Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Hey there Yesterday I had my appt with the gyn, I was all ready to start my Lupron, they were even going to start it yesterday. She tells me I need to take additional calcium, and I was like "Oh, that's OK, I already take 2000 mg a day and Miacalcin". She was like "Oh, what's that for?"... "The Osteoporosis".... "we can't do Lupron when you have already been diagnosed with Osteoporosis." She suggested "Taking it all out" I have been battling over this decision for years and each time they toss it out there, I'm like "no way, I want more kids!" Greg was there with me, and I asked "Really, what are my chances of being able to have another kid?" And she said they could technically get me pregnant, but would it be nice? She said it would be "Hell times the hell you had with the first pregnancy, or worse. And do we recommend it? NO." I asked about my other options -- continue with the pain and problems or the hysterectomy -- so I asked about the recovery and all that and we left with all this in mind. In the meantime, she is going to check with other doctors and tell them my situation and see if maybe someone could say "OK, give the Lupron one more try." She wants me to think about the hysterectomy and have an idea by the time she calls me this week with Lupron info. This still just does not seem right to me. I want more kids. So does Greg. We even have names picked out! I know that's really jumping too far ahead, but the reason I didn't have my tubes tied back after the first rough pregnancy was so that I could do it again. That's the reason I didn't have the hysterectomy 2 years ago when they recommended it for the endometriosis etc and did the Lupron then. I know a lot of you have mentioned having a hysterectomy, can some of you tell me of the good/bad things, from a personal standpoint. I know I can go and Google it, but hearing it from real people is part of why we are all here. Thanks so much!Hugs Chell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2004 Report Share Posted January 11, 2004 Thanks a, and everyone else that replied. Greg and I both read this several times and it gave us a lot to think about. I do have people telling me I am selfish because I already have two kids and I should be grateful for them, and because a lot of women can't even do that. I can't see how this makes me selfish, not in my eyes. Ever since I was little I wanted three, that was my magical number. I have tons of "selfish" reasons, and maybe some not so selfish ones, like Greg is the last, absolute last, child in his family. He's an only child, and really has no cousins. His mom went through similar things as me and wanted another child, and never was able to. That plays a small part... Anyway... I do have this long list of autoimmune disorders that seem to start popping their heads up every time I mention having another child. So I know it's not feasible to even consider doing it now. And who knows what things will be like in a year or two. Hopefully, financially things will be better, hopefully, health-wise things will be better. I'm on disability and who knows how they'd take me getting pregnant? ("If she can get pregnant, why can't she work?" -- who knows what might happen? I remember a few years ago on 60 Minutes or something, a woman with MS or something wanted to get pregnant. MS is one of the dx's my docs have been throwing around for 2 years. Well, she was on disability and Medicare etc and they felt that a pregnancy wouldn't be good for her and the SYSTEM was actually fighting her on it!!!) So I'm going to try putting off my decision a bit longer. Greg is going back to school for MRI tech and maybe our income won't need to depend so much on my disability in two or so years.... But then, in April, my SSD Medicare kicks in and I am actually losing my state assistance at the end of February because of an increase in our income. So, from that stand-point, while I've got this great insurance, I should do it. I'm going to have that lapse in some of my benefits, not all of them, I'm going to pick up that Adult Basic, but it sure isn't medical assistance ;-) One thing that you reiterated that I have thought about many times is "What if I do get pregnant and I can't maintain the pregnancy?" That is so huge. And then that spirit in me screams "What if you do get pregnant and you can do it?!!" I can't help but wonder if it's more than just MY spirit saying that.... So thank you so much for your letter a. You really have given me a lot more things, concrete things, to think about. They were mostly things I had already thought of, but hearing it from someone that already went through it really really helped. Thank you! *hugs* I do want to find out more about how a hysterectomy might help some other problems, like, might it help some of my bowel and bladder problems? Probably not, but good to ask ;-) Anyway, I think I'm going to try to make some of my pictures smaller so I can send them to the group. My sister has an 11 month old that is just the world to me and I'd like to share a pic of us, as well as some with me and my girls Thanks again!!*hugs*Chell hysterectomy?? Hey there Yesterday I had my appt with the gyn, I was all ready to start my Lupron, they were even going to start it yesterday. She tells me I need to take additional calcium, and I was like "Oh, that's OK, I already take 2000 mg a day and Miacalcin". She was like "Oh, what's that for?"... "The Osteoporosis".... "we can't do Lupron when you have already been diagnosed with Osteoporosis." She suggested "Taking it all out" I have been battling over this decision for years and each time they toss it out there, I'm like "no way, I want more kids!" Greg was there with me, and I asked "Really, what are my chances of being able to have another kid?" And she said they could technically get me pregnant, but would it be nice? She said it would be "Hell times the hell you had with the first pregnancy, or worse. And do we recommend it? NO." I asked about my other options -- continue with the pain and problems or the hysterectomy -- so I asked about the recovery and all that and we left with all this in mind. In the meantime, she is going to check with other doctors and tell them my situation and see if maybe someone could say "OK, give the Lupron one more try." She wants me to think about the hysterectomy and have an idea by the time she calls me this week with Lupron info. This still just does not seem right to me. I want more kids. So does Greg. We even have names picked out! I know that's really jumping too far ahead, but the reason I didn't have my tubes tied back after the first rough pregnancy was so that I could do it again. That's the reason I didn't have the hysterectomy 2 years ago when they recommended it for the endometriosis etc and did the Lupron then. I know a lot of you have mentioned having a hysterectomy, can some of you tell me of the good/bad things, from a personal standpoint. I know I can go and Google it, but hearing it from real people is part of why we are all here. Thanks so much!Hugs Chell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2004 Report Share Posted January 11, 2004 Thanks a, and everyone else that replied. Greg and I both read this several times and it gave us a lot to think about. I do have people telling me I am selfish because I already have two kids and I should be grateful for them, and because a lot of women can't even do that. I can't see how this makes me selfish, not in my eyes. Ever since I was little I wanted three, that was my magical number. I have tons of "selfish" reasons, and maybe some not so selfish ones, like Greg is the last, absolute last, child in his family. He's an only child, and really has no cousins. His mom went through similar things as me and wanted another child, and never was able to. That plays a small part... Anyway... I do have this long list of autoimmune disorders that seem to start popping their heads up every time I mention having another child. So I know it's not feasible to even consider doing it now. And who knows what things will be like in a year or two. Hopefully, financially things will be better, hopefully, health-wise things will be better. I'm on disability and who knows how they'd take me getting pregnant? ("If she can get pregnant, why can't she work?" -- who knows what might happen? I remember a few years ago on 60 Minutes or something, a woman with MS or something wanted to get pregnant. MS is one of the dx's my docs have been throwing around for 2 years. Well, she was on disability and Medicare etc and they felt that a pregnancy wouldn't be good for her and the SYSTEM was actually fighting her on it!!!) So I'm going to try putting off my decision a bit longer. Greg is going back to school for MRI tech and maybe our income won't need to depend so much on my disability in two or so years.... But then, in April, my SSD Medicare kicks in and I am actually losing my state assistance at the end of February because of an increase in our income. So, from that stand-point, while I've got this great insurance, I should do it. I'm going to have that lapse in some of my benefits, not all of them, I'm going to pick up that Adult Basic, but it sure isn't medical assistance ;-) One thing that you reiterated that I have thought about many times is "What if I do get pregnant and I can't maintain the pregnancy?" That is so huge. And then that spirit in me screams "What if you do get pregnant and you can do it?!!" I can't help but wonder if it's more than just MY spirit saying that.... So thank you so much for your letter a. You really have given me a lot more things, concrete things, to think about. They were mostly things I had already thought of, but hearing it from someone that already went through it really really helped. Thank you! *hugs* I do want to find out more about how a hysterectomy might help some other problems, like, might it help some of my bowel and bladder problems? Probably not, but good to ask ;-) Anyway, I think I'm going to try to make some of my pictures smaller so I can send them to the group. My sister has an 11 month old that is just the world to me and I'd like to share a pic of us, as well as some with me and my girls Thanks again!!*hugs*Chell hysterectomy?? Hey there Yesterday I had my appt with the gyn, I was all ready to start my Lupron, they were even going to start it yesterday. She tells me I need to take additional calcium, and I was like "Oh, that's OK, I already take 2000 mg a day and Miacalcin". She was like "Oh, what's that for?"... "The Osteoporosis".... "we can't do Lupron when you have already been diagnosed with Osteoporosis." She suggested "Taking it all out" I have been battling over this decision for years and each time they toss it out there, I'm like "no way, I want more kids!" Greg was there with me, and I asked "Really, what are my chances of being able to have another kid?" And she said they could technically get me pregnant, but would it be nice? She said it would be "Hell times the hell you had with the first pregnancy, or worse. And do we recommend it? NO." I asked about my other options -- continue with the pain and problems or the hysterectomy -- so I asked about the recovery and all that and we left with all this in mind. In the meantime, she is going to check with other doctors and tell them my situation and see if maybe someone could say "OK, give the Lupron one more try." She wants me to think about the hysterectomy and have an idea by the time she calls me this week with Lupron info. This still just does not seem right to me. I want more kids. So does Greg. We even have names picked out! I know that's really jumping too far ahead, but the reason I didn't have my tubes tied back after the first rough pregnancy was so that I could do it again. That's the reason I didn't have the hysterectomy 2 years ago when they recommended it for the endometriosis etc and did the Lupron then. I know a lot of you have mentioned having a hysterectomy, can some of you tell me of the good/bad things, from a personal standpoint. I know I can go and Google it, but hearing it from real people is part of why we are all here. Thanks so much!Hugs Chell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2004 Report Share Posted January 11, 2004 Thanks a, and everyone else that replied. Greg and I both read this several times and it gave us a lot to think about. I do have people telling me I am selfish because I already have two kids and I should be grateful for them, and because a lot of women can't even do that. I can't see how this makes me selfish, not in my eyes. Ever since I was little I wanted three, that was my magical number. I have tons of "selfish" reasons, and maybe some not so selfish ones, like Greg is the last, absolute last, child in his family. He's an only child, and really has no cousins. His mom went through similar things as me and wanted another child, and never was able to. That plays a small part... Anyway... I do have this long list of autoimmune disorders that seem to start popping their heads up every time I mention having another child. So I know it's not feasible to even consider doing it now. And who knows what things will be like in a year or two. Hopefully, financially things will be better, hopefully, health-wise things will be better. I'm on disability and who knows how they'd take me getting pregnant? ("If she can get pregnant, why can't she work?" -- who knows what might happen? I remember a few years ago on 60 Minutes or something, a woman with MS or something wanted to get pregnant. MS is one of the dx's my docs have been throwing around for 2 years. Well, she was on disability and Medicare etc and they felt that a pregnancy wouldn't be good for her and the SYSTEM was actually fighting her on it!!!) So I'm going to try putting off my decision a bit longer. Greg is going back to school for MRI tech and maybe our income won't need to depend so much on my disability in two or so years.... But then, in April, my SSD Medicare kicks in and I am actually losing my state assistance at the end of February because of an increase in our income. So, from that stand-point, while I've got this great insurance, I should do it. I'm going to have that lapse in some of my benefits, not all of them, I'm going to pick up that Adult Basic, but it sure isn't medical assistance ;-) One thing that you reiterated that I have thought about many times is "What if I do get pregnant and I can't maintain the pregnancy?" That is so huge. And then that spirit in me screams "What if you do get pregnant and you can do it?!!" I can't help but wonder if it's more than just MY spirit saying that.... So thank you so much for your letter a. You really have given me a lot more things, concrete things, to think about. They were mostly things I had already thought of, but hearing it from someone that already went through it really really helped. Thank you! *hugs* I do want to find out more about how a hysterectomy might help some other problems, like, might it help some of my bowel and bladder problems? Probably not, but good to ask ;-) Anyway, I think I'm going to try to make some of my pictures smaller so I can send them to the group. My sister has an 11 month old that is just the world to me and I'd like to share a pic of us, as well as some with me and my girls Thanks again!!*hugs*Chell hysterectomy?? Hey there Yesterday I had my appt with the gyn, I was all ready to start my Lupron, they were even going to start it yesterday. She tells me I need to take additional calcium, and I was like "Oh, that's OK, I already take 2000 mg a day and Miacalcin". She was like "Oh, what's that for?"... "The Osteoporosis".... "we can't do Lupron when you have already been diagnosed with Osteoporosis." She suggested "Taking it all out" I have been battling over this decision for years and each time they toss it out there, I'm like "no way, I want more kids!" Greg was there with me, and I asked "Really, what are my chances of being able to have another kid?" And she said they could technically get me pregnant, but would it be nice? She said it would be "Hell times the hell you had with the first pregnancy, or worse. And do we recommend it? NO." I asked about my other options -- continue with the pain and problems or the hysterectomy -- so I asked about the recovery and all that and we left with all this in mind. In the meantime, she is going to check with other doctors and tell them my situation and see if maybe someone could say "OK, give the Lupron one more try." She wants me to think about the hysterectomy and have an idea by the time she calls me this week with Lupron info. This still just does not seem right to me. I want more kids. So does Greg. We even have names picked out! I know that's really jumping too far ahead, but the reason I didn't have my tubes tied back after the first rough pregnancy was so that I could do it again. That's the reason I didn't have the hysterectomy 2 years ago when they recommended it for the endometriosis etc and did the Lupron then. I know a lot of you have mentioned having a hysterectomy, can some of you tell me of the good/bad things, from a personal standpoint. I know I can go and Google it, but hearing it from real people is part of why we are all here. Thanks so much!Hugs Chell Quote Link to comment Share on other sites More sharing options...
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