Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Hope everything goes well and you are better quickly. Please let us know. I'll be thinking of you. (((hugs))) Kathy RE: Robyn , It's a delicate subject but my fissures are located just inside the entrance to my anus. Therefore each time I go to the toilet ( & with my Crohn's that's about 6 - 8 times every day!) they open up again. They are like tears in the skin of the anus. They are very painful. They have given me cortisone cream to put on them but it doesn't numb the pain at all. I'm also on digesives to help with the pain but I might as well be taking sweets for all the effect they have. To make matters worse since the exploratory operation on Wednesday I'm bleeding a real lot every time I go to the toilet. And the specialist who performed the operation and my local doctor are both away on holidays!!! I don't know whether to go to the local hospital and report in or what. I'm to see the next specialist in a hospital in Sydney on Tuesday but that is only for a consultation for him to decide if he will give me the botox injections on 23rd July - that's another 2 weeks away!!! And I'm in constant pain now. Ugg! (((Hugs))) Robyn wrote: Since I don't know much about the fissures and where they're located, can't they give you something to numb them?? Hugs, Theory of relativity: If you go back far enough, we're all related. Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Hope everything goes well and you are better quickly. Please let us know. I'll be thinking of you. (((hugs))) Kathy RE: Robyn , It's a delicate subject but my fissures are located just inside the entrance to my anus. Therefore each time I go to the toilet ( & with my Crohn's that's about 6 - 8 times every day!) they open up again. They are like tears in the skin of the anus. They are very painful. They have given me cortisone cream to put on them but it doesn't numb the pain at all. I'm also on digesives to help with the pain but I might as well be taking sweets for all the effect they have. To make matters worse since the exploratory operation on Wednesday I'm bleeding a real lot every time I go to the toilet. And the specialist who performed the operation and my local doctor are both away on holidays!!! I don't know whether to go to the local hospital and report in or what. I'm to see the next specialist in a hospital in Sydney on Tuesday but that is only for a consultation for him to decide if he will give me the botox injections on 23rd July - that's another 2 weeks away!!! And I'm in constant pain now. Ugg! (((Hugs))) Robyn wrote: Since I don't know much about the fissures and where they're located, can't they give you something to numb them?? Hugs, Theory of relativity: If you go back far enough, we're all related. Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Hope everything goes well and you are better quickly. Please let us know. I'll be thinking of you. (((hugs))) Kathy RE: Robyn , It's a delicate subject but my fissures are located just inside the entrance to my anus. Therefore each time I go to the toilet ( & with my Crohn's that's about 6 - 8 times every day!) they open up again. They are like tears in the skin of the anus. They are very painful. They have given me cortisone cream to put on them but it doesn't numb the pain at all. I'm also on digesives to help with the pain but I might as well be taking sweets for all the effect they have. To make matters worse since the exploratory operation on Wednesday I'm bleeding a real lot every time I go to the toilet. And the specialist who performed the operation and my local doctor are both away on holidays!!! I don't know whether to go to the local hospital and report in or what. I'm to see the next specialist in a hospital in Sydney on Tuesday but that is only for a consultation for him to decide if he will give me the botox injections on 23rd July - that's another 2 weeks away!!! And I'm in constant pain now. Ugg! (((Hugs))) Robyn wrote: Since I don't know much about the fissures and where they're located, can't they give you something to numb them?? Hugs, Theory of relativity: If you go back far enough, we're all related. Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Good Morning Everyone, Just to let you know that I am out of hospital however I have to return again on Friday for what they hope is day surgery. This time I'm to get the botox injections in my anus. This has been a terrible few weeks for me. It turns out that I not only have two extremely large fissures but a large haematoma as well at the end of one of the fissures? This surgeon drained the haematoma and will do the botox on Friday this week. Apparently they only do this procedure one Friday a week as it is so expensive and they only get the botox one day a month to use. After he had drained this haematoma I was kept in hospital for a week on morphine and endone. I actually found that the endone tablets worked better for me than the morphine. However the one relief that I have found that really works best for me (a heat bag heated in the microwave for 3 minutes that I then put on my bottom when I'm in pain) I couldn't use in the hospital for safety and health reasons despite pleading for it. So after a week I decided I was better off at home waiting for the botox operation than staying in hospital. I've come home with supplies of endone to see me through to Friday. It seems to be working. Thanks for the wishes you send to me via my daughter while I was in hospital. Please keep me in your thoughts and prayers on Friday. (((Hugs))) Robyn Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Robyn, It's so good to hear from you. Take care of yourself. I hope everything goes well Fri. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 On my bad days, I wear a long thin maxi pad - it can prevent a change of clothes sometimes. I keep a set of old scrubs in my desk at work & carry panties in my purse all the time. Re: Robyn I carry a change of undies and jeans in the car when my IBS is acting up---which is all the time, LOL I can't stand Depends, but I do wear panty shields. They definitely don't help much, but sometimes will keep an " accident " from leaking through my jeans. Kathy Re: Robyn Robyn, when you leave the house do you pack undies in your purse? I used to. Wear Depends if you have to also. It will help somewhat if you do have an accident. I'm glad you have a terrrific doc. That's makes a big difference. The pain you're having in your hands and such could be from the inflammatory arthritis caused by the Crohns. So the prednisone is going to help with that too. Can't win for losing can ya?..lol It's a big pain in the rear....lol Take care xoxoxo Shirlsrobyn bray wrote: Thanks Kathy, Yes I have a wonderful doctor. I really appreciate her very much. When I was off the prednisone in hospital it was because there was a major mixup at the hospital and they just kept forgetting to give it to me. So it wasn't planned at all. My hands in particular along with my feet are really giving me a lot of pain at present. I presume this is because I'm off the pred. I don't want to go back on it. I might experiment and try some more Myfortic for a few days to see if this settles it down. Otherwise, I'll just have to put up with the pain (it matches the pain in my rear end, anyway!) (((Hugs))) RobynPlease visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 On my bad days, I wear a long thin maxi pad - it can prevent a change of clothes sometimes. I keep a set of old scrubs in my desk at work & carry panties in my purse all the time. Re: Robyn I carry a change of undies and jeans in the car when my IBS is acting up---which is all the time, LOL I can't stand Depends, but I do wear panty shields. They definitely don't help much, but sometimes will keep an " accident " from leaking through my jeans. Kathy Re: Robyn Robyn, when you leave the house do you pack undies in your purse? I used to. Wear Depends if you have to also. It will help somewhat if you do have an accident. I'm glad you have a terrrific doc. That's makes a big difference. The pain you're having in your hands and such could be from the inflammatory arthritis caused by the Crohns. So the prednisone is going to help with that too. Can't win for losing can ya?..lol It's a big pain in the rear....lol Take care xoxoxo Shirlsrobyn bray wrote: Thanks Kathy, Yes I have a wonderful doctor. I really appreciate her very much. When I was off the prednisone in hospital it was because there was a major mixup at the hospital and they just kept forgetting to give it to me. So it wasn't planned at all. My hands in particular along with my feet are really giving me a lot of pain at present. I presume this is because I'm off the pred. I don't want to go back on it. I might experiment and try some more Myfortic for a few days to see if this settles it down. Otherwise, I'll just have to put up with the pain (it matches the pain in my rear end, anyway!) (((Hugs))) RobynPlease visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 On my bad days, I wear a long thin maxi pad - it can prevent a change of clothes sometimes. I keep a set of old scrubs in my desk at work & carry panties in my purse all the time. Re: Robyn I carry a change of undies and jeans in the car when my IBS is acting up---which is all the time, LOL I can't stand Depends, but I do wear panty shields. They definitely don't help much, but sometimes will keep an " accident " from leaking through my jeans. Kathy Re: Robyn Robyn, when you leave the house do you pack undies in your purse? I used to. Wear Depends if you have to also. It will help somewhat if you do have an accident. I'm glad you have a terrrific doc. That's makes a big difference. The pain you're having in your hands and such could be from the inflammatory arthritis caused by the Crohns. So the prednisone is going to help with that too. Can't win for losing can ya?..lol It's a big pain in the rear....lol Take care xoxoxo Shirlsrobyn bray wrote: Thanks Kathy, Yes I have a wonderful doctor. I really appreciate her very much. When I was off the prednisone in hospital it was because there was a major mixup at the hospital and they just kept forgetting to give it to me. So it wasn't planned at all. My hands in particular along with my feet are really giving me a lot of pain at present. I presume this is because I'm off the pred. I don't want to go back on it. I might experiment and try some more Myfortic for a few days to see if this settles it down. Otherwise, I'll just have to put up with the pain (it matches the pain in my rear end, anyway!) (((Hugs))) RobynPlease visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 I carry a change of undies and jeans in the car when my IBS is acting up---which is all the time, LOL I can't stand Depends, but I do wear panty shields. They definitely don't help much, but sometimes will keep an "accident" from leaking through my jeans. Kathy Re: Robyn Robyn, when you leave the house do you pack undies in your purse? I used to. Wear Depends if you have to also. It will help somewhat if you do have an accident. I'm glad you have a terrrific doc. That's makes a big difference. The pain you're having in your hands and such could be from the inflammatory arthritis caused by the Crohns. So the prednisone is going to help with that too. Can't win for losing can ya?..lol It's a big pain in the rear....lol Take care xoxoxo Shirlsrobyn bray wrote: Thanks Kathy, Yes I have a wonderful doctor. I really appreciate her very much. When I was off the prednisone in hospital it was because there was a major mixup at the hospital and they just kept forgetting to give it to me. So it wasn't planned at all. My hands in particular along with my feet are really giving me a lot of pain at present. I presume this is because I'm off the pred. I don't want to go back on it. I might experiment and try some more Myfortic for a few days to see if this settles it down. Otherwise, I'll just have to put up with the pain (it matches the pain in my rear end, anyway!) (((Hugs))) RobynPlease visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 I carry a change of undies and jeans in the car when my IBS is acting up---which is all the time, LOL I can't stand Depends, but I do wear panty shields. They definitely don't help much, but sometimes will keep an "accident" from leaking through my jeans. Kathy Re: Robyn Robyn, when you leave the house do you pack undies in your purse? I used to. Wear Depends if you have to also. It will help somewhat if you do have an accident. I'm glad you have a terrrific doc. That's makes a big difference. The pain you're having in your hands and such could be from the inflammatory arthritis caused by the Crohns. So the prednisone is going to help with that too. Can't win for losing can ya?..lol It's a big pain in the rear....lol Take care xoxoxo Shirlsrobyn bray wrote: Thanks Kathy, Yes I have a wonderful doctor. I really appreciate her very much. When I was off the prednisone in hospital it was because there was a major mixup at the hospital and they just kept forgetting to give it to me. So it wasn't planned at all. My hands in particular along with my feet are really giving me a lot of pain at present. I presume this is because I'm off the pred. I don't want to go back on it. I might experiment and try some more Myfortic for a few days to see if this settles it down. Otherwise, I'll just have to put up with the pain (it matches the pain in my rear end, anyway!) (((Hugs))) RobynPlease visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 I carry a change of undies and jeans in the car when my IBS is acting up---which is all the time, LOL I can't stand Depends, but I do wear panty shields. They definitely don't help much, but sometimes will keep an "accident" from leaking through my jeans. Kathy Re: Robyn Robyn, when you leave the house do you pack undies in your purse? I used to. Wear Depends if you have to also. It will help somewhat if you do have an accident. I'm glad you have a terrrific doc. That's makes a big difference. The pain you're having in your hands and such could be from the inflammatory arthritis caused by the Crohns. So the prednisone is going to help with that too. Can't win for losing can ya?..lol It's a big pain in the rear....lol Take care xoxoxo Shirlsrobyn bray wrote: Thanks Kathy, Yes I have a wonderful doctor. I really appreciate her very much. When I was off the prednisone in hospital it was because there was a major mixup at the hospital and they just kept forgetting to give it to me. So it wasn't planned at all. My hands in particular along with my feet are really giving me a lot of pain at present. I presume this is because I'm off the pred. I don't want to go back on it. I might experiment and try some more Myfortic for a few days to see if this settles it down. Otherwise, I'll just have to put up with the pain (it matches the pain in my rear end, anyway!) (((Hugs))) RobynPlease visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
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