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I hope this is appropriate.

My name is Shaila Abdullah. I am an author and my upcoming literary novel is

based on a

widow's journey whose child has CHARGE syndrome. My closest association with

this

syndrome is the research my sister, a geneticist at Baylor, is conducting. I

must say, I

admire you all for your strength and the sacrifices you make on a daily basis to

make lives

better for your children. This mother's day, my salute to you all.

I am interested in talking to someone who is interested in sharing their journey

from

pregnancy to at least 6 years of their child's age. Please email me and let me

know of your

interest. I will credit you in the acknowledgment section of the book.

Looking forward to talking to you. Thanks so much.

Shaila Abdullah

http://www.shailaabdullah.com

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