Re: can you be misdiagnosed even with a lap/hyst?

[Guest guest]

Leora,

The lap/hyst is considered the gold-standard test to dx MA's. They

can virtually see the " whole picture " by doing this procedure. My

scars are hardly visible - I really have to look for them. The one

is deep inside of my belly button; the other two beneath the pubic

hair. Between my lap/hyst scars, my c-section scar, and my

appendectomy scar, the latter is the *most* visible. The surgeons

have done a great job of hiding the others - I'm sure yours will, too.

SU resected, bicollis

[Guest guest]

Leora,

The lap/hyst is considered the gold-standard test to dx MA's. They

can virtually see the " whole picture " by doing this procedure. My

scars are hardly visible - I really have to look for them. The one

is deep inside of my belly button; the other two beneath the pubic

hair. Between my lap/hyst scars, my c-section scar, and my

appendectomy scar, the latter is the *most* visible. The surgeons

have done a great job of hiding the others - I'm sure yours will, too.

SU resected, bicollis

[Guest guest]

Hi Leora,

I think that lap/hyst is pretty definitive in terms of dx, so I

wouldn't worry about the misdiagnosis. Hopefully others on the

board will correct me if I'm wrong about this.

In terms of scars, I have one in my belly button, one in my pubic

hair (taking the band-aid off that one was no fun -- sorry for too

much information!) and one near my hip bone (but is below the bikini

line). I just had my surgery in July, so my scars are fairly

visible, but are getting lighter all the time. I actually didn't

realize I had more than one incision until the day after surgery! I

guess they told me this after surgery, but I was a little out of

it. I was surprised when I found those two extra band-aids.

Good luck on Friday, and let us know how everything goes. You're in

Simi Valley, right? I hope you weren't affected by the So. Cal.

fires.

Take care,

Bonnie, su resected, prep month of 1st IVF cycle

The new RE is trying to get me in for

> lap/hyst on Friday, but suddenly I've got this unreasonable fear

> that they could go in and still not be able to know - I'm sure

they

> know what they're doing, but the fact that they had widely

differing

> ideas of what my MA is worries me a bit... also, somehow I was

> unaware that there would be other incisions besides the one in

> my belly button... do the scars go away? She said there would be

> 2 - 4 incisions....

>

> anyway, thanks again, hope these aren't incredibly stupid

> questions....

>

> 36, ttc

> possibly SU? BU?

[Guest guest]

Thanks you for your response and good wishes, so far its still up

in the air, but the doctor's assistant said we're definitely doing it

Friday, just not sure what time yet... I'll let you know what

happens.

I'm actually in Sherman Oaks, so no fires but a lot of smoke that

made breathing difficult for several days... however I have family

in Simi Valley that thankfully didn't lose their house, although

their power was out for a while due to the fires.

> The new RE is trying to get me in for

> > lap/hyst on Friday, but suddenly I've got this unreasonable

fear

> > that they could go in and still not be able to know - I'm sure

> they

> > know what they're doing, but the fact that they had widely

> differing

> > ideas of what my MA is worries me a bit... also, somehow I

was

> > unaware that there would be other incisions besides the one

in

> > my belly button... do the scars go away? She said there

would be

> > 2 - 4 incisions....

> >

> > anyway, thanks again, hope these aren't incredibly stupid

> > questions....

> >

> > 36, ttc

> > possibly SU? BU?

[Guest guest]

Thanks you for your response and good wishes, so far its still up

in the air, but the doctor's assistant said we're definitely doing it

Friday, just not sure what time yet... I'll let you know what

happens.

I'm actually in Sherman Oaks, so no fires but a lot of smoke that

made breathing difficult for several days... however I have family

in Simi Valley that thankfully didn't lose their house, although

their power was out for a while due to the fires.

> The new RE is trying to get me in for

> > lap/hyst on Friday, but suddenly I've got this unreasonable

fear

> > that they could go in and still not be able to know - I'm sure

> they

> > know what they're doing, but the fact that they had widely

> differing

> > ideas of what my MA is worries me a bit... also, somehow I

was

> > unaware that there would be other incisions besides the one

in

> > my belly button... do the scars go away? She said there

would be

> > 2 - 4 incisions....

> >

> > anyway, thanks again, hope these aren't incredibly stupid

> > questions....

> >

> > 36, ttc

> > possibly SU? BU?

[Guest guest]

Hello.

I went to 3 different specialists.

My lap/hyst confirmed a septum and it was removed.

I may be wrong, but I don't think you can mistake it during a lap

(although some people on here may have experienced otherwise).

In my case, I heard so many different interpretations, from " there's

nothing wrong, no BU no SU, it's normal " to BU to SU to Arcuate or a

mix.

I am fairly confidant that your lap will reveal the truth.

Angie

SU resected 3/03

> Hi, I may be having the lap/hyst this Friday (RE is trying to get

a

> time with the hospital) but I'm all of a sudden pretty nervous..

>

> I originally went to a different RE than I'm with now since I

didn't

> know there was an RE in my area that was covered by my

> insurance.. I have a PPO so the first RE was covered but not as

> much as if they were in network. So anyway, I went to the original

> RE who was very nice etc. but who looked at my HSG and said

> she thought it was a " really big septum " , with very slight

> possibility of BU. But she said she really thought it was SU. The

> HSG person also said he thought I had a septum.

>

> Anyway, I switched to a new RE who is in my insurance network

> (I found out later there was one in my area) and she seems

> really knowlegable too, and she looked at the HSG and said

> either bicornate or arcuate, not SU. I asked her why and she said

> that it was too wide.

>

> Now I'm really confused. The new RE is trying to get me in for

> lap/hyst on Friday, but suddenly I've got this unreasonable fear

> that they could go in and still not be able to know - I'm sure

they

> know what they're doing, but the fact that they had widely

differing

> ideas of what my MA is worries me a bit... also, somehow I was

> unaware that there would be other incisions besides the one in

> my belly button... do the scars go away? She said there would be

> 2 - 4 incisions....

>

> anyway, thanks again, hope these aren't incredibly stupid

> questions....

>

> 36, ttc

> possibly SU? BU?

[Guest guest]

Hello.

I went to 3 different specialists.

My lap/hyst confirmed a septum and it was removed.

I may be wrong, but I don't think you can mistake it during a lap

(although some people on here may have experienced otherwise).

In my case, I heard so many different interpretations, from " there's

nothing wrong, no BU no SU, it's normal " to BU to SU to Arcuate or a

mix.

I am fairly confidant that your lap will reveal the truth.

Angie

SU resected 3/03

> Hi, I may be having the lap/hyst this Friday (RE is trying to get

a

> time with the hospital) but I'm all of a sudden pretty nervous..

>

> I originally went to a different RE than I'm with now since I

didn't

> know there was an RE in my area that was covered by my

> insurance.. I have a PPO so the first RE was covered but not as

> much as if they were in network. So anyway, I went to the original

> RE who was very nice etc. but who looked at my HSG and said

> she thought it was a " really big septum " , with very slight

> possibility of BU. But she said she really thought it was SU. The

> HSG person also said he thought I had a septum.

>

> Anyway, I switched to a new RE who is in my insurance network

> (I found out later there was one in my area) and she seems

> really knowlegable too, and she looked at the HSG and said

> either bicornate or arcuate, not SU. I asked her why and she said

> that it was too wide.

>

> Now I'm really confused. The new RE is trying to get me in for

> lap/hyst on Friday, but suddenly I've got this unreasonable fear

> that they could go in and still not be able to know - I'm sure

they

> know what they're doing, but the fact that they had widely

differing

> ideas of what my MA is worries me a bit... also, somehow I was

> unaware that there would be other incisions besides the one in

> my belly button... do the scars go away? She said there would be

> 2 - 4 incisions....

>

> anyway, thanks again, hope these aren't incredibly stupid

> questions....

>

> 36, ttc

> possibly SU? BU?

[Guest guest]

Hello.

I went to 3 different specialists.

My lap/hyst confirmed a septum and it was removed.

I may be wrong, but I don't think you can mistake it during a lap

(although some people on here may have experienced otherwise).

In my case, I heard so many different interpretations, from " there's

nothing wrong, no BU no SU, it's normal " to BU to SU to Arcuate or a

mix.

I am fairly confidant that your lap will reveal the truth.

Angie

SU resected 3/03

> Hi, I may be having the lap/hyst this Friday (RE is trying to get

a

> time with the hospital) but I'm all of a sudden pretty nervous..

>

> I originally went to a different RE than I'm with now since I

didn't

> know there was an RE in my area that was covered by my

> insurance.. I have a PPO so the first RE was covered but not as

> much as if they were in network. So anyway, I went to the original

> RE who was very nice etc. but who looked at my HSG and said

> she thought it was a " really big septum " , with very slight

> possibility of BU. But she said she really thought it was SU. The

> HSG person also said he thought I had a septum.

>

> Anyway, I switched to a new RE who is in my insurance network

> (I found out later there was one in my area) and she seems

> really knowlegable too, and she looked at the HSG and said

> either bicornate or arcuate, not SU. I asked her why and she said

> that it was too wide.

>

> Now I'm really confused. The new RE is trying to get me in for

> lap/hyst on Friday, but suddenly I've got this unreasonable fear

> that they could go in and still not be able to know - I'm sure

they

> know what they're doing, but the fact that they had widely

differing

> ideas of what my MA is worries me a bit... also, somehow I was

> unaware that there would be other incisions besides the one in

> my belly button... do the scars go away? She said there would be

> 2 - 4 incisions....

>

> anyway, thanks again, hope these aren't incredibly stupid

> questions....

>

> 36, ttc

> possibly SU? BU?

[Guest guest]

I forgot your other question. As for scars- I had a resection plus

endometriosis removed. I have a little scar in my belly button -

you'd never now it unless you looked real close and or knew it was

there. I have two TINY incisions, one above each ovary. They are

maybe a CM long each. THey are much lighter now than they were. I

was never one for tiny bikinis, so it doesn't matter to me, but if I

wore revealing bathing suits, I think they'd still be covered. If

not they are so light and small, it wouldn't be a big deal. A good

tan and you'd never see them....

Don't be alarmed right after the surgery, my tummy was all bloated

and bruised looking, from all the fluid and gas they pump into you.

That goes away pretty quickly. I was shocked when I looked down at

my bloated belly, but trust me, that's very temporary!

I had a lot of bruising and swelling for a while due to the endo

being removed, but in about 4 to 6 weeks, my body was more normal.

Every once in a while, my worse side for the endo is a bit sore, but

no biggie. I don't know what climate you're in, but if you have

winter coming up like I do, you can rest assured by summer you'll be

ready for a bikinni again - if that's your thing.

Angie

SU resected 3/03

> Hi, I may be having the lap/hyst this Friday (RE is trying to get

a

> time with the hospital) but I'm all of a sudden pretty nervous..

>

> I originally went to a different RE than I'm with now since I

didn't

> know there was an RE in my area that was covered by my

> insurance.. I have a PPO so the first RE was covered but not as

> much as if they were in network. So anyway, I went to the original

> RE who was very nice etc. but who looked at my HSG and said

> she thought it was a " really big septum " , with very slight

> possibility of BU. But she said she really thought it was SU. The

> HSG person also said he thought I had a septum.

>

> Anyway, I switched to a new RE who is in my insurance network

> (I found out later there was one in my area) and she seems

> really knowlegable too, and she looked at the HSG and said

> either bicornate or arcuate, not SU. I asked her why and she said

> that it was too wide.

>

> Now I'm really confused. The new RE is trying to get me in for

> lap/hyst on Friday, but suddenly I've got this unreasonable fear

> that they could go in and still not be able to know - I'm sure

they

> know what they're doing, but the fact that they had widely

differing

> ideas of what my MA is worries me a bit... also, somehow I was

> unaware that there would be other incisions besides the one in

> my belly button... do the scars go away? She said there would be

> 2 - 4 incisions....

>

> anyway, thanks again, hope these aren't incredibly stupid

> questions....

>

> 36, ttc

> possibly SU? BU?

[Guest guest]

Leora-

I just wanted to pop in and reassure you - I have been scouring the

earth for info on MA's since 1993 and I don't think I have ever run

across anything regarding misdiagnosis after a lap/hyst. As the

others have said, the lap/hyst is the gold standard....it gives the

doc not only a clear view, but a 'hands on' view of exactly what

you are working with.

As far as the 'too wide to be a SU' opinion, I have to say that that

is a mistake that is still made by far too many docs. Unfortunately,

SU's are still misdiagnosed as BU. The sure-fire way to tell a BU

from and SU is the lap/hyst. And, if its SU, it gets zapped at the

same time. If its BU, it will be left alone, as BU generally does

great in pg. One way or another. I think the lap/hyst is a positive

and neccesary step to treatment/diagnosis.

I fought my docs for my lap/hyst...they said that because I have 2

non-communicating horns and cervices, that I had to be UD...well, I

didn't like the odds that I could " possibly " be a SU bicollis. So I

pushed and pushed and pushed, finally had a worthless MRI and lucked

into to the Lap. Turns out, they were right, I am UD, but I am a

'weird' UD - the uteri, while separate and complete, are fused. I am

thankful for the peace of mind that the lap/hyst provided.

Don't fret too much about the scars...mine are tiny - one in my belly

button that is about 1/4 inch and the one in my bikini line is about

1/2 inch. Both very minor.

I will be thinking about you!

29(and holding), lap/hyst confirmed fused UD

SU? BU?

[Guest guest]

Leora-

I just wanted to pop in and reassure you - I have been scouring the

earth for info on MA's since 1993 and I don't think I have ever run

across anything regarding misdiagnosis after a lap/hyst. As the

others have said, the lap/hyst is the gold standard....it gives the

doc not only a clear view, but a 'hands on' view of exactly what

you are working with.

As far as the 'too wide to be a SU' opinion, I have to say that that

is a mistake that is still made by far too many docs. Unfortunately,

SU's are still misdiagnosed as BU. The sure-fire way to tell a BU

from and SU is the lap/hyst. And, if its SU, it gets zapped at the

same time. If its BU, it will be left alone, as BU generally does

great in pg. One way or another. I think the lap/hyst is a positive

and neccesary step to treatment/diagnosis.

I fought my docs for my lap/hyst...they said that because I have 2

non-communicating horns and cervices, that I had to be UD...well, I

didn't like the odds that I could " possibly " be a SU bicollis. So I

pushed and pushed and pushed, finally had a worthless MRI and lucked

into to the Lap. Turns out, they were right, I am UD, but I am a

'weird' UD - the uteri, while separate and complete, are fused. I am

thankful for the peace of mind that the lap/hyst provided.

Don't fret too much about the scars...mine are tiny - one in my belly

button that is about 1/4 inch and the one in my bikini line is about

1/2 inch. Both very minor.

I will be thinking about you!

29(and holding), lap/hyst confirmed fused UD

SU? BU?