Home schooling

[Guest guest]

Hi all,

Wanted to see if any of you are home schooling. We are seriously

considering it with Macie, as her seizure activity began right

around starting kindergarten time (after nearly two years of

complete control), and has gotten continually worse (although last

week was better than most). She has been given gum by a friend on

the bus on several occasions, and a little girl at school has been

sharing grapes from her lunchbox. I don't think this explains all

of the activity we're seeing. She is wiped out by school and the

extra energy it requires, although she loves it. We have been

trying 1/2 days and it is helping some, and she is napping every

afternoon once she gets home. Her classroom (regular ed) has a

couple of really disruptive behavior problems, and I just think the

teacher is overwhelmed at times. Also, the go to breakfast, lunch,

and their specials class all within 3 hours, so there's lots of

lining up and walking the halls - disruption and often chaos!! The

anxiety Macie feels seems to make the seizures worse. According to

the skills list they sent home for the kindergarten curriculum, she

is doing fine. However, they are doing many first grade type things

already that aren't developmentally appropriate, and she is

struggling with some of those. I've been helping one day a week in

her class, and am there for a short time nearly every day. They've

been assigning one of the most advanced little girls to help her

with writing, etc. The worst part is many people don't realize it

when Macie is having a seizure, and she's been having many at school

and the teachers don't know it. While we are fine tuning, it is

hard to know if the changes we are making are helping if she's not

with us and we can't watch her.

This is a very difficult decision for us....I guess I'm asking

for advice. We know the social interaction is so very important,

but I don't want to be stubborn about it if the answer is obvious.

I don't want to sacrifice her health, and take any longer than we

have to to figure out how we can get rid of the seizures again. I

taught kindergarten for six years before Macie was born, so I have

all the materials I could possibly need.

Any thoughts?????

Thanks,

Glenna