Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 My son had a couple ABRs but they didn't have to put him under general anethesia. They used an oral sedative to put him in a deep sleep. It worked well. Perhaps they're not doing that because of his age? had his ABRs in the first year of his life. He did have general anethesia for his CI surgery and we were lucky that was first thing in the morning so we didn't have to keep him from the food and drink too long. I would suggest just varying the routine that day to distract him. If you usually get up and eat breakfast then maybe instead go for a walk or drive to the mall or do something to keep him busy and not thinking about food. Does he like a pacifier? That might keep his mouth busy. Kearns 's mom, 2 yrs old, CI 7/30/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 My son had a couple ABRs but they didn't have to put him under general anethesia. They used an oral sedative to put him in a deep sleep. It worked well. Perhaps they're not doing that because of his age? had his ABRs in the first year of his life. He did have general anethesia for his CI surgery and we were lucky that was first thing in the morning so we didn't have to keep him from the food and drink too long. I would suggest just varying the routine that day to distract him. If you usually get up and eat breakfast then maybe instead go for a walk or drive to the mall or do something to keep him busy and not thinking about food. Does he like a pacifier? That might keep his mouth busy. Kearns 's mom, 2 yrs old, CI 7/30/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 My son had a couple ABRs but they didn't have to put him under general anethesia. They used an oral sedative to put him in a deep sleep. It worked well. Perhaps they're not doing that because of his age? had his ABRs in the first year of his life. He did have general anethesia for his CI surgery and we were lucky that was first thing in the morning so we didn't have to keep him from the food and drink too long. I would suggest just varying the routine that day to distract him. If you usually get up and eat breakfast then maybe instead go for a walk or drive to the mall or do something to keep him busy and not thinking about food. Does he like a pacifier? That might keep his mouth busy. Kearns 's mom, 2 yrs old, CI 7/30/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 , I completely understand your fears. If this helps at all, my son is 2 1/2 now and has had two ABR in Cinn.(2 hours away from us). Plus they tried to do the first one with just giving him a sedative, it didn't work. My son did great going under, I will tell you the first time it is hard to watch (if they allow you in the room). However, it was well worth it, to know for sure what level he was hearing at. As for suggestions on making him comfortable, what I did was keep my son up for as long as he could stand it, so that he could actually eat past his normal time. His normal bed time is around 8, so around 10 he was hungry again. Then the next morning (which is the hardest) I made sure not to drink or eat anything in front of him (I actually didn't eat or drink anything either, I felt it was only fair). Although my son was somewhat crabby during the drive he was fine before we left and once we arrived. I should tell you though he hates riding in the car. Yes, if the anthes. thinks it is not safe, he will not do it. They will do a short physical before the actual ABR, to check lungs, heart, etc. They are actually very careful. I hope this helps.. Cyndi two sons 14 and 2 1/2 progressive profound nervous about ABR We went ahead with our third opinion, and Sam (18months) is having an ABR done tomorrow morning at the Cleveland Clinic. I'm happy that we are moving forward, but now very nervous about the procedure. It will be done under general anesthesia. I'm nervous because of Sam's dramatic medical history (malaria, seizures), lack of medical history (no birth history) and just in general not liking the idea of my baby being under! I'm sure there are many who know what I mean. (The audio told me if the anesthiologist has any doubts about doing the procedure, he won't. That did make me feel better) The no food or drink after midnight rule will be very hard on Sam as well; his nighttime bottles of water are a major comfort for him, and he still throws a major fit if he gets just a little bit hungry (I'm sure because he spent so much of his first year of life very hungry). Any advice on making things easier for him tonight and tomorrow? Thanks, Mom to Gabe, age 4 Sam, 18 months All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 , I completely understand your fears. If this helps at all, my son is 2 1/2 now and has had two ABR in Cinn.(2 hours away from us). Plus they tried to do the first one with just giving him a sedative, it didn't work. My son did great going under, I will tell you the first time it is hard to watch (if they allow you in the room). However, it was well worth it, to know for sure what level he was hearing at. As for suggestions on making him comfortable, what I did was keep my son up for as long as he could stand it, so that he could actually eat past his normal time. His normal bed time is around 8, so around 10 he was hungry again. Then the next morning (which is the hardest) I made sure not to drink or eat anything in front of him (I actually didn't eat or drink anything either, I felt it was only fair). Although my son was somewhat crabby during the drive he was fine before we left and once we arrived. I should tell you though he hates riding in the car. Yes, if the anthes. thinks it is not safe, he will not do it. They will do a short physical before the actual ABR, to check lungs, heart, etc. They are actually very careful. I hope this helps.. Cyndi two sons 14 and 2 1/2 progressive profound nervous about ABR We went ahead with our third opinion, and Sam (18months) is having an ABR done tomorrow morning at the Cleveland Clinic. I'm happy that we are moving forward, but now very nervous about the procedure. It will be done under general anesthesia. I'm nervous because of Sam's dramatic medical history (malaria, seizures), lack of medical history (no birth history) and just in general not liking the idea of my baby being under! I'm sure there are many who know what I mean. (The audio told me if the anesthiologist has any doubts about doing the procedure, he won't. That did make me feel better) The no food or drink after midnight rule will be very hard on Sam as well; his nighttime bottles of water are a major comfort for him, and he still throws a major fit if he gets just a little bit hungry (I'm sure because he spent so much of his first year of life very hungry). Any advice on making things easier for him tonight and tomorrow? Thanks, Mom to Gabe, age 4 Sam, 18 months All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 On Thursday, October 17, 2002, at 09:38 AM, Schreiner wrote: > The no food or drink after midnight rule will be very hard on Sam as > well; > his nighttime bottles of water are a major comfort for him, and he > still > throws a major fit if he gets just a little bit hungry (I'm sure > because he > spent so much of his first year of life very hungry). > > Any advice on making things easier for him tonight and tomorrow? > ================ Hi , My best advice, having been through several sedated ABRs with my two HI boys, is to be comforting to Sam, but have a lot of quiet mental resolve. Yes, it's hard to see your little one so unhappy and not be able to console him with exactly what he wants, but if you put it into perspective, it's really for one day, and the long-term benefit is more than worth it. Of course you can't explain that to him, but keep that in your head, and it will at least help you through the day. And if you're calm and comforting, he'll be just fine through it. I will never forget Ben's ABR and horrific real ear measurament at 3 months of age, nor a couple of 's sedated ABRs when he just had more will than the sedation they gave him. NOT fun days! But when you get through those tough first ones, future evals become a piece of cake. When Ben, who's almost 8 now, did his first pure-tone test by raising his hand a couple of years ago, I just beamed and realized how far we'd come since those first few miserable times in the sound booth. Best of luck to you guys...you'll get through tomorrow just fine, and just keep focusing on the future. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 On Thursday, October 17, 2002, at 09:38 AM, Schreiner wrote: > The no food or drink after midnight rule will be very hard on Sam as > well; > his nighttime bottles of water are a major comfort for him, and he > still > throws a major fit if he gets just a little bit hungry (I'm sure > because he > spent so much of his first year of life very hungry). > > Any advice on making things easier for him tonight and tomorrow? > ================ Hi , My best advice, having been through several sedated ABRs with my two HI boys, is to be comforting to Sam, but have a lot of quiet mental resolve. Yes, it's hard to see your little one so unhappy and not be able to console him with exactly what he wants, but if you put it into perspective, it's really for one day, and the long-term benefit is more than worth it. Of course you can't explain that to him, but keep that in your head, and it will at least help you through the day. And if you're calm and comforting, he'll be just fine through it. I will never forget Ben's ABR and horrific real ear measurament at 3 months of age, nor a couple of 's sedated ABRs when he just had more will than the sedation they gave him. NOT fun days! But when you get through those tough first ones, future evals become a piece of cake. When Ben, who's almost 8 now, did his first pure-tone test by raising his hand a couple of years ago, I just beamed and realized how far we'd come since those first few miserable times in the sound booth. Best of luck to you guys...you'll get through tomorrow just fine, and just keep focusing on the future. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 & Cyndi- Thank you for all the wonderful advice! We will certainly keep Sam awake as long as possible. We'll need to leave our house at about 7:30am, so I'm hoping he'll stay asleep and we can transfer him, in jammies, to the car. My mom is going to take our 4 year old tonight, because he has a very hard time seeing/hearing his brother upset, and I suspect Sam's going to be pretty mad come 3Am when he wants a bottle of water! I'm hoping this goes better than his EEG earlier this year. That was terrible because he had to be sleep-deprived, and it took forever to put all those electrodes on his head. They had to eventually cocoon him to keep him from pulling them off. He was so upset during that test that he vomitted on me twice. I am very glad that we should have some answers tomorrow morning; I never would have known to ask for this test, if not for this list. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 & Cyndi- Thank you for all the wonderful advice! We will certainly keep Sam awake as long as possible. We'll need to leave our house at about 7:30am, so I'm hoping he'll stay asleep and we can transfer him, in jammies, to the car. My mom is going to take our 4 year old tonight, because he has a very hard time seeing/hearing his brother upset, and I suspect Sam's going to be pretty mad come 3Am when he wants a bottle of water! I'm hoping this goes better than his EEG earlier this year. That was terrible because he had to be sleep-deprived, and it took forever to put all those electrodes on his head. They had to eventually cocoon him to keep him from pulling them off. He was so upset during that test that he vomitted on me twice. I am very glad that we should have some answers tomorrow morning; I never would have known to ask for this test, if not for this list. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 & Cyndi- Thank you for all the wonderful advice! We will certainly keep Sam awake as long as possible. We'll need to leave our house at about 7:30am, so I'm hoping he'll stay asleep and we can transfer him, in jammies, to the car. My mom is going to take our 4 year old tonight, because he has a very hard time seeing/hearing his brother upset, and I suspect Sam's going to be pretty mad come 3Am when he wants a bottle of water! I'm hoping this goes better than his EEG earlier this year. That was terrible because he had to be sleep-deprived, and it took forever to put all those electrodes on his head. They had to eventually cocoon him to keep him from pulling them off. He was so upset during that test that he vomitted on me twice. I am very glad that we should have some answers tomorrow morning; I never would have known to ask for this test, if not for this list. Thank you! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.