Re: also have a child with pancreatitis

[Guest guest]

I have posted in the past but mostly just read other posts. My daughter (9

years old) was diagnosed with hereditary pancreatitis in May and was also

hospitalized for pancreatitis in Sept. She was in for 9 days came home on

TPN for a week because she couldn't eat. She hasn't seemed to gotten back to

herself yet. She experiences nausea and mild pain intermittently. She just

doesn't seem to feel good a lot and is really pale. I and other members of my

family (mom, sister and my other 7 year old daughter were also tested and

also have the gene for hereditary pancreatitis. My sister has chronic

pancreatitis and I also have had several bouts. Just wanted some advice from

other parents or anyone on what I can do to try to make her feel better. Is

there a special diet that could help or should I take her to her back to the

doctor? She is also experiencing some depression over how unfair it is for

her to have this problem. She also has hypercalcuira which is the disorder

that causes you to form kidney stones. Sorry to ramble on just wanted to know

if any of you had any advice. Thanks Debbie

[Guest guest]

Hey Debbie,

My daughter Jackie is 12. We have her on a very low

fat diet...she does eat carbohdrates and needs to

loose weight. In which we continually try...but her

pain has been daily and not good for 6 months or so

now. She has probably 15 grams a fat a day.. somedays

a little more somedays a little less. If you need to

talk my email is SweteT@... and Jackie would

love to email to you or your daughter. I hope she

gets better soon...let us know how she is.

Talk to ya soon,

--- dkdemlow@... wrote:

> I have posted in the past but mostly just read other

> posts. My daughter (9

> years old) was diagnosed with hereditary

> pancreatitis in May and was also

> hospitalized for pancreatitis in Sept. She was in

> for 9 days came home on

> TPN for a week because she couldn't eat. She hasn't

> seemed to gotten back to

> herself yet. She experiences nausea and mild pain

> intermittently. She just

> doesn't seem to feel good a lot and is really pale.

> I and other members of my

> family (mom, sister and my other 7 year old daughter

> were also tested and

> also have the gene for hereditary pancreatitis. My

> sister has chronic

> pancreatitis and I also have had several bouts.

> Just wanted some advice from

> other parents or anyone on what I can do to try to

> make her feel better. Is

> there a special diet that could help or should I

> take her to her back to the

> doctor? She is also experiencing some depression

> over how unfair it is for

> her to have this problem. She also has hypercalcuira

> which is the disorder

> that causes you to form kidney stones. Sorry to

> ramble on just wanted to know

> if any of you had any advice. Thanks Debbie

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hey Debbie,

My daughter Jackie is 12. We have her on a very low

fat diet...she does eat carbohdrates and needs to

loose weight. In which we continually try...but her

pain has been daily and not good for 6 months or so

now. She has probably 15 grams a fat a day.. somedays

a little more somedays a little less. If you need to

talk my email is SweteT@... and Jackie would

love to email to you or your daughter. I hope she

gets better soon...let us know how she is.

Talk to ya soon,

--- dkdemlow@... wrote:

> I have posted in the past but mostly just read other

> posts. My daughter (9

> years old) was diagnosed with hereditary

> pancreatitis in May and was also

> hospitalized for pancreatitis in Sept. She was in

> for 9 days came home on

> TPN for a week because she couldn't eat. She hasn't

> seemed to gotten back to

> herself yet. She experiences nausea and mild pain

> intermittently. She just

> doesn't seem to feel good a lot and is really pale.

> I and other members of my

> family (mom, sister and my other 7 year old daughter

> were also tested and

> also have the gene for hereditary pancreatitis. My

> sister has chronic

> pancreatitis and I also have had several bouts.

> Just wanted some advice from

> other parents or anyone on what I can do to try to

> make her feel better. Is

> there a special diet that could help or should I

> take her to her back to the

> doctor? She is also experiencing some depression

> over how unfair it is for

> her to have this problem. She also has hypercalcuira

> which is the disorder

> that causes you to form kidney stones. Sorry to

> ramble on just wanted to know

> if any of you had any advice. Thanks Debbie

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hey Debbie,

My daughter Jackie is 12. We have her on a very low

fat diet...she does eat carbohdrates and needs to

loose weight. In which we continually try...but her

pain has been daily and not good for 6 months or so

now. She has probably 15 grams a fat a day.. somedays

a little more somedays a little less. If you need to

talk my email is SweteT@... and Jackie would

love to email to you or your daughter. I hope she

gets better soon...let us know how she is.

Talk to ya soon,

--- dkdemlow@... wrote:

> I have posted in the past but mostly just read other

> posts. My daughter (9

> years old) was diagnosed with hereditary

> pancreatitis in May and was also

> hospitalized for pancreatitis in Sept. She was in

> for 9 days came home on

> TPN for a week because she couldn't eat. She hasn't

> seemed to gotten back to

> herself yet. She experiences nausea and mild pain

> intermittently. She just

> doesn't seem to feel good a lot and is really pale.

> I and other members of my

> family (mom, sister and my other 7 year old daughter

> were also tested and

> also have the gene for hereditary pancreatitis. My

> sister has chronic

> pancreatitis and I also have had several bouts.

> Just wanted some advice from

> other parents or anyone on what I can do to try to

> make her feel better. Is

> there a special diet that could help or should I

> take her to her back to the

> doctor? She is also experiencing some depression

> over how unfair it is for

> her to have this problem. She also has hypercalcuira

> which is the disorder

> that causes you to form kidney stones. Sorry to

> ramble on just wanted to know

> if any of you had any advice. Thanks Debbie

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Debbie,

there is some evidence that people with chronic pancreatitis are

antioxidant deficient and England developed an antioxitant therapy. It's

controversial because those studies replicated in the US didn't work.

Some say that because of we synthesize all our products it doesn't work

fully. I'm looking into taking the antioxidant stuff myself because I'm

always tired. See, England doesn't sythesize their herbs, they take the

actual plant and boil it down, extract or whatever they have to do to

the plant to remove the appropriate herb,mineral etc. they want. It's

expensive though, about $125 a month US money. I have a file here

somewhere on it or you could ask Debs in New Zealand to forward the

information since she's taking the stuff and is having good success with

it.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

[Guest guest]

Debbie,

there is some evidence that people with chronic pancreatitis are

antioxidant deficient and England developed an antioxitant therapy. It's

controversial because those studies replicated in the US didn't work.

Some say that because of we synthesize all our products it doesn't work

fully. I'm looking into taking the antioxidant stuff myself because I'm

always tired. See, England doesn't sythesize their herbs, they take the

actual plant and boil it down, extract or whatever they have to do to

the plant to remove the appropriate herb,mineral etc. they want. It's

expensive though, about $125 a month US money. I have a file here

somewhere on it or you could ask Debs in New Zealand to forward the

information since she's taking the stuff and is having good success with

it.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

[Guest guest]

Debbie,

there is some evidence that people with chronic pancreatitis are

antioxidant deficient and England developed an antioxitant therapy. It's

controversial because those studies replicated in the US didn't work.

Some say that because of we synthesize all our products it doesn't work

fully. I'm looking into taking the antioxidant stuff myself because I'm

always tired. See, England doesn't sythesize their herbs, they take the

actual plant and boil it down, extract or whatever they have to do to

the plant to remove the appropriate herb,mineral etc. they want. It's

expensive though, about $125 a month US money. I have a file here

somewhere on it or you could ask Debs in New Zealand to forward the

information since she's taking the stuff and is having good success with

it.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

[Guest guest]

hi my name is dot my daughter is krystal she is 16 and has had panc for 4 1/2

years her eynzyms dont go as high as they used to and we have kept her pain

down with her diet ... no more than 6 grams of fat no more than 40 grams of

protein everyday. she takes

creon-viocase-zoloft-ciprohipitad?-allegra-abutarol- and 3 diffrent inhailers

she also now has to use a nebulizer three times a day her lungs are getting

very weak and her muscules are getting weak that is why i havent been online

very much . krystal is not doing very well with her condition but we are

managing her pain with her diet. she still in school we try to keep as much

normalcy to our life as possible.if your child would like to contact krystal

you can use my email address until i set hers up . she has one at school but

i am not sure what it is . sorry for the long letter but i dont get too much

time to answer email very offten but i did today.

we are still here,

dot (walker louisiana)