Re: Another NEW MEMBER -- Londa

[Guest guest]

welcome from SW OK

To: Group <mserslife >Sent: Sunday, August 16, 2009 6:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

welcome from SW OK

To: Group <mserslife >Sent: Sunday, August 16, 2009 6:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

welcome from SW OK

To: Group <mserslife >Sent: Sunday, August 16, 2009 6:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

Welcome to the group Londa.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: wobbletowalk@...Sent: Sun, 16 Aug 2009 16:43:18 -0700 (PDT)To: mserslife Subject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

Free 3D Marine Aquarium Screensaver

Watch dolphins, sharks & orcas on your desktop! Check it out at www.inbox.com/marineaquarium

[Guest guest]

Welcome to the group Londa.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: wobbletowalk@...Sent: Sun, 16 Aug 2009 16:43:18 -0700 (PDT)To: mserslife Subject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

Free 3D Marine Aquarium Screensaver

Watch dolphins, sharks & orcas on your desktop! Check it out at www.inbox.com/marineaquarium

[Guest guest]

Welcome to the group Londa.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: wobbletowalk@...Sent: Sun, 16 Aug 2009 16:43:18 -0700 (PDT)To: mserslife Subject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

Free 3D Marine Aquarium Screensaver

Watch dolphins, sharks & orcas on your desktop! Check it out at www.inbox.com/marineaquarium

[Guest guest]

HEY ALL~

THANK YOU SO MUCH!!

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Re: Another NEW MEMBER -- LondaTo: MSersLife Date: Sunday, August 16, 2009, 7:49 PM

welcome from SW OK

From: Sharon <wobbletowalk@ yahoo.com>To: Group <mserslife@yahoogrou ps.com>Sent: Sunday, August 16, 2009 6:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

HEY ALL~

THANK YOU SO MUCH!!

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Re: Another NEW MEMBER -- LondaTo: MSersLife Date: Sunday, August 16, 2009, 7:49 PM

welcome from SW OK

From: Sharon <wobbletowalk@ yahoo.com>To: Group <mserslife@yahoogrou ps.com>Sent: Sunday, August 16, 2009 6:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

HI SHARON,

THANKS FOR LETTING ME BE A PART OF YOUR GROUP. I LOVE!! THE DISCLAIMER ON VARIATIONS-----CUZ MY MS DRAMEDY HAS KILLED A LIFETIME OF GRAMMER AND SPELLING~LOL....

LET'S SEE.....IM SHALONDA-LONDA WORKS. IM 33 NEXT MONTH. WAS DIAG.

IN FALL OF '02. RRMS THEN PUT ON AVONEX. THAT WAS A ISSUE,SINCE IM A BRAT

I CHUCKED THAT PLAN AND THE DR. THEN I WENT ON REBIF, MS CHANGED TO SPMS AND REBIF STOPPED WORKING SO WELL,AFTER SOME MORE DRAMEDY

I DID 3 ROUNDS OF NOVANTRON--IT WAS GREAT FO ME. NOW DUE TO GOING ON SSDI AND WAITING ON MEDICARE CAUSE PRIVAT INS CARRY ME FOR LESS

THAN 700/MTH I'VE BEEN DRUG FREE SINCE JULY '08. BUT IM HOLDING MY OWN

I DO ACCUPUNCTURE WHEN I CAN,EXERCISE,EAT BETTER,PRAY,FIGHT MY BUNS OFF! I DID A VIDEO AND WAS FEATURED IN ARTICLE FOR MS AND HEALTHCARE

BATTLE. I CANT THINK OF ANYTHING ELSE ABOUT ME. I HAVE SHITZU LIL' GIRL

NAMED PRINCESS SHE'LL BE 7YRS ON 9/11. I JUST MOVED HOME TO OHIO FROM MARYLAND. HMMMM.........I SOUND QUIT BORING--LOL-- ASK ME ANYTHING,IM EASY. LOOK FOWARD TO GETTING TO KNOW EVERYONE!!

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Another NEW MEMBER -- LondaTo: "Group" <mserslife >Date: Sunday, August 16, 2009, 7:43 PM

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

HI SHARON,

THANKS FOR LETTING ME BE A PART OF YOUR GROUP. I LOVE!! THE DISCLAIMER ON VARIATIONS-----CUZ MY MS DRAMEDY HAS KILLED A LIFETIME OF GRAMMER AND SPELLING~LOL....

LET'S SEE.....IM SHALONDA-LONDA WORKS. IM 33 NEXT MONTH. WAS DIAG.

IN FALL OF '02. RRMS THEN PUT ON AVONEX. THAT WAS A ISSUE,SINCE IM A BRAT

I CHUCKED THAT PLAN AND THE DR. THEN I WENT ON REBIF, MS CHANGED TO SPMS AND REBIF STOPPED WORKING SO WELL,AFTER SOME MORE DRAMEDY

I DID 3 ROUNDS OF NOVANTRON--IT WAS GREAT FO ME. NOW DUE TO GOING ON SSDI AND WAITING ON MEDICARE CAUSE PRIVAT INS CARRY ME FOR LESS

THAN 700/MTH I'VE BEEN DRUG FREE SINCE JULY '08. BUT IM HOLDING MY OWN

I DO ACCUPUNCTURE WHEN I CAN,EXERCISE,EAT BETTER,PRAY,FIGHT MY BUNS OFF! I DID A VIDEO AND WAS FEATURED IN ARTICLE FOR MS AND HEALTHCARE

BATTLE. I CANT THINK OF ANYTHING ELSE ABOUT ME. I HAVE SHITZU LIL' GIRL

NAMED PRINCESS SHE'LL BE 7YRS ON 9/11. I JUST MOVED HOME TO OHIO FROM MARYLAND. HMMMM.........I SOUND QUIT BORING--LOL-- ASK ME ANYTHING,IM EASY. LOOK FOWARD TO GETTING TO KNOW EVERYONE!!

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Another NEW MEMBER -- LondaTo: "Group" <mserslife >Date: Sunday, August 16, 2009, 7:43 PM

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

Londa, much as we do regret your having MS,we are happy to welcome you to our group.There are wonderful people here, and we arevery supportive of one another.Love to you and to yours,n Rojas, 72, have had MS since at leastage 19; mom of 4, grandma to many,Oakland, California, right across the SanFrancisco Bay from the Golden Gate Bridge!To:

Group <mserslife >Sent: Sunday, August 16, 2009 4:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner) This

email is a natural hand made product. The slight variations in spelling

and grammar enhance its individual character and beauty and in no way

are to be considered flaws or defects.

[Guest guest]

Londa, much as we do regret your having MS,we are happy to welcome you to our group.There are wonderful people here, and we arevery supportive of one another.Love to you and to yours,n Rojas, 72, have had MS since at leastage 19; mom of 4, grandma to many,Oakland, California, right across the SanFrancisco Bay from the Golden Gate Bridge!To:

Group <mserslife >Sent: Sunday, August 16, 2009 4:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner) This

email is a natural hand made product. The slight variations in spelling

and grammar enhance its individual character and beauty and in no way

are to be considered flaws or defects.

[Guest guest]

Londa, much as we do regret your having MS,we are happy to welcome you to our group.There are wonderful people here, and we arevery supportive of one another.Love to you and to yours,n Rojas, 72, have had MS since at leastage 19; mom of 4, grandma to many,Oakland, California, right across the SanFrancisco Bay from the Golden Gate Bridge!To:

Group <mserslife >Sent: Sunday, August 16, 2009 4:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner) This

email is a natural hand made product. The slight variations in spelling

and grammar enhance its individual character and beauty and in no way

are to be considered flaws or defects.

[Guest guest]

Good Morning Londa

I was diagnosed in well.. August.. 2000.. so I'm 9 years dx'd now..

history states at least 10 years prior.. I'm also 51 next month... never

ever thought in a million years that 16 would turn into 50 that quickly...

Started on Avonex.. had issues.. but continued for 4 years.. neuro

wouldn't take me off.. he changed it from RRMS to either Relapsing

Progressive or Progressive Relapsing.. can't remember which.. always get

them confused.. he wouldn't say SPMS even when asked... but I suspect

had he taken the Relapsing out of there, he would have also had to

withdraw the Avonex.. which he wasn't about to do.. even when I told him

after 4 years I was STILL having the side-effects.. and taking WAY WAY

WAY too much Advil to just get through a normal 24-36 hour flu-like

days.. (otherwise it would have been 6 days).. I took myself off the

stuff and didn't go back to see him until 2006... MRI then showed new

lesions bilaterally.. and he said I HAD to be on something.. I asked him

to suggest something.. he ticked off what I wouldn't do.. lol.. and came

up with Copaxone... and I said BINGO... that's what I asked you for a

couple of years ago.. and you wouldn't hear of it... (There was

absolutely NO literature on Copaxone in his office.. mostly ALL Avonex..

some Rebif a little Betaseron.. but the preponderance was Avonex..).

Got my MRI from him.. and a crap load of attitude.. and decided that I

was ready for the Pittsburgh trips if need be... got into the group with

Dr. Heyman.. saw my neuro in that group once.. didn't make my 4 month

appointment (, my significant other, works for a funeral home.. easy

to make appointments, sometimes hard to keep those made appointments)...

but I was doing just fine.. been on Copaxone since October 2006...

started walking again without a cane.. (two weeks into beginning the

injections).. well that is.. until May of this year.. had a major

exacerbation and that has left me being best buddies with a walker most

days.. a wheelchair someday's (or if I want to get anything

accomplished).. though I've had a couple of days here and there where I

feel that I should be back at work.. this morning was one of those.. but

let the day progress a little bit and things will change, I'm sure...

Now, you say that you've been med free (I did that from 2004 to 2006)...

since last year.. umm... just for your information and if need be..

until your medicare kicks in.. most of the pharmaceutical companies have

programs for those who just can't afford the meds and have no or little

insurance coverage to help pay for them.. I'm not sure who manufacturers

Novantrone (not one of my personal options.. I didn't like the risks

involved, being as there is a history of heart problems in my family)..

but I'm betting if you check the web, you'll find they have the

assistance programs as well... However, Novantrone is one of the drugs

that you can only have so much of in a certain period of time, isn't it?...

Well.. welcome aboard again... and I regret that we have to become

friends for this reason.. you will find that this is a great group of

people.. who are fairly well versed in just about everything on earth...

HUGS

|)onna

shalonda frederick wrote:

>

>

> HI SHARON,

> THANKS FOR LETTING ME BE A PART OF YOUR GROUP. I LOVE!! THE DISCLAIMER

> ON VARIATIONS-----CUZ MY MS DRAMEDY HAS KILLED A LIFETIME OF GRAMMER

> AND SPELLING~LOL....

> LET'S SEE.....IM SHALONDA-LONDA WORKS. IM 33 NEXT MONTH. WAS DIAG.

> IN FALL OF '02. RRMS THEN PUT ON AVONEX. THAT WAS A ISSUE,SINCE IM A BRAT

> I CHUCKED THAT PLAN AND THE DR. THEN I WENT ON REBIF, MS CHANGED TO

> SPMS AND REBIF STOPPED WORKING SO WELL,AFTER SOME MORE DRAMEDY

> I DID 3 ROUNDS OF NOVANTRON--IT WAS GREAT FO ME. NOW DUE TO GOING ON

> SSDI AND WAITING ON MEDICARE CAUSE PRIVAT INS CARRY ME FOR LESS

> THAN 700/MTH I'VE BEEN DRUG FREE SINCE JULY '08. BUT IM HOLDING MY OWN

> I DO ACCUPUNCTURE WHEN I CAN,EXERCISE,EAT BETTER,PRAY,FIGHT MY BUNS

> OFF! I DID A VIDEO AND WAS FEATURED IN ARTICLE FOR MS AND HEALTHCARE

> BATTLE. I CANT THINK OF ANYTHING ELSE ABOUT ME. I HAVE SHITZU LIL' GIRL

> NAMED PRINCESS SHE'LL BE 7YRS ON 9/11. I JUST MOVED HOME TO OHIO FROM

> MARYLAND. HMMMM.........I SOUND QUIT BORING--LOL-- ASK ME ANYTHING,IM

> EASY. LOOK FOWARD TO GETTING TO KNOW EVERYONE!!

> LONDA

>

>

> /~ALL THAT IM NOT MAKES ME ALLTHAT I AM~/

>

>

>

>

>

>

>

> Subject: Another NEW MEMBER -- Londa

> To: " Group " <mserslife >

> Date: Sunday, August 16, 2009, 7:43 PM

>

>

>

>

> Group: please join me in extending a warm welcome to our newest

> member here at MSersLife!

>

> I know we all look forward to getting to know our new member here

> on the group!

>

> New Member:

> Please feel free to send an introduction as soon as you wish, ask

> any questions you want, share your experiences with all of us and

> just jump into the conversations!

>

> Sharon (group creator/owner)

>

>

>

> This email is a natural hand made product. The slight variations

> in spelling and grammar enhance its individual character and

> beauty and in no way are to be considered flaws or defects.

>

>

>

>

>

>

>

>

[Guest guest]

Good Morning Londa

I was diagnosed in well.. August.. 2000.. so I'm 9 years dx'd now..

history states at least 10 years prior.. I'm also 51 next month... never

ever thought in a million years that 16 would turn into 50 that quickly...

Started on Avonex.. had issues.. but continued for 4 years.. neuro

wouldn't take me off.. he changed it from RRMS to either Relapsing

Progressive or Progressive Relapsing.. can't remember which.. always get

them confused.. he wouldn't say SPMS even when asked... but I suspect

had he taken the Relapsing out of there, he would have also had to

withdraw the Avonex.. which he wasn't about to do.. even when I told him

after 4 years I was STILL having the side-effects.. and taking WAY WAY

WAY too much Advil to just get through a normal 24-36 hour flu-like

days.. (otherwise it would have been 6 days).. I took myself off the

stuff and didn't go back to see him until 2006... MRI then showed new

lesions bilaterally.. and he said I HAD to be on something.. I asked him

to suggest something.. he ticked off what I wouldn't do.. lol.. and came

up with Copaxone... and I said BINGO... that's what I asked you for a

couple of years ago.. and you wouldn't hear of it... (There was

absolutely NO literature on Copaxone in his office.. mostly ALL Avonex..

some Rebif a little Betaseron.. but the preponderance was Avonex..).

Got my MRI from him.. and a crap load of attitude.. and decided that I

was ready for the Pittsburgh trips if need be... got into the group with

Dr. Heyman.. saw my neuro in that group once.. didn't make my 4 month

appointment (, my significant other, works for a funeral home.. easy

to make appointments, sometimes hard to keep those made appointments)...

but I was doing just fine.. been on Copaxone since October 2006...

started walking again without a cane.. (two weeks into beginning the

injections).. well that is.. until May of this year.. had a major

exacerbation and that has left me being best buddies with a walker most

days.. a wheelchair someday's (or if I want to get anything

accomplished).. though I've had a couple of days here and there where I

feel that I should be back at work.. this morning was one of those.. but

let the day progress a little bit and things will change, I'm sure...

Now, you say that you've been med free (I did that from 2004 to 2006)...

since last year.. umm... just for your information and if need be..

until your medicare kicks in.. most of the pharmaceutical companies have

programs for those who just can't afford the meds and have no or little

insurance coverage to help pay for them.. I'm not sure who manufacturers

Novantrone (not one of my personal options.. I didn't like the risks

involved, being as there is a history of heart problems in my family)..

but I'm betting if you check the web, you'll find they have the

assistance programs as well... However, Novantrone is one of the drugs

that you can only have so much of in a certain period of time, isn't it?...

Well.. welcome aboard again... and I regret that we have to become

friends for this reason.. you will find that this is a great group of

people.. who are fairly well versed in just about everything on earth...

HUGS

|)onna

shalonda frederick wrote:

>

>

> HI SHARON,

> THANKS FOR LETTING ME BE A PART OF YOUR GROUP. I LOVE!! THE DISCLAIMER

> ON VARIATIONS-----CUZ MY MS DRAMEDY HAS KILLED A LIFETIME OF GRAMMER

> AND SPELLING~LOL....

> LET'S SEE.....IM SHALONDA-LONDA WORKS. IM 33 NEXT MONTH. WAS DIAG.

> IN FALL OF '02. RRMS THEN PUT ON AVONEX. THAT WAS A ISSUE,SINCE IM A BRAT

> I CHUCKED THAT PLAN AND THE DR. THEN I WENT ON REBIF, MS CHANGED TO

> SPMS AND REBIF STOPPED WORKING SO WELL,AFTER SOME MORE DRAMEDY

> I DID 3 ROUNDS OF NOVANTRON--IT WAS GREAT FO ME. NOW DUE TO GOING ON

> SSDI AND WAITING ON MEDICARE CAUSE PRIVAT INS CARRY ME FOR LESS

> THAN 700/MTH I'VE BEEN DRUG FREE SINCE JULY '08. BUT IM HOLDING MY OWN

> I DO ACCUPUNCTURE WHEN I CAN,EXERCISE,EAT BETTER,PRAY,FIGHT MY BUNS

> OFF! I DID A VIDEO AND WAS FEATURED IN ARTICLE FOR MS AND HEALTHCARE

> BATTLE. I CANT THINK OF ANYTHING ELSE ABOUT ME. I HAVE SHITZU LIL' GIRL

> NAMED PRINCESS SHE'LL BE 7YRS ON 9/11. I JUST MOVED HOME TO OHIO FROM

> MARYLAND. HMMMM.........I SOUND QUIT BORING--LOL-- ASK ME ANYTHING,IM

> EASY. LOOK FOWARD TO GETTING TO KNOW EVERYONE!!

> LONDA

>

>

> /~ALL THAT IM NOT MAKES ME ALLTHAT I AM~/

>

>

>

>

>

>

>

> Subject: Another NEW MEMBER -- Londa

> To: " Group " <mserslife >

> Date: Sunday, August 16, 2009, 7:43 PM

>

>

>

>

> Group: please join me in extending a warm welcome to our newest

> member here at MSersLife!

>

> I know we all look forward to getting to know our new member here

> on the group!

>

> New Member:

> Please feel free to send an introduction as soon as you wish, ask

> any questions you want, share your experiences with all of us and

> just jump into the conversations!

>

> Sharon (group creator/owner)

>

>

>

> This email is a natural hand made product. The slight variations

> in spelling and grammar enhance its individual character and

> beauty and in no way are to be considered flaws or defects.

>

>

>

>

>

>

>

>

[Guest guest]

Good Morning Londa

I was diagnosed in well.. August.. 2000.. so I'm 9 years dx'd now..

history states at least 10 years prior.. I'm also 51 next month... never

ever thought in a million years that 16 would turn into 50 that quickly...

Started on Avonex.. had issues.. but continued for 4 years.. neuro

wouldn't take me off.. he changed it from RRMS to either Relapsing

Progressive or Progressive Relapsing.. can't remember which.. always get

them confused.. he wouldn't say SPMS even when asked... but I suspect

had he taken the Relapsing out of there, he would have also had to

withdraw the Avonex.. which he wasn't about to do.. even when I told him

after 4 years I was STILL having the side-effects.. and taking WAY WAY

WAY too much Advil to just get through a normal 24-36 hour flu-like

days.. (otherwise it would have been 6 days).. I took myself off the

stuff and didn't go back to see him until 2006... MRI then showed new

lesions bilaterally.. and he said I HAD to be on something.. I asked him

to suggest something.. he ticked off what I wouldn't do.. lol.. and came

up with Copaxone... and I said BINGO... that's what I asked you for a

couple of years ago.. and you wouldn't hear of it... (There was

absolutely NO literature on Copaxone in his office.. mostly ALL Avonex..

some Rebif a little Betaseron.. but the preponderance was Avonex..).

Got my MRI from him.. and a crap load of attitude.. and decided that I

was ready for the Pittsburgh trips if need be... got into the group with

Dr. Heyman.. saw my neuro in that group once.. didn't make my 4 month

appointment (, my significant other, works for a funeral home.. easy

to make appointments, sometimes hard to keep those made appointments)...

but I was doing just fine.. been on Copaxone since October 2006...

started walking again without a cane.. (two weeks into beginning the

injections).. well that is.. until May of this year.. had a major

exacerbation and that has left me being best buddies with a walker most

days.. a wheelchair someday's (or if I want to get anything

accomplished).. though I've had a couple of days here and there where I

feel that I should be back at work.. this morning was one of those.. but

let the day progress a little bit and things will change, I'm sure...

Now, you say that you've been med free (I did that from 2004 to 2006)...

since last year.. umm... just for your information and if need be..

until your medicare kicks in.. most of the pharmaceutical companies have

programs for those who just can't afford the meds and have no or little

insurance coverage to help pay for them.. I'm not sure who manufacturers

Novantrone (not one of my personal options.. I didn't like the risks

involved, being as there is a history of heart problems in my family)..

but I'm betting if you check the web, you'll find they have the

assistance programs as well... However, Novantrone is one of the drugs

that you can only have so much of in a certain period of time, isn't it?...

Well.. welcome aboard again... and I regret that we have to become

friends for this reason.. you will find that this is a great group of

people.. who are fairly well versed in just about everything on earth...

HUGS

|)onna

shalonda frederick wrote:

>

>

> HI SHARON,

> THANKS FOR LETTING ME BE A PART OF YOUR GROUP. I LOVE!! THE DISCLAIMER

> ON VARIATIONS-----CUZ MY MS DRAMEDY HAS KILLED A LIFETIME OF GRAMMER

> AND SPELLING~LOL....

> LET'S SEE.....IM SHALONDA-LONDA WORKS. IM 33 NEXT MONTH. WAS DIAG.

> IN FALL OF '02. RRMS THEN PUT ON AVONEX. THAT WAS A ISSUE,SINCE IM A BRAT

> I CHUCKED THAT PLAN AND THE DR. THEN I WENT ON REBIF, MS CHANGED TO

> SPMS AND REBIF STOPPED WORKING SO WELL,AFTER SOME MORE DRAMEDY

> I DID 3 ROUNDS OF NOVANTRON--IT WAS GREAT FO ME. NOW DUE TO GOING ON

> SSDI AND WAITING ON MEDICARE CAUSE PRIVAT INS CARRY ME FOR LESS

> THAN 700/MTH I'VE BEEN DRUG FREE SINCE JULY '08. BUT IM HOLDING MY OWN

> I DO ACCUPUNCTURE WHEN I CAN,EXERCISE,EAT BETTER,PRAY,FIGHT MY BUNS

> OFF! I DID A VIDEO AND WAS FEATURED IN ARTICLE FOR MS AND HEALTHCARE

> BATTLE. I CANT THINK OF ANYTHING ELSE ABOUT ME. I HAVE SHITZU LIL' GIRL

> NAMED PRINCESS SHE'LL BE 7YRS ON 9/11. I JUST MOVED HOME TO OHIO FROM

> MARYLAND. HMMMM.........I SOUND QUIT BORING--LOL-- ASK ME ANYTHING,IM

> EASY. LOOK FOWARD TO GETTING TO KNOW EVERYONE!!

> LONDA

>

>

> /~ALL THAT IM NOT MAKES ME ALLTHAT I AM~/

>

>

>

>

>

>

>

> Subject: Another NEW MEMBER -- Londa

> To: " Group " <mserslife >

> Date: Sunday, August 16, 2009, 7:43 PM

>

>

>

>

> Group: please join me in extending a warm welcome to our newest

> member here at MSersLife!

>

> I know we all look forward to getting to know our new member here

> on the group!

>

> New Member:

> Please feel free to send an introduction as soon as you wish, ask

> any questions you want, share your experiences with all of us and

> just jump into the conversations!

>

> Sharon (group creator/owner)

>

>

>

> This email is a natural hand made product. The slight variations

> in spelling and grammar enhance its individual character and

> beauty and in no way are to be considered flaws or defects.

>

>

>

>

>

>

>

>

[Guest guest]

HEY DONNA,

WOW. IM ALWAYS AMAZED THE JOURNEY MS TAKES US ON. BUT TICKLED PINK WHEN WE FIGHT BACK. THANKS FOR THE INFO. THIS GROUP IS SO COOL. THANKS FORTHE WARM WELCOME.

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~>>> From: Sharon <wobbletowalk@ yahoo.com>> Subject: Another NEW MEMBER -- Londa> To: "Group" <mserslife@yahoogrou ps.com>> Date: Sunday, August 16, 2009, 7:43 PM>> >>> Group: please join me in extending a warm welcome to our newest> member here at MSersLife! >> I know we all look forward to getting to know our new member here> on the group!

>> New Member:> Please feel free to send an introduction as soon as you wish, ask> any questions you want, share your experiences with all of us and> just jump into the conversations! > > Sharon (group creator/owner)>> >> This email is a natural hand made product. The slight variations> in spelling and grammar enhance its individual character and> beauty and in no way are to be considered flaws or defects.>>>>>>>>

[Guest guest]

HEY DONNA,

WOW. IM ALWAYS AMAZED THE JOURNEY MS TAKES US ON. BUT TICKLED PINK WHEN WE FIGHT BACK. THANKS FOR THE INFO. THIS GROUP IS SO COOL. THANKS FORTHE WARM WELCOME.

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~>>> From: Sharon <wobbletowalk@ yahoo.com>> Subject: Another NEW MEMBER -- Londa> To: "Group" <mserslife@yahoogrou ps.com>> Date: Sunday, August 16, 2009, 7:43 PM>> >>> Group: please join me in extending a warm welcome to our newest> member here at MSersLife! >> I know we all look forward to getting to know our new member here> on the group!

>> New Member:> Please feel free to send an introduction as soon as you wish, ask> any questions you want, share your experiences with all of us and> just jump into the conversations! > > Sharon (group creator/owner)>> >> This email is a natural hand made product. The slight variations> in spelling and grammar enhance its individual character and> beauty and in no way are to be considered flaws or defects.>>>>>>>>

[Guest guest]

HEY DONNA,

WOW. IM ALWAYS AMAZED THE JOURNEY MS TAKES US ON. BUT TICKLED PINK WHEN WE FIGHT BACK. THANKS FOR THE INFO. THIS GROUP IS SO COOL. THANKS FORTHE WARM WELCOME.

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~>>> From: Sharon <wobbletowalk@ yahoo.com>> Subject: Another NEW MEMBER -- Londa> To: "Group" <mserslife@yahoogrou ps.com>> Date: Sunday, August 16, 2009, 7:43 PM>> >>> Group: please join me in extending a warm welcome to our newest> member here at MSersLife! >> I know we all look forward to getting to know our new member here> on the group!

>> New Member:> Please feel free to send an introduction as soon as you wish, ask> any questions you want, share your experiences with all of us and> just jump into the conversations! > > Sharon (group creator/owner)>> >> This email is a natural hand made product. The slight variations> in spelling and grammar enhance its individual character and> beauty and in no way are to be considered flaws or defects.>>>>>>>>

[Guest guest]

AH THANKS GUYS!!

londa

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Re: Another NEW MEMBER -- LondaTo: MSersLife Date: Monday, August 17, 2009, 2:01 AM

Londa, much as we do regret your having MS,we are happy to welcome you to our group.There are wonderful people here, and we arevery supportive of one another.Love to you and to yours,n Rojas, 72, have had MS since at leastage 19; mom of 4, grandma to many,Oakland, California, right across the SanFrancisco Bay from the Golden Gate Bridge!

From: Sharon <wobbletowalk@ yahoo.com>To: Group <mserslife@yahoogrou ps.com>Sent: Sunday, August 16, 2009 4:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

AH THANKS GUYS!!

londa

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Re: Another NEW MEMBER -- LondaTo: MSersLife Date: Monday, August 17, 2009, 2:01 AM

Londa, much as we do regret your having MS,we are happy to welcome you to our group.There are wonderful people here, and we arevery supportive of one another.Love to you and to yours,n Rojas, 72, have had MS since at leastage 19; mom of 4, grandma to many,Oakland, California, right across the SanFrancisco Bay from the Golden Gate Bridge!

From: Sharon <wobbletowalk@ yahoo.com>To: Group <mserslife@yahoogrou ps.com>Sent: Sunday, August 16, 2009 4:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

AH THANKS GUYS!!

londa

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Re: Another NEW MEMBER -- LondaTo: MSersLife Date: Monday, August 17, 2009, 2:01 AM

Londa, much as we do regret your having MS,we are happy to welcome you to our group.There are wonderful people here, and we arevery supportive of one another.Love to you and to yours,n Rojas, 72, have had MS since at leastage 19; mom of 4, grandma to many,Oakland, California, right across the SanFrancisco Bay from the Golden Gate Bridge!

From: Sharon <wobbletowalk@ yahoo.com>To: Group <mserslife@yahoogrou ps.com>Sent: Sunday, August 16, 2009 4:43:18 PMSubject: Another NEW MEMBER -- Londa

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

You don't sound at all boring! It sounds like you have a busy, full life.How long had you lived in land? Are you originally from Ohio? SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sunday, August 16, 2009 7:50:54 PMSubject: Re: Another NEW MEMBER -- Londa

HI SHARON,

THANKS FOR LETTING ME BE A PART OF YOUR GROUP. I LOVE!! THE DISCLAIMER ON VARIATIONS-----CUZ MY MS DRAMEDY HAS KILLED A LIFETIME OF GRAMMER AND SPELLING~LOL....

LET'S SEE.....IM SHALONDA-LONDA WORKS. IM 33 NEXT MONTH. WAS DIAG.

IN FALL OF '02. RRMS THEN PUT ON AVONEX. THAT WAS A ISSUE,SINCE IM A BRAT

I CHUCKED THAT PLAN AND THE DR. THEN I WENT ON REBIF, MS CHANGED TO SPMS AND REBIF STOPPED WORKING SO WELL,AFTER SOME MORE DRAMEDY

I DID 3 ROUNDS OF NOVANTRON--IT WAS GREAT FO ME. NOW DUE TO GOING ON SSDI AND WAITING ON MEDICARE CAUSE PRIVAT INS CARRY ME FOR LESS

THAN 700/MTH I'VE BEEN DRUG FREE SINCE JULY '08. BUT IM HOLDING MY OWN

I DO ACCUPUNCTURE WHEN I CAN,EXERCISE,EAT BETTER,PRAY,FIGHT MY BUNS OFF! I DID A VIDEO AND WAS FEATURED IN ARTICLE FOR MS AND HEALTHCARE

BATTLE. I CANT THINK OF ANYTHING ELSE ABOUT ME. I HAVE SHITZU LIL' GIRL

NAMED PRINCESS SHE'LL BE 7YRS ON 9/11. I JUST MOVED HOME TO OHIO FROM MARYLAND. HMMMM.........I SOUND QUIT BORING--LOL-- ASK ME ANYTHING,IM EASY. LOOK FOWARD TO GETTING TO KNOW EVERYONE!!

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Another NEW MEMBER -- LondaTo: "Group" <mserslife >Date: Sunday, August 16, 2009, 7:43 PM

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

__________________________________________________

[Guest guest]

yes i was born and raised in ohio,i left for collge ,moved to ga for a few yrs. mom had heart attack--shes ok. then stayed til 2000. whew--lol then i lived in maryland til april of this year.

i miss it, but its getting better day by day. i miss the md chapter of ms society-they were alot more active than this oh buckeye chapter. i gotta find something todo since i n dont work anymore

londa

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

From: Sharon <wobbletowalk@ yahoo.com>Subject: Another NEW MEMBER -- LondaTo: "Group" <mserslife@yahoogrou ps.com>Date: Sunday, August 16, 2009, 7:43 PM

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

____________ _________ _________ _________ _________ __

[Guest guest]

yes i was born and raised in ohio,i left for collge ,moved to ga for a few yrs. mom had heart attack--shes ok. then stayed til 2000. whew--lol then i lived in maryland til april of this year.

i miss it, but its getting better day by day. i miss the md chapter of ms society-they were alot more active than this oh buckeye chapter. i gotta find something todo since i n dont work anymore

londa

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

From: Sharon <wobbletowalk@ yahoo.com>Subject: Another NEW MEMBER -- LondaTo: "Group" <mserslife@yahoogrou ps.com>Date: Sunday, August 16, 2009, 7:43 PM

Group: please join me in extending a warm welcome to our newest member here at MSersLife!

I know we all look forward to getting to know our new member here on the group! New Member:Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations!

Sharon (group creator/owner)

This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

____________ _________ _________ _________ _________ __