Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Hey Mark....I think it would be really great if we could everyone together in the chat room....at the same time! What do you think about asking everyone what a good time for them to meet would be? I log on every night and find that I have to talk to myself, not that this is unusual, but I have already heard all of my stories Maybe having chats 2 or three nights a week would make it easier for everyone to get there and stay there. Just a thought from someone sick of just chatting amongst myself. Any thoughts? Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 We live in a suburb of New York City where we do not have access to public transportation. We must drive everywhere. I have had two episodes of severe pain and vomiting while driving that were terrifying. During one, I list control of my vehicle and wound up on the sidewalk. That stopped me from driving for close to a year and left me isolated. -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 We live in a suburb of New York City where we do not have access to public transportation. We must drive everywhere. I have had two episodes of severe pain and vomiting while driving that were terrifying. During one, I list control of my vehicle and wound up on the sidewalk. That stopped me from driving for close to a year and left me isolated. -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 We live in a suburb of New York City where we do not have access to public transportation. We must drive everywhere. I have had two episodes of severe pain and vomiting while driving that were terrifying. During one, I list control of my vehicle and wound up on the sidewalk. That stopped me from driving for close to a year and left me isolated. -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 I have found out some information from my physical therapist. Go to http://www.iahp.com/ and then click on Locate Practitioners then click on your state. The letters after the persons name you are looking for is VMI, VMIA, VMIB, VMR, VLT, PIVM, MFR. The more letters they have after their name the higher levels of therapy they provide. I have found that physical therapy helps me quite a bit. I hope everyone will take the time and check out one of these therapist close to you. Here is another source you may look at http://www.top5plus5.com/Pancreas/QUESTIONS%20 & %20ANSWERS/Reflexology%20and% 20Massage%20Therapy.htm The Therapeutic Value of CranioSacral Therapy While the validity of the cardiovascular and respiratory rhythms is undisputed today, for eons the very existence of these systems sparked debates in medical communities around the globe. Now for nearly 25 years, osteopathic physician and researcher E. Upledger, D.O., O.M.M., has been a proponent of using the rhythm of another body system -- the craniosacral system -- to enhance body functioning, and help alleviate pain and discomfort. The craniosacral system consist of the membranes and cerebrospinal fluid that surround and protects the brain and spinal cord. It extends from the bones of the skull, face and mouth, which make up the cranium, down to the sacrum, or the tailbone area. Since this vital system influences the development and performance of the brain and spinal cord, an imbalance or restriction in it could potentially cause any number of sensory, motor or neurological disabilities. These problems could include chronic pain, eye difficulties, Scoliosis, MotorCoordination impairments, learning disabilities and other health challenges. CranioSacral Therapy is a gentle method of detection and correction that encourages your own natural healing mechanisms to dissipate these negative effects of stress on your central nervous system. You also benefit from better overall health and resistance to disease. How is CranioSacral Therapy Performed? CranioSacral Therapy is performed on a person fully clothed. Using a light touch -- generally no more than the weight of a nickel -- the practitioner monitors the rhythm of the craniosacral system to detect potential restrictions and imbalances. The therapist then uses delicate manual techniques to release those problem areas and relieve undue pressure on the brain and spinal cord. A CranioSacral Therapy session can last from about 15 minutes to more than an hour, and the initial evaluation alone is often enough to correct a problem. The result? A central nervous system free of restrictions. And a body that's able to return to its greatest levels of performance. Who can perform CranioSacral Therapy? Because of its positive effect on so many body functions, CranioSacral Therapy is practiced today by a wide variety of healthcare professionals. They include osteopathic physicians, medical doctors, doctors of chiropractic, doctors of Oriental medicine, naturopathic physicians, nurses, psychiatric specialists, psychologists, dentists, physical therapists, occupational therapists, speech therapists, acupuncturists, massage therapists, and other professional bodyworkers. What Conditions Does CranioSacral Therapy Address? CranioSacral Therapy strengthens your body's ability to take better care of you. It helps alleviate a range of illness, pain and dysfunction, including: Migraines and Headaches Chronic Neck and Back Pain MotorCoordination impairments Stress and Tension-Related Problems Chronic Pancreatitis Pain Infantile Disorders Traumatic Brain and Spinal Cord Injuries Chronic Fatigue Scoliosis Central Nervous System Disorders Emotional Difficulties Temporomandibular Joint Syndrome (TMJ) Learning Disabilities Post_Traumatic Stress Disorder Orthopedic Problems And Many Other Conditions. What is SomatoEmotional Release Have you ever had a physical injury that seemed to plague you long after the site had healed? That's not as unusual as you might think. Even when CranioSacral Therapy releases restrictions in the body tissues, sometimes a release of emotional energy is necessary to fully discharge a trauma. In those cases, the CranioSacral Therapist may gently encourage a SomatoEmotional Release. Research conducted in the late '70s by Dr. Upledger and biophysicist Zvi Karni led to the discovery that the body often retains the emotional imprint of physical trauma. These imprints, especially of intense feelings that may have occurred at the time of injury --anger, fear, resentment -- leave residues in the body in areas called " energy cysts " . Although you can adapt to energy cysts, over time your body needs extra energy to continue performing its day-to-day functions. Then as years pass and the body becomes more stressed, it can lose its ability to adapt. That's when symptoms and dysfunction's begin to appear and become difficult to suppress or ignore. Through SomatoEmotional Release, the therapist engages in imaging and dialoguing techniques that can guide the patient through and otherwise challenging encounter with long-held emotions. The patient does not need to analyze the problem to release it. Often the body will spontaneously return to the same position it was in when the injury was first sustained. As this occurs, the therapist can feel the tissues of the body relax as the energy cyst is expelled. Then the body is free to return to its optimal levels of functioning. How Do I Locate Practitioners Skilled in CranioSacral Therapy You can locate healthcare professionals through the international Association of Healthcare Practitioners (IAHP) membership directory. Go to http://www.iahp.com/ and then click on Locate Practitioners then click on your state. The letters after the persons name you are looking for is VMI, VMIA, VMIB, VMR, VLT, PIVM, MFR. The more letters they have after their name the higher levels of therapy they provide. If you wish to speak to a live pe rson contact the Upledger Institute at How Did CranioSacral Therapy Begin? CranioSacral Therapy dates back to 1970 when osteopathic physician E. Upledger first witnessed the rhythmic movement of the craniosacral system during a spinal surgery. Yet none of his colleagues nor medical texts could explain the phenomenon. Two years later, Dr. Upledger attended a short course on cranial Osteopathy developed by Dr. Sutherland. The course focused on the bones of the skull and the fact -- surprising at the time -- that they weren't fused as doctors had been taught in medical school. Instead, Sutherland's material demonstrated that skull bones continue to move throughout a person's life. Putting this new information together with the odd pulsing rhythm he'd observed years before, Dr. Upledger theorized that a hydraulic system of sorts was functioning inside the craniosacral system. He then set out to confirm his theories. In 1975 he joined the Osteopathic College at Michigan State University as a clinical researcher and Professor of Biomechanics. There he led a team of anatomists, physiologist, biophysicists and bioengineers to test and document the influence of therapy on the craniosacral system. For the first time they were able to explain the function of the cranisacral system, and demonstrate how light touch therapy could be used to evaluate and treat malfunctions involving the brain and spinal cord. In 1985, Dr. Upledger went on to establish the Upledger Institute to teach the public and healthcare practitioners about the benefits of CranioSacral Therapy. To date, The Upledger Institute has trained more than 50,000 healthcare practitioner's worldwide in the use of CranioSacral Therapy. Check out the Upledger Institute website at www.upledger.com I hope this finds you and yours well Mark E. Armstrong Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International pain,functioning > > Hello, > I am quite desperate since I have constant pain and really cannot > eat. I understand that some of you are functioning well inspite and even go > to work.How do you do this? What is your paincontrol and what do you eat? I > am on Oxy contin and Vicodin or Oxy ir prn.I am totally consumed by this > daily pain and really could not work even though I would love to.Does the > pain ever go away?I am confined to my house and dont socialize anymore,my > friends do not want to hear about this constant pain anymore.How do you get > out of this slump? Do you have painfree intervals?What do you eat for > breakfast,lunch and dinnr? > > I envy the ones that are working,I need to go to work badly since all my > money has run out.How do you do it,are you able to eat and pain controlled/ > I would appreciate any help or advise.my life is just miserable now and i > am getting really malnourised.Was already on TPN but develope a nextensive > thrombosis in this arm,taking bloodthinners. > Help! Birgit Belcher > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: PancreatitisYahoogroups > > To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribeYahoogroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Brigit, I'm afraid part of the reason I can still work is that my progession isn't as bad as alot of the people. I've only started having the daily pain since January. I can still eat two meals a day and usually drink Ensure for dinner since my pain tends to get worse at night. I only take Oxycodone 5mg for my pain, but it's just getting to the point where that's not enough and I'm beginning my first pain management class next week. I usually eat oatmeal for breakfast and a light salad for lunch with bread or some other carbohydrate. I occassionally eat lowfat cottage cheese with the salad or kidney beans or some other alternate protein. I drink the Ensure High Protein since that's what I have a problem with most. Pasta in red sauces and rice are easy on my tummy too. If I do eat meat, it's almost always fish, broiled so there is little fat or in sashimi(raw)at a Sushi restaurant. I'm also on an antidepressant to help with the depression which is common with this disease. I also have very supportive coworkers who understand when I absolutely need to take a day off because my pancreas is bothering me. Currently I average about 2 days a month out due to the pancreas. Luckily my bad days this month were on weekends and holiday so I didn't have to take any work off this month. It sounds like you need to have a talk with your pain management team and see if you need different medicaton if your current ones aren't working. I'm sorry you are doing so badly and wish I had an instant cure for you or even a workable cure. If it's really bad, you might want to talk with Shirley and consider having the islet cell transplantation(from your pancreas, not another person's)and pancreatectomy(pancreas removal) if you are not diabetic as she had it done and is recovered from her pancreatitis. I'm diabetic so I don't qualify for that procedure and I'm leery of the immunosuppressives I'd have to take if I had islet cells from a cadaver transplant in mine. Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Brigit, I'm afraid part of the reason I can still work is that my progession isn't as bad as alot of the people. I've only started having the daily pain since January. I can still eat two meals a day and usually drink Ensure for dinner since my pain tends to get worse at night. I only take Oxycodone 5mg for my pain, but it's just getting to the point where that's not enough and I'm beginning my first pain management class next week. I usually eat oatmeal for breakfast and a light salad for lunch with bread or some other carbohydrate. I occassionally eat lowfat cottage cheese with the salad or kidney beans or some other alternate protein. I drink the Ensure High Protein since that's what I have a problem with most. Pasta in red sauces and rice are easy on my tummy too. If I do eat meat, it's almost always fish, broiled so there is little fat or in sashimi(raw)at a Sushi restaurant. I'm also on an antidepressant to help with the depression which is common with this disease. I also have very supportive coworkers who understand when I absolutely need to take a day off because my pancreas is bothering me. Currently I average about 2 days a month out due to the pancreas. Luckily my bad days this month were on weekends and holiday so I didn't have to take any work off this month. It sounds like you need to have a talk with your pain management team and see if you need different medicaton if your current ones aren't working. I'm sorry you are doing so badly and wish I had an instant cure for you or even a workable cure. If it's really bad, you might want to talk with Shirley and consider having the islet cell transplantation(from your pancreas, not another person's)and pancreatectomy(pancreas removal) if you are not diabetic as she had it done and is recovered from her pancreatitis. I'm diabetic so I don't qualify for that procedure and I'm leery of the immunosuppressives I'd have to take if I had islet cells from a cadaver transplant in mine. Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Brigit, I'm afraid part of the reason I can still work is that my progession isn't as bad as alot of the people. I've only started having the daily pain since January. I can still eat two meals a day and usually drink Ensure for dinner since my pain tends to get worse at night. I only take Oxycodone 5mg for my pain, but it's just getting to the point where that's not enough and I'm beginning my first pain management class next week. I usually eat oatmeal for breakfast and a light salad for lunch with bread or some other carbohydrate. I occassionally eat lowfat cottage cheese with the salad or kidney beans or some other alternate protein. I drink the Ensure High Protein since that's what I have a problem with most. Pasta in red sauces and rice are easy on my tummy too. If I do eat meat, it's almost always fish, broiled so there is little fat or in sashimi(raw)at a Sushi restaurant. I'm also on an antidepressant to help with the depression which is common with this disease. I also have very supportive coworkers who understand when I absolutely need to take a day off because my pancreas is bothering me. Currently I average about 2 days a month out due to the pancreas. Luckily my bad days this month were on weekends and holiday so I didn't have to take any work off this month. It sounds like you need to have a talk with your pain management team and see if you need different medicaton if your current ones aren't working. I'm sorry you are doing so badly and wish I had an instant cure for you or even a workable cure. If it's really bad, you might want to talk with Shirley and consider having the islet cell transplantation(from your pancreas, not another person's)and pancreatectomy(pancreas removal) if you are not diabetic as she had it done and is recovered from her pancreatitis. I'm diabetic so I don't qualify for that procedure and I'm leery of the immunosuppressives I'd have to take if I had islet cells from a cadaver transplant in mine. Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Maybe I missed it but this is the first post I have read over driving. If it was not so sad I'd laugh. I never go anywhere witout a trusty plastic bag beside me. Yes, I have had the scare of my life. It is very hard to control a 5000 lb vehicle and throw up at the same time. If I ever hurt someone else while driving, I'm not sure I could live with that. I warn my son before we go anywhere if I am feeling the " maybe getting " sick feeling. That way it does not scare him as much. Only kind thoughts, Gay Florida State Rep During one, I list control of my vehicle and wound up on the > sidewalk. > > That stopped me from driving for close to a year and left me isolated. > > -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Maybe I missed it but this is the first post I have read over driving. If it was not so sad I'd laugh. I never go anywhere witout a trusty plastic bag beside me. Yes, I have had the scare of my life. It is very hard to control a 5000 lb vehicle and throw up at the same time. If I ever hurt someone else while driving, I'm not sure I could live with that. I warn my son before we go anywhere if I am feeling the " maybe getting " sick feeling. That way it does not scare him as much. Only kind thoughts, Gay Florida State Rep During one, I list control of my vehicle and wound up on the > sidewalk. > > That stopped me from driving for close to a year and left me isolated. > > -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Maybe I missed it but this is the first post I have read over driving. If it was not so sad I'd laugh. I never go anywhere witout a trusty plastic bag beside me. Yes, I have had the scare of my life. It is very hard to control a 5000 lb vehicle and throw up at the same time. If I ever hurt someone else while driving, I'm not sure I could live with that. I warn my son before we go anywhere if I am feeling the " maybe getting " sick feeling. That way it does not scare him as much. Only kind thoughts, Gay Florida State Rep During one, I list control of my vehicle and wound up on the > sidewalk. > > That stopped me from driving for close to a year and left me isolated. > > -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Hi: I not only have a supply of plastic bags at my side, but I also have those waterproof diaper fabric bed pads from the hospital to sit on just in case my bowels " explode. " Aint this a hell of a way to live?!?! -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Hi: I not only have a supply of plastic bags at my side, but I also have those waterproof diaper fabric bed pads from the hospital to sit on just in case my bowels " explode. " Aint this a hell of a way to live?!?! -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Antidepressants have long been used for pain management. At first, the tricyclics (Elavil, Nortriptyline, etc.) were used. In fact, they're still in use. But many people were too sedated. Prozac and the other Serotonin affecting drugs were tried and they worked well for many people, myself included. They seem to work as a sort of catalyst. I take only 10 mg daily along with Ultram and it's been a great combination. The mood lifting effect certainly is harming me. -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Antidepressants have long been used for pain management. At first, the tricyclics (Elavil, Nortriptyline, etc.) were used. In fact, they're still in use. But many people were too sedated. Prozac and the other Serotonin affecting drugs were tried and they worked well for many people, myself included. They seem to work as a sort of catalyst. I take only 10 mg daily along with Ultram and it's been a great combination. The mood lifting effect certainly is harming me. -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Mark - I would love to try something besides the medications but I just checked and no one in my area has any of the letters after their name so I guess I just continue on and hope that maybe one will move into the area. TTFN, (aka BCRoth in the chat room) pain,functioning > > > > > > Hello, > > I am quite desperate since I have constant pain and really cannot > > eat. I understand that some of you are functioning well inspite and even > go > > to work.How do you do this? What is your paincontrol and what do you eat? > I > > am on Oxy contin and Vicodin or Oxy ir prn.I am totally consumed by this > > daily pain and really could not work even though I would love to.Does the > > pain ever go away?I am confined to my house and dont socialize anymore,my > > friends do not want to hear about this constant pain anymore.How do you > get > > out of this slump? Do you have painfree intervals?What do you eat for > > breakfast,lunch and dinnr? > > > > I envy the ones that are working,I need to go to work badly since all my > > money has run out.How do you do it,are you able to eat and pain > controlled/ > > I would appreciate any help or advise.my life is just miserable now and i > > am getting really malnourised.Was already on TPN but develope a nextensive > > thrombosis in this arm,taking bloodthinners. > > Help! Birgit Belcher > > > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > > > PANCREATITIS Association, Intl. > > Online e-mail group > > > > To reply to this message hit " reply " or send an e-mail to: > PancreatitisYahoogroups > > > > To subscribe to this e-mail group, simply send an e-mail to: > Pancreatitis-subscribeYahoogroups > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Mark - I would love to try something besides the medications but I just checked and no one in my area has any of the letters after their name so I guess I just continue on and hope that maybe one will move into the area. TTFN, (aka BCRoth in the chat room) pain,functioning > > > > > > Hello, > > I am quite desperate since I have constant pain and really cannot > > eat. I understand that some of you are functioning well inspite and even > go > > to work.How do you do this? What is your paincontrol and what do you eat? > I > > am on Oxy contin and Vicodin or Oxy ir prn.I am totally consumed by this > > daily pain and really could not work even though I would love to.Does the > > pain ever go away?I am confined to my house and dont socialize anymore,my > > friends do not want to hear about this constant pain anymore.How do you > get > > out of this slump? Do you have painfree intervals?What do you eat for > > breakfast,lunch and dinnr? > > > > I envy the ones that are working,I need to go to work badly since all my > > money has run out.How do you do it,are you able to eat and pain > controlled/ > > I would appreciate any help or advise.my life is just miserable now and i > > am getting really malnourised.Was already on TPN but develope a nextensive > > thrombosis in this arm,taking bloodthinners. > > Help! Birgit Belcher > > > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > > > PANCREATITIS Association, Intl. > > Online e-mail group > > > > To reply to this message hit " reply " or send an e-mail to: > PancreatitisYahoogroups > > > > To subscribe to this e-mail group, simply send an e-mail to: > Pancreatitis-subscribeYahoogroups > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Mark - I would love to try something besides the medications but I just checked and no one in my area has any of the letters after their name so I guess I just continue on and hope that maybe one will move into the area. TTFN, (aka BCRoth in the chat room) pain,functioning > > > > > > Hello, > > I am quite desperate since I have constant pain and really cannot > > eat. I understand that some of you are functioning well inspite and even > go > > to work.How do you do this? What is your paincontrol and what do you eat? > I > > am on Oxy contin and Vicodin or Oxy ir prn.I am totally consumed by this > > daily pain and really could not work even though I would love to.Does the > > pain ever go away?I am confined to my house and dont socialize anymore,my > > friends do not want to hear about this constant pain anymore.How do you > get > > out of this slump? Do you have painfree intervals?What do you eat for > > breakfast,lunch and dinnr? > > > > I envy the ones that are working,I need to go to work badly since all my > > money has run out.How do you do it,are you able to eat and pain > controlled/ > > I would appreciate any help or advise.my life is just miserable now and i > > am getting really malnourised.Was already on TPN but develope a nextensive > > thrombosis in this arm,taking bloodthinners. > > Help! Birgit Belcher > > > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > > > PANCREATITIS Association, Intl. > > Online e-mail group > > > > To reply to this message hit " reply " or send an e-mail to: > PancreatitisYahoogroups > > > > To subscribe to this e-mail group, simply send an e-mail to: > Pancreatitis-subscribeYahoogroups > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Holly - once I figured out how to do the time conversion the right way I went last night and chatted for some time with Mark, Bruce, Lily, and Sharon. I already learned some new stuff and where to find out more info - it was great. TTFN, Re: pain,functioning > Hey Mark....I think it would be really great if we could everyone together in > the chat room....at the same time! What do you think about asking everyone > what a good time for them to meet would be? I log on every night and find > that I have to talk to myself, not that this is unusual, but I have already > heard all of my stories > Maybe having chats 2 or three nights a week would make it easier for everyone > to get there and stay there. Just a thought from someone sick of just > chatting amongst myself. Any thoughts? > Holly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Holly - once I figured out how to do the time conversion the right way I went last night and chatted for some time with Mark, Bruce, Lily, and Sharon. I already learned some new stuff and where to find out more info - it was great. TTFN, Re: pain,functioning > Hey Mark....I think it would be really great if we could everyone together in > the chat room....at the same time! What do you think about asking everyone > what a good time for them to meet would be? I log on every night and find > that I have to talk to myself, not that this is unusual, but I have already > heard all of my stories > Maybe having chats 2 or three nights a week would make it easier for everyone > to get there and stay there. Just a thought from someone sick of just > chatting amongst myself. Any thoughts? > Holly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Holly - once I figured out how to do the time conversion the right way I went last night and chatted for some time with Mark, Bruce, Lily, and Sharon. I already learned some new stuff and where to find out more info - it was great. TTFN, Re: pain,functioning > Hey Mark....I think it would be really great if we could everyone together in > the chat room....at the same time! What do you think about asking everyone > what a good time for them to meet would be? I log on every night and find > that I have to talk to myself, not that this is unusual, but I have already > heard all of my stories > Maybe having chats 2 or three nights a week would make it easier for everyone > to get there and stay there. Just a thought from someone sick of just > chatting amongst myself. Any thoughts? > Holly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 haha......now I know who you are.......hope to see you in the chat room again soon. I won't be able to make it tonight......will be recording....but should be back in on Sat Hope this finds you and yours well Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International pain,functioning > > > > > > > > > > Hello, > > > I am quite desperate since I have constant pain and really > cannot > > > eat. I understand that some of you are functioning well inspite and even > > go > > > to work.How do you do this? What is your paincontrol and what do you > eat? > > I > > > am on Oxy contin and Vicodin or Oxy ir prn.I am totally consumed by this > > > daily pain and really could not work even though I would love to.Does > the > > > pain ever go away?I am confined to my house and dont socialize > anymore,my > > > friends do not want to hear about this constant pain anymore.How do you > > get > > > out of this slump? Do you have painfree intervals?What do you eat for > > > breakfast,lunch and dinnr? > > > > > > I envy the ones that are working,I need to go to work badly since all my > > > money has run out.How do you do it,are you able to eat and pain > > controlled/ > > > I would appreciate any help or advise.my life is just miserable now and > i > > > am getting really malnourised.Was already on TPN but develope a > nextensive > > > thrombosis in this arm,taking bloodthinners. > > > Help! Birgit Belcher > > > > > > _________________________________________________________________ > > > Get your FREE download of MSN Explorer at > http://explorer.msn.com/intl.asp > > > > > > > > > PANCREATITIS Association, Intl. > > > Online e-mail group > > > > > > To reply to this message hit " reply " or send an e-mail to: > > PancreatitisYahoogroups > > > > > > To subscribe to this e-mail group, simply send an e-mail to: > > Pancreatitis-subscribeYahoogroups > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 haha......now I know who you are.......hope to see you in the chat room again soon. I won't be able to make it tonight......will be recording....but should be back in on Sat Hope this finds you and yours well Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International pain,functioning > > > > > > > > > > Hello, > > > I am quite desperate since I have constant pain and really > cannot > > > eat. I understand that some of you are functioning well inspite and even > > go > > > to work.How do you do this? What is your paincontrol and what do you > eat? > > I > > > am on Oxy contin and Vicodin or Oxy ir prn.I am totally consumed by this > > > daily pain and really could not work even though I would love to.Does > the > > > pain ever go away?I am confined to my house and dont socialize > anymore,my > > > friends do not want to hear about this constant pain anymore.How do you > > get > > > out of this slump? Do you have painfree intervals?What do you eat for > > > breakfast,lunch and dinnr? > > > > > > I envy the ones that are working,I need to go to work badly since all my > > > money has run out.How do you do it,are you able to eat and pain > > controlled/ > > > I would appreciate any help or advise.my life is just miserable now and > i > > > am getting really malnourised.Was already on TPN but develope a > nextensive > > > thrombosis in this arm,taking bloodthinners. > > > Help! Birgit Belcher > > > > > > _________________________________________________________________ > > > Get your FREE download of MSN Explorer at > http://explorer.msn.com/intl.asp > > > > > > > > > PANCREATITIS Association, Intl. > > > Online e-mail group > > > > > > To reply to this message hit " reply " or send an e-mail to: > > PancreatitisYahoogroups > > > > > > To subscribe to this e-mail group, simply send an e-mail to: > > Pancreatitis-subscribeYahoogroups > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 haha......now I know who you are.......hope to see you in the chat room again soon. I won't be able to make it tonight......will be recording....but should be back in on Sat Hope this finds you and yours well Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International pain,functioning > > > > > > > > > > Hello, > > > I am quite desperate since I have constant pain and really > cannot > > > eat. I understand that some of you are functioning well inspite and even > > go > > > to work.How do you do this? What is your paincontrol and what do you > eat? > > I > > > am on Oxy contin and Vicodin or Oxy ir prn.I am totally consumed by this > > > daily pain and really could not work even though I would love to.Does > the > > > pain ever go away?I am confined to my house and dont socialize > anymore,my > > > friends do not want to hear about this constant pain anymore.How do you > > get > > > out of this slump? Do you have painfree intervals?What do you eat for > > > breakfast,lunch and dinnr? > > > > > > I envy the ones that are working,I need to go to work badly since all my > > > money has run out.How do you do it,are you able to eat and pain > > controlled/ > > > I would appreciate any help or advise.my life is just miserable now and > i > > > am getting really malnourised.Was already on TPN but develope a > nextensive > > > thrombosis in this arm,taking bloodthinners. > > > Help! Birgit Belcher > > > > > > _________________________________________________________________ > > > Get your FREE download of MSN Explorer at > http://explorer.msn.com/intl.asp > > > > > > > > > PANCREATITIS Association, Intl. > > > Online e-mail group > > > > > > To reply to this message hit " reply " or send an e-mail to: > > PancreatitisYahoogroups > > > > > > To subscribe to this e-mail group, simply send an e-mail to: > > Pancreatitis-subscribeYahoogroups > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 I will try to make it Saturday - kind of depends on what my life goes like that day. Also, I forgot to ask you last night what kind of music you do. TTFN, pain,functioning > > > > > > > > > > > > > > Hello, > > > > I am quite desperate since I have constant pain and really > > cannot > > > > eat. I understand that some of you are functioning well inspite and > even > > > go > > > > to work.How do you do this? What is your paincontrol and what do you > > eat? > > > I > > > > am on Oxy contin and Vicodin or Oxy ir prn.I am totally consumed by > this > > > > daily pain and really could not work even though I would love to.Does > > the > > > > pain ever go away?I am confined to my house and dont socialize > > anymore,my > > > > friends do not want to hear about this constant pain anymore.How do > you > > > get > > > > out of this slump? Do you have painfree intervals?What do you eat for > > > > breakfast,lunch and dinnr? > > > > > > > > I envy the ones that are working,I need to go to work badly since all > my > > > > money has run out.How do you do it,are you able to eat and pain > > > controlled/ > > > > I would appreciate any help or advise.my life is just miserable now > and > > i > > > > am getting really malnourised.Was already on TPN but develope a > > nextensive > > > > thrombosis in this arm,taking bloodthinners. > > > > Help! Birgit Belcher > > > > > > > > _________________________________________________________________ > > > > Get your FREE download of MSN Explorer at > > http://explorer.msn.com/intl.asp > > > > > > > > > > > > PANCREATITIS Association, Intl. > > > > Online e-mail group > > > > > > > > To reply to this message hit " reply " or send an e-mail to: > > > PancreatitisYahoogroups > > > > > > > > To subscribe to this e-mail group, simply send an e-mail to: > > > Pancreatitis-subscribeYahoogroups > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.