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Many you probably know this, but as I did not I will pass it along. I had

heard on this list that Tishcon is the best for the Q gel. What I didn't

know is that they only make the gel that goes into the softgel capsules. We

asked Cohen if he felt brand mattered and he told us that it can. He said

that the regulations on supplements is not as stringent so just because it

says 100 mg of CoQ10 you may not actually be getting 100 mg. He also told us

that tishcon makes the gel that suppliers buy and then add other ingredients

to put in their brand of CoQ10 capsules. So I called the makers of ours

(Sam's club brand) and learned that the CoQ10 in it comes from Japan... So I

went to the tishcon website and found many brands of CoQ10 that use the

tishcon Qgel, one of which is rexall sundown available in my local rite

aid!! I had been using that and thought it was a cheap brand and come to

discover it is the best from tishcon...

As this was news to me, I wanted to pass it on to you. Cohen told us it was

best to stick with one brand once we started, esp. when he is checking her

levels each time.

Hope everyone is doing ok. Meg is bouncing back following the Cleveland

trip.

Fondly,

Z

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Many you probably know this, but as I did not I will pass it along. I had

heard on this list that Tishcon is the best for the Q gel. What I didn't

know is that they only make the gel that goes into the softgel capsules. We

asked Cohen if he felt brand mattered and he told us that it can. He said

that the regulations on supplements is not as stringent so just because it

says 100 mg of CoQ10 you may not actually be getting 100 mg. He also told us

that tishcon makes the gel that suppliers buy and then add other ingredients

to put in their brand of CoQ10 capsules. So I called the makers of ours

(Sam's club brand) and learned that the CoQ10 in it comes from Japan... So I

went to the tishcon website and found many brands of CoQ10 that use the

tishcon Qgel, one of which is rexall sundown available in my local rite

aid!! I had been using that and thought it was a cheap brand and come to

discover it is the best from tishcon...

As this was news to me, I wanted to pass it on to you. Cohen told us it was

best to stick with one brand once we started, esp. when he is checking her

levels each time.

Hope everyone is doing ok. Meg is bouncing back following the Cleveland

trip.

Fondly,

Z

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I posted earlier about Tishcon's Q gel being available in a variety of

manufacturers products. Well I have been doing more research and it appears

that it must say " QGel " for it to be in the product. Not all of the CoQ10

products by that company are made by Tishcon. Two of the companies I called

said the CoQ10 was made in Japan. So I checked the Tishcon website and

found an article on their site that says ALL the CoQ10 that we use in

America to make our own softgels comes from Japan. As I can not find QGel in

a 100 mg dose, I am back to the brand I had.

Does anyone seem to notice a difference with different brands?

Thanks,

Z

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I posted earlier about Tishcon's Q gel being available in a variety of

manufacturers products. Well I have been doing more research and it appears

that it must say " QGel " for it to be in the product. Not all of the CoQ10

products by that company are made by Tishcon. Two of the companies I called

said the CoQ10 was made in Japan. So I checked the Tishcon website and

found an article on their site that says ALL the CoQ10 that we use in

America to make our own softgels comes from Japan. As I can not find QGel in

a 100 mg dose, I am back to the brand I had.

Does anyone seem to notice a difference with different brands?

Thanks,

Z

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I posted earlier about Tishcon's Q gel being available in a variety of

manufacturers products. Well I have been doing more research and it appears

that it must say " QGel " for it to be in the product. Not all of the CoQ10

products by that company are made by Tishcon. Two of the companies I called

said the CoQ10 was made in Japan. So I checked the Tishcon website and

found an article on their site that says ALL the CoQ10 that we use in

America to make our own softgels comes from Japan. As I can not find QGel in

a 100 mg dose, I am back to the brand I had.

Does anyone seem to notice a difference with different brands?

Thanks,

Z

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  • 3 weeks later...

Hi ,

I don't think it will matter to much. When Miranda was in the hospital in July for her surgery, she did not get it for well over a week. They were draining everything from her stomach and feeding her with TPN. They gave what drugs they could via IV what was available. While you would not want to continually miss taking it, I don't think a few days will hurt.

-- CoQ10

I ordered more Q-gel from Tischon on Mon a.m. as I was going to be out on Fri. night. Well it never came. It comes ground UPS so I suspect it won't come now until Mon sometime. My question is what happens if you miss 8 doses of your CoQ10? Anything? I didn't know if that was something that mattered so much since it's a supplement and not a prescription. Thanks for your help. Please contact mito-owner with any problems or questions.

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,

Missing a few doses should be fine.

As I am so new to the group I don't know if everyone knows that it is

important for the absorption of CoQ10 that it be in an oil base or taken

with oil.

Warm regards,

Mom to Angel Lily, (susp mito) Red & Ada (healthy! so

far)

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

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,

Missing a few doses should be fine.

As I am so new to the group I don't know if everyone knows that it is

important for the absorption of CoQ10 that it be in an oil base or taken

with oil.

Warm regards,

Mom to Angel Lily, (susp mito) Red & Ada (healthy! so

far)

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

Visit www.juno.com

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,

Missing a few doses should be fine.

As I am so new to the group I don't know if everyone knows that it is

important for the absorption of CoQ10 that it be in an oil base or taken

with oil.

Warm regards,

Mom to Angel Lily, (susp mito) Red & Ada (healthy! so

far)

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

Visit www.juno.com

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While I think this applies to some, it may not to all. I know that I

cannot miss my CoQ10 at all. When I attempted to just cut back, I

lost the sound coming into my cochlear implant and I also know that

one of my daughter's is noticeably affected if she misses one dose.

Follow your body's hints, . If you start to notice the

slightest change, I'd get someone to go to Walmart and pick up the

Sundown brand or to the drugstore to purchase whatever gelcaps are

available there to get you thru until you receive your order. If the

same thing happens again with an order, you'll have them to fall back

on as a temporary supply then as well.

Alice

> Hi ,

> I don't think it will matter to much. When Miranda was in

the

> hospital in July for her surgery, she did not get it for well over

a week.

> They were draining everything from her stomach and feeding her with

TPN.

> They gave what drugs they could via IV what was available. While

you would

> not want to continually miss taking it, I don't think a few days

will hurt.

>

>

>

> -- CoQ10

>

> I ordered more Q-gel from Tischon on Mon a.m. as I was going to be

out on

> Fri. night. Well it never came. It comes ground UPS so I suspect

it won't

> come now until Mon sometime. My question is what happens if you

miss 8

> doses of your CoQ10? Anything? I didn't know if that was

something that

> mattered so much since it's a supplement and not a prescription.

Thanks for

> your help.

>

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While I think this applies to some, it may not to all. I know that I

cannot miss my CoQ10 at all. When I attempted to just cut back, I

lost the sound coming into my cochlear implant and I also know that

one of my daughter's is noticeably affected if she misses one dose.

Follow your body's hints, . If you start to notice the

slightest change, I'd get someone to go to Walmart and pick up the

Sundown brand or to the drugstore to purchase whatever gelcaps are

available there to get you thru until you receive your order. If the

same thing happens again with an order, you'll have them to fall back

on as a temporary supply then as well.

Alice

> Hi ,

> I don't think it will matter to much. When Miranda was in

the

> hospital in July for her surgery, she did not get it for well over

a week.

> They were draining everything from her stomach and feeding her with

TPN.

> They gave what drugs they could via IV what was available. While

you would

> not want to continually miss taking it, I don't think a few days

will hurt.

>

>

>

> -- CoQ10

>

> I ordered more Q-gel from Tischon on Mon a.m. as I was going to be

out on

> Fri. night. Well it never came. It comes ground UPS so I suspect

it won't

> come now until Mon sometime. My question is what happens if you

miss 8

> doses of your CoQ10? Anything? I didn't know if that was

something that

> mattered so much since it's a supplement and not a prescription.

Thanks for

> your help.

>

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Hi :

Not sure if anything truly happens. It just means (at least to

me) that your body doesn't have the "constant" supplement in the system.

Whenever Leah gets sick with throwing up; we discontinue all her supplements

as we feel that can irritate her system more especially on an empty stomach.

We do notice Leah gets a little more tired and pale looking. She

was throwing up again on Thursday (which surprised both my husband and

me). But...she did eventually drink water but not from a bottle but

from a gaterade bottle. But at least we prevented her from another

hosptial stay. And Leah just had her first dose of vitamins after

being off of them for two days. Was wondering though if any one elses

children does this. When Leah gets ill we notice a head bobbing more

with her. And grinding of teeth. She is doing it a little bit

today but not as much as on Thursday and part of Friday. Just curious

on that one. Also she must still have some of the virus in her as

she is coughing every now and then and had some loose bowel movements today.

Her stomach must hurt at times because she is more fussy today than on

Friday.

Nerenhausen mom to Leah

LILQT4U1984@... wrote:

I

ordered more Q-gel from Tischon on Mon a.m. as I was going to be out on

Fri. night. Well it never came. It comes ground UPS so I suspect

it won't come now until Mon sometime. My question is what happens

if you miss 8 doses of your CoQ10? Anything? I didn't know

if that was something that mattered so much since it's a supplement and

not a prescription. Thanks for your help.

Please contact mito-owner

with any problems or questions.

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Share on other sites

Hi :

Not sure if anything truly happens. It just means (at least to

me) that your body doesn't have the "constant" supplement in the system.

Whenever Leah gets sick with throwing up; we discontinue all her supplements

as we feel that can irritate her system more especially on an empty stomach.

We do notice Leah gets a little more tired and pale looking. She

was throwing up again on Thursday (which surprised both my husband and

me). But...she did eventually drink water but not from a bottle but

from a gaterade bottle. But at least we prevented her from another

hosptial stay. And Leah just had her first dose of vitamins after

being off of them for two days. Was wondering though if any one elses

children does this. When Leah gets ill we notice a head bobbing more

with her. And grinding of teeth. She is doing it a little bit

today but not as much as on Thursday and part of Friday. Just curious

on that one. Also she must still have some of the virus in her as

she is coughing every now and then and had some loose bowel movements today.

Her stomach must hurt at times because she is more fussy today than on

Friday.

Nerenhausen mom to Leah

LILQT4U1984@... wrote:

I

ordered more Q-gel from Tischon on Mon a.m. as I was going to be out on

Fri. night. Well it never came. It comes ground UPS so I suspect

it won't come now until Mon sometime. My question is what happens

if you miss 8 doses of your CoQ10? Anything? I didn't know

if that was something that mattered so much since it's a supplement and

not a prescription. Thanks for your help.

Please contact mito-owner

with any problems or questions.

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,

When Audrey gets ill she is more shaky than usual, not just her head.

Also, she grinds her teeth a lot but we all just thought is was to her

trying to get some more teeth. Is the teeth grinding a part of the mito

issues?

Audrey did get to come home from the hospital today. She had her G-tube

placed yesterday and did real well with it. Right now she is on

continuous feeds at 30cc per hour and is doing great with it. So far

now reflux and that is a very good thing. Hopefully she will continue

to do well. Also, Amie and Doyle said she seems to have more energy,

moving her arms and legs more and trying to be more verbal. We all pray

this helps.

They are going to see Dr. Cohen in two weeks so they are looking forward

to seeing what he has to say and hopefully get a more definitive

diagnosis.

I hope Leah is doing better today.

God Bless to all,

Kathy, grandma to Audrey, 16mos

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,

When Audrey gets ill she is more shaky than usual, not just her head.

Also, she grinds her teeth a lot but we all just thought is was to her

trying to get some more teeth. Is the teeth grinding a part of the mito

issues?

Audrey did get to come home from the hospital today. She had her G-tube

placed yesterday and did real well with it. Right now she is on

continuous feeds at 30cc per hour and is doing great with it. So far

now reflux and that is a very good thing. Hopefully she will continue

to do well. Also, Amie and Doyle said she seems to have more energy,

moving her arms and legs more and trying to be more verbal. We all pray

this helps.

They are going to see Dr. Cohen in two weeks so they are looking forward

to seeing what he has to say and hopefully get a more definitive

diagnosis.

I hope Leah is doing better today.

God Bless to all,

Kathy, grandma to Audrey, 16mos

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,

When Audrey gets ill she is more shaky than usual, not just her head.

Also, she grinds her teeth a lot but we all just thought is was to her

trying to get some more teeth. Is the teeth grinding a part of the mito

issues?

Audrey did get to come home from the hospital today. She had her G-tube

placed yesterday and did real well with it. Right now she is on

continuous feeds at 30cc per hour and is doing great with it. So far

now reflux and that is a very good thing. Hopefully she will continue

to do well. Also, Amie and Doyle said she seems to have more energy,

moving her arms and legs more and trying to be more verbal. We all pray

this helps.

They are going to see Dr. Cohen in two weeks so they are looking forward

to seeing what he has to say and hopefully get a more definitive

diagnosis.

I hope Leah is doing better today.

God Bless to all,

Kathy, grandma to Audrey, 16mos

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My experience and my son's is the same as Alice's. We notice a difference

if we skip only one day.

cara

CoQ10

>

> I ordered more Q-gel from Tischon on Mon a.m. as I was going to be

out on

> Fri. night. Well it never came. It comes ground UPS so I suspect

it won't

> come now until Mon sometime. My question is what happens if you

miss 8

> doses of your CoQ10? Anything? I didn't know if that was

something that

> mattered so much since it's a supplement and not a prescription.

Thanks for

> your help.

>

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My experience and my son's is the same as Alice's. We notice a difference

if we skip only one day.

cara

CoQ10

>

> I ordered more Q-gel from Tischon on Mon a.m. as I was going to be

out on

> Fri. night. Well it never came. It comes ground UPS so I suspect

it won't

> come now until Mon sometime. My question is what happens if you

miss 8

> doses of your CoQ10? Anything? I didn't know if that was

something that

> mattered so much since it's a supplement and not a prescription.

Thanks for

> your help.

>

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My experience and my son's is the same as Alice's. We notice a difference

if we skip only one day.

cara

CoQ10

>

> I ordered more Q-gel from Tischon on Mon a.m. as I was going to be

out on

> Fri. night. Well it never came. It comes ground UPS so I suspect

it won't

> come now until Mon sometime. My question is what happens if you

miss 8

> doses of your CoQ10? Anything? I didn't know if that was

something that

> mattered so much since it's a supplement and not a prescription.

Thanks for

> your help.

>

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My 2 cents;

My kids and i both need to take CoQ on a consistent basis - skipping a day is not good for us but I am sure it is quite individual and depends if you have a coQ deficieny to begin with. We do.

re: skipping when ill. The literature shows that illness depletes the body's CoQ blood levels. Whether that translates into a tissue depletion no one seems to be able to answer. However, assuming the blood level refelctas the tissue level - the last thing I want is to deplete my kids levels even further when they are ill. Obviously if your child can't tolerate CoQ when ill then the lesser of 2 evils is not to make them throw up by giving it. But if my kids can tolerate it - it is one of the meds I most worry about getting into them. Even with getting it my son's levels have been low when ill - I'd hate to see the levels if he was not getting it.

Anne

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My 2 cents;

My kids and i both need to take CoQ on a consistent basis - skipping a day is not good for us but I am sure it is quite individual and depends if you have a coQ deficieny to begin with. We do.

re: skipping when ill. The literature shows that illness depletes the body's CoQ blood levels. Whether that translates into a tissue depletion no one seems to be able to answer. However, assuming the blood level refelctas the tissue level - the last thing I want is to deplete my kids levels even further when they are ill. Obviously if your child can't tolerate CoQ when ill then the lesser of 2 evils is not to make them throw up by giving it. But if my kids can tolerate it - it is one of the meds I most worry about getting into them. Even with getting it my son's levels have been low when ill - I'd hate to see the levels if he was not getting it.

Anne

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My 2 cents;

My kids and i both need to take CoQ on a consistent basis - skipping a day is not good for us but I am sure it is quite individual and depends if you have a coQ deficieny to begin with. We do.

re: skipping when ill. The literature shows that illness depletes the body's CoQ blood levels. Whether that translates into a tissue depletion no one seems to be able to answer. However, assuming the blood level refelctas the tissue level - the last thing I want is to deplete my kids levels even further when they are ill. Obviously if your child can't tolerate CoQ when ill then the lesser of 2 evils is not to make them throw up by giving it. But if my kids can tolerate it - it is one of the meds I most worry about getting into them. Even with getting it my son's levels have been low when ill - I'd hate to see the levels if he was not getting it.

Anne

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