Re: TO: Amy and all Advisory Board..........not interested.

[Guest guest]

Dont hold back Kaye... tell them what you really think..but I do agree with

you.. I have had it since May... and the doctors I have been to said just get

use to the discomfort... no pain meds....Louis

Kaye wrote: To all:

I have been reading Amy 's letter to Terry concerning the

organization of an advisory board? I am not sure what an advisory

board does, who usually serves on these kinds of boards etc. But,

you all know me and know that I am not shy about voicing my opinion

so here goes! I am sorry if I ruffle some feathers, that is not my

intention but I will state my opinion anyway.

I think that if this advisory board is made up of anyone who has not

had this disease then it is worthless! We who have this disease are

fighting " tooth and nail " to be recognized and get the medical

profession to understand and " GET IT. " I do not feel that anyone on

a board who has not suffered this disease can do us any good

whatsoever. I feel that if a board is made up of " health care

professionals and doctors etc " that it is totally useless. They

haven't helped any of us so far why would a whole board be any

different? I feel that at that point we have put ourselves and our

group right back to square one! Since this association

is " international " and has the potential of becoming very large and

serving a very large population, I think this board could have the

potential of " dictating " the standard of care etc. etc. and

ultimately doing more harm than good.

If this board is made up of people who actually have the disease, not

family, not loved ones and not caregivers but those of us who have it

an suffer with it, I feel it can do so much good!

As for myself if an advisory board is put together of folks in the

medical profession, and those who have never felt the effects of this

disease, then speaking for myself, I will resign from my post as a

chapter representative. I do not want any part of that kind of a

board.

I know that sounds really mean and in no way do I mean it to be but

after working so hard and talking to so many people to have

a " board " come in to advise or what ever on a disease they have never

felt, to me is an insult! There I have said it!

Also, what does this " pain management " consultant actually do? Pain

management docs have the potential to be " wonderful " but they are

still ruled by the AMA etc and their rules and laws and sometimes

they just don't help. I just don't want one person setting some kind

of " standard " in the treatment of pancreatitis. We are all different

and how are disease manifests is different. We all know we don't fit

into the " mold " of pancreatitis and we are trying to hard to get that

mind set changed!

I would love to hear some feedback. If I am off base, tell me and I

hope I am but this is the way I see it!

Take care all

Kaye Fortenberry

kfortenb@...

North Carolina Chapter Rep

Pancreatitis Association International

> 1. When did our group get a pain consultant,Dr.Lievertz and what is

> his function regarding the group?

> 2.Who decided we needed an Advisory Board and why?

> 3.What will their function here be and what duties will they have?

>

> Part of what I like so much about this group is the ability to

speak

> freely about doctors and treatments,as well as my feelings about

this

> disease with others who have the same disease without outside

> interference. We need the ability to speak freely or the purpose of

> this group changes from what it is now,which is a place we can go

to

> vent or ask advice from others with CP or to just be there for each

> other in confidence,without people who don't have the disease or a

> loved one with the disease looking over our shoulders.

> I hope that doesn't change.Support groups that are run by those who

> don't suffer from the disease do not have the success that we have.

> I already talk to professionals about my disease. I want to talk

and

> share with people like me who actually have it or have a loved one

> with

> it,because they are the only ones who TRULY understand.

>

[Guest guest]

Dont hold back Kaye... tell them what you really think..but I do agree with

you.. I have had it since May... and the doctors I have been to said just get

use to the discomfort... no pain meds....Louis

Kaye wrote: To all:

I have been reading Amy 's letter to Terry concerning the

organization of an advisory board? I am not sure what an advisory

board does, who usually serves on these kinds of boards etc. But,

you all know me and know that I am not shy about voicing my opinion

so here goes! I am sorry if I ruffle some feathers, that is not my

intention but I will state my opinion anyway.

I think that if this advisory board is made up of anyone who has not

had this disease then it is worthless! We who have this disease are

fighting " tooth and nail " to be recognized and get the medical

profession to understand and " GET IT. " I do not feel that anyone on

a board who has not suffered this disease can do us any good

whatsoever. I feel that if a board is made up of " health care

professionals and doctors etc " that it is totally useless. They

haven't helped any of us so far why would a whole board be any

different? I feel that at that point we have put ourselves and our

group right back to square one! Since this association

is " international " and has the potential of becoming very large and

serving a very large population, I think this board could have the

potential of " dictating " the standard of care etc. etc. and

ultimately doing more harm than good.

If this board is made up of people who actually have the disease, not

family, not loved ones and not caregivers but those of us who have it

an suffer with it, I feel it can do so much good!

As for myself if an advisory board is put together of folks in the

medical profession, and those who have never felt the effects of this

disease, then speaking for myself, I will resign from my post as a

chapter representative. I do not want any part of that kind of a

board.

I know that sounds really mean and in no way do I mean it to be but

after working so hard and talking to so many people to have

a " board " come in to advise or what ever on a disease they have never

felt, to me is an insult! There I have said it!

Also, what does this " pain management " consultant actually do? Pain

management docs have the potential to be " wonderful " but they are

still ruled by the AMA etc and their rules and laws and sometimes

they just don't help. I just don't want one person setting some kind

of " standard " in the treatment of pancreatitis. We are all different

and how are disease manifests is different. We all know we don't fit

into the " mold " of pancreatitis and we are trying to hard to get that

mind set changed!

I would love to hear some feedback. If I am off base, tell me and I

hope I am but this is the way I see it!

Take care all

Kaye Fortenberry

kfortenb@...

North Carolina Chapter Rep

Pancreatitis Association International

> 1. When did our group get a pain consultant,Dr.Lievertz and what is

> his function regarding the group?

> 2.Who decided we needed an Advisory Board and why?

> 3.What will their function here be and what duties will they have?

>

> Part of what I like so much about this group is the ability to

speak

> freely about doctors and treatments,as well as my feelings about

this

> disease with others who have the same disease without outside

> interference. We need the ability to speak freely or the purpose of

> this group changes from what it is now,which is a place we can go

to

> vent or ask advice from others with CP or to just be there for each

> other in confidence,without people who don't have the disease or a

> loved one with the disease looking over our shoulders.

> I hope that doesn't change.Support groups that are run by those who

> don't suffer from the disease do not have the success that we have.

> I already talk to professionals about my disease. I want to talk

and

> share with people like me who actually have it or have a loved one

> with

> it,because they are the only ones who TRULY understand.

>

[Guest guest]

Kaye,

I wanted to let you know I agree completely with you! See, the way I

would have handled this is, I would have read the post, then forgot

about it, and never reacted to the post at all. Thanks for being YOU!

Lots of Hugs,

~~~~~~~~~~~~~~~~~~~~~~~~

Lawson

Liamhoha20@...

Pancreatitis Assoc., Int'l.

Ohio State Chapter Co-Rep.

~~~~~~~~~~~~~~~~~~~~~~~~~

To all:

I have been reading Amy 's letter to Terry concerning the

organization of an advisory board? I am not sure what an advisory

board does, who usually serves on these kinds of boards etc. I think

that if this advisory board is made up of anyone who has not had this

disease then it is worthless! We who have this disease are

fighting " tooth and nail " to be recognized and get the medical

profession to understand and " GET IT. " I do not feel that anyone on

a board who has not suffered this disease can do us any good

whatsoever. I feel that if a board is made up of " health care

professionals and doctors etc " that it is totally useless.

Take care all

Kaye Fortenberry

kfortenb@b...

North Carolina Chapter Rep

Pancreatitis Association International

[Guest guest]

Kaye,

the point of having an Advisory Board of that includes people of the

medical community is that it enables us to talk more clearly and get

more support from the medical community. Now, I went to the Symposium in

Indiana and Dr. Lievertz was there. He is Karyn (the founders) personal

pain management physician. He is the one of the doctors trying to teach

PROPER pain management (not the no-pain meds treatment, but to use

medications that actually take care of the pain treatment)for people who

have serious chronic pain and make sure they get the pain medication

that they need. He gave a wonderful talk and answered all our questions

(if you order the tape, you'll get to hear the whole talk, it was

wonderful). Dr. Lievertz is the kind of doctor we NEED to have on our

side. He's the kind of doctor that feels a patient should be treated as

a whole, and that doctor's shouldn't work only in their own little

corner of medicine. He's willing to learn from anyone and that includes

non-physicians.

Karyn's vision is to make this group into more than just a support

group, but one equal to the American Cancer Association and the American

Diabetes Association but on an international level, both of which have

doctors on their advisory board. I agree that we should have people on

the board who suffer from this disease to bring that perspective to the

board, but we also need to have doctors on there as well. Sorry to say,

but if we don't this group will NEVER get the support from the medical

community that we need to get this group where Karyn wants it to go.

Sorry, but many doctors do not respect people who are not physicians and

it only adds to our power to have physicians on our side, not alienate

them. I'm sorry you feel you cannot work with a physician who only has

our best interests at heart and has shown so by his compassionate and

good care of our founder. What Karyn is trying to do is find more

physicians like Dr. Lievertz who are willing to work with us to get the

power to change how we are treated by many physician and correct their

mistreatment.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

[Guest guest]

Kaye,

the point of having an Advisory Board of that includes people of the

medical community is that it enables us to talk more clearly and get

more support from the medical community. Now, I went to the Symposium in

Indiana and Dr. Lievertz was there. He is Karyn (the founders) personal

pain management physician. He is the one of the doctors trying to teach

PROPER pain management (not the no-pain meds treatment, but to use

medications that actually take care of the pain treatment)for people who

have serious chronic pain and make sure they get the pain medication

that they need. He gave a wonderful talk and answered all our questions

(if you order the tape, you'll get to hear the whole talk, it was

wonderful). Dr. Lievertz is the kind of doctor we NEED to have on our

side. He's the kind of doctor that feels a patient should be treated as

a whole, and that doctor's shouldn't work only in their own little

corner of medicine. He's willing to learn from anyone and that includes

non-physicians.

Karyn's vision is to make this group into more than just a support

group, but one equal to the American Cancer Association and the American

Diabetes Association but on an international level, both of which have

doctors on their advisory board. I agree that we should have people on

the board who suffer from this disease to bring that perspective to the

board, but we also need to have doctors on there as well. Sorry to say,

but if we don't this group will NEVER get the support from the medical

community that we need to get this group where Karyn wants it to go.

Sorry, but many doctors do not respect people who are not physicians and

it only adds to our power to have physicians on our side, not alienate

them. I'm sorry you feel you cannot work with a physician who only has

our best interests at heart and has shown so by his compassionate and

good care of our founder. What Karyn is trying to do is find more

physicians like Dr. Lievertz who are willing to work with us to get the

power to change how we are treated by many physician and correct their

mistreatment.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

[Guest guest]

Do I hear an amen? TTFN,

Re: TO: Amy and all Advisory Board..........not

interested.

> Kaye,

> the point of having an Advisory Board of that includes people of the

> medical community is that it enables us to talk more clearly and get

> more support from the medical community. Now, I went to the Symposium in

> Indiana and Dr. Lievertz was there. He is Karyn (the founders) personal

> pain management physician. He is the one of the doctors trying to teach

> PROPER pain management (not the no-pain meds treatment, but to use

> medications that actually take care of the pain treatment)for people who

> have serious chronic pain and make sure they get the pain medication

> that they need. He gave a wonderful talk and answered all our questions

> (if you order the tape, you'll get to hear the whole talk, it was

> wonderful). Dr. Lievertz is the kind of doctor we NEED to have on our

> side. He's the kind of doctor that feels a patient should be treated as

> a whole, and that doctor's shouldn't work only in their own little

> corner of medicine. He's willing to learn from anyone and that includes

> non-physicians.

>

> Karyn's vision is to make this group into more than just a support

> group, but one equal to the American Cancer Association and the American

> Diabetes Association but on an international level, both of which have

> doctors on their advisory board. I agree that we should have people on

> the board who suffer from this disease to bring that perspective to the

> board, but we also need to have doctors on there as well. Sorry to say,

> but if we don't this group will NEVER get the support from the medical

> community that we need to get this group where Karyn wants it to go.

> Sorry, but many doctors do not respect people who are not physicians and

> it only adds to our power to have physicians on our side, not alienate

> them. I'm sorry you feel you cannot work with a physician who only has

> our best interests at heart and has shown so by his compassionate and

> good care of our founder. What Karyn is trying to do is find more

> physicians like Dr. Lievertz who are willing to work with us to get the

> power to change how we are treated by many physician and correct their

> mistreatment.

> Kimber

>

> --

>

>

>

>

> Kimber

>

> hominid2@...

>

> California State Chapter Representative

>

> Pancreatitis Association, International

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

PancreatitisYahoogroups

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribeYahoogroups

>

>

[Guest guest]

Do I hear an amen? TTFN,

Re: TO: Amy and all Advisory Board..........not

interested.

> Kaye,

> the point of having an Advisory Board of that includes people of the

> medical community is that it enables us to talk more clearly and get

> more support from the medical community. Now, I went to the Symposium in

> Indiana and Dr. Lievertz was there. He is Karyn (the founders) personal

> pain management physician. He is the one of the doctors trying to teach

> PROPER pain management (not the no-pain meds treatment, but to use

> medications that actually take care of the pain treatment)for people who

> have serious chronic pain and make sure they get the pain medication

> that they need. He gave a wonderful talk and answered all our questions

> (if you order the tape, you'll get to hear the whole talk, it was

> wonderful). Dr. Lievertz is the kind of doctor we NEED to have on our

> side. He's the kind of doctor that feels a patient should be treated as

> a whole, and that doctor's shouldn't work only in their own little

> corner of medicine. He's willing to learn from anyone and that includes

> non-physicians.

>

> Karyn's vision is to make this group into more than just a support

> group, but one equal to the American Cancer Association and the American

> Diabetes Association but on an international level, both of which have

> doctors on their advisory board. I agree that we should have people on

> the board who suffer from this disease to bring that perspective to the

> board, but we also need to have doctors on there as well. Sorry to say,

> but if we don't this group will NEVER get the support from the medical

> community that we need to get this group where Karyn wants it to go.

> Sorry, but many doctors do not respect people who are not physicians and

> it only adds to our power to have physicians on our side, not alienate

> them. I'm sorry you feel you cannot work with a physician who only has

> our best interests at heart and has shown so by his compassionate and

> good care of our founder. What Karyn is trying to do is find more

> physicians like Dr. Lievertz who are willing to work with us to get the

> power to change how we are treated by many physician and correct their

> mistreatment.

> Kimber

>

> --

>

>

>

>

> Kimber

>

> hominid2@...

>

> California State Chapter Representative

>

> Pancreatitis Association, International

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

PancreatitisYahoogroups

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribeYahoogroups

>

>

[Guest guest]

Do I hear an amen? TTFN,

Re: TO: Amy and all Advisory Board..........not

interested.

> Kaye,

> the point of having an Advisory Board of that includes people of the

> medical community is that it enables us to talk more clearly and get

> more support from the medical community. Now, I went to the Symposium in

> Indiana and Dr. Lievertz was there. He is Karyn (the founders) personal

> pain management physician. He is the one of the doctors trying to teach

> PROPER pain management (not the no-pain meds treatment, but to use

> medications that actually take care of the pain treatment)for people who

> have serious chronic pain and make sure they get the pain medication

> that they need. He gave a wonderful talk and answered all our questions

> (if you order the tape, you'll get to hear the whole talk, it was

> wonderful). Dr. Lievertz is the kind of doctor we NEED to have on our

> side. He's the kind of doctor that feels a patient should be treated as

> a whole, and that doctor's shouldn't work only in their own little

> corner of medicine. He's willing to learn from anyone and that includes

> non-physicians.

>

> Karyn's vision is to make this group into more than just a support

> group, but one equal to the American Cancer Association and the American

> Diabetes Association but on an international level, both of which have

> doctors on their advisory board. I agree that we should have people on

> the board who suffer from this disease to bring that perspective to the

> board, but we also need to have doctors on there as well. Sorry to say,

> but if we don't this group will NEVER get the support from the medical

> community that we need to get this group where Karyn wants it to go.

> Sorry, but many doctors do not respect people who are not physicians and

> it only adds to our power to have physicians on our side, not alienate

> them. I'm sorry you feel you cannot work with a physician who only has

> our best interests at heart and has shown so by his compassionate and

> good care of our founder. What Karyn is trying to do is find more

> physicians like Dr. Lievertz who are willing to work with us to get the

> power to change how we are treated by many physician and correct their

> mistreatment.

> Kimber

>

> --

>

>

>

>

> Kimber

>

> hominid2@...

>

> California State Chapter Representative

>

> Pancreatitis Association, International

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

PancreatitisYahoogroups

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribeYahoogroups

>

>

[Guest guest]

Dear Mark,

I couldn't agree more. There is enough strife in our daily lives,we

don't need to be bogged down more than we already are.

Amy

-- In pancreatitis@y..., " Mark E. Armstrong " <casca@b...> wrote:

> Let me state this to the group. We all have opinions. That is why

everyone

> is so valuable. Please make sure that if you are going to be

critical of

> someone you take care as not to sound to harsh. If you don't

agree. leave

> it be. There are many times that I don't agree with people. It

doesn't

> mean that they are wrong or that I am right. We are just seeing

things

> differently. Dissent or not, there is no reason to be nasty to

anyone on

> this board. Many times we are focused on our own pain and forget

that

> others also suffer. Be supportive. Be forthright in your

convictions. But

> above all, be respectful. Just some thoughts of mine

>

> If I can ever do anything at all for any of you, please let me know

>

> I hope this finds you and yours well

>

> Mark E. Armstrong

> www.top5plus5.com

> Oregon State Chapter Rep

> Pancreatitis Association, International

> Re: TO: Amy and all Advisory

Board..........not

> interested.

>

>

> > Dear Kaye and all,

> > I also didn't understand the original purpose of the board and the

> > direction it was taking. It rather took me by surprise because it

was

> > suddenly being brought up and I'd never heard of it before.

> > I joined Kaye in questioning what was going on,so she shouldn't

take

> > the heat for all of it. It is wrong to criticize only her for

saying

> > something. I am equally responsible for voicing dissent.

> > Like Kaye, I too came to a different opinion after reading Tull's

> > post about it. Kaye supported the measures after a full

> > explanation,as did I.

> > I hope no one else writes to Kaye just to criticize her without

> > knowing the full story.

> > It's easy to get backed up and read old posts first and write

> > responses before reading the more current ones.I've been guilty of

> > that and try not to do it anymore.

> > I hope this clears things up a little.

> > Your friend,

> > Amy

> >

> >

> >

> >

> > > > Kaye,

> > > > the point of having an Advisory Board of that includes people

of

> > the

> > > > medical community is that it enables us to talk more clearly

and

> > get

> > > > more support from the medical community. Now, I went to the

> > > Symposium in

> > > > Indiana and Dr. Lievertz was there. He is Karyn (the founders)

> > > personal

> > > > pain management physician. He is the one of the doctors

trying to

> > > teach

> > > > PROPER pain management (not the no-pain meds treatment, but

to

> > use

> > > > medications that actually take care of the pain treatment)for

> > > people who

> > > > have serious chronic pain and make sure they get the pain

> > medication

> > > > that they need. He gave a wonderful talk and answered all our

> > > questions

> > > > (if you order the tape, you'll get to hear the whole talk, it

was

> > > > wonderful). Dr. Lievertz is the kind of doctor we NEED to

have on

> > > our

> > > > side. He's the kind of doctor that feels a patient should be

> > > treated as

> > > > a whole, and that doctor's shouldn't work only in their own

little

> > > > corner of medicine. He's willing to learn from anyone and that

> > > includes

> > > > non-physicians.

> > > >

> > > > Karyn's vision is to make this group into more than just a

support

> > > > group, but one equal to the American Cancer Association and

the

> > > American

> > > > Diabetes Association but on an international level, both of

which

> > > have

> > > > doctors on their advisory board. I agree that we should have

> > people

> > > on

> > > > the board who suffer from this disease to bring that

perspective

> > to

> > > the

> > > > board, but we also need to have doctors on there as well.

Sorry

> > to

> > > say,

> > > > but if we don't this group will NEVER get the support from the

> > > medical

> > > > community that we need to get this group where Karyn wants it

to

> > go.

> > > > Sorry, but many doctors do not respect people who are not

> > > physicians and

> > > > it only adds to our power to have physicians on our side, not

> > > alienate

> > > > them. I'm sorry you feel you cannot work with a physician who

> > only

> > > has

> > > > our best interests at heart and has shown so by his

compassionate

> > > and

> > > > good care of our founder. What Karyn is trying to do is find

more

> > > > physicians like Dr. Lievertz who are willing to work with us

to

> > get

> > > the

> > > > power to change how we are treated by many physician and

correct

> > > their

> > > > mistreatment.

> > > > Kimber

> > > >

> > > > --

> > > >

> > > >

> > > >

> > > >

> > > > Kimber

> > > >

> > > > hominid2@c...

> > > >

> > > > California State Chapter Representative

> > > >

> > > > Pancreatitis Association, International

> >

> >

> >

> > PANCREATITIS Association, Intl.

> > Online e-mail group

> >

> > To reply to this message hit " reply " or send an e-mail to:

> Pancreatitis@Y...

> >

> > To subscribe to this e-mail group, simply send an e-mail to:

> Pancreatitis-subscribe@Y...

> >

> >

[Guest guest]

Dear Mark,

I couldn't agree more. There is enough strife in our daily lives,we

don't need to be bogged down more than we already are.

Amy

-- In pancreatitis@y..., " Mark E. Armstrong " <casca@b...> wrote:

> Let me state this to the group. We all have opinions. That is why

everyone

> is so valuable. Please make sure that if you are going to be

critical of

> someone you take care as not to sound to harsh. If you don't

agree. leave

> it be. There are many times that I don't agree with people. It

doesn't

> mean that they are wrong or that I am right. We are just seeing

things

> differently. Dissent or not, there is no reason to be nasty to

anyone on

> this board. Many times we are focused on our own pain and forget

that

> others also suffer. Be supportive. Be forthright in your

convictions. But

> above all, be respectful. Just some thoughts of mine

>

> If I can ever do anything at all for any of you, please let me know

>

> I hope this finds you and yours well

>

> Mark E. Armstrong

> www.top5plus5.com

> Oregon State Chapter Rep

> Pancreatitis Association, International

> Re: TO: Amy and all Advisory

Board..........not

> interested.

>

>

> > Dear Kaye and all,

> > I also didn't understand the original purpose of the board and the

> > direction it was taking. It rather took me by surprise because it

was

> > suddenly being brought up and I'd never heard of it before.

> > I joined Kaye in questioning what was going on,so she shouldn't

take

> > the heat for all of it. It is wrong to criticize only her for

saying

> > something. I am equally responsible for voicing dissent.

> > Like Kaye, I too came to a different opinion after reading Tull's

> > post about it. Kaye supported the measures after a full

> > explanation,as did I.

> > I hope no one else writes to Kaye just to criticize her without

> > knowing the full story.

> > It's easy to get backed up and read old posts first and write

> > responses before reading the more current ones.I've been guilty of

> > that and try not to do it anymore.

> > I hope this clears things up a little.

> > Your friend,

> > Amy

> >

> >

> >

> >

> > > > Kaye,

> > > > the point of having an Advisory Board of that includes people

of

> > the

> > > > medical community is that it enables us to talk more clearly

and

> > get

> > > > more support from the medical community. Now, I went to the

> > > Symposium in

> > > > Indiana and Dr. Lievertz was there. He is Karyn (the founders)

> > > personal

> > > > pain management physician. He is the one of the doctors

trying to

> > > teach

> > > > PROPER pain management (not the no-pain meds treatment, but

to

> > use

> > > > medications that actually take care of the pain treatment)for

> > > people who

> > > > have serious chronic pain and make sure they get the pain

> > medication

> > > > that they need. He gave a wonderful talk and answered all our

> > > questions

> > > > (if you order the tape, you'll get to hear the whole talk, it

was

> > > > wonderful). Dr. Lievertz is the kind of doctor we NEED to

have on

> > > our

> > > > side. He's the kind of doctor that feels a patient should be

> > > treated as

> > > > a whole, and that doctor's shouldn't work only in their own

little

> > > > corner of medicine. He's willing to learn from anyone and that

> > > includes

> > > > non-physicians.

> > > >

> > > > Karyn's vision is to make this group into more than just a

support

> > > > group, but one equal to the American Cancer Association and

the

> > > American

> > > > Diabetes Association but on an international level, both of

which

> > > have

> > > > doctors on their advisory board. I agree that we should have

> > people

> > > on

> > > > the board who suffer from this disease to bring that

perspective

> > to

> > > the

> > > > board, but we also need to have doctors on there as well.

Sorry

> > to

> > > say,

> > > > but if we don't this group will NEVER get the support from the

> > > medical

> > > > community that we need to get this group where Karyn wants it

to

> > go.

> > > > Sorry, but many doctors do not respect people who are not

> > > physicians and

> > > > it only adds to our power to have physicians on our side, not

> > > alienate

> > > > them. I'm sorry you feel you cannot work with a physician who

> > only

> > > has

> > > > our best interests at heart and has shown so by his

compassionate

> > > and

> > > > good care of our founder. What Karyn is trying to do is find

more

> > > > physicians like Dr. Lievertz who are willing to work with us

to

> > get

> > > the

> > > > power to change how we are treated by many physician and

correct

> > > their

> > > > mistreatment.

> > > > Kimber

> > > >

> > > > --

> > > >

> > > >

> > > >

> > > >

> > > > Kimber

> > > >

> > > > hominid2@c...

> > > >

> > > > California State Chapter Representative

> > > >

> > > > Pancreatitis Association, International

> >

> >

> >

> > PANCREATITIS Association, Intl.

> > Online e-mail group

> >

> > To reply to this message hit " reply " or send an e-mail to:

> Pancreatitis@Y...

> >

> > To subscribe to this e-mail group, simply send an e-mail to:

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> >

> >