Asenath in Hospital

[Guest guest]

I just got out of the room for a little bit and saw the chance to get

online so here I am. We took Asenath to the ER on Sunday evening and they

placed her in the hospital due to her inability to handle her viruses. She

was dehydrated, had another ear infection, and was very immoble. Still

trying to figure out how much damage was done with the SLE. She is walking

for the first time this past hour. (It is Wednesday) and is all over the

place. I took her down to therapy to see if there was one available to peak

at her. Her OT did and said she left side and her trunk were definitely

affected. also, strangely her gums are bright red. Any idea what this is?

She won't eat or drink so they don't want to let her go home yet and are

considering a NG tube until Mayo can place the G-tube. It has been a long,

frustrating week! I will try to update again tomorrow, hopefully from home!

Darla: mom to Asenath

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Hi :

No I did not. I will have to go to the Appleton, WI library and read all

about it. May be I can do that today after exercise class. May be my

husband can pick Leah up from school so I will have time to savor it. I

think I will make a copy of it or better yet will try to go online and read

it. I think it is wonderful what you are doing. I will ask my mother in law

if she saw the news. It is amazing what our children will encourage us to do

(silently of course because they don't a reason why we are doing something).

Meaning because of Leah's situation in being disabled I helped start a

committee to get a fully accessible park built here in Appleton so disabled

and able body children can play together. There is only one chair to use and

not every disabled child can use it. So we are trying to raise $300,000 to

build this awesome park this summer. I am in charge of a dinner theater

fundraiser to hopefully raise around $7,000 to go toward this project. It is

a joyful noise when you can accomplish something. We are each doing

something to " voice " our opinions. Way to go.

Nerenhausen mom to Leah

PINE LAKE TOWNSHIP wrote:

> ,

>

> Did you see the article in the Star & Trib, Sunday. Front page. Testified

> yesterday, as we live in outstate, it took a long time to get home. By

> then I'd been on channel 4,5,11 and 3 newspapers. I think I've " hit a

> nerve " . The two committee chairs have both said they will introduce a

> bill to repeal the proposed shot mandates. PLUS other things. Like

> improved reporting of adverse reactions......

>

> My advice to all- if there is something you wish to change-just start. If

> you speak from love and speak the truth.....,

> my experience shows it will go far!

>

> Make a JOYFUL noise!

>

>

>

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