Re: thanks for the info

[Guest guest]

Thanks for the info on Thin Basement Membrane disease. I have had 54

tests done and one kidney biopsy. My nephrologists has never seen this

disease before. I am the first patient he has treated with this. The

biopsy went to a world reknowned kidney pathologists at LSU medical

school for a diagnosis. There is very limited info on this disease. I

know it is an autoimmune disease that was given to me by my birth

parents, whom I do not know as I am adopted. I would hate to pass this

on to my kids and my grandson.

I have mega protein and blood in the urine...so I guess the glomeular or

whatever they are called rupture all the time. My bp has to be 130/70

all the time. It rises and I do not even know it. That is why I had to

leave teaching kindergarten due to the stress and my bp.

I am tired all time time. I go to bed most nites at four thirty in the

afternoon after I get home and take my bubble bath. The meds for the bp

make me very nervous and depressed, so I take meds for both of those

things...even though I go to bed at four thirty, I rarely sleep...

This discoid lupus I just found out I had is just another thing. I am

having to learn to listen to my body. When I do not, I hurt, my hips

and arms mostly, and that rash is all over my face...I have fever lots

for no apparent reason and am tired most of the days. At least now, my

colleagues do not ask me what is wrong with my face all the time...they

know now...and they are always asking how I feel which makes me feel

better actually.

I find I am fortunate though even though I have TBM, discoid lupus and

asthma. God does not give one more than they can handle...and I look at

it like this...there are always so many people that are worse off than I

am...

I just take my time, try to eat right, rest and feed my birds and

squirrels outside...work with my three and four year olds and have fun

with my job...I try to keep the stress out of my life.

I also am in negotiations to record a CD for children with the songs I

have written. A cajun band wants to use my 300 or so songs to cut a

CD...yep they are copyrighted by the Library of Congress...I am not

crazy yet...hehe...

Why am I rambling...I have no clue...I am sure yall are bored stiff

right now...chippy