Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Hiya Sandi It is good to see a post from you .. and I sure hope the test results arent as bad as things look. You got to have faith .. you got to have hope .. so hang in there!! hugs .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 Sandi, I'm sending my best to you hoping your test come out ok. Mojo Hi friends > Hi Lupies friends, > > I have been in that 'slot' again of surviving. The bleeding in my stomach is > so bad, they > tested me yesterday for Carcinoid Syndrome, to be sure these are not > cancerous. I have > 11 spots in my GI tract that are either ulcerated or bleeding- and that > brings on horrific > pain with the Lupus. Twice this week I have considered going to the ER for a > shot of > Demerol. <G> > > I just wanted to pop in and say 'Hi " . I am reading and watching many of > your posts. > This cold weather here in country-land MI is 3 degrees today. I know you all > feel these > weather changes, just like I do. > > Please know you're in my thoughts and prayers. I'll know the results of my > test in about > 3 weeks. Today I am still doing that 24 hour draw of urine for the serotonin > and carcitonin > levels, then we'll know more. > > Gentle hugs, thanks for being a support I can 'crawl' to when I feel like > this. > Love, > > Sandi Krakowski > My home biz: http://ld.net/?homebiz2004 > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.564 / Virus Database: 356 - Release Date: 1/19/2004 > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/gallery/view?username=lupies > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Hi Kim, Happy Birthday tomorrow and I hope you enjoy your Oreo Cream Pie!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08Mississippi Subject: Re: Re: Hi FriendsTo: Breathe-Support Date: Thursday, July 10, 2008, 1:45 PM Kim...well obviously, as you have been through so much and your weight is so low, I'm thinking you need more attention than you talk about receiving. However, I'm sure you are getting what is necessary. I don't mean to pry or criticize. MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Hi Friends> > > > > > > > > > > > Hey friends, > > > > > > I've read as much as I could to update myself on the board. > > > > > > Huge hugs! Lots of postitve thoughts! Lots of Love! > > > > > > Tomorrow is my birthday, hopefully I'll be able to get out and > go > > bowling tomorrow/Sunday like I want to. It's going to be a simple > > birthday, pizza & and I chose a Oreo Cream Pie instead of a cake > or a > > ice cream cake (we have a ton of ice cream in the freezer so it > > didn't make sense to throw more in there). So far my only gifts > have > > been $50 and a bday card from my sister. I'll get my parents card > and > > stuff tomorrow. Not saying I want alot of gifts but I will enjoy > > spending the cash. > > > > > > I got my pain patches refilled last week & I'm waiting for my > > pharmacy to get another pain med in that will take the edge off > when > > I need it. This week I've been getting sick off phlegm I don't > know > > if I'm draining too much usually my oxygen dries everything > out... > > due to me getting really early in the mornings I usually have > less of > > a appetite then I should. I'm really scared about my weight. My > > doctor mentioned a medicine to incease my appetite but I was like > > nah, I'm eating fine (I was at that time) so my mom is trying to > get > > in contact with her so I can get some of that stuff. With the > oxygen > > drying everything out my nose has been bleeding quite a bit. > > > > > > /22/ Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years > > 12/2005> > > ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis> > > caused by chemotherapy 06/2008 ~> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Hi Kim, Happy Birthday tomorrow and I hope you enjoy your Oreo Cream Pie!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08Mississippi Subject: Re: Re: Hi FriendsTo: Breathe-Support Date: Thursday, July 10, 2008, 1:45 PM Kim...well obviously, as you have been through so much and your weight is so low, I'm thinking you need more attention than you talk about receiving. However, I'm sure you are getting what is necessary. I don't mean to pry or criticize. MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Hi Friends> > > > > > > > > > > > Hey friends, > > > > > > I've read as much as I could to update myself on the board. > > > > > > Huge hugs! Lots of postitve thoughts! Lots of Love! > > > > > > Tomorrow is my birthday, hopefully I'll be able to get out and > go > > bowling tomorrow/Sunday like I want to. It's going to be a simple > > birthday, pizza & and I chose a Oreo Cream Pie instead of a cake > or a > > ice cream cake (we have a ton of ice cream in the freezer so it > > didn't make sense to throw more in there). So far my only gifts > have > > been $50 and a bday card from my sister. I'll get my parents card > and > > stuff tomorrow. Not saying I want alot of gifts but I will enjoy > > spending the cash. > > > > > > I got my pain patches refilled last week & I'm waiting for my > > pharmacy to get another pain med in that will take the edge off > when > > I need it. This week I've been getting sick off phlegm I don't > know > > if I'm draining too much usually my oxygen dries everything > out... > > due to me getting really early in the mornings I usually have > less of > > a appetite then I should. I'm really scared about my weight. My > > doctor mentioned a medicine to incease my appetite but I was like > > nah, I'm eating fine (I was at that time) so my mom is trying to > get > > in contact with her so I can get some of that stuff. With the > oxygen > > drying everything out my nose has been bleeding quite a bit. > > > > > > /22/ Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years > > 12/2005> > > ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis> > > caused by chemotherapy 06/2008 ~> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Hi Kim, Happy Birthday tomorrow and I hope you enjoy your Oreo Cream Pie!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08Mississippi Subject: Re: Re: Hi FriendsTo: Breathe-Support Date: Thursday, July 10, 2008, 1:45 PM Kim...well obviously, as you have been through so much and your weight is so low, I'm thinking you need more attention than you talk about receiving. However, I'm sure you are getting what is necessary. I don't mean to pry or criticize. MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Hi Friends> > > > > > > > > > > > Hey friends, > > > > > > I've read as much as I could to update myself on the board. > > > > > > Huge hugs! Lots of postitve thoughts! Lots of Love! > > > > > > Tomorrow is my birthday, hopefully I'll be able to get out and > go > > bowling tomorrow/Sunday like I want to. It's going to be a simple > > birthday, pizza & and I chose a Oreo Cream Pie instead of a cake > or a > > ice cream cake (we have a ton of ice cream in the freezer so it > > didn't make sense to throw more in there). So far my only gifts > have > > been $50 and a bday card from my sister. I'll get my parents card > and > > stuff tomorrow. Not saying I want alot of gifts but I will enjoy > > spending the cash. > > > > > > I got my pain patches refilled last week & I'm waiting for my > > pharmacy to get another pain med in that will take the edge off > when > > I need it. This week I've been getting sick off phlegm I don't > know > > if I'm draining too much usually my oxygen dries everything > out... > > due to me getting really early in the mornings I usually have > less of > > a appetite then I should. I'm really scared about my weight. My > > doctor mentioned a medicine to incease my appetite but I was like > > nah, I'm eating fine (I was at that time) so my mom is trying to > get > > in contact with her so I can get some of that stuff. With the > oxygen > > drying everything out my nose has been bleeding quite a bit. > > > > > > /22/ Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years > > 12/2005> > > ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis> > > caused by chemotherapy 06/2008 ~> > >> >> Quote Link to comment Share on other sites More sharing options...
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