RE: Thanks for the welcome and info!

[Guest guest]

I'd guess is having peripheral neuropathy.

It's what I have...drives me nuts sometimes. Really

affects your sense of touch. For a while the B-6

seemed to be doing the trick, but now it's back as bad

as ever.

How about MCTD/UCTD?? We are all such mixed Bags!

Lynn

--- Annette Flamand wrote:

> Hi ... From all the info you've given us, it

> appears you have some

> kind of neurological disorder, i.e. the numbness,

> etc. I have DM and with

> that disease comes much weakness and varying degrees

> of pain. You mentioned

> your elbows...is the pain in the joint area? My

> pain is more in the longer

> muscles and not so much joint areas. Hang in there,

> , and let us

> know what's going on each step of the way. Annette

>

> Thanks for the welcome and info!

>

>

> Hi all,

> Thanks for the very warm welcome to your group!

> It is a pleasure to see a

> support group actually BE a support group! I used

> to belong to one

> concerning Restless Legs Syndrome and Periodic Limb

> Movement Disorder, and

> there was a LOT of bickering and fighting going on

> all the time. I guess it

> may be expected from 700 plus folks who get very

> little sleep, but it was

> just too much.

> It is a pleasure to meet you Dawn, Lynn, ,

> Annette, Melita, Mike B,

> and Lem. (in order from the replies) I hope I

> didn't miss anyone!

> I have seen a lot of good information in my short

> time so far. I really

> appreciate it! I am to see a neurologist next week.

> He may know what's

> wrong from my description, or may order the EMG. I

> have heard that isn't a

> very pleasant test, but may be necessary. <sigh>

> Thanks for the tip about

> the MRI before the (possible) muscle biopsy. I

> would rather they get it

> right the first time, as that one doesn't sound

> pleasant either.

> From your descriptions, I am not sure that I have

> PM or DM. For the past

> 5 months or so I have had muscle/joint/tendon pain

> and inflammation, mainly

> in both lower arms and elbows. No weakness, except

> that I don't use them as

> much because of the pain. Some days it hurts a lot

> to use them, some days

> not so much. They are always sore in the AM, and

> sometimes I wake with a

> few fingers numb, sometimes the little one and the

> one next to it, sometimes

> the other ones. Sometimes when it is bad I also get

> deep aches in one

> shoulder and both wrists and even in-between some

> finger joints. I have

> felt some strange fleeting weakness in my right leg

> though, all the sudden

> it is weak...then it seems ok. That has only

> happened several times. There

> is also a dusky rash that comes and goes around my

> eyelids and cheeks

> (facial cheeks) LOL Blood tests so far have ruled

> out RA and Lupus, so PM

> or DM are the doc's next guess.

> I live in La Honda, which is about 9 miles east of

> the pacific ocean,

> about 45 miles south of SF and about 15 or so miles

> west of Palo Alto. La

> Honda is the Spanish word for " canyon " , so La Honda

> is a small town in a bit

> of a canyon. It is also full of gorgeous redwood

> trees!

>

>

>

>

>

>