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Zoe's pain NCC

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Zoe has been having a bad episode with her FMF for the past two weeks. It

causes peritonitis (inflammation in her chest and belly) and so she is in a

great amount of pain. She's missed two weeks of school because of it. This

has been her worst attack ever. I took her to her doctor at Children's

Hospital on Friday but all he suggested was adult strength Tylenol and rest.

He also said I should try to get her referred to the pain clinic there.

I went to the health food store yesterday where they are very knowledgable

and they recommended a super strength herbal supplement that brings down

inflammation so we're trying that. In the meantime, I'm wondering if anyone

has any suggestions for pain management for her. I know it's not the same as

Chiari but we are all so familiar with pain I thought you might have some

ideas. Thank you!

Much love,

Traci, ACM1, no surgery, hypothyroidism.

mom of Andre (16 yrs.), ACM1, no surgery, cyst on brainstem, scoliosis.

and Zoe (10 yrs.), Thalassemia and Familial Mediterranean Fever.

Only lots of love and laughter keep us going!

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