Donna, thanks for responding so quickly!

>

> We live in Lafayette (IN), about 2 hours south of Chicago.

>

> Sorry, but I'm so new to this, I don't know what AIED is!

>

> Hayden didn't complain of hearing loss, I was the one who noticed

that

> he wasn't hearing very well. I took him to an audiologist last

year

> and was told that his hearing was borderline, however it was a

> " strange looking " audiogram and it was mentioned that it could be a

> progressive loss. Sure enough, over the last six months or so, he

has

> slowly lost hearing in one ear first and then the other quickly

caught

> up. He's in the 40db range now (low to mid) and normal in high

> frequencies, he is doing a trial with aids. Our ENT tried steroids

> and they did not have an effect. We've done a CT scan, bloodwork,

> EKG, all were normal. We ruled out auditory neuropathy, he had a

> normal ABR (the first was abnormal until we discovered the tech

didn't

> set up the machine correctly!) and normal reflexes and tymps. He

has

> lost OAE's in low frequencies and OAE's are dropping in the high

> frequencies so we are guessing that he will lose hearing there too.

>

> With Evan, I noticed him not hearing well either. He was tested

two

> months ago as " borderline " , then last week with a mild loss in one

> ear. Yesterday he came home and told me that his hearing has

gotten

> even worse because he was having trouble hearing his teacher. I'm

not

> sure what to make of his complaints...

>

> Then with Conner, his was normal two months ago, but I'm not sure

what

> to think now since he's complaining about it, he's not one to

really

> notice stuff like that. He's very mildly autistic and has mild CP

so

> he's normally not very " in tuned " to his body.

>

> I also have a 7 year old daughter that has some conductive hearing

> issues in the past, but they seemed to have resolved. I haven't

> noticed her struggling recently and she will normally tell me if

she's

> not hearing well.

>

> We have an appointment scheduled with Dr. Young next month for

Hayden

> and Evan, but I'll keep going from doctor to doctor until I'm sure

> there is nothing more we can do to stop the loss.

>

> Thanks again for your input!

>

[Guest guest]

...

I live in Central IL and I go to an ECHO unit in Champaign. They are

AWESOME!! Dr. Novak doesn't know why our 4 year old has been rapidly

losing his hearing over the past year, but he explains different

causes, why he doesn't know and is very kind. The audiologists are

so patient and caring. All they see are children.

Good luck to you and keep us posted.

Mom to 4 mod-severe

2 hearing

> Donna, thanks for responding so quickly!

>

> We live in Lafayette (IN), about 2 hours south of Chicago.

>

> Sorry, but I'm so new to this, I don't know what AIED is!

>

> Hayden didn't complain of hearing loss, I was the one who noticed

that

> he wasn't hearing very well. I took him to an audiologist last

year

> and was told that his hearing was borderline, however it was a

> " strange looking " audiogram and it was mentioned that it could be a

> progressive loss. Sure enough, over the last six months or so, he

has

> slowly lost hearing in one ear first and then the other quickly

caught

> up. He's in the 40db range now (low to mid) and normal in high

> frequencies, he is doing a trial with aids. Our ENT tried steroids

> and they did not have an effect. We've done a CT scan, bloodwork,

> EKG, all were normal. We ruled out auditory neuropathy, he had a

> normal ABR (the first was abnormal until we discovered the tech

didn't

> set up the machine correctly!) and normal reflexes and tymps. He

has

> lost OAE's in low frequencies and OAE's are dropping in the high

> frequencies so we are guessing that he will lose hearing there too.

>

> With Evan, I noticed him not hearing well either. He was tested

two

> months ago as " borderline " , then last week with a mild loss in one

> ear. Yesterday he came home and told me that his hearing has

gotten

> even worse because he was having trouble hearing his teacher. I'm

not

> sure what to make of his complaints...

>

> Then with Conner, his was normal two months ago, but I'm not sure

what

> to think now since he's complaining about it, he's not one to

really

> notice stuff like that. He's very mildly autistic and has mild CP

so

> he's normally not very " in tuned " to his body.

>

> I also have a 7 year old daughter that has some conductive hearing

> issues in the past, but they seemed to have resolved. I haven't

> noticed her struggling recently and she will normally tell me if

she's

> not hearing well.

>

> We have an appointment scheduled with Dr. Young next month for

Hayden

> and Evan, but I'll keep going from doctor to doctor until I'm sure

> there is nothing more we can do to stop the loss.

>

> Thanks again for your input!

>

[Guest guest]

, thanks for responding. I will keep Dr. Novak in mind if we don't have

much luck in Chicago. Have you done genetic testing yet? We are looking into

that now, at least that might help us rule out other possibilities (i.e.,

environmental factors).

Thanks again,

Message: 8

Date: Wed, 16 Apr 2003 00:48:23 -0000

Subject: Re: HELP! Chicago-Area Docs?

...

I live in Central IL and I go to an ECHO unit in Champaign. They are

AWESOME!! Dr. Novak doesn't know why our 4 year old has been rapidly

losing his hearing over the past year, but he explains different

causes, why he doesn't know and is very kind. The audiologists are

so patient and caring. All they see are children.

Good luck to you and keep us posted.

Mom to 4 mod-severe

2 hearing

[Guest guest]

, thanks for responding. I will keep Dr. Novak in mind if we don't have

much luck in Chicago. Have you done genetic testing yet? We are looking into

that now, at least that might help us rule out other possibilities (i.e.,

environmental factors).

Thanks again,

Message: 8

Date: Wed, 16 Apr 2003 00:48:23 -0000

Subject: Re: HELP! Chicago-Area Docs?

...

I live in Central IL and I go to an ECHO unit in Champaign. They are

AWESOME!! Dr. Novak doesn't know why our 4 year old has been rapidly

losing his hearing over the past year, but he explains different

causes, why he doesn't know and is very kind. The audiologists are

so patient and caring. All they see are children.

Good luck to you and keep us posted.

Mom to 4 mod-severe

2 hearing