burning sensations

[Guest guest]

--- BailieBoy@... wrote:

> From: BailieBoy@...

>

> I don't have burning on the bottem of my feet but

> from below my knees through

> the tops of my feet, I have been having numbness,

> pin-pricking and intense

> burning sensations. I sometimes get the same thing

> across my face. When I

> mentioned this to my doctor last week, he said maybe

> I should see a

> neurologist and they could do an EMG. Anyone ever

> have this test??

> I say, what is the point?? I heard its a painful

> test and I'm sure there

> isn't a neurologist in Arizona who I'm sure knows a

> thing about Lyme.

>

>

> -

I have the same numbness and tingling in my arms and legs as well as

loss of sensation as well. When I had my line put in to start the Ivs

the doc sutured it in without numbing it and i never even flinched.

It started on the left side but is now on the right as well. I had an

EMG done and although the doc performing the test agreed that i have

diminished sensation by his own observation he had to say it was a

normal study because the machine they use to read activity was showing

a normal response. At the time i had the test when he did the left side

i felt nothing and wondered why i had heard so many hoorible things but

then when we moved to the right side it was much more uncomfortable.

Not severe pain but no something i want to do again. So even tho he

admited it was abnormal to him he reported a normal test. Unless your

doc really pushes the issue i would reconsider having it. To me it was

a waste of my time and i felt like i had been hit by a truck the next

day. The muscles were really sore from all the stimulation and we

lymies tend to be sore enough without added trauma.

L(MI)

------------------------------------------------------------------------

> Where do some of the Internet's largest email lists

> reside?

>

> At ONElist - the most scalable and reliable service

> on the Internet.

>

------------------------------------------------------------------------

> Please send privately messages unrelated to lyme.

> /archives.cgi/

> /archives.cgi/Lyme-Docs

> Email: -subscribeonelist

> You may substitute " unsubscribe " , " digest " , or

> " normal " for

> the word " subscribe " ( " normal " is the opposite of

> " digest " )

>

_____________________________________________________________

[Guest guest]

,

You are exactly right. Believe me, it is no doubt all caused by the

lyme. However a nerologist could try you on neurotin or something. That

may give you relief.......

[Lyme-aid] burning sensations

>From: BailieBoy@...

>

>I don't have burning on the bottem of my feet but from below my knees

through

>the tops of my feet, I have been having numbness, pin-pricking and intense

>burning sensations. I sometimes get the same thing across my face. When I

>mentioned this to my doctor last week, he said maybe I should see a

>neurologist and they could do an EMG. Anyone ever have this test??

>I say, what is the point?? I heard its a painful test and I'm sure there

>isn't a neurologist in Arizona who I'm sure knows a thing about Lyme.

>

>

>------------------------------------------------------------------------

>Where do some of the Internet's largest email lists reside?

>

>At ONElist - the most scalable and reliable service on the Internet.

>------------------------------------------------------------------------

>Please send privately messages unrelated to lyme.

>/archives.cgi/

>/archives.cgi/Lyme-Docs

>Email: -subscribeonelist

>You may substitute " unsubscribe " , " digest " , or " normal " for

>the word " subscribe " ( " normal " is the opposite of " digest " )

>

[Guest guest]

Hi ,

I have had several EMG's, and yes, they are no picnic. But the good

news is, they only hurt for as long as the test is being done. I have had

far worse pain with Lyme disease, and that lasts lots longer. The symptoms

you mention do sound like neuropathies, I have the tingling in hands and

legs too, sometimes I get a patch of tingling, just below my knee to my calf

about 4 inches around the leg. It is so strange. I really think you should

see a neurologist and have the test done to determine the extent of nerve

damage. I take Neurontin to help me with the burning and tingling, and it

does help. If you have insurance problems and need a firm diagnosis to

apply for SSDI or some other disability payment, the test is imperative, if

not, ask your doctor for Neurontin, and see if that will help your symptoms

and skip the test.

Best to you,

Marta

>From: BailieBoy@...

>

>I don't have burning on the bottem of my feet but from below my knees

through

>the tops of my feet, I have been having numbness, pin-pricking and intense

>burning sensations. I sometimes get the same thing across my face. When I

>mentioned this to my doctor last week, he said maybe I should see a

>neurologist and they could do an EMG. Anyone ever have this test??

>I say, what is the point?? I heard its a painful test and I'm sure there

>isn't a neurologist in Arizona who I'm sure knows a thing about Lyme.

>

[Guest guest]

Hi ,

I have had the EMG done by stupid technicians, and by good ones.

It is a very specialized test and it must be done by and expert. I am

surprised you had muscle pain the day after, but maybe you tensed up so

badly while it was being done, that caused you to hurt. I don't blame you

for not wanting it done again after all that. Years ago I had tendinitis in

my right elbow, and after multiple cortisone injections, and wearing a cast

for months, I had EMG's done on the elbow, they were all negative, yet when

I finally had surgery in December of 87, the doctor was surprised to find

two pinched nerves, which needed to be released,along with a torn tendon,

hanging by a thread of skin. The tests are sort of like Lyme blood tests,

sometimes they show the true picture, sometimes they don't.

Hugs,

Marta

>From: lc lott <lclott@...>

>

>

>

>--- BailieBoy@... wrote:

>>

>> -

>I have the same numbness and tingling in my arms and legs as well as

>loss of sensation as well. When I had my line put in to start the Ivs

>the doc sutured it in without numbing it and i never even flinched.

>It started on the left side but is now on the right as well. I had an

>EMG done and although the doc performing the test agreed that i have

>diminished sensation by his own observation he had to say it was a

>normal study because the machine they use to read activity was showing

>a normal response. At the time i had the test when he did the left side

>i felt nothing and wondered why i had heard so many hoorible things but

>then when we moved to the right side it was much more uncomfortable.

>Not severe pain but no something i want to do again. So even tho he

>admited it was abnormal to him he reported a normal test. Unless your

>doc really pushes the issue i would reconsider having it. To me it was

>a waste of my time and i felt like i had been hit by a truck the next

>day. The muscles were really sore from all the stimulation and we

>lymies tend to be sore enough without added trauma.

> L(MI)

>

[Guest guest]

The last two times I had my nails done (acrylic), I've had burning

sensations on my right hand in my pinky and ring finger. Its usually at

the tips of my fingers and its when they are holding my finger to paint

it or whatever. I was beginning to think maybe its tendonitis or carpel

(sp) tunnel.

I am not sure if this is due to the Lyme I once had (so the doctors

say).

How do you really know if you have gotten rid of the disease? I mean

blood tests don't always tell the truth, and so it leaves everyone in a

state of confusion. As I said before, my first test was positive and

after 8 weeks of Doxy, 100mg, twice a day, my second blood test

came out negative. I've felt pretty good and now, I have had the sweats

and the burning sensations.

I have had the Nerve Conduction test done and it came out fine,

so I don't know how else to explain this. I am going to call my doctor

though and see what he thinks.

Who knows, maybe it is tendonitis or the carpel tunnel syndrome.

Thanks for listening,

Anne

[Guest guest]

--- J & M McCoy <mlmccoy@...> wrote:

> From: " J & M McCoy " <mlmccoy@...>

>

> Hi ,

> I have had the EMG done by stupid technicians,

> and by good ones.

> It is a very specialized test and it must be done by

> and expert. I am

> surprised you had muscle pain the day after, but

> maybe you tensed up so

> badly while it was being done, that caused you to

> hurt. I don't blame you

> for not wanting it done again after all that.

>

> Marta-

When I had mine done it was done by a resident with the neurologist in

the next room. He told me I would be sore because he said he was doing

maximum stimulation esp on the left side since i seemed to not feel

anything he wanted to see how far he could crank up the nerve

stimulator and have me still not react.

That made me wonder about the whole accuracy of the test in the first

place. I just really felt that it was a waste of time because he

admitted that unless the machine shows any abnormal signs it will be

reported as a normal test. My neighbor has had 4 of them and he has 2

badly blown discs in his back and if the machine shows abnormal they

report it that way otherwise he is told there is nothing wrong with

him.

Like alot of tests this one is hit and miss. I know that i have loss of

sensation in my arms and legs because i

dont have that high of a pain tolerance to have stitches placed with

out being numbed first.

Hope all is well with you.

L(MI)------------------------------------------------------------------------

> Having difficulty getting " in synch " with list

> members?

>

> Try ONElist's Shared Calendar to organize events,

> meetings and more!

>

------------------------------------------------------------------------

> Please send privately messages unrelated to lyme.

> /archives.cgi/

> /archives.cgi/Lyme-Docs

> Email: -subscribeonelist

> You may substitute " unsubscribe " , " digest " , or

> " normal " for

> the word " subscribe " ( " normal " is the opposite of

> " digest " )

>

_____________________________________________________________

[Guest guest]

HI Anne,

Glad you are feeling better other than the tingling. It could be that you

are holding your hand still while you are getting the nails done, and your hand

or fingers fall asleep, like a normal person's would. I hope that is all it is,

but should it continue to trouble you, do get it checked out.

As for knowing if you are rid of Lyme, blood tests won't do it, as least not

yet. Lyme is still a clinical diagnosis based on symptoms.

Hugs,

Marta

The last two times I had my nails done (acrylic), I've had burning

sensations on my right hand in my pinky and ring finger. Its usually at the

tips of my fingers and its when they are holding my finger to paint it or

whatever. I was beginning to think maybe its tendonitis or carpel (sp) tunnel.

I am not sure if this is due to the Lyme I once had (so the doctors say).

How do you really know if you have gotten rid of the disease? I mean

blood tests don't always tell the truth, and so it leaves everyone in a

state of confusion. As I said before, my first test was positive and after

8 weeks of Doxy, 100mg, twice a day, my second blood test

came out negative. I've felt pretty good and now, I have had the sweats and

the burning sensations.

I have had the Nerve Conduction test done and it came out fine,

so I don't know how else to explain this. I am going to call my doctor

though and see what he thinks.

Who knows, maybe it is tendonitis or the carpel tunnel syndrome.

Thanks for listening,

Anne

[Guest guest]

Hi ,

An EMG can be painful. I think a lot of it has to do with who does the test,

and the individual. I've had 3. One was painful, but the other two didn't

hurt. The EMG proved that I had peripheral neuropathy. In cases of known

Lyme disease it's also called Lyme Neuropathy. It's important to know all

the effects/problems the Lyme has caused. If you have nerve damage you will

need different meds to relieve the pain, plus it proves that the infection

has gotten into your nervous systems. If it has, IV is usually more

effective that oral abx.

Even if the neuro you go to doesn't know about Lyme, this information will be

helpful to your Lyme doctor. It will give a better indication of the

treatment you need. Let us know what you decide.

Take care,

[Guest guest]

Hey Marta, thanks. No, I don't think its that, its a burning sensation

on the balls of the fingers, and its really weird. Its not that feeling

you get when a part of you falls asleep. I am getting it checked out

this Friday along with my allergies.

They are really bad this year, so bad that I even have an inhaler.

Thanks for your information!!! How are you doing?

Hugs,

Anne )

J & M McCoy wrote:

> HI Anne, Glad you are feeling better other than the tingling. It

> could be that you are holding your hand still while you are getting

> the nails done, and your hand or fingers fall asleep, like a normal

> person's would. I hope that is all it is, but should it continue to

> trouble you, do get it checked out. As for knowing if you are rid of

> Lyme, blood tests won't do it, as least not yet. Lyme is still a

> clinical diagnosis based on symptoms.Hugs,Marta

>

>

> The last two times I had my nails done (acrylic), I've had

> burning sensations on my right hand in my pinky and ring

> finger. Its usually at the tips of my fingers and its when

> they are holding my finger to paint it or whatever. I was

> beginning to think maybe its tendonitis or carpel (sp)

> tunnel.

>

> I am not sure if this is due to the Lyme I once had (so the

> doctors say).

> How do you really know if you have gotten rid of the

> disease? I mean

> blood tests don't always tell the truth, and so it leaves

> everyone in a

> state of confusion. As I said before, my first test was

> positive and after 8 weeks of Doxy, 100mg, twice a day, my

> second blood test

> came out negative. I've felt pretty good and now, I have

> had the sweats and the burning sensations.

>

> I have had the Nerve Conduction test done and it came out

> fine,

> so I don't know how else to explain this. I am going to

> call my doctor

> though and see what he thinks.

>

> Who knows, maybe it is tendonitis or the carpel tunnel

> syndrome.

>

> Thanks for listening,

> Anne

>

[Guest guest]

HI Anne,

Glad you are getting it checked, sorry I misunderstood the complaint,

burning sensations are way different than pins and needles. I am doing pretty

good, knock wood, maybe the Neurontin is helping as the doctor told me to up the

dosage gradually. Yes, allergies are really bad this year. I am on Zyrtec, it

is the best allergy med I have tried ever.

Hugs,

Marta

Hey Marta, thanks. No, I don't think its that, its a burning sensation on

the balls of the fingers, and its really weird. Its not that feeling you get

when a part of you falls asleep. I am getting it checked out this Friday along

with my allergies.

They are really bad this year, so bad that I even have an inhaler.

Thanks for your information!!! How are you doing?

Hugs,

Anne )

[Guest guest]

Thanks ,.

You gave some excellent advice and good reasons why one should have the

EMG test done. I have been helped a great deal with the Neurontin, not sure

if I want to bother with the IV again at this point, I guess I will consider

if the Neurontin stops working. By the way, I did not get recommendation to

take Neurontin from either my LLMD or my Neurologist, but from the good

advice of some great people on this list.

Hugs,

Marta

>From: SCSullivan@...

>

>Hi ,

>An EMG can be painful. I think a lot of it has to do with who does the

test,

>and the individual. I've had 3. One was painful, but the other two didn't

>hurt. The EMG proved that I had peripheral neuropathy. In cases of known

>Lyme disease it's also called Lyme Neuropathy. It's important to know all

>the effects/problems the Lyme has caused. If you have nerve damage you

will

>need different meds to relieve the pain, plus it proves that the infection

>has gotten into your nervous systems. If it has, IV is usually more

>effective that oral abx.

>

>Even if the neuro you go to doesn't know about Lyme, this information will

be

>helpful to your Lyme doctor. It will give a better indication of the

>treatment you need. Let us know what you decide.

>Take care,

>

[Guest guest]

Hi again,

I wanted to tell you that I called a naturopathic doctor (you can

guess that I had another bad night) and spoke briefly with him. He

said that most likely the burning is an auto immune disorder. He

thinks he can help with it so I made an appointment. The only abnormal

lab I ever had was an elevated ASA during the time that I had

implants. That is an antistreptococcal antibody. It showed that my

body was fighting off a strep infection even though I didn't have one.

Anyone ever heard of it? Without health insurance, I never followed up

on it. If I don't get some help and some hope I am going to go on a

sleep aid. I don't have this everyday but this week I am really bad.

Maybe this candida diet is too detoxifying for me and I may have to

add some grains back in. I hate to put all my eggs in one basket as I

have been doing with Bee's diet.

I also called Jim at the World Health Mall. He said that he has not

found anything for silicone and to call him back every month or so to

see if he has come up with something. I did not have the impants

removed properly and they spilled into my arms for weeks before I

could get them out. What a nightmare this is!

Joanne

[Guest guest]

>

> Hi again,

>

> I wanted to tell you that I called a naturopathic doctor (you can

> guess that I had another bad night) and spoke briefly with him. He

> said that most likely the burning is an auto immune disorder. He

> thinks he can help with it so I made an appointment. The only

abnormal

> lab I ever had was an elevated ASA during the time that I had

> implants. That is an antistreptococcal antibody. It showed that my

> body was fighting off a strep infection even though I didn't have

one.

> Anyone ever heard of it? Without health insurance, I never

followed up

> on it. If I don't get some help and some hope I am going to go on a

> sleep aid. I don't have this everyday but this week I am really

bad.

> Maybe this candida diet is too detoxifying for me and I may have to

> add some grains back in. I hate to put all my eggs in one basket

as I

> have been doing with Bee's diet.

>

> I also called Jim at the World Health Mall. He said that he has not

> found anything for silicone and to call him back every month or so

to

> see if he has come up with something. I did not have the impants

> removed properly and they spilled into my arms for weeks before I

> could get them out. What a nightmare this is!

>

> Joanne

I had saline implants in from 1998 until 2006. In 2001 I started to

get really sick. Stomach problems, fatigue, weight-loss are just a

few of the problems. Then I had swollen glands all over my body

accompanied by low grade fever on and off up until my implants were

removed. I went through 7 doctors & 2 specialists not to mention

being scoped in any way possible. They all kept telling me my body

was fighting something, but that they couldn't find what it was it

was fighting. It wasn't until a small town doc told me he thought it

could be the implants. Yes saline. It maybe saline on the inside but

silicone on the out. When they went in to remove them, they had to

take all breast tissue as my own tissue had grown into the implant

trying to keep my body safe. I was also told that it would take

years for the toxins to remove from my body & I am left with a poor

immune system. Am taking immune boosting vitamins & have changed my

diet to more whole foods. Have boosted my vegetable intake as well

and seems to be helping a lot.

>

[Guest guest]

Hi Deirdre,

Thanks for writing to share your experience. Who did your explant?

I am sorry to hear that they took so much breast tissue...normally the

scar capsule is like a rubber covering and it can be removed without

having to take very much of your own tissue, though some women have

had some loss. I found that my own breast tissue fluffed after about

a year after explant, and by fluffed I mean it came back!

I am hoping that you will see some breast tissue regrowth in time too.

It has continued for me through the years, and of course, I've gained

some weight too, but I have never regretted getting the implants out.

So how are you feeling now? Have you healed well in the past few years?

Patty

> I had saline implants in from 1998 until 2006. In 2001 I started to

> get really sick. Stomach problems, fatigue, weight-loss are just a

> few of the problems. Then I had swollen glands all over my body

> accompanied by low grade fever on and off up until my implants were

> removed. I went through 7 doctors & 2 specialists not to mention

> being scoped in any way possible. They all kept telling me my body

> was fighting something, but that they couldn't find what it was it

> was fighting. It wasn't until a small town doc told me he thought it

could be the implants. Yes saline. It maybe saline on the inside but

silicone on the out. When they went in to remove them, they had to

take all breast tissue as my own tissue had grown into the implant

> trying to keep my body safe. I was also told that it would take

> years for the toxins to remove from my body & I am left with a poor

> immune system. Am taking immune boosting vitamins & have changed my

> diet to more whole foods. Have boosted my vegetable intake as well

> and seems to be helping a lot.

> >

>

[Guest guest]

I've found St. s Wort infusion daily to be most helpful with stiff

jaw, neck, burning achy shoulders feeling..

Sent from my mobile device

On Nov 14, 2010, at 9:42 PM, " jcoughlin1011 " <jcoughlin1011@...>

wrote:

> Hi all,

>

> My shoulders get really tight and achy along with burning

> sensations. Is there a Lyme explanation for what exactly causes

> this? Also, any suggestions for relief (herbs, supplements, etc)?

>

> Thank you in advance.

>

>

>

>