Re: Sleep Study

[Guest guest]

e,

Do not hesitate to get a second opinion. Also if there is a children's hospital near you maybe they can evaluate Abbey or at least her ENT could consult with them. It helps to have someone with pediatric knowledge consulted in these cases.

-----Original Message----- Sent: Monday, January 13, 2003 8:17 PMTo: Mito Subject: Re: Sleep Studye:Thank you for sharing. My daughter seems to sustain 92% for the most part (during sleep) but she will dip down to 84% a couple of times. An alarm goes off at the hospital which jostles her a bit and she seems to come back up but sometimes she just comes up to 88% and stays there awhile. The ENT says that her palette isn't curved down enough, or something like that (my husdand spoke with him) so I am hoping to hear tomorrow what we are going to do about all of this. There was mention about tubes being placed in her nose or positive air pressure but the ENT doesn't see many children with this problem so he wants to talk to the ped first. I get so scared in the hands of inexperienced doctors when dealing with stuff like this.e, mom to Abby 10 mos.> e, Chelsea has been on 0.3lph of oxygen at nite since her first > aspiration pneumonia. This is all she needs to help her maintain optimal > blood/oxygen levels. Actually, her levels are much more stable now, than a > few years ago. She has had a few sleep studies, each showing a small > improvement. Her first showed both central and obstructive apneas with > multiple desaturation into 80%'s. The most recent only showed obstructive and > her lowest O2 reading was 92%. She has also had ENT evals. and is followed by > a pulmonologist, who feel her soft palette is the obstruction. If her apnea > ever worsens, she will probably get a Bi-PAP or C-PAP.> We give her more O2 during illness, as she needs, and during cyanosis with > her seizures.> > Krisitne, Chelsea's mom(nonspecific mito)Please contact mito-owner with any problems or questions.