Re: Can Anyone Else Relate ?

[Guest guest]

a-

It is my understanding through my education that many people with Auditory

Neuropathy experience a hearing loss when a fever and other physical

conditions are present. I know that A.N. is finally begininning to be

studied in-depth and that the answers will come, however since this

diagnosis is relatively new there is limited information about it. I have

heard that children with A.N. sometimes do well with Cochlear Implants as

opposed to hearing aids...but not all. Before becoming a candidate they need

to wear HA's for at least 6 months. I hope that the answers come soon for

you and wish I could be more helpful.

Colin P.

_________________________________________________________________

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[Guest guest]

a-

It is my understanding through my education that many people with Auditory

Neuropathy experience a hearing loss when a fever and other physical

conditions are present. I know that A.N. is finally begininning to be

studied in-depth and that the answers will come, however since this

diagnosis is relatively new there is limited information about it. I have

heard that children with A.N. sometimes do well with Cochlear Implants as

opposed to hearing aids...but not all. Before becoming a candidate they need

to wear HA's for at least 6 months. I hope that the answers come soon for

you and wish I could be more helpful.

Colin P.

_________________________________________________________________

Help STOP SPAM with the new MSN 8 and get 2 months FREE*

http://join.msn.com/?page=features/junkmail

[Guest guest]

a-

It is my understanding through my education that many people with Auditory

Neuropathy experience a hearing loss when a fever and other physical

conditions are present. I know that A.N. is finally begininning to be

studied in-depth and that the answers will come, however since this

diagnosis is relatively new there is limited information about it. I have

heard that children with A.N. sometimes do well with Cochlear Implants as

opposed to hearing aids...but not all. Before becoming a candidate they need

to wear HA's for at least 6 months. I hope that the answers come soon for

you and wish I could be more helpful.

Colin P.

_________________________________________________________________

Help STOP SPAM with the new MSN 8 and get 2 months FREE*

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[Guest guest]

a,

Although my son doesn't have the fluctuations that your daughter has (his loss

is slowly progressive due to EVAS), we have had to postpone audiograms when he's

been ill. Any fluid in the ear can affect the testing, even in a child who does

not have hearing loss. Our audiologists always perform a tympanogram before any

other testing for this reason. If there is no " spike " , there is no audiogram

that day. My hearing daughter " failed " a school screening once and we were

required to have her tested by the doctor. We later determined that she was

recovering from a cold when the screening was done. Our pediatrician (and other

sources) state that fluid from colds or allergies can persist up to 3 months (or

longer) in the ear canal following an upper respiratory illness or ear

infection.

Because I am not a doctor or an audiologist, I would never try to second-guess

the diagnosis of AN which your daughter has received. However, if there is any

doubt in your mind, you should definitely ask ask your ENT to more fully explain

his/her findings. A second opinion may also be in order.

Carol - mom to , 6.9, mod to profound, EVAS

[Guest guest]

a,

Although my son doesn't have the fluctuations that your daughter has (his loss

is slowly progressive due to EVAS), we have had to postpone audiograms when he's

been ill. Any fluid in the ear can affect the testing, even in a child who does

not have hearing loss. Our audiologists always perform a tympanogram before any

other testing for this reason. If there is no " spike " , there is no audiogram

that day. My hearing daughter " failed " a school screening once and we were

required to have her tested by the doctor. We later determined that she was

recovering from a cold when the screening was done. Our pediatrician (and other

sources) state that fluid from colds or allergies can persist up to 3 months (or

longer) in the ear canal following an upper respiratory illness or ear

infection.

Because I am not a doctor or an audiologist, I would never try to second-guess

the diagnosis of AN which your daughter has received. However, if there is any

doubt in your mind, you should definitely ask ask your ENT to more fully explain

his/her findings. A second opinion may also be in order.

Carol - mom to , 6.9, mod to profound, EVAS

[Guest guest]

a,

Although my son doesn't have the fluctuations that your daughter has (his loss

is slowly progressive due to EVAS), we have had to postpone audiograms when he's

been ill. Any fluid in the ear can affect the testing, even in a child who does

not have hearing loss. Our audiologists always perform a tympanogram before any

other testing for this reason. If there is no " spike " , there is no audiogram

that day. My hearing daughter " failed " a school screening once and we were

required to have her tested by the doctor. We later determined that she was

recovering from a cold when the screening was done. Our pediatrician (and other

sources) state that fluid from colds or allergies can persist up to 3 months (or

longer) in the ear canal following an upper respiratory illness or ear

infection.

Because I am not a doctor or an audiologist, I would never try to second-guess

the diagnosis of AN which your daughter has received. However, if there is any

doubt in your mind, you should definitely ask ask your ENT to more fully explain

his/her findings. A second opinion may also be in order.

Carol - mom to , 6.9, mod to profound, EVAS

[Guest guest]

Colin,

Thanks for your reply. I too wish there was more informatin out

there on AN. It's like the professionals have enough information to

give you a diagnosis but not enough to answer all the questions that

go along with the diagnosis.

About the HA verses CI, she is not a candidate for a CI. She has way

to much hearing and comprehension.. She does have HA's but I don't

push her to wear them because she doesn't need to. We don't use sign

or cued speech. It's like the only time she needs a CI/HA is when

she gets sick, then and only then does she show a HL.

It's like earlier in the week (befor antibiotics) I would say

applesauce and she would say bicycle.. No hearing and no

comprehension. I'd have to hollow loud and the TV would have to be

loud and there wasn't comprehension. After antibiotics she is

hearing, comprehending, singing songs. This morning she said me and

brother are going to the toy room and have a birthday party, do you

want to come........... Thank God for antibiotics....

a

> a-

> It is my understanding through my education that many people with

Auditory

> Neuropathy experience a hearing loss when a fever and other

physical

> conditions are present. I know that A.N. is finally begininning to

be

> studied in-depth and that the answers will come, however since this

> diagnosis is relatively new there is limited information about it.

I have

> heard that children with A.N. sometimes do well with Cochlear

Implants as

> opposed to hearing aids...but not all. Before becoming a candidate

they need

> to wear HA's for at least 6 months. I hope that the answers come

soon for

> you and wish I could be more helpful.

> Colin P.

>

>

>

>

>

> _________________________________________________________________

> Help STOP SPAM with the new MSN 8 and get 2 months FREE*

> http://join.msn.com/?page=features/junkmail

[Guest guest]

Colin,

Thanks for your reply. I too wish there was more informatin out

there on AN. It's like the professionals have enough information to

give you a diagnosis but not enough to answer all the questions that

go along with the diagnosis.

About the HA verses CI, she is not a candidate for a CI. She has way

to much hearing and comprehension.. She does have HA's but I don't

push her to wear them because she doesn't need to. We don't use sign

or cued speech. It's like the only time she needs a CI/HA is when

she gets sick, then and only then does she show a HL.

It's like earlier in the week (befor antibiotics) I would say

applesauce and she would say bicycle.. No hearing and no

comprehension. I'd have to hollow loud and the TV would have to be

loud and there wasn't comprehension. After antibiotics she is

hearing, comprehending, singing songs. This morning she said me and

brother are going to the toy room and have a birthday party, do you

want to come........... Thank God for antibiotics....

a

> a-

> It is my understanding through my education that many people with

Auditory

> Neuropathy experience a hearing loss when a fever and other

physical

> conditions are present. I know that A.N. is finally begininning to

be

> studied in-depth and that the answers will come, however since this

> diagnosis is relatively new there is limited information about it.

I have

> heard that children with A.N. sometimes do well with Cochlear

Implants as

> opposed to hearing aids...but not all. Before becoming a candidate

they need

> to wear HA's for at least 6 months. I hope that the answers come

soon for

> you and wish I could be more helpful.

> Colin P.

>

>

>

>

>

> _________________________________________________________________

> Help STOP SPAM with the new MSN 8 and get 2 months FREE*

> http://join.msn.com/?page=features/junkmail

[Guest guest]

Colin,

Thanks for your reply. I too wish there was more informatin out

there on AN. It's like the professionals have enough information to

give you a diagnosis but not enough to answer all the questions that

go along with the diagnosis.

About the HA verses CI, she is not a candidate for a CI. She has way

to much hearing and comprehension.. She does have HA's but I don't

push her to wear them because she doesn't need to. We don't use sign

or cued speech. It's like the only time she needs a CI/HA is when

she gets sick, then and only then does she show a HL.

It's like earlier in the week (befor antibiotics) I would say

applesauce and she would say bicycle.. No hearing and no

comprehension. I'd have to hollow loud and the TV would have to be

loud and there wasn't comprehension. After antibiotics she is

hearing, comprehending, singing songs. This morning she said me and

brother are going to the toy room and have a birthday party, do you

want to come........... Thank God for antibiotics....

a

> a-

> It is my understanding through my education that many people with

Auditory

> Neuropathy experience a hearing loss when a fever and other

physical

> conditions are present. I know that A.N. is finally begininning to

be

> studied in-depth and that the answers will come, however since this

> diagnosis is relatively new there is limited information about it.

I have

> heard that children with A.N. sometimes do well with Cochlear

Implants as

> opposed to hearing aids...but not all. Before becoming a candidate

they need

> to wear HA's for at least 6 months. I hope that the answers come

soon for

> you and wish I could be more helpful.

> Colin P.

>

>

>

>

>

> _________________________________________________________________

> Help STOP SPAM with the new MSN 8 and get 2 months FREE*

> http://join.msn.com/?page=features/junkmail

[Guest guest]

Hi Carol,

This diagnosis is so confusing. There was no response on her ABR,

presenting a profoundly deaf child. The booth tests are 20 to 40 dB

HL. But, I don't see the HL until she gets sick other than she has a

hard time hearing me in another room. I have to get loud when

talking to her from another room. I want to run out and get

antibiotics right away when she is sick. Eventually, the

pediatrician will think this is in my head and not prescribe them.

However, both times she had a HL she had fluid on the ears making it

okay for the prescription.

a

> a,

>

> Although my son doesn't have the fluctuations that your daughter

has (his loss is slowly progressive due to EVAS), we have had to

postpone audiograms when he's been ill. Any fluid in the ear can

affect the testing, even in a child who does not have hearing loss.

Our audiologists always perform a tympanogram before any other

testing for this reason. If there is no " spike " , there is no

audiogram that day. My hearing daughter " failed " a school screening

once and we were required to have her tested by the doctor. We later

determined that she was recovering from a cold when the screening was

done. Our pediatrician (and other sources) state that fluid from

colds or allergies can persist up to 3 months (or longer) in the ear

canal following an upper respiratory illness or ear infection.

>

> Because I am not a doctor or an audiologist, I would never try to

second-guess the diagnosis of AN which your daughter has received.

However, if there is any doubt in your mind, you should definitely

ask ask your ENT to more fully explain his/her findings. A second

opinion may also be in order.

>

> Carol - mom to , 6.9, mod to profound, EVAS

>

>

>

>

>

>

[Guest guest]

Hi Carol,

This diagnosis is so confusing. There was no response on her ABR,

presenting a profoundly deaf child. The booth tests are 20 to 40 dB

HL. But, I don't see the HL until she gets sick other than she has a

hard time hearing me in another room. I have to get loud when

talking to her from another room. I want to run out and get

antibiotics right away when she is sick. Eventually, the

pediatrician will think this is in my head and not prescribe them.

However, both times she had a HL she had fluid on the ears making it

okay for the prescription.

a

> a,

>

> Although my son doesn't have the fluctuations that your daughter

has (his loss is slowly progressive due to EVAS), we have had to

postpone audiograms when he's been ill. Any fluid in the ear can

affect the testing, even in a child who does not have hearing loss.

Our audiologists always perform a tympanogram before any other

testing for this reason. If there is no " spike " , there is no

audiogram that day. My hearing daughter " failed " a school screening

once and we were required to have her tested by the doctor. We later

determined that she was recovering from a cold when the screening was

done. Our pediatrician (and other sources) state that fluid from

colds or allergies can persist up to 3 months (or longer) in the ear

canal following an upper respiratory illness or ear infection.

>

> Because I am not a doctor or an audiologist, I would never try to

second-guess the diagnosis of AN which your daughter has received.

However, if there is any doubt in your mind, you should definitely

ask ask your ENT to more fully explain his/her findings. A second

opinion may also be in order.

>

> Carol - mom to , 6.9, mod to profound, EVAS

>

>

>

>

>

>

[Guest guest]

> All in all she hears and comprehends unless she

> is sick.

My son's implant surgeon and I had a discussion recently that may (or may

not) be related to this. We were talking about why some children with CIs

could use a remap when there is pressure and again when the pressure clears

up (the answer is they just don't know). He mentioned that it may have

something to do with the brain not functioning as well whenever there is a

slight fever or swelling - ie, even those of us with normal hearing have

problems concentrating when we have colds. Does she show signs of decline in

other cognitive skills during colds?

Other than that, I'm afraid I haven't a clue.

Hugs,

Kay