Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sandy, well, since I don't sleep anyway, I guess being on my back won't make a difference.LOL I've had a pretty rotten week and last night just was about all I could take. I almost went to the ER just to get them to knock me out. Today is much better. I had terrible headaches and all over pain. I blamed it on the metho, but I think the fibro had alot to do with it. Yes, It's fibro season huh? My rheummy said the metho sets off fibro flares. Boy is that an understatement.LOL I hope you are feeling better than last week. I don't know how you do it with all of the toxic meds that you are on. I guess I'm just a whimp.LOL I'm glad you are out of the hospital and hope you stay out. You will be getting your results from sleep study about the same time I go in for mine. I will get my results a week later. Stay as well as you can, hope to see you at chat tomorrow. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 , I was not aware that Metho caused Fibro to flare. No wonder mine has been so bad. My muscles feel like they are on fire. Did your Rheumy say why this happens? Do you ever feel like your in a no win situation? Love & Hugs, Sandy Yes, It's > fibro season huh? My rheummy said the metho sets off fibro flares. Boy is > that an understatement.LOL > > I hope you are feeling better than last week. I don't know how you do it > with all of the toxic meds that you are on. I guess I'm just a whimp.LOL > > I'm glad you are out of the hospital and hope you stay out. You will be > getting your results from sleep study about the same time I go in for mine. > I will get my results a week later. > > Stay as well as you can, hope to see you at chat tomorrow. > > Hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 , I was not aware that Metho caused Fibro to flare. No wonder mine has been so bad. My muscles feel like they are on fire. Did your Rheumy say why this happens? Do you ever feel like your in a no win situation? Love & Hugs, Sandy Yes, It's > fibro season huh? My rheummy said the metho sets off fibro flares. Boy is > that an understatement.LOL > > I hope you are feeling better than last week. I don't know how you do it > with all of the toxic meds that you are on. I guess I'm just a whimp.LOL > > I'm glad you are out of the hospital and hope you stay out. You will be > getting your results from sleep study about the same time I go in for mine. > I will get my results a week later. > > Stay as well as you can, hope to see you at chat tomorrow. > > Hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 , I was not aware that Metho caused Fibro to flare. No wonder mine has been so bad. My muscles feel like they are on fire. Did your Rheumy say why this happens? Do you ever feel like your in a no win situation? Love & Hugs, Sandy Yes, It's > fibro season huh? My rheummy said the metho sets off fibro flares. Boy is > that an understatement.LOL > > I hope you are feeling better than last week. I don't know how you do it > with all of the toxic meds that you are on. I guess I'm just a whimp.LOL > > I'm glad you are out of the hospital and hope you stay out. You will be > getting your results from sleep study about the same time I go in for mine. > I will get my results a week later. > > Stay as well as you can, hope to see you at chat tomorrow. > > Hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 June, -Sorry your having such a rough time June. This weakness is so hard to deal with. The handrail is a good idea. I usually hold on to the wall to get me where I'm going. I'm thankful I live in a ranch home with no steps, otherwise I don't know how I would get around. I do the same thing when I cook, do a little, rest a little. Takes me forever to do something. LOL Let me know how you make out at the pain clinic. BTW, so glad to see you posting again. Hugs, Sandy > Hi Sandy! I read your message and want you to know I am going thro' the same > thing you are, real weak in the legs can't stant too long had to have a > handrail built this summer because of the weakness I feel EVERYDAY, real > tired, just walking to the kitchen and trying to cook is real bad, have to > keep sitting down. The chest pains are unreal, I have to go to ER, we moved > and bought a house almost across the street from Alaska Regional Hospital. > The pain is coming from the polychondritis that is in the chest area. This > ugly disease is so painful at times I wonder what it is like to feel good > for one day anymore. Tomorrow I am going to the PAIN CLINIC because there > is nothing they can do for me, I have had 23 Otho surgeries so far and have > both hip replacements done, back is full of bars and rods, also my neck!!! I > am a walking time machine, I set all the buzzers off at the airport if I > have to travel........this is all from over 20yrs of STEROID use, my teeth > have fallen out from medication, have to wear dentures, I could write a book > and am seriously thinking about it, My Medical doc and Orthopedic doc said > they would write a chapter each for me..I am probably going to get started > this winter, as you know our so called ALASKAN winters here are so cold and > long. I will keep in touch with you I feel so bad the way you are feeling > and will Pray for you I do alot of that. I was on meth shots in the stomach > for almost a year and was real sick from that treatment and will refuse it .. > I By the way I also had to have my total house Handicap assessable to keep > from falling down, Listen to me going on and on like this. Later now, June > in Alaska> > out > > > > > > > > > DISCLAIMER!! > > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS > > RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR > > BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR > > PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND > > TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > > > > > > > > > > DISCLAIMER!! > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS > RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR > BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR > PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND > TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 June, -Sorry your having such a rough time June. This weakness is so hard to deal with. The handrail is a good idea. I usually hold on to the wall to get me where I'm going. I'm thankful I live in a ranch home with no steps, otherwise I don't know how I would get around. I do the same thing when I cook, do a little, rest a little. Takes me forever to do something. LOL Let me know how you make out at the pain clinic. BTW, so glad to see you posting again. Hugs, Sandy > Hi Sandy! I read your message and want you to know I am going thro' the same > thing you are, real weak in the legs can't stant too long had to have a > handrail built this summer because of the weakness I feel EVERYDAY, real > tired, just walking to the kitchen and trying to cook is real bad, have to > keep sitting down. The chest pains are unreal, I have to go to ER, we moved > and bought a house almost across the street from Alaska Regional Hospital. > The pain is coming from the polychondritis that is in the chest area. This > ugly disease is so painful at times I wonder what it is like to feel good > for one day anymore. Tomorrow I am going to the PAIN CLINIC because there > is nothing they can do for me, I have had 23 Otho surgeries so far and have > both hip replacements done, back is full of bars and rods, also my neck!!! I > am a walking time machine, I set all the buzzers off at the airport if I > have to travel........this is all from over 20yrs of STEROID use, my teeth > have fallen out from medication, have to wear dentures, I could write a book > and am seriously thinking about it, My Medical doc and Orthopedic doc said > they would write a chapter each for me..I am probably going to get started > this winter, as you know our so called ALASKAN winters here are so cold and > long. I will keep in touch with you I feel so bad the way you are feeling > and will Pray for you I do alot of that. I was on meth shots in the stomach > for almost a year and was real sick from that treatment and will refuse it .. > I By the way I also had to have my total house Handicap assessable to keep > from falling down, Listen to me going on and on like this. Later now, June > in Alaska> > out > > > > > > > > > DISCLAIMER!! > > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS > > RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR > > BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR > > PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND > > TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > > > > > > > > > > DISCLAIMER!! > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS > RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR > BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR > PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND > TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 June, -Sorry your having such a rough time June. This weakness is so hard to deal with. The handrail is a good idea. I usually hold on to the wall to get me where I'm going. I'm thankful I live in a ranch home with no steps, otherwise I don't know how I would get around. I do the same thing when I cook, do a little, rest a little. Takes me forever to do something. LOL Let me know how you make out at the pain clinic. BTW, so glad to see you posting again. Hugs, Sandy > Hi Sandy! I read your message and want you to know I am going thro' the same > thing you are, real weak in the legs can't stant too long had to have a > handrail built this summer because of the weakness I feel EVERYDAY, real > tired, just walking to the kitchen and trying to cook is real bad, have to > keep sitting down. The chest pains are unreal, I have to go to ER, we moved > and bought a house almost across the street from Alaska Regional Hospital. > The pain is coming from the polychondritis that is in the chest area. This > ugly disease is so painful at times I wonder what it is like to feel good > for one day anymore. Tomorrow I am going to the PAIN CLINIC because there > is nothing they can do for me, I have had 23 Otho surgeries so far and have > both hip replacements done, back is full of bars and rods, also my neck!!! I > am a walking time machine, I set all the buzzers off at the airport if I > have to travel........this is all from over 20yrs of STEROID use, my teeth > have fallen out from medication, have to wear dentures, I could write a book > and am seriously thinking about it, My Medical doc and Orthopedic doc said > they would write a chapter each for me..I am probably going to get started > this winter, as you know our so called ALASKAN winters here are so cold and > long. I will keep in touch with you I feel so bad the way you are feeling > and will Pray for you I do alot of that. I was on meth shots in the stomach > for almost a year and was real sick from that treatment and will refuse it .. > I By the way I also had to have my total house Handicap assessable to keep > from falling down, Listen to me going on and on like this. Later now, June > in Alaska> > out > > > > > > > > > DISCLAIMER!! > > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS > > RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR > > BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR > > PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND > > TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > > > > > > > > > > DISCLAIMER!! > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS > RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR > BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR > PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND > TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 , I agree with Rich, if you can, get yourself a wheelchair. It has made a big difference in my life. My family would go to the mall etc. and I would have to stay home, but not anymore. I keep my chair in the trunk so I always have it with me. I was able to get a decent used chair, it's not fancy but gets me where I'm going. Hugs, Sandy ----- Original Message ----- > > Rich wants me to give in and get a wheel chair. (Not for the mail)LOL I > know I could enjoy more, but I'm just being stubborn. I'm seriouly > considering it now. Not for all the time, just when there are things that we > want to do and require alot of walking. > > I won't even try those carts at the store, afraid that I'd knock down all the > displays.LOL > > Sandy, I know there is hope and that things will get better, I'm just > impatient. I don't feel depressed, just frustrated. I guess I just want > definate answers as to what is what and that is asking for the impossible. > > Take care Sandy, You are always in my thoughts. Hope to talk to you at chat > tomorrow. It's been a long time and I'm ready to hear all of your wonderful > voices. It just makes my day. AND I love to laugh!!!!! That's the best > part. > > Have a good evening. > > Lots of hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 , I agree with Rich, if you can, get yourself a wheelchair. It has made a big difference in my life. My family would go to the mall etc. and I would have to stay home, but not anymore. I keep my chair in the trunk so I always have it with me. I was able to get a decent used chair, it's not fancy but gets me where I'm going. Hugs, Sandy ----- Original Message ----- > > Rich wants me to give in and get a wheel chair. (Not for the mail)LOL I > know I could enjoy more, but I'm just being stubborn. I'm seriouly > considering it now. Not for all the time, just when there are things that we > want to do and require alot of walking. > > I won't even try those carts at the store, afraid that I'd knock down all the > displays.LOL > > Sandy, I know there is hope and that things will get better, I'm just > impatient. I don't feel depressed, just frustrated. I guess I just want > definate answers as to what is what and that is asking for the impossible. > > Take care Sandy, You are always in my thoughts. Hope to talk to you at chat > tomorrow. It's been a long time and I'm ready to hear all of your wonderful > voices. It just makes my day. AND I love to laugh!!!!! That's the best > part. > > Have a good evening. > > Lots of hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 , I agree with Rich, if you can, get yourself a wheelchair. It has made a big difference in my life. My family would go to the mall etc. and I would have to stay home, but not anymore. I keep my chair in the trunk so I always have it with me. I was able to get a decent used chair, it's not fancy but gets me where I'm going. Hugs, Sandy ----- Original Message ----- > > Rich wants me to give in and get a wheel chair. (Not for the mail)LOL I > know I could enjoy more, but I'm just being stubborn. I'm seriouly > considering it now. Not for all the time, just when there are things that we > want to do and require alot of walking. > > I won't even try those carts at the store, afraid that I'd knock down all the > displays.LOL > > Sandy, I know there is hope and that things will get better, I'm just > impatient. I don't feel depressed, just frustrated. I guess I just want > definate answers as to what is what and that is asking for the impossible. > > Take care Sandy, You are always in my thoughts. Hope to talk to you at chat > tomorrow. It's been a long time and I'm ready to hear all of your wonderful > voices. It just makes my day. AND I love to laugh!!!!! That's the best > part. > > Have a good evening. > > Lots of hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Sandy, I'm glad the study went OK. Please let us know the results when you know, OK? W >>>>>>>>>>>>>>>>>>>>>>>>>>> Hi All,, I'm home from my sleep study. It wasn't too bad, I'm tired though from lack of sleep. LOL It's a little hard to sleep with all the wires that are attatched to you. Plus they ask you to try and sleep on your back which I cannot do. I think I was up half the night concentrating on not rolling over on my side. Hugs, Sandy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Sandy, I'm glad the study went OK. Please let us know the results when you know, OK? W >>>>>>>>>>>>>>>>>>>>>>>>>>> Hi All,, I'm home from my sleep study. It wasn't too bad, I'm tired though from lack of sleep. LOL It's a little hard to sleep with all the wires that are attatched to you. Plus they ask you to try and sleep on your back which I cannot do. I think I was up half the night concentrating on not rolling over on my side. Hugs, Sandy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Sandy, I'm glad the study went OK. Please let us know the results when you know, OK? W >>>>>>>>>>>>>>>>>>>>>>>>>>> Hi All,, I'm home from my sleep study. It wasn't too bad, I'm tired though from lack of sleep. LOL It's a little hard to sleep with all the wires that are attatched to you. Plus they ask you to try and sleep on your back which I cannot do. I think I was up half the night concentrating on not rolling over on my side. Hugs, Sandy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2000 Report Share Posted October 28, 2000 In a message dated 10/28/00 10:57:15 PM Pacific Daylight Time, rpawareness@... writes: << swallowing the pride is the hardest thing in the world for me to do. I still haven't learned how to admit I can't do something anylonger and ask for help, and it makes me so frustrated and angry at myself mostly. but it is a character flaw of mine too damn independent. >> Angie, seems like we both have the same character flaw.LOL I hope you are doing better. Think of you all the time. Boy, I wish I was as creative as the rest of you. I use to do alot of things, but not much any more, and it was a real struggle for me to find my creative ability.LOL Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2000 Report Share Posted October 28, 2000 In a message dated 10/28/00 10:57:15 PM Pacific Daylight Time, rpawareness@... writes: << swallowing the pride is the hardest thing in the world for me to do. I still haven't learned how to admit I can't do something anylonger and ask for help, and it makes me so frustrated and angry at myself mostly. but it is a character flaw of mine too damn independent. >> Angie, seems like we both have the same character flaw.LOL I hope you are doing better. Think of you all the time. Boy, I wish I was as creative as the rest of you. I use to do alot of things, but not much any more, and it was a real struggle for me to find my creative ability.LOL Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2000 Report Share Posted October 28, 2000 In a message dated 10/28/00 10:57:15 PM Pacific Daylight Time, rpawareness@... writes: << swallowing the pride is the hardest thing in the world for me to do. I still haven't learned how to admit I can't do something anylonger and ask for help, and it makes me so frustrated and angry at myself mostly. but it is a character flaw of mine too damn independent. >> Angie, seems like we both have the same character flaw.LOL I hope you are doing better. Think of you all the time. Boy, I wish I was as creative as the rest of you. I use to do alot of things, but not much any more, and it was a real struggle for me to find my creative ability.LOL Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2000 Report Share Posted October 28, 2000 In a message dated 10/25/2000 12:11:09 PM Eastern Daylight Time, wankel@... writes: << Do what you have to do to enjoy life. Sometimes we have to swallow our pride. >> swallowing the pride is the hardest thing in the world for me to do. I still haven't learned how to admit I can't do something anylonger and ask for help, and it makes me so frustrated and angry at myself mostly. but it is a character flaw of mine too damn independent. love, hugs and hope Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2000 Report Share Posted October 28, 2000 In a message dated 10/25/2000 12:11:09 PM Eastern Daylight Time, wankel@... writes: << Do what you have to do to enjoy life. Sometimes we have to swallow our pride. >> swallowing the pride is the hardest thing in the world for me to do. I still haven't learned how to admit I can't do something anylonger and ask for help, and it makes me so frustrated and angry at myself mostly. but it is a character flaw of mine too damn independent. love, hugs and hope Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Have any of you heard of Paradoxical breathing? in my medical dictionary...pardoxical means..."not being normal" paradoxical sleep says it is REM sleep... deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 My daughter also has sleep apnea. What did they do for your daughter to help with it? e, mom to Abby 10 mos. > In a message dated 1/10/03 4:06:33 PM Eastern Standard Time, > sbube@c... writes: > > > > Have any of you heard of Paradoxical breathing? > > Sue Ann, Chelsea has this. In fact, it was the first things her pulmonologist > noticed about her. She was sleeping when he first saw her, and pointed out > that her abdomen rose and her chest caved in on the in breath, and then her > chest went up on the exhale. He called it paradoxic breathing and said it was > a likely sign of sleep apnea. She was later dx'd with sleep apnea via sleep > study. > > e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 e, Chelsea has been on 0.3lph of oxygen at nite since her first aspiration pneumonia. This is all she needs to help her maintain optimal blood/oxygen levels. Actually, her levels are much more stable now, than a few years ago. She has had a few sleep studies, each showing a small improvement. Her first showed both central and obstructive apneas with multiple desaturation into 80%'s. The most recent only showed obstructive and her lowest O2 reading was 92%. She has also had ENT evals. and is followed by a pulmonologist, who feel her soft palette is the obstruction. If her apnea ever worsens, she will probably get a Bi-PAP or C-PAP. We give her more O2 during illness, as she needs, and during cyanosis with her seizures. Krisitne, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 e, Chelsea has been on 0.3lph of oxygen at nite since her first aspiration pneumonia. This is all she needs to help her maintain optimal blood/oxygen levels. Actually, her levels are much more stable now, than a few years ago. She has had a few sleep studies, each showing a small improvement. Her first showed both central and obstructive apneas with multiple desaturation into 80%'s. The most recent only showed obstructive and her lowest O2 reading was 92%. She has also had ENT evals. and is followed by a pulmonologist, who feel her soft palette is the obstruction. If her apnea ever worsens, she will probably get a Bi-PAP or C-PAP. We give her more O2 during illness, as she needs, and during cyanosis with her seizures. Krisitne, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 e, Chelsea has been on 0.3lph of oxygen at nite since her first aspiration pneumonia. This is all she needs to help her maintain optimal blood/oxygen levels. Actually, her levels are much more stable now, than a few years ago. She has had a few sleep studies, each showing a small improvement. Her first showed both central and obstructive apneas with multiple desaturation into 80%'s. The most recent only showed obstructive and her lowest O2 reading was 92%. She has also had ENT evals. and is followed by a pulmonologist, who feel her soft palette is the obstruction. If her apnea ever worsens, she will probably get a Bi-PAP or C-PAP. We give her more O2 during illness, as she needs, and during cyanosis with her seizures. Krisitne, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 e: Thank you for sharing. My daughter seems to sustain 92% for the most part (during sleep) but she will dip down to 84% a couple of times. An alarm goes off at the hospital which jostles her a bit and she seems to come back up but sometimes she just comes up to 88% and stays there awhile. The ENT says that her palette isn't curved down enough, or something like that (my husdand spoke with him) so I am hoping to hear tomorrow what we are going to do about all of this. There was mention about tubes being placed in her nose or positive air pressure but the ENT doesn't see many children with this problem so he wants to talk to the ped first. I get so scared in the hands of inexperienced doctors when dealing with stuff like this. e, mom to Abby 10 mos. > e, Chelsea has been on 0.3lph of oxygen at nite since her first > aspiration pneumonia. This is all she needs to help her maintain optimal > blood/oxygen levels. Actually, her levels are much more stable now, than a > few years ago. She has had a few sleep studies, each showing a small > improvement. Her first showed both central and obstructive apneas with > multiple desaturation into 80%'s. The most recent only showed obstructive and > her lowest O2 reading was 92%. She has also had ENT evals. and is followed by > a pulmonologist, who feel her soft palette is the obstruction. If her apnea > ever worsens, she will probably get a Bi-PAP or C-PAP. > We give her more O2 during illness, as she needs, and during cyanosis with > her seizures. > > Krisitne, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 e, That sound pretty much like what I see with Chelsea. She had so many dips in the hospital, she was sent home with a monitor and oxygen and suction machine. Needless to say, I had a crash course in how to use the new equipment! Fortunatly, the low dose of oxygen is all she needs to help her maintain a proper blood level. Suctioning helps if secretions are blocking her airway, but that has become much less of a problem, fortunatly. You could discuss with her drs if a low dose of oxygen is an option or not. But necessity will probably need to be proved via sleep study, or as in Chelsea's case, documentation from a hospital stay. e, Chelsea's mom(non specific mito) Quote Link to comment Share on other sites More sharing options...
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