Re: To Hall Cutler. 9 year old non-verbal girl, Unexplained ear pain.

September 12, 2003

Tim & Rose,

Welcome to the list. How old is she , how much does she weigh, what chelation

agent(s), dosage, protocol? Any vaccines or dental work lately? New

environment, new supps?

>

Many on the spectrum have auditory hypersensitivity which can be painful (in a

fingernails on chalkboard sense). Take note of what's going on in her

environment when this occurs. Many react to the (barely noticeable to the

" rest " of us sounds of fluorescent lights, plumbing in neighboring buildings,

the sound of one's own blood rushing in the veins, etc. Excellent book s on

this, " Dancing in the Rain " and " Sound of a Miracle " by Anabel Stehli and one by

her recovered daughter Georgia Brown which I haven't yet read and don't recall

the title.

>

I presume you've had her checked for ear infection? Any chance she's having

subclinical or absence seizures? A kid on the spectrum with whom I used to work

appeared to randomly act like he was in pain and having headaches and we

finally, after a year, got a doc to order an EEG. He was indeed having absence

seizures. Hope that not what's going on with her but might be worth checking.

>

Consider taking her off dairy for a while to see if that helps since dairy can

cause ear aches/infection. Try putting her on (non-dairy) probiotics if she

doesn't already take them.

>

BTW, I was in Menomonie & Wheeler, WI in Aug to visit my sister, BIL, & nephew

and will visit again in Nov. I had my mercury amalgam fillings removed 12+ yrs

ago by a dentist in Eau .

S

My wife and

I need your help regarding our autistic daughter's unexplained ear

pain. For the last month Sheryl has had random screaming and crying

fits during which she covers her ears and burys her face into the bed

or couch. She seems to be in severe physical pain but three doctors

have not been able to find any apparent physical cause. These " fits "

are a new behavior which has us very worried. Her ear doctor thinks

it is an autistic behavior but her personal school aide believes she

is in physical pain. My wife and I think she is in physical pain.

When we ask her " show me the owee " she will point to her ears.

Sheryl is on zoloft, risperdal, adderall, and several chelation

medicines and supplements. She has been on chelation therapy for

close to a year and up to this point has tolerated it very well. We

wonder if she has headaches or ringing of the ears. Does anybody have

an idea of what could be going on here? These screaming/crying fits

come and go for no apparent reason. Could the mercury in her system

be causing this pain? Also.. When she has these screaming/crying

fits she will breathe in and out very fast as if she is trying to

relieve some kind of pressure in her ears.. Does this sound familiar

to anybody? We would really appreciate your advice. sincerely, Tim

and Rose Ziegeweid, Eau , Wisconsin.

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September 12, 2003

Hi Tim and Rose,

I just searched in the internet and found that ear pain is listed

among side effects of Zoloft, and ear congestion is a side effect of

Risperdal. I would try to stop those drugs.

Sorry that your daughter is in such pain. May be it's irrelevant,

but I had a baby 3 months ago and it is fresh in my mind how I was

breathing fast to help myself with the pain from contractions. May

be breathing helps her with her pain, but it seems like it should be

very bad pain in this case.

Margaret

> To Hall Cutler and to all Mercury-Autism parents. I was

> advised to contact you by my good friend Hokkanen. My wife

and

> I need your help regarding our autistic daughter's unexplained ear

> pain. For the last month Sheryl has had random screaming and

crying

> fits during which she covers her ears and burys her face into the

bed

> or couch. She seems to be in severe physical pain but three

doctors

> have not been able to find any apparent physical cause.

These " fits "

> are a new behavior which has us very worried. Her ear doctor

thinks

> it is an autistic behavior but her personal school aide believes

she

> is in physical pain. My wife and I think she is in physical pain.

> When we ask her " show me the owee " she will point to her ears.

> Sheryl is on zoloft, risperdal, adderall, and several chelation

> medicines and supplements. She has been on chelation therapy for

> close to a year and up to this point has tolerated it very well.

We

> wonder if she has headaches or ringing of the ears. Does anybody

have

> an idea of what could be going on here? These screaming/crying

fits

> come and go for no apparent reason. Could the mercury in her

system

> be causing this pain? Also.. When she has these screaming/crying

> fits she will breathe in and out very fast as if she is trying to

> relieve some kind of pressure in her ears.. Does this sound

familiar

> to anybody? We would really appreciate your advice. sincerely, Tim

> and Rose Ziegeweid, Eau , Wisconsin.

September 12, 2003

dear . Thanks very much for your reply. Sheryl will be nine on 9-19-94.

She is approxamitely 4' 6 " tall and weighs about 70 pounds. Her main

chelating agent is chlorella and something callled chem-chord. She also

receives cilantro-oil which we rub on her wrists. Her chelation is monitored

quite closely by Doctor of La Crosse, WI.. she has not

had any dental work or new vaccines.

I have not heard of " Clinical " or absence seizures " . She was tested for

epilepsy and " Fragile X " syndrome but tests were negative. None of her

doctors have detected any signs of seizures. Sheryl definitelt has

auditory hypersensitivity. The problem is that these fits will come and go

when no noises are bothering her. She wakes up in the middle of the night in

pain and will not go back to sleep for 30-45 minutes. I have found an

" Autism Clinic " in the Twin Cities. I think I will give them a call on

Monday if this problem persists. We took sheryl to her chiropracter today

and he gave her some ear drops that are suppose to treat Hard-to-detect

infections. Hopefully they will help. Last month Sheryl's aides at summer

school took her out swimming with the other kids and she apparently got some

water in her ear. This is when the screaming/crying fits first appeared. A

third doctor said she had " swimmer's ear and gave her some drops. We were

told the infection disappeared but the painful symptoms have remained. Her

main " Autism " doctors think this is autistic behavior but I think they are

wrong because the behavior comes and goes for no apparent reason. She will

be sitting happily playing with her toys and go into one of these fits for a

few minutes and then the fit will subside. There is no apparent reason but

she always covers her ears very tightly each time. We appreciate your

responce. hopefully the ear drops we got today will help. Please give us a

call at 715-834-8199 when you are passing through E.C. Thanks , Tim and

Rose Ziegeweid. I will let you know if the new drops help.

RE: [ ] To Hall Cutler. 9 year old non-verbal

girl, Unexplained ear pain.

>

> Tim & Rose,

> Welcome to the list. How old is she , how much does she weigh, what

chelation agent(s), dosage, protocol? Any vaccines or dental work lately?

New environment, new supps?

> >

> Many on the spectrum have auditory hypersensitivity which can be painful

(in a fingernails on chalkboard sense). Take note of what's going on in her

environment when this occurs. Many react to the (barely noticeable to the

" rest " of us sounds of fluorescent lights, plumbing in neighboring

buildings, the sound of one's own blood rushing in the veins, etc.

Excellent book s on this, " Dancing in the Rain " and " Sound of a Miracle " by

Anabel Stehli and one by her recovered daughter Georgia Brown which I

haven't yet read and don't recall the title.

> >

> I presume you've had her checked for ear infection? Any chance she's

having subclinical or absence seizures? A kid on the spectrum with whom I

used to work appeared to randomly act like he was in pain and having

headaches and we finally, after a year, got a doc to order an EEG. He was

indeed having absence seizures. Hope that not what's going on with her but

might be worth checking.

> >

> Consider taking her off dairy for a while to see if that helps since dairy

can cause ear aches/infection. Try putting her on (non-dairy) probiotics if

she doesn't already take them.

> >

> BTW, I was in Menomonie & Wheeler, WI in Aug to visit my sister, BIL, &

nephew and will visit again in Nov. I had my mercury amalgam fillings

removed 12+ yrs ago by a dentist in Eau .

> S

>

> My wife and

> I need your help regarding our autistic daughter's unexplained ear

> pain. For the last month Sheryl has had random screaming and crying

> fits during which she covers her ears and burys her face into the bed

> or couch. She seems to be in severe physical pain but three doctors

> have not been able to find any apparent physical cause. These " fits "

> are a new behavior which has us very worried. Her ear doctor thinks

> it is an autistic behavior but her personal school aide believes she

> is in physical pain. My wife and I think she is in physical pain.

> When we ask her " show me the owee " she will point to her ears.

> Sheryl is on zoloft, risperdal, adderall, and several chelation

> medicines and supplements. She has been on chelation therapy for

> close to a year and up to this point has tolerated it very well. We

> wonder if she has headaches or ringing of the ears. Does anybody have

> an idea of what could be going on here? These screaming/crying fits

> come and go for no apparent reason. Could the mercury in her system

> be causing this pain? Also.. When she has these screaming/crying

> fits she will breathe in and out very fast as if she is trying to

> relieve some kind of pressure in her ears.. Does this sound familiar

> to anybody? We would really appreciate your advice. sincerely, Tim

> and Rose Ziegeweid, Eau , Wisconsin.

>

> </tt>

>

>

>

>

>

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>

September 13, 2003

1. Find someone who does cranial therapy (also called cranial sacral

therapy) and bring her in for an evaluation.

2. what is the chelation schedule and supplements?

3. adderall heightens pain sensitivity - does she have the problems

2-5 hours after taking it, or at some other time?

Andy . . . . .. .

> To Hall Cutler and to all Mercury-Autism parents. I was

> advised to contact you by my good friend Hokkanen. My wife and

> I need your help regarding our autistic daughter's unexplained ear

> pain. For the last month Sheryl has had random screaming and crying

> fits during which she covers her ears and burys her face into the

bed

> or couch. She seems to be in severe physical pain but three doctors

> have not been able to find any apparent physical cause. These

" fits "